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Colchicine / Probenecid
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Symptoms, medication advice and heart pain/palpitations.
Hi, Help please - tablet advice and heart symptoms. I have been told I may have Behcet's I am under the clinic at Addenbrooke's. I have tried to take colchicine but it played havoc will my stomach and I lost too much weight. So I am on steroids at the moment but they don't seem to be helping my ulcers
Hi, Help please - tablet advice and heart symptoms. I have been told I may have Behcet's I am under the clinic at Addenbrooke's. I have tried to take colchicine but it played havoc will my stomach and I lost too much weight. So I am on steroids at the moment but they don't seem to be helping my ulcers
kezzle
in
Behçet's UK
9 years ago
Krill oil for arthralgia
My 20 yr old daughter is about to be put on Methotrexate. However a friend of mine recommended taking Krill oil for arthritis (although my daughter only has acute pain, no swelling) which might stop the need for a drug change. Has anyone else done this and are there any side effects? She already takes
My 20 yr old daughter is about to be put on Methotrexate. However a friend of mine recommended taking Krill oil for arthritis (although my daughter only has acute pain, no swelling) which might stop the need for a drug change. Has anyone else done this and are there any side effects? She already takes
s10d7
in
Behçet's UK
9 years ago
Infliximab or Humira
It's probably 6 months since my last post. I'd like to thank everyone who replied. I initially asked if anyone was still being prescribed Thalidomide and where in the country you lived. Since then I've taken advice from my Rheumatologist and, since last April, have tried a series of other immunosuppressants
It's probably 6 months since my last post. I'd like to thank everyone who replied. I initially asked if anyone was still being prescribed Thalidomide and where in the country you lived. Since then I've taken advice from my Rheumatologist and, since last April, have tried a series of other immunosuppressants
Meggy7791
in
Behçet's UK
9 years ago
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Help me
Hi I m using colchicine 0.5mg / twice a day with methotraxate injection 1ml every Sunday n neoral 25mg/ twice a day having sever pains evey where no improvement. GU n ou no improvement with continous abdominal pain n on/off diarrhea also having ankle effusion plz can somebody tell me shld I continue
Hi I m using colchicine 0.5mg / twice a day with methotraxate injection 1ml every Sunday n neoral 25mg/ twice a day having sever pains evey where no improvement. GU n ou no improvement with continous abdominal pain n on/off diarrhea also having ankle effusion plz can somebody tell me shld I continue
Ayesha-84
in
Behçet's UK
10 years ago
Esa about to expire
Hi all, just wondering if anyone could give me advise or put me in the right direction. I have been on contribution based esa (wrag) for nearly a year after being diagnosed with behcets in January 2014. I am currently having a flare which includes mouth and genital ulcers, pains in my legs, headaches
Hi all, just wondering if anyone could give me advise or put me in the right direction. I have been on contribution based esa (wrag) for nearly a year after being diagnosed with behcets in January 2014. I am currently having a flare which includes mouth and genital ulcers, pains in my legs, headaches
evo74
in
Behçet's UK
10 years ago
What is the treatment for Sweet's syndrome?
The main form of treatment for Sweet's syndrome is the steroid (corticosteroid), prednisone. After steroids, first-line treatments include colchicine and potassium iodide. They can be given instead of or alongside steroid medication. Second-line treatments include indomethacin, clofazimine, ciclosporin
The main form of treatment for Sweet's syndrome is the steroid (corticosteroid), prednisone. After steroids, first-line treatments include colchicine and potassium iodide. They can be given instead of or alongside steroid medication. Second-line treatments include indomethacin, clofazimine, ciclosporin
Shell567
Sweet's Syndrome UK
in
Sweet's Syndrome UK
10 years ago
Probable Behcets
I have just been discharged by the rheumatologist after 5 years with a probable Behchets diagnosis. Probable because I have from time to time oral and vaginal ulcers, acne and joint pain, not necessarily all together and without the presence of definite vasculitis or eye involvement. It doesn't compartment
I have just been discharged by the rheumatologist after 5 years with a probable Behchets diagnosis. Probable because I have from time to time oral and vaginal ulcers, acne and joint pain, not necessarily all together and without the presence of definite vasculitis or eye involvement. It doesn't compartment
Saramae70
in
Behçet's UK
10 years ago
Basilar artery migraine
Hi all sorry I don't get on here that often and that it on,y seems to be when I want something! Like is crazy with a toddler and this dreaded disease. Since having my bubs I have been really unwell and it feels like I've not had much help even though I go to the london COE. I take 150 aza 30 pred 0.5
Hi all sorry I don't get on here that often and that it on,y seems to be when I want something! Like is crazy with a toddler and this dreaded disease. Since having my bubs I have been really unwell and it feels like I've not had much help even though I go to the london COE. I take 150 aza 30 pred 0.5
poshcat
in
Behçet's UK
10 years ago
For the last month or two I have noticed my 8yr ( has BD & Joint hyper mobility Syndrome) complaining more and more of feeling sick?
