Search
Search
About
Log in
Join
Experiences with
Coagulation factor IX
Posts
Communities
1,629 public posts
Filter results
Cirrhosis makes me sleep all day & night -- any remedies?
Hi! I'm new here. I have had NASH for many years and it has now turned into cirrhosis. I have numerous varices, and had a near-fatal episode of bleeding from my varices a few years ago. The varices have responded well to banding, but I am now astonishingly tired. Sleeping 18 to 22 hours a day is not
Hi! I'm new here. I have had NASH for many years and it has now turned into cirrhosis. I have numerous varices, and had a near-fatal episode of bleeding from my varices a few years ago. The varices have responded well to banding, but I am now astonishingly tired. Sleeping 18 to 22 hours a day is not
RosaRugosa
in
Liver4Life
6 years ago
B12 oral spray
Hi all, could I please have some advice regarding the b12 subligal spray! I have started using this daily and having 4 weekly injection. I have pernicious anaemia which I tested positive for intrinsic factor. So my question is! Is the siblings spray effective? My b12 level atm is 415 at 4 weekly injections
Hi all, could I please have some advice regarding the b12 subligal spray! I have started using this daily and having 4 weekly injection. I have pernicious anaemia which I tested positive for intrinsic factor. So my question is! Is the siblings spray effective? My b12 level atm is 415 at 4 weekly injections
Amynic
in
Pernicious Anaemia Society
6 years ago
Advice Needed Please
Hi There I was diagnosed with PA back in March when I went to the Drs with dramatic hair loss and generally not feeling well. Dr done some blood tests and this came back with B12 102 (ng/l) and serum folate 10.4 (ug/l) with testing positive for gastric parietal antibodies but negative for intrinsic
Hi There I was diagnosed with PA back in March when I went to the Drs with dramatic hair loss and generally not feeling well. Dr done some blood tests and this came back with B12 102 (ng/l) and serum folate 10.4 (ug/l) with testing positive for gastric parietal antibodies but negative for intrinsic
joleen19832
in
Pernicious Anaemia Society
6 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
B12 management
With recent bloods of B12 showing 211 (200-) I have just seen gp and was told it was normal and did not require treatment. I had pdf with guidance and argued the point. Was told it had gone up from 133 (180-) 2 years ago and would take time. Advised supplements from Holland & Barrett. I advised I did
With recent bloods of B12 showing 211 (200-) I have just seen gp and was told it was normal and did not require treatment. I had pdf with guidance and argued the point. Was told it had gone up from 133 (180-) 2 years ago and would take time. Advised supplements from Holland & Barrett. I advised I did
LowB12
in
Pernicious Anaemia Society
6 years ago
Moving forward
Saw GP today & plans made: 1. Repeat bloods including intrinsic factor & parietal antibodies etc & look at renal function 2. Liver ultrasound to see if fatty liver 3. ENT referral to include thyroid scan...initially tried to pursuance me recent feeling of choking at night was related to weight, then
Saw GP today & plans made: 1. Repeat bloods including intrinsic factor & parietal antibodies etc & look at renal function 2. Liver ultrasound to see if fatty liver 3. ENT referral to include thyroid scan...initially tried to pursuance me recent feeling of choking at night was related to weight, then
LowB12
in
Thyroid UK
6 years ago
Is muscular pain and stiffness a symptom of PA?
Hi, I've just joined PA because my husband was diagnosed with PA about 2 weeks ago. At this stage we're hoping that it is just PA he has as his symptoms are not usual. He is suffering from a lot of stiffness and pain, mostly in his large muscles. This is very bad at times and at other times not so bad
Hi, I've just joined PA because my husband was diagnosed with PA about 2 weeks ago. At this stage we're hoping that it is just PA he has as his symptoms are not usual. He is suffering from a lot of stiffness and pain, mostly in his large muscles. This is very bad at times and at other times not so bad
LuceyLocket
in
Pernicious Anaemia Society
6 years ago
Newly diagnosed with pernicious anemia, still have unresolved symptoms
Hi everyone! I'm quite new here, and was just diagnosed with pernicious anemia (somewhat--more later) a month ago. I essentially had overwhelming fatigue for several months, to the point where I finally realized it must be a medical situation. When I went to the GP, she tested my B12 levels (as I'm
Hi everyone! I'm quite new here, and was just diagnosed with pernicious anemia (somewhat--more later) a month ago. I essentially had overwhelming fatigue for several months, to the point where I finally realized it must be a medical situation. When I went to the GP, she tested my B12 levels (as I'm
hummingbird88
in
Pernicious Anaemia Society
6 years ago
Medical record online.
