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SIDE EFFECTS OF ANAGRELIDE
Update from previous post. Saw Haematologist yesterday, unable to have Interferon, only option open to me is Anagrelide. What are your experiences of this medication please. I'm ET JAk2, take Aspirin, 15 mg Prednisone and co codamol or similar pain relief for spinal stenosis. At present take Ruxolitinib
Update from previous post. Saw Haematologist yesterday, unable to have Interferon, only option open to me is Anagrelide. What are your experiences of this medication please. I'm ET JAk2, take Aspirin, 15 mg Prednisone and co codamol or similar pain relief for spinal stenosis. At present take Ruxolitinib
Heather270240
in
MPN Voice
3 years ago
The long wait for laparoscopy
Hi all! I had my first outpatient meeting with gynaecology yesterday, where I've been referred for a laparoscopy to try to diagnose and treat what's suspected bladder endo. Unfortunately with covid and the current nhs strain the wait times are likely over a year and no further treatment has been offered
Hi all! I had my first outpatient meeting with gynaecology yesterday, where I've been referred for a laparoscopy to try to diagnose and treat what's suspected bladder endo. Unfortunately with covid and the current nhs strain the wait times are likely over a year and no further treatment has been offered
AnonyMousey99
in
Endometriosis UK
3 years ago
Constant headache
Constant headache For the past week I have had a pretty bad headache. I have seen a doctor who examined me for GCA . He didn’t think it was so prescribed co-codamol. At night I wake the pains in the head and under my tongue almost like a cramp. If I take a pain killer I can last till the morning
Constant headache For the past week I have had a pretty bad headache. I have seen a doctor who examined me for GCA . He didn’t think it was so prescribed co-codamol. At night I wake the pains in the head and under my tongue almost like a cramp. If I take a pain killer I can last till the morning
Flrchrs
in
PMRGCAuk
3 years ago
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Medication changes
Hello, just wondering if anyone can let me know what treatments/medications changed or added when they had taken co-codamol full dose, gabapentin full dose and amitriptilyne 25mg with a change of dihydrocodeine at night instead of codeine and they have been getting extra pain at night (sacro-iliac/periformis
Hello, just wondering if anyone can let me know what treatments/medications changed or added when they had taken co-codamol full dose, gabapentin full dose and amitriptilyne 25mg with a change of dihydrocodeine at night instead of codeine and they have been getting extra pain at night (sacro-iliac/periformis
greekqueen
in
Pain Concern
3 years ago
Co trimoxazole
Hi, And a good New year to All. How long should a person take co trimoxazole?? Any knowledge is appreciated. Thanks
Hi, And a good New year to All. How long should a person take co trimoxazole?? Any knowledge is appreciated. Thanks
sorefeetsoldier
in
Vasculitis UK
3 years ago
Ovary pain
Hi, I had my first lap in June for endo and they removed what they could and an endometrioma from one ovary. I’ve since had only mild pain but tonight I’ve had horrible pain on my left side where the cyst was. I had a scan in Nov which showed x2 small cysts in left ovary. I’ve taken co codamol for the
Hi, I had my first lap in June for endo and they removed what they could and an endometrioma from one ovary. I’ve since had only mild pain but tonight I’ve had horrible pain on my left side where the cyst was. I had a scan in Nov which showed x2 small cysts in left ovary. I’ve taken co codamol for the
ZiggyandBC
in
Endometriosis UK
3 years ago
Knee osteoarthritis
Hi all, after my diagnosis of osteoarthritis my consultant advised of referral to a pain clinic as has another medical professional after further assessment, my GP has only prescribed co-codamol , has anyone else heard of pain clinic and do I need to push my GP for referral.
Hi all, after my diagnosis of osteoarthritis my consultant advised of referral to a pain clinic as has another medical professional after further assessment, my GP has only prescribed co-codamol , has anyone else heard of pain clinic and do I need to push my GP for referral.
Jollj
in
Arthritis Action
3 years ago
Long term use of codeine as pain killer? I have been prescribed 30/500mgs of codeine co codamol for over 20 years severe pain.
