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Colchicine / Probenecid
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Stopping colchicine after 8 months, did pericarditis or effusion come back
I’ve been on 2 colchicine a day since I was in hospital with pericarditis and an effusion December last year . My cardiologist told me to take just one a day a few weeks ago then stop it completely from tomorrow , I have to have a crp blood test anytime after august 20th and an echo scan august 31st
I’ve been on 2 colchicine a day since I was in hospital with pericarditis and an effusion December last year . My cardiologist told me to take just one a day a few weeks ago then stop it completely from tomorrow , I have to have a crp blood test anytime after august 20th and an echo scan august 31st
Westie2012
in
Arrhythmia Alliance
3 years ago
Stopping colchicine after 8 months, how did others get on ?
I’ve been on 2 colchicine a day since I was in hospital with pericarditis and an effusion December last year . My cardiologist told me to take just one a day a few weeks ago then stop it completely from tomorrow , I have to have a crp blood test anytime after august 20th and an echo scan august 31st
I’ve been on 2 colchicine a day since I was in hospital with pericarditis and an effusion December last year . My cardiologist told me to take just one a day a few weeks ago then stop it completely from tomorrow , I have to have a crp blood test anytime after august 20th and an echo scan august 31st
Westie2012
in
British Heart Foundation
3 years ago
Dental connection?
Hello everyone, wishing you all relief from the pain, courage and understanding and grace from God. This illness can really be tough!!! I have a Behcets diagnosis with extreme mouth ulcerations of some kind that now has progressed to the top of my head. I've lost all my hair in the middle, ( kinda like
Hello everyone, wishing you all relief from the pain, courage and understanding and grace from God. This illness can really be tough!!! I have a Behcets diagnosis with extreme mouth ulcerations of some kind that now has progressed to the top of my head. I've lost all my hair in the middle, ( kinda like
RaceBannon
in
Behçet's UK
3 years ago
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Gout pain relief
I have had gout for about a month. It started as usual in the big toe joint of my right foot. It was starting to go, when it appeared in my left foot too. It then appeared in my right wrist. This has swollen quite badly and the pain is the worst that I have ever had from gout. Because of my heart issues
I have had gout for about a month. It started as usual in the big toe joint of my right foot. It was starting to go, when it appeared in my left foot too. It then appeared in my right wrist. This has swollen quite badly and the pain is the worst that I have ever had from gout. Because of my heart issues
Bennydog42
in
British Heart Foundation
3 years ago
Fluid on left lung
I tested positive for covid Thursday , my gp checked me over Friday as I have been getting an achy dull pain down my left side , he said one of my lungs sounded quieter and asked if there had ever been any mention of fluid on my lung , it was mentioned a while ago but that’s all . He prescribed Clarithromycin
I tested positive for covid Thursday , my gp checked me over Friday as I have been getting an achy dull pain down my left side , he said one of my lungs sounded quieter and asked if there had ever been any mention of fluid on my lung , it was mentioned a while ago but that’s all . He prescribed Clarithromycin
Westie2012
in
Lung Conditions Community Forum
3 years ago
Pericarditis & Exercise Advice - I'm new here
Hi, I am a 26 year old male. I was admitted to Hospital with pericarditis in 2018. This was likely caused by a previous viral infection. Troponin was mildly elevated and the echocardiogram showed a bright pericardium but everything otherwise was normal. The only symptoms I have ever experienced because
Hi, I am a 26 year old male. I was admitted to Hospital with pericarditis in 2018. This was likely caused by a previous viral infection. Troponin was mildly elevated and the echocardiogram showed a bright pericardium but everything otherwise was normal. The only symptoms I have ever experienced because
flockofseagulls
in
British Heart Foundation
3 years ago
Colchicine side effects
Hi everyone. I do not have a definitive diagnosis of Bechets but have had genital ulceration since 1992 usually lasting 10-15 days, extremely painful and swollen . Mouth and nasal ulceration started in 2009. Recently I had really bad nosebleeds and the ENT specialist who cauterised my nose three times
