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Cockayne syndrome
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5mg prednisone for life?
My sister and brother, in their 80's have had PMR for ten or more years, having gone thru flareups and even one had a 2 years remission but both are now on 5mg pred for life, which their rheumy (same for both) has permitted. I got pmr less than 2 years ago, started at 20mg and after several flarups,
My sister and brother, in their 80's have had PMR for ten or more years, having gone thru flareups and even one had a 2 years remission but both are now on 5mg pred for life, which their rheumy (same for both) has permitted. I got pmr less than 2 years ago, started at 20mg and after several flarups,
izzyart
in
PMRGCAuk
4 years ago
FeSo4 and Mg and Requip
My boyfriend was suffering with RLS for a while and about a week ago, he had little to no sleep for 3 days. I researched online, and reach to this forum. I was scared of Requip possible side effect and alot of posting about people want to/did come off of it. I was hesitant to recommend him to try, but
My boyfriend was suffering with RLS for a while and about a week ago, he had little to no sleep for 3 days. I researched online, and reach to this forum. I was scared of Requip possible side effect and alot of posting about people want to/did come off of it. I was hesitant to recommend him to try, but
Yamama
in
Restless Legs Syndrome
4 years ago
Anomaly
Hi guys, After being in mild augmentation and having been on Requip (0.25mg) for just over a month, I started getting symptoms early morning, every afternoon and atleast 3 breakthroughs at night. This is when I also took tramadol 20mg, Pregab 150mg. With such discomfort, I decided to try a drug holiday
Hi guys, After being in mild augmentation and having been on Requip (0.25mg) for just over a month, I started getting symptoms early morning, every afternoon and atleast 3 breakthroughs at night. This is when I also took tramadol 20mg, Pregab 150mg. With such discomfort, I decided to try a drug holiday
Heatherlss
in
Restless Legs Syndrome
4 years ago
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Any ideas of changing patterns of RLS symptoms
Hi there. Can anyone help. When trying to figure out coping with RLS and trying to eliminate what I believe may be potential triggers the pattern of symptoms changes. Recently found starts evening in legs. When this finally settles in small hours of the morning the sensation of crawling elevated
Hi there. Can anyone help. When trying to figure out coping with RLS and trying to eliminate what I believe may be potential triggers the pattern of symptoms changes. Recently found starts evening in legs. When this finally settles in small hours of the morning the sensation of crawling elevated
Debsamuels
in
Restless Legs Syndrome
4 years ago
Miscarriage
I did my ivf on24 February I did my blood test my beta hcg was 34,9 my doctor was very happy on 30 I had some blood doctor send me for blood test it was negative 😢I was very sad ...
I did my ivf on24 February I did my blood test my beta hcg was 34,9 my doctor was very happy on 30 I had some blood doctor send me for blood test it was negative 😢I was very sad ...
