I was diagnosed with PA back in March when I went to the Drs with dramatic hair loss and generally not feeling well. Dr done some blood tests and this came back with B12 102 (ng/l) and serum folate 10.4 (ug/l) with testing positive for gastric parietal antibodies but negative for intrinsic factor. Her action then was B12 injections six loading doses and every 3 months for life.
Now after having my loading injections end of March, then to every 3 months I went to the Drs few weeks ago to ask for more frequent injections than every 3 months as after about 8 weeks I start to feel not well again and start have symptoms of brain fog, poor toilet habits, cold hands and feet and generally not feeling myself at all. She said she would speak to the pharmacist!?! Now I went back yesterday and was told injections are to stop and she has prescribed oral B12 50mg to see how I go for six months. Now I argued saying if I had the parietal antibodies surely this won’t even do anything but set me back, she told me this is what pharmacist has said and will be the ongoing treatment as I don’t have positive intrinsic factor. I’m so confused and don’t think she knows what she is talking about, or am I wrong? I am not vegetarian and eat plenty of meat, eggs in my diet. Feel like I am not being listened to at all and want to fight this is I do have a case to fight