I do know that should i have to stop this for any reason that i would experience a bad withdrawal BUT if my pain ever came to be under control without the use of these weak opiates how bad would the withdrawal be or have any of you came through it I know i am PHYSICALLY hooked on this - no doubt of
I do know that should i have to stop this for any reason that i would experience a bad withdrawal BUT if my pain ever came to be under control without the use of these weak opiates how bad would the withdrawal be or have any of you came through it I know i am PHYSICALLY hooked on this - no doubt of
Molefosey
in
Pain Concern
3 years ago
No support from GP - need to change meds
Hi everyone and Merry Christmas! This is my first post to the forum and I'm sorry it's quite a long one. I'm hoping that someone can advise me about a change of medication. I've had RLS since a teenager (now in my 50s). I augmented on Pramipexole about 5 years ago and went through hell to stop. I tried
Hi everyone and Merry Christmas! This is my first post to the forum and I'm sorry it's quite a long one. I'm hoping that someone can advise me about a change of medication. I've had RLS since a teenager (now in my 50s). I augmented on Pramipexole about 5 years ago and went through hell to stop. I tried
Night_raven
in
Restless Legs Syndrome
3 years ago
Toe cramping and leg pain in Parkinson’s
My WWP experiences intense pain and discomfort that she finds difficult to describe in her legs, several times every day. Mostly accompanied by cramping, both upwards and downwards, of toes, which makes walking very difficult and sometimes impossible. She had DBS surgery 16 months ago, but this has not
My WWP experiences intense pain and discomfort that she finds difficult to describe in her legs, several times every day. Mostly accompanied by cramping, both upwards and downwards, of toes, which makes walking very difficult and sometimes impossible. She had DBS surgery 16 months ago, but this has not
paulalex1313
in
Cure Parkinson's
3 years ago
Paracetamol and co-codamol
Hi all, I have significant osteoarthritis in my hip. I have been prescribed co-codamol 2 capsules at night and to take paracetamol in the daytime. As yet I have only taken 1 tablet at night and 2 paracetamol in the day. Not really helping a lot. I am not keen on taking too many painkillers as I also
Hi all, I have significant osteoarthritis in my hip. I have been prescribed co-codamol 2 capsules at night and to take paracetamol in the daytime. As yet I have only taken 1 tablet at night and 2 paracetamol in the day. Not really helping a lot. I am not keen on taking too many painkillers as I also
cmjoyce
in
Arthritis Action
3 years ago
Ongoing b12
Started this thread (as suggested by sleepy bunny) It is regarding my partner and his struggle of late. He got infection early november, antibiotics then had to have steroids spray as he still not well from infection. Since then developed sciatica and muscle pain, back and groin pain. Anyway last week
Started this thread (as suggested by sleepy bunny) It is regarding my partner and his struggle of late. He got infection early november, antibiotics then had to have steroids spray as he still not well from infection. Since then developed sciatica and muscle pain, back and groin pain. Anyway last week
Hidden
in
Pernicious Anaemia Society
3 years ago
Pain with every move
Hi please help I was on the menopause injections for 2 years, I switched between zoladex and prostap, and although I bled through out the 2 years and experienced bad menopausal side effects it helped me manage my endo pains. In March of this year I reached 2 years of using these injections, and I'm
Hi please help I was on the menopause injections for 2 years, I switched between zoladex and prostap, and although I bled through out the 2 years and experienced bad menopausal side effects it helped me manage my endo pains. In March of this year I reached 2 years of using these injections, and I'm
Love_koffy
in
Endometriosis UK
3 years ago
... and relax (hopefully)!
Long story ahead! It’s been a few weeks of ‘things’. In early November hubby complained his head was sore, which can mean all sorts since his stroke and not always being able to explain very well. Two days later he had a cluster of little blisters by his eye - shingles. A course of Aciclovar stopped
Long story ahead! It’s been a few weeks of ‘things’. In early November hubby complained his head was sore, which can mean all sorts since his stroke and not always being able to explain very well. Two days later he had a cluster of little blisters by his eye - shingles. A course of Aciclovar stopped
Janma123
in
British Heart Foundation
3 years ago
Metastatic prostate cancer chronic lower back and pelvic pain which gets much, much worse at night.
