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Cogan's syndrome
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Scaremongering or Truth?
Like most people in the UK of late I tend to look at what the press is saying about the Covid19 pandemic. Firstly, let me say that I was horrified by Boris’s initial attitude of “all we need to do is wash our hands for 20 to 30 seconds”, whilst the administration in Hunan were spraying the streets with
Like most people in the UK of late I tend to look at what the press is saying about the Covid19 pandemic. Firstly, let me say that I was horrified by Boris’s initial attitude of “all we need to do is wash our hands for 20 to 30 seconds”, whilst the administration in Hunan were spraying the streets with
Geordie-Y
in
LUPUS UK
5 years ago
Arnica/Dalterparin interactions?
Hi all, I’m having bilateral mastectomy soon & the surgeon wants me to start oral arnica. I’m on daily dalterparin (& hydroxychloroquine). I know arnica interacts with warfarin but struggling to find out how or if theres any specific interaction with dalterparin. Does anyone have experience or any pointers
Hi all, I’m having bilateral mastectomy soon & the surgeon wants me to start oral arnica. I’m on daily dalterparin (& hydroxychloroquine). I know arnica interacts with warfarin but struggling to find out how or if theres any specific interaction with dalterparin. Does anyone have experience or any pointers
Jensgoldenpig
in
Hughes Syndrome APS Forum
5 years ago
MIRAPEXIN PROLONGED RELEASE
Has anyone heard of this? I had a telephone consultation with my Neurologist who prescribed it, because I am not happy with the Gabapentin I am taking. Combined use of 2x600 mg of Gabapentin, 2 co-dydramol and 0.5 mg of Clonazipam each night is still giving me insomnia and restless legs. I was so proud
Has anyone heard of this? I had a telephone consultation with my Neurologist who prescribed it, because I am not happy with the Gabapentin I am taking. Combined use of 2x600 mg of Gabapentin, 2 co-dydramol and 0.5 mg of Clonazipam each night is still giving me insomnia and restless legs. I was so proud
Felicity21
in
Restless Legs Syndrome
5 years ago
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Phase 2 Trial - Exenatide Treatment in Parkinson's Disease
The aim of this trial is to investigate the effect of Exenatide, 2 mg, subcutaneous injection, once weekly on disease progression represented by the change in longitudinal Positron emission tomography with 2-deoxy-2-[fluorine-18]fluoro- D-glucose (FDG-PET) in individual PD subjects, and to identify an
The aim of this trial is to investigate the effect of Exenatide, 2 mg, subcutaneous injection, once weekly on disease progression represented by the change in longitudinal Positron emission tomography with 2-deoxy-2-[fluorine-18]fluoro- D-glucose (FDG-PET) in individual PD subjects, and to identify an
Farooqji
in
Cure Parkinson's
5 years ago
Best painkillers
Morning all. I have been taking hydroxychloroquine since 25th Feb, 200 mg for two weeks and now 400 mg since Tuesday past. The joint pains seem to be getting worse. I was taking motifene, seen GP on Mon and he prescribed celebrex instead. So far, not any relief to be honest. What are your experiences
Morning all. I have been taking hydroxychloroquine since 25th Feb, 200 mg for two weeks and now 400 mg since Tuesday past. The joint pains seem to be getting worse. I was taking motifene, seen GP on Mon and he prescribed celebrex instead. So far, not any relief to be honest. What are your experiences
Charlie_25
in
LUPUS UK
5 years ago
STILL NEED HELP
I'm wondering if I have DAWS( dopamine agonist withdrawal syndrome ) I started my tapering from requip the first of Feb. and finished the end of the month. Now I find I'm having terrifying dreams. heavy sweating. roaring in my head, lots more physical discomforts . Has anyone experienced this and if
I'm wondering if I have DAWS( dopamine agonist withdrawal syndrome ) I started my tapering from requip the first of Feb. and finished the end of the month. Now I find I'm having terrifying dreams. heavy sweating. roaring in my head, lots more physical discomforts . Has anyone experienced this and if
sweetiepye
in
Restless Legs Syndrome
5 years ago
Elocon 0.1%
Just been prescribed Elocon for my skin as biopsy came back positive for Lupus Profundus. Has anyone had any good results on this cream ??