Is this the norm? Sometimes accompanied by lots of stopping pains - heart, joint , head - on colchicine, and pizotifen , ibuprofen and sometimes steroids. We have had a good run - three weeks without any ulcers, but she is showing signs of a flare coming ..
Is this the norm? Sometimes accompanied by lots of stopping pains - heart, joint , head - on colchicine, and pizotifen , ibuprofen and sometimes steroids. We have had a good run - three weeks without any ulcers, but she is showing signs of a flare coming ..
Motherof4
in
Behçet's UK
10 years ago
Any recommendations for Headaches during a flare?
Hi All, I have recently been diagnosed with Behcets after 5 years of investigations and thinking I had Crohns Disease. I am now on Colchicine twice a day and also anti-sickness tabs among a lot of other meds to protect my stomach. The colchicine has been amazing for the last year however last week
Hi All, I have recently been diagnosed with Behcets after 5 years of investigations and thinking I had Crohns Disease. I am now on Colchicine twice a day and also anti-sickness tabs among a lot of other meds to protect my stomach. The colchicine has been amazing for the last year however last week
rachyates
in
Behçet's UK
10 years ago
MOT
Hi guys I was diagnosed 5 years ago with BD after 21 years of being ill with oral and genital ulcers, painful joints etc... I moved to scotland 18 months ago and my meds stopped working and was referred to a new consultant who didn't have a clue about BD and never sent for my file in England was going
Hi guys I was diagnosed 5 years ago with BD after 21 years of being ill with oral and genital ulcers, painful joints etc... I moved to scotland 18 months ago and my meds stopped working and was referred to a new consultant who didn't have a clue about BD and never sent for my file in England was going
don5766
in
Behçet's UK
10 years ago
Pain relief for gout
My 45yr old husband has just been diagnosed with severe gout in his hands, wrists, elbows and really bad in his ankles. His gp gave him a very strong 3day course of colchicine tablets which did help, but it flared up again a few days after finishing the course. He is now on 1 colchicine aday and naproxin
My 45yr old husband has just been diagnosed with severe gout in his hands, wrists, elbows and really bad in his ankles. His gp gave him a very strong 3day course of colchicine tablets which did help, but it flared up again a few days after finishing the course. He is now on 1 colchicine aday and naproxin
mitzymoo
in
NRAS
11 years ago
Diagnosed during my first episode?!
I'm a 42 year old woman in the U.S. and I just received a probable Behcet's diagnosis yesterday. Prior to Christmas Day, I'd never had anything like this, but managed to wind up with the hallmark symptoms except for vision problems since then (huge mouth/genital ulcers and EN along with arthritic pain
I'm a 42 year old woman in the U.S. and I just received a probable Behcet's diagnosis yesterday. Prior to Christmas Day, I'd never had anything like this, but managed to wind up with the hallmark symptoms except for vision problems since then (huge mouth/genital ulcers and EN along with arthritic pain
Folkgirl
in
Behçet's UK
11 years ago
Colchicine and pregnancy advice please ;)
Hello, I am on colchicine for suspected Metiterranean fever and cannot come off it as it causes severe pericarditis and other complications. I am planning a pregnancy this year and have worked with a number of hospitals due to my rare diseases and the risk of taking colchicine during a pregnancy. It
Hello, I am on colchicine for suspected Metiterranean fever and cannot come off it as it causes severe pericarditis and other complications. I am planning a pregnancy this year and have worked with a number of hospitals due to my rare diseases and the risk of taking colchicine during a pregnancy. It
lollalettuce
in
LUPUS UK
11 years ago
HI. I'm new here!
