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I know this forum is primarily for those with advanced PCA, yet I regularly see posts by those who've only recently discovered the disease and are not in such adavanced stages, being treated only with 1st-generation ADT. Thus, as a nearly 20-year survivor of PCa (first discovered in 2005) and 10-year
I know this forum is primarily for those with advanced PCA, yet I regularly see posts by those who've only recently discovered the disease and are not in such adavanced stages, being treated only with 1st-generation ADT. Thus, as a nearly 20-year survivor of PCa (first discovered in 2005) and 10-year
bluesnjazz
in
Advanced Prostate Cancer
4 months ago
Anyone felt as if drunk while on Relugovix?
After 13 months of ADT vacation, I've gone back on ADT last week. This time I am on Relugovix (Orgovyx) instead of Lupron. Since I exercise pretty much everyday, even upping my training a little more on the cardio side of late, I think I am doing not too bad against the fatigue from the ADT. Then
After 13 months of ADT vacation, I've gone back on ADT last week. This time I am on Relugovix (Orgovyx) instead of Lupron. Since I exercise pretty much everyday, even upping my training a little more on the cardio side of late, I think I am doing not too bad against the fatigue from the ADT. Then
Mascouche
in
Advanced Prostate Cancer
4 months ago
When can I restart donating blood?
Before my Dx, I had been a very regular blood donor. I am CMV (cytomegalovirus) negative, only about 15% of the population has not been exposed to this. As a result, my blood donations are set aside for infants. As an O positive donor, I was in the Heroes for Babies program as they can only receive
Before my Dx, I had been a very regular blood donor. I am CMV (cytomegalovirus) negative, only about 15% of the population has not been exposed to this. As a result, my blood donations are set aside for infants. As an O positive donor, I was in the Heroes for Babies program as they can only receive
Huzzah1
in
Advanced Prostate Cancer
1 month ago
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Provenge immunotherapy
After 5.5 years on Lupron (no Zytiga, Xtandi, Daro, etc.), my PSA hit its highest points ever (1.92), although I'm still not 2 points above my lowest reading of 0.5 (only one of those). I'm metastatic and was at diagnosis, so still have prostate. I've been researching Provenge a bit, and understand that
After 5.5 years on Lupron (no Zytiga, Xtandi, Daro, etc.), my PSA hit its highest points ever (1.92), although I'm still not 2 points above my lowest reading of 0.5 (only one of those). I'm metastatic and was at diagnosis, so still have prostate. I've been researching Provenge a bit, and understand that
dhccpa
in
Advanced Prostate Cancer
4 months ago
Difficulty walking. Would pred boost help.
Hello. I haven’t posted lately. I have been diligently tapering .5 mg every 5 to 6 weeks, previously on 9 years of pred with flare and set backs along the way including Avascular necrosis, osteoarthritis DDD to name a few. I am waiting for pain clinic spine injections and a referral to my back Dr. because
Hello. I haven’t posted lately. I have been diligently tapering .5 mg every 5 to 6 weeks, previously on 9 years of pred with flare and set backs along the way including Avascular necrosis, osteoarthritis DDD to name a few. I am waiting for pain clinic spine injections and a referral to my back Dr. because
Nightingales
in
PMRGCAuk
4 months ago
early new diagnosed low volume metastatic disease and treatment comparisons
https://www.urologytimes.com/view/meta-analysis-indicates-benefit-of-combination-treatment-approach-in-mhspc Recently discussed here was whether low volume metastatic state was a thing, and whether metastatic directed treatment is proven science yet and this interview just came out highlighting a meta
https://www.urologytimes.com/view/meta-analysis-indicates-benefit-of-combination-treatment-approach-in-mhspc Recently discussed here was whether low volume metastatic state was a thing, and whether metastatic directed treatment is proven science yet and this interview just came out highlighting a meta
street-air
in
Advanced Prostate Cancer
4 months ago
Neuropathy help?