Hi everyone! I have metastatic prostate cancer which has got into my bones. I’m currently on Zoladex long term hormone therapy following a 10 month course of chemotherapy which was not that successful so we’re looking at other options. FYI I have noted quite a lot of muscle wastage as a result of long
Hi everyone! I have metastatic prostate cancer which has got into my bones. I’m currently on Zoladex long term hormone therapy following a 10 month course of chemotherapy which was not that successful so we’re looking at other options. FYI I have noted quite a lot of muscle wastage as a result of long
RobbieSELDN
in
Advanced Prostate Cancer
3 years ago
Pain relief
Hi I have hip and back pain due to wear and tear and have been given amitriptyline I’ve been taking 2 co codamol at night but my pharmacist has said I can only take these for 3 days but they work and I don’t take them any other time as my pain is terrible at night when I lay down I’ve heard the amitriptyline
Hi I have hip and back pain due to wear and tear and have been given amitriptyline I’ve been taking 2 co codamol at night but my pharmacist has said I can only take these for 3 days but they work and I don’t take them any other time as my pain is terrible at night when I lay down I’ve heard the amitriptyline
Harley198
in
Arthritis Action
3 years ago
Question for Ellfindoe or Joolsg about Gabapentin please
I have written before, but a quick recap. I was on Ropinirole for around 17 years, starting off with 0.12mg nightly (when I have to confess I thought it was the most wonderful drug in the world as it completely stopped my RLS) to more recently when I have been taking 0.50mg and 0.25mg during the day
I have written before, but a quick recap. I was on Ropinirole for around 17 years, starting off with 0.12mg nightly (when I have to confess I thought it was the most wonderful drug in the world as it completely stopped my RLS) to more recently when I have been taking 0.50mg and 0.25mg during the day
67Waterman
in
Restless Legs Syndrome
3 years ago
Never ending story...
Hello, newbie here...I'll try keep it brief....started with multiple joint pain last Oct, diagnosed 12th March 2021 with RA. Started on Sulfasalazine and Naproxen back then along with a steroid depo, continued to up the dose till max, another depo, put on oral Methotrexate, again upping the dose then
Hello, newbie here...I'll try keep it brief....started with multiple joint pain last Oct, diagnosed 12th March 2021 with RA. Started on Sulfasalazine and Naproxen back then along with a steroid depo, continued to up the dose till max, another depo, put on oral Methotrexate, again upping the dose then
moon10008
in
NRAS
3 years ago
Headaches
Hi everyone I suffered a head injury in October 2020. So just over a year ago and I’ve fortunately recovered quite well. I have suffered and still suffer severe headaches but not as frequent as before. They begin with a pain in the base of my skull/neck and then seem to radiate through my head causing
Hi everyone I suffered a head injury in October 2020. So just over a year ago and I’ve fortunately recovered quite well. I have suffered and still suffer severe headaches but not as frequent as before. They begin with a pain in the base of my skull/neck and then seem to radiate through my head causing
Lottierose1
in
Headway
3 years ago
Can a soft tissue injury exacerbate PMR symptoms?
Seeking a bit of guidance from you lovely people - I injured my left tricep on Monday afternoon and went to A&E on Tuesday as the pain was unbearable. No bones broken and the tendons are intact. It’s my left shoulder that has PMR. The pain in my neck, shoulder and upper arm on my left side is so excruciating
Seeking a bit of guidance from you lovely people - I injured my left tricep on Monday afternoon and went to A&E on Tuesday as the pain was unbearable. No bones broken and the tendons are intact. It’s my left shoulder that has PMR. The pain in my neck, shoulder and upper arm on my left side is so excruciating
Horsewhisper
in
PMRGCAuk
3 years ago
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