Search
Search
About
Log in
Join
Experiences with
Colchicine / Probenecid
Posts
Communities
390 public posts
Filter results
Pericarditis
I don't know what to do, very strong Co-codamol doesn't touch the pain and there doesn't seem to be anyone to talk to. I can't take Ibuprofen due to Kidney Disease. I am a reasonably fit 76 year old , play golf 2-3 times a week, don't smoke, little alcohol. My first episode with chest pains came on
I don't know what to do, very strong Co-codamol doesn't touch the pain and there doesn't seem to be anyone to talk to. I can't take Ibuprofen due to Kidney Disease. I am a reasonably fit 76 year old , play golf 2-3 times a week, don't smoke, little alcohol. My first episode with chest pains came on
Evreham
in
British Heart Foundation
5 months ago
colchicine and post ablation chest pain
So I had PFA two weeks ago, and tbh when I woke from anesthesia I felt like I had raging bronchitis but put it down to dry air or breathing equipment. (in fact it caused me to ask my hubby to get ice cream, and he was confused because I never eat ice cream! but as I was the last of the day, and didn't
So I had PFA two weeks ago, and tbh when I woke from anesthesia I felt like I had raging bronchitis but put it down to dry air or breathing equipment. (in fact it caused me to ask my hubby to get ice cream, and he was confused because I never eat ice cream! but as I was the last of the day, and didn't
Iamfuzzyduck
in
Atrial Fibrillation Support
5 months ago
Histiocytoid Sweet's syndrome - unusual crusted lesions
An atypical facial eruption in skin of color: A rare presentation of histiocytoid Sweet syndrome, 2024. https://www.jaadcasereports.org/article/S2352-5126%2824%2900087-0/fulltext - Normally red to purple lesions in Sweet's syndrome. - Doesn't disproportionately affect specific racial groups. "Although
An atypical facial eruption in skin of color: A rare presentation of histiocytoid Sweet syndrome, 2024. https://www.jaadcasereports.org/article/S2352-5126%2824%2900087-0/fulltext - Normally red to purple lesions in Sweet's syndrome. - Doesn't disproportionately affect specific racial groups. "Although
Shell567
Sweet's Syndrome UK
in
Sweet's Syndrome UK
5 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Myocarditis
Hello everyone firstly just like to thank you all for you posts on Myocarditis it has raised my spirits. i have been diagnosed about 2 months ago after a viral infection and my Mri has shown mild inflammation and heart scarring. I find that when i rest i start to feel better and get carried away
Hello everyone firstly just like to thank you all for you posts on Myocarditis it has raised my spirits. i have been diagnosed about 2 months ago after a viral infection and my Mri has shown mild inflammation and heart scarring. I find that when i rest i start to feel better and get carried away
Highbury87
in
British Heart Foundation
5 months ago
Colchicine
Hello, I’ve finally persuaded my GP to let me try colchicine for my mouth ulcers while I wait for a referral, and they’ve given me enough for 6 days. I’m 4 days in haven’t had an ulcer, but feel like that’s really not enough time to know if it’s because of the colchicine or just a co-incidence. They
Hello, I’ve finally persuaded my GP to let me try colchicine for my mouth ulcers while I wait for a referral, and they’ve given me enough for 6 days. I’m 4 days in haven’t had an ulcer, but feel like that’s really not enough time to know if it’s because of the colchicine or just a co-incidence. They
Char_123
in
Behçet's UK
5 months ago
Colchicine to treat IgA Vasculitis
Hello, My daughter has recently been diagnosed with IgA Vasculitis, with Gastro-intestinal involvement. She is currently living in France and being treated with Colchine, to which she is responding well, with no flare-ups (pre-diagnosis she was having a flare, with severe stomach pain every few weeks
Hello, My daughter has recently been diagnosed with IgA Vasculitis, with Gastro-intestinal involvement. She is currently living in France and being treated with Colchine, to which she is responding well, with no flare-ups (pre-diagnosis she was having a flare, with severe stomach pain every few weeks
RedPoppy2
in
Vasculitis UK
6 months ago
Persistent gout in renal transplant.