Hayet
in
Fertility Network UK
4 years ago
Desperate for support
Good morning, I recently was diagnosed with Rheumatoid Arthritis and im awaiting to see the consultant about Sjogrens symptoms. I suffer from dry mouth, eyes and fascial sweating which i believe is connected to the parotid. My face amd neck swell near my ears and i HATE it. Im currently undiagnosed
Good morning, I recently was diagnosed with Rheumatoid Arthritis and im awaiting to see the consultant about Sjogrens symptoms. I suffer from dry mouth, eyes and fascial sweating which i believe is connected to the parotid. My face amd neck swell near my ears and i HATE it. Im currently undiagnosed
Staywildmoonchild
in
The Australian Sjögren's Syndrome Association
4 years ago
YouTube video at drug / pain clinic
So I have this amazing drug that works buprenorphine however I have had a hard time accessing it in Australia also the pharmacies have refused to fill my prescriptions even after they speak to the doctor or doctors I should say. Lucky for me I brought back a years worth knowing I would need time to fight
So I have this amazing drug that works buprenorphine however I have had a hard time accessing it in Australia also the pharmacies have refused to fill my prescriptions even after they speak to the doctor or doctors I should say. Lucky for me I brought back a years worth knowing I would need time to fight
Shumbah
in
Restless Legs Syndrome
4 years ago
Try Caffeine for RLS
I've had RLS since I was young. Of course I never knew what it was, or if it even had a name until I was in my 30s. I am now 56. I have used mirapex and lyrica with success, but they made me gain weight. About 12 years ago, by accident, I found that CAFFEINE was the answer. Yes, believe it or not, caffeine
I've had RLS since I was young. Of course I never knew what it was, or if it even had a name until I was in my 30s. I am now 56. I have used mirapex and lyrica with success, but they made me gain weight. About 12 years ago, by accident, I found that CAFFEINE was the answer. Yes, believe it or not, caffeine
Bftalbert
in
Restless Legs Syndrome
4 years ago
Alopecia Areata triggered by pregnancy
Hi All, I'm currently 6 months pregnant and when I was 2 months, my hairdresser noticed a bald spot on my head. That bald spot turned out to become alopecia areata - in the next few months I've lost almost all of my hair and I'm now starting to loose my eyebrows and eyelashes, assuming it will become
Hi All, I'm currently 6 months pregnant and when I was 2 months, my hairdresser noticed a bald spot on my head. That bald spot turned out to become alopecia areata - in the next few months I've lost almost all of my hair and I'm now starting to loose my eyebrows and eyelashes, assuming it will become
Flowerflower
in
Thyroid UK
4 years ago
EMAIL from Professor Richard P Allen John Hopkins
Dear Mrs Howard I was sad hearing about your travails getting treatment for RLS. Yes buprenorphine is one of the opioids used for refractory RLS with reasonably good results. It tends to get used after methadone is tried, but it is very effective in many patients. We have long term experience
Dear Mrs Howard I was sad hearing about your travails getting treatment for RLS. Yes buprenorphine is one of the opioids used for refractory RLS with reasonably good results. It tends to get used after methadone is tried, but it is very effective in many patients. We have long term experience
Shumbah
in
Restless Legs Syndrome
4 years ago
Rheumatology 2nd appointment
I had my first rheumatology appointment earlier this month and had several blood tests, saliva test and schirmer's test done.I havent had results yet but I've recieved another letter today for another rheumatology appointment in October at a different hospital but at musco skeletal department,will this
I had my first rheumatology appointment earlier this month and had several blood tests, saliva test and schirmer's test done.I havent had results yet but I've recieved another letter today for another rheumatology appointment in October at a different hospital but at musco skeletal department,will this
Kels1974
in
Scleroderma & Raynaud's UK (SRUK)
4 years ago
flecainide
For sometime now I have been able to keep my AFIB under control with Nebivolol but today I have had a very fast and irregular heart beat again, I have taken a flecainide given as a PIP could anyone tell me how long they usually take to slow ones heart down,? with everything going on I have not been
For sometime now I have been able to keep my AFIB under control with Nebivolol but today I have had a very fast and irregular heart beat again, I have taken a flecainide given as a PIP could anyone tell me how long they usually take to slow ones heart down,? with everything going on I have not been
Florenceamelia
in
AF Association
4 years ago
Advice for clinic mix up
Dear ladies, hoping to seek advice for a situation with our private clinic. Sorry if this ends up long winded to explain but I’ll try to be concise and wondering where we stand. We tried to have a baby naturally for 2 years before discovering my partner had sperm issues after starting ivf tests. It
Dear ladies, hoping to seek advice for a situation with our private clinic. Sorry if this ends up long winded to explain but I’ll try to be concise and wondering where we stand. We tried to have a baby naturally for 2 years before discovering my partner had sperm issues after starting ivf tests. It
BettyBe
in
Fertility Network UK
4 years ago
Anyone had a bfp but literally no symptoms?
Now 5dp5pt, still no symptoms. This was a bad sign in cycle 1. I understand every cycle and every pregnancy is different. Second cycle I had af pains 5dp5pt resulting in bfp despite leading to mmc. Anyone had a bfp but literally ZERO symptoms?