Just been prescribed Elocon for my skin as biopsy came back positive for Lupus Profundus. Has anyone had any good results on this cream ??
Montysmum1
in
LUPUS UK
5 years ago
RESTLESS LEGS SYNDROME & CANNABIS OIL
I’ve suffered with severe RLS for many years and decided to try Cannabis Oil as a topical lotion for the first time but it appeared to be making them even worse. Has anyone else experienced a bad result too. I’m quite disappointed because I’ve read so much about how Cannabis Oil helps sufferers. Any
I’ve suffered with severe RLS for many years and decided to try Cannabis Oil as a topical lotion for the first time but it appeared to be making them even worse. Has anyone else experienced a bad result too. I’m quite disappointed because I’ve read so much about how Cannabis Oil helps sufferers. Any
Hidden
in
Restless Legs Syndrome
5 years ago
Pregnyl injections
Hi, I’m on pregnyl injections to help implantation, due to take the last one tonight. I know it’s synthetic hcg so can cause false positives on home tests, but I’m actually dying to test early! Does anyone know if the digital tests make a difference to the normal ones? I’m assuming I have hcg in my
Hi, I’m on pregnyl injections to help implantation, due to take the last one tonight. I know it’s synthetic hcg so can cause false positives on home tests, but I’m actually dying to test early! Does anyone know if the digital tests make a difference to the normal ones? I’m assuming I have hcg in my
Runner90
in
Fertility Network UK
5 years ago
First round of ivf-natural cycle
Hello, this is the first time I join groups like this and it is so exciting ! I had two failed IUI and on the 27th feb ( two days ago) I did FROZEN embryo transfer on a natural cycle , am only using folic acid and duphaston. I am so worried cause eventhough I know am only two days in still I don’t know
Hello, this is the first time I join groups like this and it is so exciting ! I had two failed IUI and on the 27th feb ( two days ago) I did FROZEN embryo transfer on a natural cycle , am only using folic acid and duphaston. I am so worried cause eventhough I know am only two days in still I don’t know
LilSylver
in
Fertility Network UK
5 years ago
Information from several 'think out of the box' doctors/specialists re the Thyroid Gland
I came across this a few minutes ago: Many on the forum will be familiar with some of these doctors named. "Pure T3 Thyroid and Stories of Recovery from Chronic Fatigue Syndrome (ME/CFS) and Fibromyalgia: An Overview." https://www.healthrising.org/blog/2019/03/07/thyroid-t3-chronic-fatigue-fibromyalgia-recovery-stories
I came across this a few minutes ago: Many on the forum will be familiar with some of these doctors named. "Pure T3 Thyroid and Stories of Recovery from Chronic Fatigue Syndrome (ME/CFS) and Fibromyalgia: An Overview." https://www.healthrising.org/blog/2019/03/07/thyroid-t3-chronic-fatigue-fibromyalgia-recovery-stories
shaws
Administrator
in
Thyroid UK
5 years ago
Serum aluminum accumulation with Cyano B12 Injections
Cyanocobalamin injections and aluminum as a preservative - anyone finding they are accumulating aluminum in their blood? What are drawbacks of MethylCobalamin with Benzyl Alcohol preservative, or HydroxoCobalamin with MethylParaben and PropylParaben as preservatives?
Cyanocobalamin injections and aluminum as a preservative - anyone finding they are accumulating aluminum in their blood? What are drawbacks of MethylCobalamin with Benzyl Alcohol preservative, or HydroxoCobalamin with MethylParaben and PropylParaben as preservatives?