Hi everyone. I do not have a definitive diagnosis of Bechets but have had genital ulceration since 1992 usually lasting 10-15 days, extremely painful and swollen . Mouth and nasal ulceration started in 2009. Recently I had really bad nosebleeds and the ENT specialist who cauterised my nose three times
CecilyParsley
in
Behçet's UK
3 years ago
Gutted 😞
Well my long awaited Rheumatology appointment lasted just ten minutes. I told him that my eyes, nose, mouth, skin, hair and vagina were all dry, painfully so. I told him that my nose had bled for 8 days following nasal sores that the ENT specialist believed was Bechets. I told him that my mouth, tongue
Well my long awaited Rheumatology appointment lasted just ten minutes. I told him that my eyes, nose, mouth, skin, hair and vagina were all dry, painfully so. I told him that my nose had bled for 8 days following nasal sores that the ENT specialist believed was Bechets. I told him that my mouth, tongue
CecilyParsley
in
LUPUS UK
3 years ago
Pericarditis Pfizer vaccine
I had my first Pfizer jab in Feb 2021 & blue lighted into Royal Free with suspected heart attack 6 weeks later. Consultant said it was pericarditis & was an auto-immune response to an infection in the previous 2 weeks. He said it couldn't be the jab as I'd had it more than 2 weeks previously. I have
I had my first Pfizer jab in Feb 2021 & blue lighted into Royal Free with suspected heart attack 6 weeks later. Consultant said it was pericarditis & was an auto-immune response to an infection in the previous 2 weeks. He said it couldn't be the jab as I'd had it more than 2 weeks previously. I have
Hidden
in
British Heart Foundation
3 years ago
High heart rate after ablation procedure?? I am new to this community...
I had an ablation procedure on the 25th of June. Before the procedure my heart rate without medication was periodically from 90-130. Then I was prescribed Elequis, Metoprolol and propofenone. Those medications controlled the Afib 100%. Now after the Ablation procedure I had 1 week of normal but higher
I had an ablation procedure on the 25th of June. Before the procedure my heart rate without medication was periodically from 90-130. Then I was prescribed Elequis, Metoprolol and propofenone. Those medications controlled the Afib 100%. Now after the Ablation procedure I had 1 week of normal but higher
tachy62
in
AF Association
3 years ago
Swimming after having pericarditis
I really enjoy swimming, I haven’t been since I started having cardiac symptoms , I ended up going to a&e by ambulance (in my swimsuit )🤣 as my heart started racing and it got worse from there, over the next few months my symptoms got progressively worse and 18 months later I needed a pacemaker . A
I really enjoy swimming, I haven’t been since I started having cardiac symptoms , I ended up going to a&e by ambulance (in my swimsuit )🤣 as my heart started racing and it got worse from there, over the next few months my symptoms got progressively worse and 18 months later I needed a pacemaker . A
Westie2012
in
Arrhythmia Alliance
3 years ago
Swimming after having a pacemaker fitted then getting pericarditis
I really enjoy swimming, I haven’t been since I started having cardiac symptoms , I ended up going to a&e by ambulance (in my swimsuit )🤣 as my heart started racing and it got worse from there, over the next few months my symptoms got progressively worse and 18 months later I needed a pacemaker . A
I really enjoy swimming, I haven’t been since I started having cardiac symptoms , I ended up going to a&e by ambulance (in my swimsuit )🤣 as my heart started racing and it got worse from there, over the next few months my symptoms got progressively worse and 18 months later I needed a pacemaker . A
Westie2012
in
British Heart Foundation
3 years ago
Turmeric, Colchicine & Pains
Hi all, I am including turmeric in a lot of my cooking but a lot of people online recommend taking a supplement. Does anyone do this and if so, does it seem to make a difference? I also want to make sure that I buy a decent supplement that is pure and not containing other random ingredients, so any suggestions
Hi all, I am including turmeric in a lot of my cooking but a lot of people online recommend taking a supplement. Does anyone do this and if so, does it seem to make a difference? I also want to make sure that I buy a decent supplement that is pure and not containing other random ingredients, so any suggestions
Lubyluboo
in
Behçet's UK
3 years ago
Weird post ablation
