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Sjorgren syndrome
Following months of repeated eye infections, I have now been diagnosed with dry eyes, and drops certainly seem to be helping. However I came across an article on Sjorgren syndrome,. The list of symptoms include dry mouth, IBS, dry eyes, dry skin, joint problems, all of which I suffer from. I also get
Following months of repeated eye infections, I have now been diagnosed with dry eyes, and drops certainly seem to be helping. However I came across an article on Sjorgren syndrome,. The list of symptoms include dry mouth, IBS, dry eyes, dry skin, joint problems, all of which I suffer from. I also get
Pippapot
in
MPN Voice
3 months ago
Puffy eyes
Hi 👋 Has anyone experienced puffy eyelids and a bit of swelling under the eyes? I have lupus and sjogrens so not sure which would cause this.. I am having a painful flare at the moment. Quite new to this as diognosed Dec 2022. Only seen rheumatologist once and due to see them again this month but have
Hi 👋 Has anyone experienced puffy eyelids and a bit of swelling under the eyes? I have lupus and sjogrens so not sure which would cause this.. I am having a painful flare at the moment. Quite new to this as diognosed Dec 2022. Only seen rheumatologist once and due to see them again this month but have
Lucylou72
in
LUPUS UK
3 months ago
Dry Eye Webinar
Hello everyone, I wanted to let you all know about our next Digital Glaucoma Support Group - this session will be discussing Dry Eye. This is a topic that is often requested when we ask for topic suggestions, and we get lots of phone calls to the Glaucoma UK helpline about Dry Eye. This is your chance
Hello everyone, I wanted to let you all know about our next Digital Glaucoma Support Group - this session will be discussing Dry Eye. This is a topic that is often requested when we ask for topic suggestions, and we get lots of phone calls to the Glaucoma UK helpline about Dry Eye. This is your chance
Robyn_GlaucomaUK
in
Glaucoma UK
3 months ago
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Faricimab injections and exercise
I’ve just been diagnosed with wet AMD R eye - my long sighted eye I used to use for driving - sadly no more - and dry AMD L eye (shortsighted) After each injection we are instructed to not do a variety of things including physical exertion for 5 days. No one has yet explained why no exertion and what
I’ve just been diagnosed with wet AMD R eye - my long sighted eye I used to use for driving - sadly no more - and dry AMD L eye (shortsighted) After each injection we are instructed to not do a variety of things including physical exertion for 5 days. No one has yet explained why no exertion and what
Birchermu
in
Macular Society
3 months ago
SECOND CATARACT SURGERY- LEFT EYE
Gmorning all! Had my second cataract done early yesterday morning. Typing this without glasses today. Yay! Op took 15 minutes. This time he injected the antibiotics and Pred instead of sending me home with 3 bottles of eye drops. The injection is into the bottom lid, not the actual eyeball which was
Gmorning all! Had my second cataract done early yesterday morning. Typing this without glasses today. Yay! Op took 15 minutes. This time he injected the antibiotics and Pred instead of sending me home with 3 bottles of eye drops. The injection is into the bottom lid, not the actual eyeball which was
Missus835
in
PMRGCAuk
3 months ago
'glasses/lenses' for driving at night
Hello everyone a it of background. Just over a year ago I was diagnosed with closed angles in my right eye and mild cataracts in both eyes I had an iridotomy in both eyes shortly after, side effect suffered was a permanent white 'line' in right eye. No drops given but Hycosan drops form optician
Hello everyone a it of background. Just over a year ago I was diagnosed with closed angles in my right eye and mild cataracts in both eyes I had an iridotomy in both eyes shortly after, side effect suffered was a permanent white 'line' in right eye. No drops given but Hycosan drops form optician
Seahorse0
in
Glaucoma UK
3 months ago
Post-op FAQs
Hello Glaucoma UK community, I am currently in the process of creating a page on our website for the most commonly asked questions with regards to glaucoma treatments and surgeries. As you might know, we operate a buddy scheme at Glaucoma UK, which allows us to put people who are due to have a glaucoma