DFord
in
Pernicious Anaemia Society
5 years ago
Tooth Extractions
As a PwP, is there anything in particular I need to be aware of regarding having a couple teeth pulled? I am concerned about what kind of anesthesia will be used and how I might respond to it. Also, am I more prone to infection? Should I ask them to prescribe an antibiotic for after? I’m just not sure
As a PwP, is there anything in particular I need to be aware of regarding having a couple teeth pulled? I am concerned about what kind of anesthesia will be used and how I might respond to it. Also, am I more prone to infection? Should I ask them to prescribe an antibiotic for after? I’m just not sure
Cjbro2000
in
Cure Parkinson's
5 years ago
Betrayal and the Horrible Pain After
This started out as a response to Manerva regarding the person who is taking gabapentin and this whole vitamin regimen and wearing compression socks (sleeves he calls them) and my thoughts on it but while it started out that way it’s grown so much deeper and morphed into gut wrenching pain and this
This started out as a response to Manerva regarding the person who is taking gabapentin and this whole vitamin regimen and wearing compression socks (sleeves he calls them) and my thoughts on it but while it started out that way it’s grown so much deeper and morphed into gut wrenching pain and this
Not-methadone-addict
in
Restless Legs Syndrome
5 years ago
Early I'll health retirement
Hi, I am going to see my rheumatologist tomorrow and asking him to back me up for ill health retirement. I am worried that he may disagree and want me to try other drugs first although I've tried almost all of them already. In a nutshell I'm 37 work in the NHS as a nurse (currently off sick). I have
Hi, I am going to see my rheumatologist tomorrow and asking him to back me up for ill health retirement. I am worried that he may disagree and want me to try other drugs first although I've tried almost all of them already. In a nutshell I'm 37 work in the NHS as a nurse (currently off sick). I have
Autumnwillow
in
LUPUS UK
5 years ago
Early ill health retirement
Hi I am going to see my rheumatology consultant tomorrow and going to be asking him to fight my case for early retirement. I am so worried that he may disagree and want me try other drugs although I've really tried them all already. In a nutshell I'm 37 years old, working as a nurse (currently off sick
Hi I am going to see my rheumatology consultant tomorrow and going to be asking him to fight my case for early retirement. I am so worried that he may disagree and want me try other drugs although I've really tried them all already. In a nutshell I'm 37 years old, working as a nurse (currently off sick
Rareity
in
NRAS
5 years ago
Concerned over dates
Hello, So I was wondering if anyone could pass on some advice or positive thoughts! This is the first time I have fallen pregnant naturally. I have had two rounds of IVF one failed and second one ended in MMC. This pregnancy was unplanned so a surprise. I have long cycles (anywhere between 33-37 days
Hello, So I was wondering if anyone could pass on some advice or positive thoughts! This is the first time I have fallen pregnant naturally. I have had two rounds of IVF one failed and second one ended in MMC. This pregnancy was unplanned so a surprise. I have long cycles (anywhere between 33-37 days
Kama41
in
Pregnancy and Parenting Support
5 years ago
Dry eyes
Hi everyone, just one question. What do you take for dry itchy eye? I seem to be getting this now and then and it also stings. Do you ask for something from your doctor or go for over the counter relief ?
Hi everyone, just one question. What do you take for dry itchy eye? I seem to be getting this now and then and it also stings. Do you ask for something from your doctor or go for over the counter relief ?
Frankiefocus
in
NRAS
5 years ago
Anxiety pre viability scan - what are the reasons for a mmc?
Hello ladies, I am currently 6w2d pregnant and have my viability scan on Tuesday, when I’ll be 6w5d. I’m on progesterone support (pessaries and intramuscular injection every other day) and haven’t had even the tiniest drop of blood (yet), HCG is rising nicely....yet I’m so scared of my viability scan
Hello ladies, I am currently 6w2d pregnant and have my viability scan on Tuesday, when I’ll be 6w5d. I’m on progesterone support (pessaries and intramuscular injection every other day) and haven’t had even the tiniest drop of blood (yet), HCG is rising nicely....yet I’m so scared of my viability scan
Hidden
in
Pregnancy and Parenting Support
5 years ago
Off Pramipexole
First I want to thank so many of you for your excellent advice and support to others on this site. I read posts almost daily but for some reason I don’t add much... I wrote several weeks ago and explained that I had seen Dr Buchfuhrer after Christmas and he took me cold turkey off Pramipexole and started
First I want to thank so many of you for your excellent advice and support to others on this site. I read posts almost daily but for some reason I don’t add much... I wrote several weeks ago and explained that I had seen Dr Buchfuhrer after Christmas and he took me cold turkey off Pramipexole and started
Grandmagoose
in
Restless Legs Syndrome
5 years ago
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