Now 5dp5pt, still no symptoms. This was a bad sign in cycle 1. I understand every cycle and every pregnancy is different. Second cycle I had af pains 5dp5pt resulting in bfp despite leading to mmc. Anyone had a bfp but literally ZERO symptoms?
Jessy1280
in
Fertility Network UK
4 years ago
Very itchy rash all over body - help please!
Reaching out for help for my daughter. She has a very itchy rash all over her body- including soles of feet and palms of hands! What can she do for relief? She is taking antihistamine.
Reaching out for help for my daughter. She has a very itchy rash all over her body- including soles of feet and palms of hands! What can she do for relief? She is taking antihistamine.
Moomin8
in
NRAS
4 years ago
Caffeine or not ?
Hi everyone.. I'm experiencing another "bout" or "attack" of rls... So not sleeping due to being woken up most nights with restless legs.. So now lack of sleep to add to everything.. I usually take an extra iron tablet and extra magnesium one and magnesium gel on both legs... Eventually going back to
Hi everyone.. I'm experiencing another "bout" or "attack" of rls... So not sleeping due to being woken up most nights with restless legs.. So now lack of sleep to add to everything.. I usually take an extra iron tablet and extra magnesium one and magnesium gel on both legs... Eventually going back to
janland
in
Restless Legs Syndrome
4 years ago
Aluminium in Hydroxocobalamin?
Hello all, I have a sky high aluminium level, and worry if my B12 Hydroxocobalamin injections contribute to this. I buy from Germany, Hevert 1 mg ampuls. It doesn't say in the ingrediens lidt, but does anyone know if there could be a hidden aluminium salt despite this? Thanks!
Hello all, I have a sky high aluminium level, and worry if my B12 Hydroxocobalamin injections contribute to this. I buy from Germany, Hevert 1 mg ampuls. It doesn't say in the ingrediens lidt, but does anyone know if there could be a hidden aluminium salt despite this? Thanks!
indywindy
in
Pernicious Anaemia Society
4 years ago
More advice would be wonderful
A while back I posted on here about my journey coming off Neupro patches and transferring to a Gabapentin and had some truly great advice. I am now taking 900mg, split into 300 at around 5 o’clock and 600 around 8 o’clock. It occasionally helps and I do believe that the restless legs are not quite
A while back I posted on here about my journey coming off Neupro patches and transferring to a Gabapentin and had some truly great advice. I am now taking 900mg, split into 300 at around 5 o’clock and 600 around 8 o’clock. It occasionally helps and I do believe that the restless legs are not quite
Mulberry100
in
Restless Legs Syndrome
4 years ago
VITAMIN SCARE
Lately I have been very listless and fatigued, (no I don't have that). A friend of mine suggested I try multivitamins. They have been sitting in my medicine box for a week now, I'm just too frightened to take anything new. (You know what it's like). So should I be afraid or should I just dive in.
Lately I have been very listless and fatigued, (no I don't have that). A friend of mine suggested I try multivitamins. They have been sitting in my medicine box for a week now, I'm just too frightened to take anything new. (You know what it's like). So should I be afraid or should I just dive in.
BENGAL1000
in
Restless Legs Syndrome
4 years ago
Stopping Ropinirole
The neurosurgeon I saw in Liverpool has recommend I stop taking Ropinirole, as although it helped RLS a lot at first, I find that now I can only get a few hours sleep on it and the RLS returns quite early during the day (augmentation?). So I have to reduce from 2 to 1 mg per night for a week, then stop
The neurosurgeon I saw in Liverpool has recommend I stop taking Ropinirole, as although it helped RLS a lot at first, I find that now I can only get a few hours sleep on it and the RLS returns quite early during the day (augmentation?). So I have to reduce from 2 to 1 mg per night for a week, then stop
sudokufan
in
Restless Legs Syndrome
4 years ago
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