My name's Bliss. I'm Canadian Eh? I live in a teeny tiny town in an area of British Columbia called The Similkameen Valley. It's just as beautiful as it sounds. This is going to be so long and I'm STILL leaving a TON out. Scroll to the bottom for TL;DR version. haha I moved away from city life (Vancouver
My name's Bliss. I'm Canadian Eh? I live in a teeny tiny town in an area of British Columbia called The Similkameen Valley. It's just as beautiful as it sounds. This is going to be so long and I'm STILL leaving a TON out. Scroll to the bottom for TL;DR version. haha I moved away from city life (Vancouver
blissaru
in
Behçet's UK
11 years ago
Finally after having quiet a lot of BD symptoms and helping my daughter Jaida finally diagnosed 2 years ago, I'm on colchice.
I feel just so much better. It's amazing how I got use to feeling rotten. Quite a while ago someone posted about if their parents had BD or symptoms. I was one of the parents that had been quite ill at the age of 17 years and never got over it. I was told the usual, glandular fever joint pain and the
I feel just so much better. It's amazing how I got use to feeling rotten. Quite a while ago someone posted about if their parents had BD or symptoms. I was one of the parents that had been quite ill at the age of 17 years and never got over it. I was told the usual, glandular fever joint pain and the
Michja
in
Behçet's UK
11 years ago
Hitting the treatment glass ceiling....
Hello there everyone, Apart from having a tough couple of weeks I have also been pondering over what to do next following my recent out-patient appointment. Between 2010 and 2012 my brother was taken ill which meant living temporarily away from home and because of this I missed my usual outpatient
Hello there everyone, Apart from having a tough couple of weeks I have also been pondering over what to do next following my recent out-patient appointment. Between 2010 and 2012 my brother was taken ill which meant living temporarily away from home and because of this I missed my usual outpatient
Herbiv4
in
Behçet's UK
11 years ago
Any one else on colchicine and it stopped working
I was given colchicine in feb and it was great for two months no ulcers but then they can back in my mouth and once again I was only about 3 days clear of them before another one , Now they are back to normal in my mouth with 5or 6 of them at one time and never with out one and now ulcers are coming
I was given colchicine in feb and it was great for two months no ulcers but then they can back in my mouth and once again I was only about 3 days clear of them before another one , Now they are back to normal in my mouth with 5or 6 of them at one time and never with out one and now ulcers are coming
samhawks
in
Behçet's UK
11 years ago
my 6 yr old son has behcets and is on 1,500mg of colchicine a day and is still getting flares.
whilst hes having the flares i have to give him 7ml of prednisone a day including 3 x500mg colchicine, hes still getting mouth and genital ulcers and skin infection and bloating in the face and stomach. im struggling on what to do next for him,can anyone help me with any advice
whilst hes having the flares i have to give him 7ml of prednisone a day including 3 x500mg colchicine, hes still getting mouth and genital ulcers and skin infection and bloating in the face and stomach. im struggling on what to do next for him,can anyone help me with any advice
frazel12
in
Behçet's UK
11 years ago
Behcet's disease (20 year old female)
Hi, I'm new to this posting but I'm 20 and got diagnosed with this disease about 5 months ago after suffering a cerebral venous sinus thrombosis in September last year. This led me to be hospitalised as I suffered complete left sided paralysis as a result of the thrombosis. I have always had mouth ulcers
Hi, I'm new to this posting but I'm 20 and got diagnosed with this disease about 5 months ago after suffering a cerebral venous sinus thrombosis in September last year. This led me to be hospitalised as I suffered complete left sided paralysis as a result of the thrombosis. I have always had mouth ulcers
lauren92
in
Behçet's UK
11 years ago
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