Pericarditis Pfizer vaccine - British Heart Fou...

British Heart Foundation

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Pericarditis Pfizer vaccine

I had my first Pfizer jab in Feb 2021 & blue lighted into Royal Free with suspected heart attack 6 weeks later. Consultant said it was pericarditis & was an auto-immune response to an infection in the previous 2 weeks. He said it couldn't be the jab as I'd had it more than 2 weeks previously. I have since read that side effects can occur within 7 weeks of the vaccine. I've never had heart problems before. Was prescribed colchicine for 3 months and pain went within a few hours of attack. However still feel a bit off colour with vague achy chest/neck sensations and slightly nauseous.

25 Replies

Leave comment after your second jab please

in reply to Skertchly

I don't intend to have a 2nd jab or booster at the moment. Luckily I can work at home full time and I can retire if I want anyway as I'm 66. I'll see if there is any further research on this and maybe there will be a 'safer' vaccine in future. Someone I know who works in Pharma in his 30s isn't having the jab as he says there should be 5 years trials before release to the public.

Milkfairy profile image
MilkfairyHeart Star

Hello

I am sorry you had a reaction to your vaccination.

Did you report it to the yellow card system?

yellowcard.mhra.gov.uk/

The research about myocarditis and pericarditis as a rare side effect of the Pzifer vaccine has only been published in the last week or so.

The Cardiologist whom you saw may not have been aware of this research.

The Government only updated the information on the Covid website on 7th July .

gov.uk/drug-safety-update/c...

Have you got a follow up appointment?

in reply to Milkfairy

Thanks. I'm having some follow up ECGs soon to see how things are.

Milkfairy profile image
MilkfairyHeart Star in reply to

That's good to hear.

I am also a patient at the Royal Free.

I had a reaction to my first AZ vaccine as well.

I am having an ECHO and 24 hour ECG tomorrow.

in reply to Milkfairy

Hope it goes ok! All the best.

Milkfairy profile image
MilkfairyHeart Star in reply to

Thanks,

My Cardiologist is being uber careful as I live with an unusual longterm heart condition.

Even after 9 years I still get caught up in the boom and bust cycle. However I have learned the hard way the importance of pacing.

The need to rest, listen to your body's needs, most of all be kind to yourself.

Maybe try some yoga for a while to slowly build up your stamina?

It can be a process of 2 steps forward one step back.

You might find the Spoon theory a helpful strategy.

healthline.com/health/spoon...

in reply to Milkfairy

Yes, wise words, I should slowly build up & not jump in with both feet as I have been doing. Thanks for the link.

in reply to Milkfairy

Yes I did report it on the yellow card system & they did seems to follow it up wanting to know who my doctor was, etc.

It has been reported on the VAERS system in the US as a problem after the vaccine. I'm not sure of the incidence rate, but there is a correlation. I'm not sure of the timing after the jab that the problem has been reported also. You'll need to research this. openvaers.com/covid-data

in reply to Bradee12

Thanks for the info.

CillyGirl profile image
CillyGirl in reply to Bradee12

Thank You Bradee12 for your website for USA. I already have heart issues and do notfeel lead to get any Covid 19 shot. My daughter 44, husband 71, and mother in law 87 got

covid in December 2019. We didn't know it was Covid then. I knew it was fast because

his sister came over for Christmas Dinner from an apt building saying she had a headache.

1-2 day later they were all sick. Later learned some people had died in her apt building. Then, they were thinking it was the flu. I was around them but I didn't get Covid. I wonder why? Husband still has the antibodies to this day. I am thankful for this site about vacines.

Hello Easington I was eventually diagnosed with pericarditis after a few back and forths to a and e and various calls with 111 GPS (last July). It completely took me by surprise and was out of the blue. I didn’t even know I had a pericardium! (No previous heart problems either).

Colchicine, a good consultant Cardiologist and several echocardiograms sorted me out. I am none the wiser as to why or how it occurred (common cause is said to be a virus of which I did not have). Covid tests negative and asymptotic test negative.

I’m fine now and happy to hear you are pretty much too.

One of the main pieces of advice I received was don’t try and go back to what you did early eg sport, gardening, any exertion as it simply can reverse everything that is healing.

I too have read what you have. Scary stuff.

Ali

in reply to Rolfie

Hi Ali, glad to hear you're ok now. Perhaps I've gone back to doing sit-ups, etc for 45mins every day a bit too soon. I'll give it a miss for a couple of more weeks & see how it goes.

I do about an hour's walking every day and usually I feel better for it. For some reason I do get good & bad days but hopefully it will fade away in time. Good excuse not to do the sit-ups, stomach crunches, etc too!

Rolfie profile image
Rolfie in reply to

Ha! It’s very frustrating. I’m also an active bod but found even small exertion created discomfort. It’s so tempting to do what you normally do even in the ‘good’ days but you will pay the price and the pain soon let’s you know to stop … but everyone is different so you’ll just have to go with what you feel is right for you.