Hope everyone is as well as can beš Just been checking my Medical record online and going through one letter my doctor wrote to I canāt remember who at this moment.Any way I noticed doctor ad put to ? That I was positive for intrinsic factor antibodies not sure what it is perhaps you kind people will
Hope everyone is as well as can beš Just been checking my Medical record online and going through one letter my doctor wrote to I canāt remember who at this moment.Any way I noticed doctor ad put to ? That I was positive for intrinsic factor antibodies not sure what it is perhaps you kind people will
Chance15
in
Pernicious Anaemia Society
6 years ago
Castor oil packs anyone?
Hi - I'm curious to know who uses castor oil packs on here (castor oil smeared over pelvic area, covered in 2 small sheets of white towelling, hot water bottle on top), or who has tried them in the past. For those who use them - how often do you use them, and how long for at a time? Do you find them
Hi - I'm curious to know who uses castor oil packs on here (castor oil smeared over pelvic area, covered in 2 small sheets of white towelling, hot water bottle on top), or who has tried them in the past. For those who use them - how often do you use them, and how long for at a time? Do you find them
Healthnut25
in
Endometriosis UK
6 years ago
Anyone for Castor Oil? šØ
Good evening guys I thought I would write a post as I've been browsing the net tonight finding the magical cure for thyroid swelling and nodules etc, lol only jokingš but if someone said if you stand on your head for a hour all will be better I would!! I came across a article about the benefits of a
Good evening guys I thought I would write a post as I've been browsing the net tonight finding the magical cure for thyroid swelling and nodules etc, lol only jokingš but if someone said if you stand on your head for a hour all will be better I would!! I came across a article about the benefits of a
Rmichelle
in
Thyroid UK
6 years ago
Antiphospholipid Syndrome: The Risk of Travel at High Altitudes
Antiphospholipid Syndrome: The Risk of Travel at High Altitudes August 16, 2018 ā¢ By Vaneet Kaur Sandhu, MD, & Kathleen Teves, MD Antiphospholipid syndrome (APS) is an autoimmune clotting disorder that may present catastrophically with multiple thromboses over a short period of time. In this article
Antiphospholipid Syndrome: The Risk of Travel at High Altitudes August 16, 2018 ā¢ By Vaneet Kaur Sandhu, MD, & Kathleen Teves, MD Antiphospholipid syndrome (APS) is an autoimmune clotting disorder that may present catastrophically with multiple thromboses over a short period of time. In this article
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
6 years ago
Skin patches, sublingual sprays etc. Do they work?
Hi I tested negative for intrinsic factor antibodies and my b12 is quite low (see profile for numbers), but I am Hashi's and not got the treatment for that quite right yet. I have some b12 deficient symptoms (possibly, could be the Hashi's perhaps). As more b12 won't do me any harm, and working on
Hi I tested negative for intrinsic factor antibodies and my b12 is quite low (see profile for numbers), but I am Hashi's and not got the treatment for that quite right yet. I have some b12 deficient symptoms (possibly, could be the Hashi's perhaps). As more b12 won't do me any harm, and working on
Laundretta
in
Pernicious Anaemia Society
6 years ago
Results back from 1st blood tests via Blue Horizon
Hi everyone I just received my blood results and wonder if someone can interpret them for me so I can have a discussion my GP on Friday. I have got a result review from the doctors at Blue Horizon but I really would like to hear what members say about them as I feel that you have more experience and
Hi everyone I just received my blood results and wonder if someone can interpret them for me so I can have a discussion my GP on Friday. I have got a result review from the doctors at Blue Horizon but I really would like to hear what members say about them as I feel that you have more experience and
Bellesbus
in
Thyroid UK
6 years ago
RS3PE
I wonder if RS3PE is causing the swelling in my right hand, going on for 2 months. link; "RS3PE syndrome ā The RS3PE syndrome [52] refers to Remitting Seronegative Symmetrical Synovitis with Pitting Edema, also described as the puffy edematous hand syndrome or distal extremity swelling with pitting edema
I wonder if RS3PE is causing the swelling in my right hand, going on for 2 months. link; "RS3PE syndrome ā The RS3PE syndrome [52] refers to Remitting Seronegative Symmetrical Synovitis with Pitting Edema, also described as the puffy edematous hand syndrome or distal extremity swelling with pitting edema
gifford7
in
PMRGCAuk
6 years ago
Fibromyalgia: A Primary Care Approach
Fibromyalgia: A Primary Care Approach
Veronica Hackethal, MD Jun 26, 2018
Fibromyalgia
Patient resources include the University of Michigan FibroGuide and the Arthritis Foundation patient information page. Fibromyalgia is a controversial condition. There is no clear cause, no definitive
Fibromyalgia: A Primary Care Approach
Veronica Hackethal, MD Jun 26, 2018
Fibromyalgia
Patient resources include the University of Michigan FibroGuide and the Arthritis Foundation patient information page. Fibromyalgia is a controversial condition. There is no clear cause, no definitive
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
6 years ago
Would you recommend lamberts methyl b complex?