Hi guys. I had a cardiac ablation for Afib on 4/21/21. Immediately after the surgery I had a hematoma in the abdomen. That was painful but not a big deal. 5 days later started getting what feels like jolts of shocks to my chest usually in the center. I feel it more when I lay down at night or just
Hi guys. I had a cardiac ablation for Afib on 4/21/21. Immediately after the surgery I had a hematoma in the abdomen. That was painful but not a big deal. 5 days later started getting what feels like jolts of shocks to my chest usually in the center. I feel it more when I lay down at night or just
BWellerheart
in
Arrhythmia Alliance
3 years ago
Skin breakouts and hair loss
I am 19 yrs. old and I have Behcet’s. I am taking dapsone, colchicine, amitriptyline, folic acid, leflunomide,keppra, and Infliximab (every 4 weeks, 900 mg). I wanted to know if any one has random skin breakouts on their face, as well as have skin issue on your bottom. As well as hair loss. I did some
I am 19 yrs. old and I have Behcet’s. I am taking dapsone, colchicine, amitriptyline, folic acid, leflunomide,keppra, and Infliximab (every 4 weeks, 900 mg). I wanted to know if any one has random skin breakouts on their face, as well as have skin issue on your bottom. As well as hair loss. I did some
Cool_blue
in
ABDA
3 years ago
Skin breakouts and hair loss
I am 19 yrs. old and I have Behcet’s. I am taking dapsone, colchicine, amitriptyline, folic acid, leflunomide,keppra, and Infliximab (every 4 weeks, 900 mg). I wanted to know if any one has random skin breakouts on their face, as well as have skin issue on your bottom. As well as hair loss. I did some
I am 19 yrs. old and I have Behcet’s. I am taking dapsone, colchicine, amitriptyline, folic acid, leflunomide,keppra, and Infliximab (every 4 weeks, 900 mg). I wanted to know if any one has random skin breakouts on their face, as well as have skin issue on your bottom. As well as hair loss. I did some
Cool_blue
in
Partners for Behcet's
3 years ago
Skin breakouts and hair loss
I am 19 yrs. old and I have Behcet’s. I am taking dapsone, colchicine, amitriptyline, folic acid, leflunomide,keppra, and Infliximab (every 4 weeks, 900 mg). I wanted to know if any one has random skin breakouts on their face, as well as have skin issue on your bottom. As well as hair loss. I did some
I am 19 yrs. old and I have Behcet’s. I am taking dapsone, colchicine, amitriptyline, folic acid, leflunomide,keppra, and Infliximab (every 4 weeks, 900 mg). I wanted to know if any one has random skin breakouts on their face, as well as have skin issue on your bottom. As well as hair loss. I did some
Cool_blue
in
Behçet's UK
3 years ago
Breathlessness getting worse again
The last couple of days I’ve been a bit late in going out to collect my daughter from school so I’ve had to rush a bit going up a very steep hill . Today I could feel myself getting out of breath so I took the longer way as it’s flat . I got to the school but so out of breath I couldn’t speak properly
The last couple of days I’ve been a bit late in going out to collect my daughter from school so I’ve had to rush a bit going up a very steep hill . Today I could feel myself getting out of breath so I took the longer way as it’s flat . I got to the school but so out of breath I couldn’t speak properly
Westie2012
in
British Heart Foundation
3 years ago
Newly Diagnosed and Feeling Overwhelmed
Hi all, After years and years of symptoms and feeling as though I am going crazy, I have been diagnosed with Behcet’s. Of course I feel relieved to finally put a name to my health concerns and to know it’s not my mental health causing the symptoms (as suggested by my GP) but I also feel so confused not
Hi all, After years and years of symptoms and feeling as though I am going crazy, I have been diagnosed with Behcet’s. Of course I feel relieved to finally put a name to my health concerns and to know it’s not my mental health causing the symptoms (as suggested by my GP) but I also feel so confused not
Lubyluboo
in
Partners for Behcet's
3 years ago
Newly Diagnosed & Feeling Overwhelmed
Hi all, After years and years of symptoms and feeling as though I am going crazy, I have been diagnosed with Behcet’s. Of course I feel relieved to finally put a name to my health concerns and to know it’s not my mental health causing the symptoms (as suggested by my GP) but I also feel so confused
Hi all, After years and years of symptoms and feeling as though I am going crazy, I have been diagnosed with Behcet’s. Of course I feel relieved to finally put a name to my health concerns and to know it’s not my mental health causing the symptoms (as suggested by my GP) but I also feel so confused
Lubyluboo
in
Behçet's UK
3 years ago
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