Good luck and good health. May your condition never return!

in reply to Rolfie

Thanks for the advice. I'll take it easy for another couple of months before I do any more rigorous exercise.

TBH, no one can be sure. I was 47 generally fit and well and was blue lit to Milton Keynes Hospital with a suspected heart attack. That was 15 years ago. Within 8 days of admission, it turned out I didn't have a heart attack, but I did have a quadruple bypass in Oxford. Deffo yellow card it as a concern ... but it may be unrelated. Sorry to say. Hope you are feeling better soon.

in reply to Fish4Info

I had an xray at the time & they didn't see anything wrong with the heart but I do need an ECG to check it out now. I hope you're bypass went ok.

Fish4Info profile image
Fish4Info in reply to

Hi Easington, generally fit and well, thanks. Now at the younger end of beginning to be old (i.e. 62). At the time of the pain measuring Troponin is the easiest way to tell if you've had a heart attack (see e.g. healthline.com/health/tropo...). ECG's can give an indication of blocked artery and other heart problem. X-rays aren't great because a heart is soft tissue which X-rays don't pickup well - though they can be used to tell if a heart is enlarged - which may be how they've concluded pericarditis. I think you just have to take each day at a time, rock up for any tests they recommend, and as for exercise, have a look at this: bhf.org.uk/informationsuppo... and google "Perceived exertion". Don't be afraid to exercise, but don't overdo it either ;-). Good luck.

in reply to Fish4Info

Thanks for the info. I'll check out all the links. Keep well!

Hi, I was diagnosed half a year ago and got some good advice here. Take it easy, life is telling you to slow down, remove stressors, turn off the news channel ;)

No matter how fit you keep, turn all the exercise into walks and pace the tempo to how you feel. I know you can/want to do this or that, just dont, maybe after 2 months you can slowely tap into testing how many pushup reps are ok, if you feel chest sensations, stop and pick up a few weeks later again. Otherwise you will be causing flare ups. Let it all heal instead.Take colchicine even if you think you already feel great.

Sleeping with slightly evevated shoulders/head and 2nd pillow felt more comfy. No hot baths/ steamed rooms, which raise heart rate. Gosh I could not even watch movies, like criminals chasing or heartbreaking love story, to keep my emotions calm. Only happy positive life from there on :)

There is no point to dwell on answers, you will recover in a few months and life will be full on great again. It is a rare condition and some people were getting it at normal times too, but covid certainly likes to attack certain cells, heart/kidney/lungs.. and in US they discussed link between peri/meri and the mRNA(?) vaccines moderna/pfizer prevalently in younger male adults.

I was diagnosed a week after some funny infection causing nothing but a tonsil pain. 8 months prior I am sure I had asymptomatic covid ( no testing was available in spring 2020) I had palpitations 1st time in my life and massive inflammation outbreak.

Due to NHS neglect troughout lockdowns and undertreatment I was struggling for half a year, I am still on last dosis of colchicine, but I have my life back now and feel amazing. I did not take any vaccine yet..

I wish you a good recovery, just pace yourself for a while.

Aha, one thing, let your GP test for zinc levels. If you are low, adjust the diet/suplement. I was slightly deficient, but felt a difference when started taking it. I guess it helps just like with healing skin, it probably helps to heal tissue, I felt it helped.

lolamoons profile image
lolamoons in reply to lolamoons

Aaa, and in US I read they get peri/meri after 2nd dosis of vaccine, like if the 1st one does sth bad and then it waits for another trigger. And the trigger can be just any virus from a steet / not covid necessaryly.. 🤷‍♀️ whatever, we are here, alive and you will recover soon. All the Best!

in reply to lolamoons

Sorry Lolamoons, I think I missed your reply somehow. Thanks for the info. I'm pretty much ok now thanks. I'm not at all sure about having a covid booster. I've had one dose of Pfizer with possibly bad repercussions and now I'm very wary!

Hey Easington,

How is your recovery going now? I'm 7 weeks after a diagnosis of perimyocarditis post 1st pfizer vaccination.

Still struggling and really no better than I was 7 weeks ago. Would love to hear how you are getting on now after a few months.

Did you try zinc as per lolamoons suggestion? Did it help?

Cheers

Ru

in reply to Ruru83

Hi Ru,

I didn't take zinc tbh but I was on colchicine for 12 weeks up to about the end of June I think. I still had some uncomfortable sensations up to about a 2 or 3 weeks ago but now 5 months after diagnosis I would say I'm almost back to normal thankfully.

I couldn't honestly say I was struggling with it after I stopped taking the colchicine but it was a bit uncomfortable when moving around, getting dressed,, walking etc for quite a long time.

I had an echo a couple of weeks ago and the guy doing it said it looked good but he wasn't a doctor. I haven't heard from my doctor yet so I suppose I ought to chase it up.

Hopefully you will improve a lot in the next couple of months or so. All the best!

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