Diagnosed June 2023, Started Lupron July, Zytiga and prednisone August, IMRT 28x 70gy, including distant oligometastatic retroperitoneal lymph nodes November. Everything going fine only minor side effects and I feel good. Then, May 1st 2024 I have sudden onset of peripheral neuropathy. Wow, what a buzzkill
Diagnosed June 2023, Started Lupron July, Zytiga and prednisone August, IMRT 28x 70gy, including distant oligometastatic retroperitoneal lymph nodes November. Everything going fine only minor side effects and I feel good. Then, May 1st 2024 I have sudden onset of peripheral neuropathy. Wow, what a buzzkill
pj1121
in
Advanced Prostate Cancer
1 month ago
The Existence of the Oligometastatic State in Prostate Cancer (and other cancers)
Members of the FPC Forum: I submit to you that either I am a Prophet/Visionary, or I am a Fool, but I state clearly... and emphatically...that the oligometastatic state exists in Prostate Cancer and other cancers as well..I believe that if we were to sum it up as an equation, that it would be something
Members of the FPC Forum: I submit to you that either I am a Prophet/Visionary, or I am a Fool, but I state clearly... and emphatically...that the oligometastatic state exists in Prostate Cancer and other cancers as well..I believe that if we were to sum it up as an equation, that it would be something
NPfisherman
in
Fight Prostate Cancer
4 months ago
Some hope!
LONG POST! One of the things to bear in mind with Tinnitus posts, threads and forums, as many have mentioned, is that they turn into an echo chamber of devastation. People searching for answers in desperation on what to some can be the worst time of their life. We search and search for answers to help
LONG POST! One of the things to bear in mind with Tinnitus posts, threads and forums, as many have mentioned, is that they turn into an echo chamber of devastation. People searching for answers in desperation on what to some can be the worst time of their life. We search and search for answers to help
Hopesforthefuture
in
Tinnitus UK
8 months ago
Dexa scan report showing osteoporosis
Did a baseline Dexa scan report for dad who is 83 and with bone mets. Some areas like femur say osteoporosis. He does have mets there. Have started his ADT from today with relugolix. Worried about this dexa report. Would love to hear any inputs from those who had a similar situation.
Did a baseline Dexa scan report for dad who is 83 and with bone mets. Some areas like femur say osteoporosis. He does have mets there. Have started his ADT from today with relugolix. Worried about this dexa report. Would love to hear any inputs from those who had a similar situation.
Tinkudi
in
Advanced Prostate Cancer
4 months ago
Methionine restricted diet for recurring PSA and positive PMSA pet scan w/ 1 bone met
quick to the point. PSMA pet showed 1 L2 small met and some lymph activity. My PSA went from 2.01 to 2.9 in one month. after doing some research on diets and supplements . I found that the keto diet is extremely high in the amino acid methionine and I made it worse trying to reduce my blood pressure
quick to the point. PSMA pet showed 1 L2 small met and some lymph activity. My PSA went from 2.01 to 2.9 in one month. after doing some research on diets and supplements . I found that the keto diet is extremely high in the amino acid methionine and I made it worse trying to reduce my blood pressure
Eieio
in
Advanced Prostate Cancer
4 months ago
Letrozole alone after a year of chemo
Hi everyone, my mom is currently being treated with only letrozole after a year of chemo which didn't work very well (she is 100% Er and Pr). She took it for 5 months after taxol and it worked much better, now she has a follow-up Pet scan after another 5 months. I wanted to know if any of you have successfully
Hi everyone, my mom is currently being treated with only letrozole after a year of chemo which didn't work very well (she is 100% Er and Pr). She took it for 5 months after taxol and it worked much better, now she has a follow-up Pet scan after another 5 months. I wanted to know if any of you have successfully
Shumawy
in
SHARE Metastatic Breast Cancer
4 months ago
53, Bleeding on HRT and history of Endo
I am 53, post menopausal and been on combined continuous HRT (patches and pills, 75mg patches, 100mg pills) for nearly two years with no problem, my menopause symptoms were HORRENDOUS and the HRT solved them almost overnight…. then a month ago I started heavy bleeding and it hasn’t stopped since, every
I am 53, post menopausal and been on combined continuous HRT (patches and pills, 75mg patches, 100mg pills) for nearly two years with no problem, my menopause symptoms were HORRENDOUS and the HRT solved them almost overnight…. then a month ago I started heavy bleeding and it hasn’t stopped since, every