Hello Glaucoma UK community, I am currently in the process of creating a page on our website for the most commonly asked questions with regards to glaucoma treatments and surgeries. As you might know, we operate a buddy scheme at Glaucoma UK, which allows us to put people who are due to have a glaucoma
KieranGlaucomaUK
Administrator
in
Glaucoma UK
3 months ago
Adult disability payment for CRVO
Hello 👋🏻 I’m not looking for any in-depth information but wondered if anyone has applied and awarded ADP (the PIP equivalent in Scotland), for CRVO and glaucoma, where you have regular injections and have slight vision loss. thanks 🙏🏻
Hello 👋🏻 I’m not looking for any in-depth information but wondered if anyone has applied and awarded ADP (the PIP equivalent in Scotland), for CRVO and glaucoma, where you have regular injections and have slight vision loss. thanks 🙏🏻
Vich81
in
Macular Society
3 months ago
bleb needling procedure recovery time
Hi, I had a Trabeculectomy just shy of 2 years ago which has been stable however I’ve now got a build up of scar tissue which has caused the pressure to spike. After 8 weeks on steroid eye drops with no change in eye pressure I’m now to have a needling procedure on the bleb on Monday coming. I’m just
Hi, I had a Trabeculectomy just shy of 2 years ago which has been stable however I’ve now got a build up of scar tissue which has caused the pressure to spike. After 8 weeks on steroid eye drops with no change in eye pressure I’m now to have a needling procedure on the bleb on Monday coming. I’m just
Eyehelp5
in
Glaucoma UK
3 months ago
Info needed please
Hi Has anyone got any information on low blood pressure/nocturnal hypertension linked with optic nerve loss and glaucoma as I have been reading that this could be a cause of vision loss I have also been looking at new treatments for vision loss linked to Glaucoma and have come across a clinic in
Hi Has anyone got any information on low blood pressure/nocturnal hypertension linked with optic nerve loss and glaucoma as I have been reading that this could be a cause of vision loss I have also been looking at new treatments for vision loss linked to Glaucoma and have come across a clinic in
Bazzer65
in
Glaucoma UK
3 months ago
Advice on Cataract surgery / narrow angle
Hi all, First I must apologise, I am new to Glaucoma and looking to get some guidance from ideally someone who may have had a similar experience. I am a 44 year old male who was diagnosed with narrow angles following a routine eye exam. My eyesight is pretty good and I only wear reading glasses occasionally
Hi all, First I must apologise, I am new to Glaucoma and looking to get some guidance from ideally someone who may have had a similar experience. I am a 44 year old male who was diagnosed with narrow angles following a routine eye exam. My eyesight is pretty good and I only wear reading glasses occasionally
Martyn321
in
Glaucoma UK
3 months ago
Thyroid Dysfunction and PD
So I thought I'd cross-search some of my health challenges and whadyaknow: https://academic.oup.com/cei/article/208/3/372/6578682. Shut your mush and take your Ldopa, though I'm non-responsive. Doc, I'm photophobic, can't open my eyes in the morning ALO, blepharospasm...Read it's predictive years before
So I thought I'd cross-search some of my health challenges and whadyaknow: https://academic.oup.com/cei/article/208/3/372/6578682. Shut your mush and take your Ldopa, though I'm non-responsive. Doc, I'm photophobic, can't open my eyes in the morning ALO, blepharospasm...Read it's predictive years before
Dabaa
in
Cure Parkinson's
3 months ago
Pegasys Side Effects
Hello All - Two months ago I started injecting 45mcg of Pegasys weekly. During this time I have developed dry mouth which is most pronounced in the morning. I drink what I think is a lot of water, and even during the night I awaken several times to drink water. So the issue doesn't seem to be very
Hello All - Two months ago I started injecting 45mcg of Pegasys weekly. During this time I have developed dry mouth which is most pronounced in the morning. I drink what I think is a lot of water, and even during the night I awaken several times to drink water. So the issue doesn't seem to be very
Proton_1
in
MPN Voice
3 months ago
Uvetis and Glaucoma and detached retinas