Hi, As I understand it many of us will have had gout, I have for 30 years since my transplant. The last 3 years it has been relentless and the past few months: constant. I have been given colchicine and allupurinol but it's not seeming to help any longer. The situation is quite serious as I'm unable
Hi, As I understand it many of us will have had gout, I have for 30 years since my transplant. The last 3 years it has been relentless and the past few months: constant. I have been given colchicine and allupurinol but it's not seeming to help any longer. The situation is quite serious as I'm unable
lkni
in
Kidney Transplant
6 months ago
Otezla
I have had Behcets disease my whole life but they couldn't figure it out until I was 17. That's when I was officially diagnosed. I'm on Plaquenil which helps A LOT with ulcers. I also just started Colchicine for flares and Imuran daily. I've also been on Otezla since August of 2023. I guess my question
I have had Behcets disease my whole life but they couldn't figure it out until I was 17. That's when I was officially diagnosed. I'm on Plaquenil which helps A LOT with ulcers. I also just started Colchicine for flares and Imuran daily. I've also been on Otezla since August of 2023. I guess my question
PankieGirl
in
ABDA
6 months ago
Myocarditis chest pain
Hi all, I’m approaching the 3 month mark with myocarditis. Chest pains were slowly easing off but have increased slightly over the past few weeks. I’m continuing to rest and listen to my body. Anyone that has recovered from myocarditis, I’m interested to know if you also experienced a rocky recovery
Hi all, I’m approaching the 3 month mark with myocarditis. Chest pains were slowly easing off but have increased slightly over the past few weeks. I’m continuing to rest and listen to my body. Anyone that has recovered from myocarditis, I’m interested to know if you also experienced a rocky recovery
Beachboy1
in
British Heart Foundation
7 months ago
Pain at it's highest level.
I've had arthritis for about 20 and it has been very painful at times, though I have managed to get get to the bathroom in my bedroom with the use one or two crutches. A few days ago I woke up to my right foot not being able to move without yelling, it was impossible even to get off the bed to use the
I've had arthritis for about 20 and it has been very painful at times, though I have managed to get get to the bathroom in my bedroom with the use one or two crutches. A few days ago I woke up to my right foot not being able to move without yelling, it was impossible even to get off the bed to use the
Nottobad123
in
NRAS
7 months ago
VEXAS and Sweet's Syndrome
Sweet's syndrome can be a symptom of VEXAS syndrome in men. VEXAS, DermNet NZ https://dermnetnz.org/topics/vexas-syndrome "VEXAS syndrome typically responds poorly to treatment, with high dose systemic corticosteroids (> 20mg/d) showing the most consistent benefit for the inflammatory features. Other
Sweet's syndrome can be a symptom of VEXAS syndrome in men. VEXAS, DermNet NZ https://dermnetnz.org/topics/vexas-syndrome "VEXAS syndrome typically responds poorly to treatment, with high dose systemic corticosteroids (> 20mg/d) showing the most consistent benefit for the inflammatory features. Other
Shell567
Sweet's Syndrome UK
in
Sweet's Syndrome UK
7 months ago
Help me! behcet syndrome with tuberculosis
Hello, I have had Behcet's disease for 10 years, which does not respond to treatment, and after treatment with infliximab and mycophenolate mofetil, I have perianal fistula, skin abscesses, severe heartburn, cystitis, prostatitis, night sweats, inguinal lymphadenopathy, and weight loss. ... I have become
Hello, I have had Behcet's disease for 10 years, which does not respond to treatment, and after treatment with infliximab and mycophenolate mofetil, I have perianal fistula, skin abscesses, severe heartburn, cystitis, prostatitis, night sweats, inguinal lymphadenopathy, and weight loss. ... I have become
Hulusi
in
Behçet's UK
7 months ago
Does myocarditis have poor prognosis
26yo female. admitted to hospital for 4 days with elevated troponin of 360 and chest tightness. Ecg, holter monitor and echocardiogram all normal, with the exception of very small pericardial effusion. I was diagnosed with acute myopericarditis and was discharged with x2 colchicine for 2 week s,
26yo female. admitted to hospital for 4 days with elevated troponin of 360 and chest tightness. Ecg, holter monitor and echocardiogram all normal, with the exception of very small pericardial effusion. I was diagnosed with acute myopericarditis and was discharged with x2 colchicine for 2 week s,
JS1001
in
British Heart Foundation
8 months ago
Acute Pericarditis
In September I had an NSTEMI and after Angiogram was told I didn't need Stents as there was no signifacat blockage, Ejecvtion Fraction as good and had preserved left ventrical function. During my time in Hospital (a week) I felt fine and was actively encouraged to wander the corridors. First week home
In September I had an NSTEMI and after Angiogram was told I didn't need Stents as there was no signifacat blockage, Ejecvtion Fraction as good and had preserved left ventrical function. During my time in Hospital (a week) I felt fine and was actively encouraged to wander the corridors. First week home
EdtheDead
in
British Heart Foundation
8 months ago
Multaq?