Brambledoggy
in
Endometriosis UK
4 months ago
Help I can’t take this anymore
currently being treated for ‘suspected endometriosis’ not confirmed and currently still on the waiting list for my lap currently been waiting for 18 months and still being told I’ve been push higher up the list. I have been admitted to hospital 4 times since December 2023 with just being forced to
currently being treated for ‘suspected endometriosis’ not confirmed and currently still on the waiting list for my lap currently been waiting for 18 months and still being told I’ve been push higher up the list. I have been admitted to hospital 4 times since December 2023 with just being forced to
Dayna18
in
Endometriosis UK
4 months ago
Updated Healthline.com recommendations on CBD products for RLS
Previous version dates from August 2022, this version updated 23/1/24. Totally US oriented. The article states that "There isn’t much hard science behind CBD for RLS" and points out that legality varies by area. Healthline may get "a small commission" from users purchasing from their links: https
Previous version dates from August 2022, this version updated 23/1/24. Totally US oriented. The article states that "There isn’t much hard science behind CBD for RLS" and points out that legality varies by area. Healthline may get "a small commission" from users purchasing from their links: https
ChrisColumbus
in
Restless Legs Syndrome
8 months ago
primary ovarian insufficiency
Hello, Can anyone help me? I am 37 and still having my period. I am worried that the hrt will mess up my cycle as it is 28 days and my cycle is 25, so it will be out of balance with the patches befer long. is that bad? I dont know. I just want the best chance, and information I have just
Hello, Can anyone help me? I am 37 and still having my period. I am worried that the hrt will mess up my cycle as it is 28 days and my cycle is 25, so it will be out of balance with the patches befer long. is that bad? I dont know. I just want the best chance, and information I have just
JasmineLuianna
in
Fertility Network UK
4 months ago
Update
Good morning everyone. Still warm and breathing, was locked out of my account and only just got back in. When I was first diagnosed with GCA I was on HRT I was told by the Rheumatologist that I should stay on it to protect my bones from the Prednisolone. My DEXA showed normal density probably due
Good morning everyone. Still warm and breathing, was locked out of my account and only just got back in. When I was first diagnosed with GCA I was on HRT I was told by the Rheumatologist that I should stay on it to protect my bones from the Prednisolone. My DEXA showed normal density probably due
EdithWales
in
PMRGCAuk
4 months ago
ADT and ankle swelling
I have stage 4 PC with mets to 2 vertebra, one rib and my pelvis. I have been on Lucrin injections 3 monthly, Abiraterone 1000mg daily plus Prednisone. The Prednisone dosage was initially 10mg daily, but 2 months ago I complained to my oncologist about thinning skin on my arms and bleeding from the
I have stage 4 PC with mets to 2 vertebra, one rib and my pelvis. I have been on Lucrin injections 3 monthly, Abiraterone 1000mg daily plus Prednisone. The Prednisone dosage was initially 10mg daily, but 2 months ago I complained to my oncologist about thinning skin on my arms and bleeding from the
Gimmishelter
in
Advanced Prostate Cancer
4 months ago
Pluvicto
My dad had his 1st pluvicto injection beginning of May He had his PSA taken 3 weeks later. It went from 16 to 23. I’m hoping this isn’t an indicator that this will fail too. He has been dealing with prostate cancer for 20+ years -prostate removed - watching till number doubled - maybe 5 years
My dad had his 1st pluvicto injection beginning of May He had his PSA taken 3 weeks later. It went from 16 to 23. I’m hoping this isn’t an indicator that this will fail too. He has been dealing with prostate cancer for 20+ years -prostate removed - watching till number doubled - maybe 5 years
Jshaw916
in
Advanced Prostate Cancer
4 months ago
Has anyone taken Relugolix from start and no injections of ADT ?
Is relugolix reliable as compared to the adt injections ? Has anyone been only on that and not the injections ? How soon does it bring the testosterone levels down as compared to the injections ? I am in India and it is available here at around 100 dollars for a box of 30 tablets of 120 mg each
Is relugolix reliable as compared to the adt injections ? Has anyone been only on that and not the injections ? How soon does it bring the testosterone levels down as compared to the injections ? I am in India and it is available here at around 100 dollars for a box of 30 tablets of 120 mg each
Tinkudi
in
Advanced Prostate Cancer
4 months ago
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