Hi, wondering what treatment people are having if they have uveitis and secondary glaucoma as result of this? I'm asthmatic so only one type of drop is suitable for me. Can't have drugs or SLT to bring pressure down. I heard GATT had successful outcomes but not sure if available outside of Birmingham
Hi, wondering what treatment people are having if they have uveitis and secondary glaucoma as result of this? I'm asthmatic so only one type of drop is suitable for me. Can't have drugs or SLT to bring pressure down. I heard GATT had successful outcomes but not sure if available outside of Birmingham
Wholeofthe
in
Glaucoma UK
3 months ago
Bolts Brainwave Entrainment Protocol
So... on today's Zoom call I was asked to re-post the link to the 40 HZ brainwave entrainment audio file I created and have been using. So here it is, plus some info:
I apologize for going off of memory, but there are a number of reasons for using this audio file (or something like it or something
So... on today's Zoom call I was asked to re-post the link to the 40 HZ brainwave entrainment audio file I created and have been using. So here it is, plus some info:
I apologize for going off of memory, but there are a number of reasons for using this audio file (or something like it or something
Bolt_Upright
in
Cure Parkinson's
3 months ago
Cataract surgery
I often read the experiences on CLL shared by our group on HealthUnlocked, and it's reassuring. I was diagnosed with CLL in 2013. After a long period of watch and wait (W&W), I was given only 2 cycles of chemo (BR) in 2019 instead of the planned 6 cycles due to severe side effects. Fortunately, I experienced
I often read the experiences on CLL shared by our group on HealthUnlocked, and it's reassuring. I was diagnosed with CLL in 2013. After a long period of watch and wait (W&W), I was given only 2 cycles of chemo (BR) in 2019 instead of the planned 6 cycles due to severe side effects. Fortunately, I experienced
attarintiki
in
CLL Support
3 months ago
DVLA Esterman test
I am 73 and as my licence was coming up for renewal I received a letter from the DVLA to apply for a new one. In the letter it stated that I could simply complete the online questionaire or, if I had any of the listed conditions (one being Glaucoma) I should complete the form and return it to them
I am 73 and as my licence was coming up for renewal I received a letter from the DVLA to apply for a new one. In the letter it stated that I could simply complete the online questionaire or, if I had any of the listed conditions (one being Glaucoma) I should complete the form and return it to them
monks100
in
Glaucoma UK
3 months ago
Post Preserflo implant
I recently had a Preserflo implant and have been applying the steroid and antibiotic drops. Is it okay to use dry eye drops as well? The eye is itchy and it could do with some extra lubrication.
I recently had a Preserflo implant and have been applying the steroid and antibiotic drops. Is it okay to use dry eye drops as well? The eye is itchy and it could do with some extra lubrication.
hirsey12
in
Glaucoma UK
3 months ago
Keeping Pegasys injections cool and monitoring temp
Hi, I have recently been diagnosed with Erdheim-Chester Disease after being treated for many years for an MPN, (ET) I have started on Pegasys Interferon and will be travelling by plane soon (yay) and am looking for advice to keep the injections cool. Does anyone use a fridge (or similar) thermometer
Hi, I have recently been diagnosed with Erdheim-Chester Disease after being treated for many years for an MPN, (ET) I have started on Pegasys Interferon and will be travelling by plane soon (yay) and am looking for advice to keep the injections cool. Does anyone use a fridge (or similar) thermometer
LeoTravels
in
MPN Voice
3 months ago
Normal pressure glaucoma -having a rant
I’ve just recently been diagnosed with normal pressure glaucoma. I’ve always been very short sighted so Ive always had regular eye checks from a contact lens optician and a different specs optician. I go to the same place every year. About 18months ago my contact lens optician said that the thinning
I’ve just recently been diagnosed with normal pressure glaucoma. I’ve always been very short sighted so Ive always had regular eye checks from a contact lens optician and a different specs optician. I go to the same place every year. About 18months ago my contact lens optician said that the thinning
WaitandSee
in
Glaucoma UK
3 months ago
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