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Feeling so fed up
Hey fellow spoonies. Just after some advice on how you'd approach this situation. I feel like I've pretty much been in a flare on and off since Christmas. I was given some pred tablets (v low dose) for some of Jan and Feb, which really helped. But since then it's gotten worse agqain. Then two weeks
Hey fellow spoonies. Just after some advice on how you'd approach this situation. I feel like I've pretty much been in a flare on and off since Christmas. I was given some pred tablets (v low dose) for some of Jan and Feb, which really helped. But since then it's gotten worse agqain. Then two weeks
SlothSandpit
in
NRAS
2 years ago
help
I had my laparoscopy a month ago and have a lot of pelvic pain even after one month taking two co codamol three times a day but still have stool leak and anal pain.are these normal symptoms after surgery 😢
I had my laparoscopy a month ago and have a lot of pelvic pain even after one month taking two co codamol three times a day but still have stool leak and anal pain.are these normal symptoms after surgery 😢
Mylovepari1
in
Endometriosis UK
2 years ago
Symptoms abate when the immune system has something else to deal with ?
Hi. I’ve broken my ankle and was expecting that with the PMR too, using crutches was going to be very painful with my shoulders and also shuffling upstairs on my bum using good leg and arms for leverage. In fact. I’ve not felt a twinge from PMR since doing it two weeks ago today. I’ve stayed on my
Hi. I’ve broken my ankle and was expecting that with the PMR too, using crutches was going to be very painful with my shoulders and also shuffling upstairs on my bum using good leg and arms for leverage. In fact. I’ve not felt a twinge from PMR since doing it two weeks ago today. I’ve stayed on my
Buttonshutton
in
PMRGCAuk
2 years ago
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Knee pain can't take naproxen. Any suggestions please?
Hi. I'm new here. Can anyone recommend any alternatives to naproxen. I can't take them now as have afib and on apixaban. I have knee arthritis and only ever took them for walking / exercise and pain going down stairs. I realise many are suffering much more. But now after about 30 mins of walking the
Hi. I'm new here. Can anyone recommend any alternatives to naproxen. I can't take them now as have afib and on apixaban. I have knee arthritis and only ever took them for walking / exercise and pain going down stairs. I realise many are suffering much more. But now after about 30 mins of walking the
Sue2528
in
Osteoarthritis Action
2 years ago
Progress and any info on ranolaxine?
Had an appt with cardiologist next week (face to face) but this has been cancelled via email ,due to unforeseen circumstances and they cannot arrange a new appt so now on a waiting list. This was very important to me after contacting heart nurse three weeks ago and visit to A&E a week ago. It was also
Had an appt with cardiologist next week (face to face) but this has been cancelled via email ,due to unforeseen circumstances and they cannot arrange a new appt so now on a waiting list. This was very important to me after contacting heart nurse three weeks ago and visit to A&E a week ago. It was also
Hidden
in
British Heart Foundation
2 years ago
Acalabrutinib
Hi everyone, I'm new here. I started on Acalabrutinib in February 2022 after being in remission for 12 years. Unfortunately I started getting awful headaches, sickness, palpatations, confusion, itching, pain and blood pressure shot up. Eventually was taken off all the other drugs I was taking (Allopurinol
Hi everyone, I'm new here. I started on Acalabrutinib in February 2022 after being in remission for 12 years. Unfortunately I started getting awful headaches, sickness, palpatations, confusion, itching, pain and blood pressure shot up. Eventually was taken off all the other drugs I was taking (Allopurinol
BethIlia
in
CLL Support
2 years ago
Fed up with pain
I haven’t been officially diagnosed with IBS and have been fine for months and in the last month have had a flare up. (I can only put this down with doing an aspect of my old job with my old boss as a temporary fix in the business, loved the job didn’t like the boss). Left side pain which constantly
I haven’t been officially diagnosed with IBS and have been fine for months and in the last month have had a flare up. (I can only put this down with doing an aspect of my old job with my old boss as a temporary fix in the business, loved the job didn’t like the boss). Left side pain which constantly
Epiphanies
in
IBS Network
2 years ago
To continue or not....that is the question
I started treatment in July 2021 after 18 months on W&W. Initially I was treated with Obinutuzumab but I had a severe reaction to the first 20mg and ended up in the A&E resuscitation ward. I was then swopped to Rituximab and Venetoclax, which was explained as normally being a second line treatment which
I started treatment in July 2021 after 18 months on W&W. Initially I was treated with Obinutuzumab but I had a severe reaction to the first 20mg and ended up in the A&E resuscitation ward. I was then swopped to Rituximab and Venetoclax, which was explained as normally being a second line treatment which
Dawson21
in
CLL Support
2 years ago
Are my expectations too high?