I have had my active b12, intrinsic factor and folate tested during a long few months with no supplements. both NHS and private GP think I should stop considering b12 deficiency/PA despite numerous symptoms. I am therefore going to try a b complex to see if i feel any better. anyone had experience of
I have had my active b12, intrinsic factor and folate tested during a long few months with no supplements. both NHS and private GP think I should stop considering b12 deficiency/PA despite numerous symptoms. I am therefore going to try a b complex to see if i feel any better. anyone had experience of
tiredBFmum
in
Pernicious Anaemia Society
6 years ago
HELP FOR DAUGHTER STILL NEEDED PLEASE !!
I posted on behalf of my daughter 2 months ago with her Thyroid & Vitamin results and received a lot of great advice & information. She has been suffering for almost 2 years now with extreme fatigue, no energy, almost daily headaches, heavy periods, brain fogginess, not remembering events that friends
I posted on behalf of my daughter 2 months ago with her Thyroid & Vitamin results and received a lot of great advice & information. She has been suffering for almost 2 years now with extreme fatigue, no energy, almost daily headaches, heavy periods, brain fogginess, not remembering events that friends
janey1234
in
Thyroid UK
6 years ago
Please Help Us!!
I posted on behalf of my 19 year old daughter about 18 months ago about her extreme fatigue, lack of energy, digestive problems, not feeling refreshed after a long sleep, etc. At the time she had a full blood count & thyroid panel (TSH & FT4 only) and I posted her results for your consideration (1st
I posted on behalf of my 19 year old daughter about 18 months ago about her extreme fatigue, lack of energy, digestive problems, not feeling refreshed after a long sleep, etc. At the time she had a full blood count & thyroid panel (TSH & FT4 only) and I posted her results for your consideration (1st
janey1234
in
Pernicious Anaemia Society
6 years ago
Rheumatoid Factor
Hi. Am waiting on rheumatology appointment. Dr has referred me as having pain and swelling in thumb joints. When she Did RF test it was raised so she thinks it's possible RA. Just wondered what else can cause a high RF reading. Thanks...
Hi. Am waiting on rheumatology appointment. Dr has referred me as having pain and swelling in thumb joints. When she Did RF test it was raised so she thinks it's possible RA. Just wondered what else can cause a high RF reading. Thanks...
Nomoney2018
in
NRAS
6 years ago
Misdiagnosed Pernicious Anemia?? 2 Differnt Drs Opinions Im confused!
Four years ago Blood test B12 was 209. Dr started me on B12 sublingual. Then week later gave me injection Cynocolbium, thenShe sent me to lab for intrinsic Factor, Gastric Partial test. She did not order Homeocistine or MMA. The Intrinsic Factor said Positive. Gastric Partial Cells said Eqivical . So
Four years ago Blood test B12 was 209. Dr started me on B12 sublingual. Then week later gave me injection Cynocolbium, thenShe sent me to lab for intrinsic Factor, Gastric Partial test. She did not order Homeocistine or MMA. The Intrinsic Factor said Positive. Gastric Partial Cells said Eqivical . So
Oberley
in
Pernicious Anaemia Society
6 years ago
1
...
40
41
42
...
82
Next page
10
20
30
40
50
60
70
80
Filter results
Clear filters
Posted in
All communities
Pernicious Anaemia Society
873 results
Thyroid UK
255 results
NRAS
154 results
View top 10 communities
Sort by
Most Relevant
Newest