Hi all sorry I don't get on here that often and that it on,y seems to be when I want something! Like is crazy with a toddler and this dreaded disease.
Since having my bubs I have been really unwell and it feels like I've not had much help even though I go to the london COE. I take 150 aza 30 pred 0.5 colchicine 20 omep for tummy ulcers anti sickness med citalipan 40mg as I had PND after my baby was born sevradol 10 and zopiclone to help with sleep when the pain is too bad. Now I've bored you with all that my question is as well as the constant joint pain ulcers etc. My headaches are so bad almost every day at there worst I go blind which is absolutely terrifying especially now I have the little one and for a long time was told they were seizures I have now been told they are basilar migraines. Before I was told what they were I had tried many of the treatments gabbapentin, sumtripan, topirimate, amitriptyline and I am sure some others an now 40mg nortriptylne but nothing seems to work and I'm desperate. Since the 13yrs that this has started after my tia I have had a headache for at least 11 of them when my daughter screams I could cry it hurts so much I can't live like this anymore. Does anybody else suffer from these or similar and have found a treatment that works? Most days they are so bad I think I'm getting dementia as my memory is so shocking. Sorry for the long post just don't no what to do anymore.