I was diagnosed 15 months ago. I was started on prednisolone then added methotrexate then sulfasalazine then abatacept. I am now taking all four plus co codamol and naproxen occasionally. I would have expected to be able to function but my hands are still very stiff and painful and am very fatigued.
I was diagnosed 15 months ago. I was started on prednisolone then added methotrexate then sulfasalazine then abatacept. I am now taking all four plus co codamol and naproxen occasionally. I would have expected to be able to function but my hands are still very stiff and painful and am very fatigued.
Oscardoggy
in
NRAS
2 years ago
Online doctor's service ordered to pay £13k for providing unregistered services
We often see members asking about pharmacies which offer some form of consultation before prescribing and supplying prescription-only or pharmacy medicines. This story is about one with a very questionable way of working:
[i]Online doctor's service ordered to pay £13k for providing unregistered
We often see members asking about pharmacies which offer some form of consultation before prescribing and supplying prescription-only or pharmacy medicines. This story is about one with a very questionable way of working:
[i]Online doctor's service ordered to pay £13k for providing unregistered
helvella
Thyroid UK
in
Thyroid UK
2 years ago
Alternative to naproxen
Alternative to naproxen Hi I’ve been taking naproxen for some years now for RA, but I also have CKD ( chronic kidney disease). After going for my six monthly checkup with the RA specialist, she has suggested I stop naproxen and switch to co-codamol, which I reluctant to do. Has any one been in the
Alternative to naproxen Hi I’ve been taking naproxen for some years now for RA, but I also have CKD ( chronic kidney disease). After going for my six monthly checkup with the RA specialist, she has suggested I stop naproxen and switch to co-codamol, which I reluctant to do. Has any one been in the
Chris_O
in
NRAS
3 years ago
8 days post ablation
What a week?! I had an RF ablation at the start of last week but felt, what I thought, was excessive pain in my chest (particularly when lying on my back) 2/3 days after but just stuck with it thinking it was a standard recovery symptom for RF as I’d only had cryo done before. However on Thursday night
What a week?! I had an RF ablation at the start of last week but felt, what I thought, was excessive pain in my chest (particularly when lying on my back) 2/3 days after but just stuck with it thinking it was a standard recovery symptom for RF as I’d only had cryo done before. However on Thursday night
Safc1983
in
AF Association
3 years ago
Holistic treatments
Morning all, So am waiting a lap to confirm suspicion of endo. Stopped Pill 3 years ago to try for a baby. 2 years ago got diagnosed with a 6cm cyst with blood but not a endometrioma. Interestingly the male SHO told me it was small and shouldn't have been in so much pain - only found out it was 6cm
Morning all, So am waiting a lap to confirm suspicion of endo. Stopped Pill 3 years ago to try for a baby. 2 years ago got diagnosed with a 6cm cyst with blood but not a endometrioma. Interestingly the male SHO told me it was small and shouldn't have been in so much pain - only found out it was 6cm
bee109
in
Endometriosis UK
3 years ago
Toughest Pred reduction so far ..... any advice or tips please
Hello lovely folk, I am interested in your thoughts, wisdom and experience. I have been reducing my Pred, super slowly, for over 2 years. I have been reducing by .5mg, usually every 6-8 weeks. I am used to the first 2 weeks on the full lower dose being uncomfortable, then the next 3-6 weeks being
Hello lovely folk, I am interested in your thoughts, wisdom and experience. I have been reducing my Pred, super slowly, for over 2 years. I have been reducing by .5mg, usually every 6-8 weeks. I am used to the first 2 weeks on the full lower dose being uncomfortable, then the next 3-6 weeks being
Prof99
in
PMRGCAuk
3 years ago
Going away this weekend and in pain. What shall I do?