Well, I am still dealing with post-procedure Pericarditis and taking Colchicine, but my Atrial Tachycardia and PACs are steadily increasing, happening during the say when they are just at night. My EP has recommended Multaq as a new one to try. The list has been long of what we have tried and failed.
Well, I am still dealing with post-procedure Pericarditis and taking Colchicine, but my Atrial Tachycardia and PACs are steadily increasing, happening during the say when they are just at night. My EP has recommended Multaq as a new one to try. The list has been long of what we have tried and failed.
MeganMN
in
AF Association
8 months ago
Anyone with behcet's taking rinvoq?
I've been on it for the last 4/5 months. 30mg daily. It's been pretty effective so far but a bit worried about the safety of it long term. I've always been a bit of worrier when it comes to these more potent immunosuppressants. Basically nothing else was controlling the flares, tried aza, colchicine,
I've been on it for the last 4/5 months. 30mg daily. It's been pretty effective so far but a bit worried about the safety of it long term. I've always been a bit of worrier when it comes to these more potent immunosuppressants. Basically nothing else was controlling the flares, tried aza, colchicine,
FrancisB
in
Behçet's UK
8 months ago
latest results & pericaridal effusion
currently on 75mcg of tirosint 6 days a week and 1 day 100mcg, also on NDT 1 1/4 grain. I do feel awful at the moment most days with extreme fatigue, hair loss, muscle weakness and spasms, pain. I have had terrible heart problems I already have PoTs but for the past year I have had pericardial
currently on 75mcg of tirosint 6 days a week and 1 day 100mcg, also on NDT 1 1/4 grain. I do feel awful at the moment most days with extreme fatigue, hair loss, muscle weakness and spasms, pain. I have had terrible heart problems I already have PoTs but for the past year I have had pericardial
Ajva
in
Thyroid UK
8 months ago
ablation
Hi I’m new to site. I had my ablation 2 weeks ago been having lots of pain and palpitations since. saw Eurythmic nurse Monday and she says I’ve got pericarditis started me on colchicine tablets as anyone else experienced this I read lots of positive outcomes but my whole experience wasnt good.
Hi I’m new to site. I had my ablation 2 weeks ago been having lots of pain and palpitations since. saw Eurythmic nurse Monday and she says I’ve got pericarditis started me on colchicine tablets as anyone else experienced this I read lots of positive outcomes but my whole experience wasnt good.
Sidney115
in
AF Association
8 months ago
vestibular Disorder
SORRY, I DO NOT KNOW HOW TO POSITION PHOTOS PROPERLY !🧐 😁hello to everyone MY QUESTIONS 1.Do you/have you experienced vertigo? 2. What treatment did your doctor advise? 3. Have you taken TEVA BETAHISTINE? 4. Do you know of a support group/community for Vestibular Disorder? MY VERTIGO
SORRY, I DO NOT KNOW HOW TO POSITION PHOTOS PROPERLY !🧐 😁hello to everyone MY QUESTIONS 1.Do you/have you experienced vertigo? 2. What treatment did your doctor advise? 3. Have you taken TEVA BETAHISTINE? 4. Do you know of a support group/community for Vestibular Disorder? MY VERTIGO
magician
in
Behçet's UK
8 months ago
Ivabradine
is there any body on here put on ivbradine to control heart rate found it pushing up there bp,I’m on colchicine also for peri at the moment,been on ivbradine since October and seeing bp going up
is there any body on here put on ivbradine to control heart rate found it pushing up there bp,I’m on colchicine also for peri at the moment,been on ivbradine since October and seeing bp going up
Golf1985
in
British Heart Foundation
8 months ago
1
2
3
...
20
Next page
10
20
Filter results
Clear filters
Posted in
All communities
Behçet's UK
162 results
British Heart Foundation
92 results
Atrial Fibrillation Support
30 results
View top 10 communities
Sort by
Most Relevant
Newest