Started PMR journey on 15mg pred last May 2021. 15mg was great. Down to 7mg but last few weeks am struggling. I had a bad cough/cold most of January and put my aches and pains down to that. I have a (strange - not pulled muscle) lower back and pelvic girdle type pain. It feels a bit like stiffness and
Started PMR journey on 15mg pred last May 2021. 15mg was great. Down to 7mg but last few weeks am struggling. I had a bad cough/cold most of January and put my aches and pains down to that. I have a (strange - not pulled muscle) lower back and pelvic girdle type pain. It feels a bit like stiffness and
MiloCollie
in
PMRGCAuk
3 years ago
Help with Fibromyalgia
Hi all I'm on here trying to help my 27yr old son who has chronic fibromyalgia, he is on 8x 30/500mg Co-codamol a day but struggles terrible of a night with sleep and severe pain, any help would be so grateful.
Hi all I'm on here trying to help my 27yr old son who has chronic fibromyalgia, he is on 8x 30/500mg Co-codamol a day but struggles terrible of a night with sleep and severe pain, any help would be so grateful.
Fairytale50
in
Fibromyalgia Action UK
3 years ago
Non drowsy pain medication?
Hi all, I have endo between uterus and bowel, my left ovary is stuck to my pelvis and bowel and I have adeno as well. I've only tried ibuprofen, paracetemol, naproxen, codeine and co-codamol (over the counter strength) for pain relief and co-codamol works best to take the edge off. Unfortunately it
Hi all, I have endo between uterus and bowel, my left ovary is stuck to my pelvis and bowel and I have adeno as well. I've only tried ibuprofen, paracetemol, naproxen, codeine and co-codamol (over the counter strength) for pain relief and co-codamol works best to take the edge off. Unfortunately it
Kricam78
in
Endometriosis UK
3 years ago
Myosure procedure
Hello, I’m awake and in excruciating pain following a myosure procedure three days ago. They removed a polyp and some tissue and I had 6 injections inside me. Does anyone have any advice as ibuprofen and co codamol are not touching the pain and I don’t know what to do? Anyone else in excruciating pain
Hello, I’m awake and in excruciating pain following a myosure procedure three days ago. They removed a polyp and some tissue and I had 6 injections inside me. Does anyone have any advice as ibuprofen and co codamol are not touching the pain and I don’t know what to do? Anyone else in excruciating pain
Sazle
in
Endometriosis UK
3 years ago
Zapain and Paracetamol
Hi everyone. Does anyone take these painkillers together. I have been prescribed Zapain 30/500 . two tablets at night, but in the daytime to take one Zapain and one paracetamol 500. I understand that Zapain is a generic, has anyone found it inferior to the Co-Codamol. Thank you to everyone who
Hi everyone. Does anyone take these painkillers together. I have been prescribed Zapain 30/500 . two tablets at night, but in the daytime to take one Zapain and one paracetamol 500. I understand that Zapain is a generic, has anyone found it inferior to the Co-Codamol. Thank you to everyone who
cmjoyce
in
Arthritis Action
3 years ago
Neuropathic symptoms? In excruciating pain and not being taken seriously
Hello everyone, A bit of background: I have been on a very long waiting list with the NHS to see gynacology, I finally got seen in November and I was told my symptoms were suspected endometriosis and I was put on the waiting list for a laparoscopy. I'm still waiting and haven't heard anything 11 weeks
Hello everyone, A bit of background: I have been on a very long waiting list with the NHS to see gynacology, I finally got seen in November and I was told my symptoms were suspected endometriosis and I was put on the waiting list for a laparoscopy. I'm still waiting and haven't heard anything 11 weeks
Jaa64678
in
Endometriosis UK
3 years ago
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