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Update as the weeks are moving on
Hi everyone hope you are enjoying the summery weather. I have finished my first radiotherapy so its now on to the next step. But I don't feel much like the next step right now due to side effects , which they say should wear off in a few weeks . Its an exhausting path so I hope it has reduced the
Hi everyone hope you are enjoying the summery weather. I have finished my first radiotherapy so its now on to the next step. But I don't feel much like the next step right now due to side effects , which they say should wear off in a few weeks . Its an exhausting path so I hope it has reduced the
katieoxo60
in
Lung Conditions Community Forum
2 months ago
Anyone have Fuchs as well as Glaucoma
I was initially diagnosed with thickened corneas in the late 1990s - then had a vitreous detachment in 2009 and diagnosed with Fuchs plus Glaucoma suspect with early stage cataracts - was treated with Cosopt until I moved areas in 2021 - since then I’ve had different diagnoses from a hole in my macula
I was initially diagnosed with thickened corneas in the late 1990s - then had a vitreous detachment in 2009 and diagnosed with Fuchs plus Glaucoma suspect with early stage cataracts - was treated with Cosopt until I moved areas in 2021 - since then I’ve had different diagnoses from a hole in my macula
Libluce68
in
Glaucoma UK
2 months ago
Hashimotos and Hyperlipidemia
I was just reading a post on the forum from a person who is a poor converter of T3 to T4. Does anyone have any knowledge whether this would apply to someone having been diagnosed by a specialist hospital clinical biochemist with Hyperlipidemia?
I was just reading a post on the forum from a person who is a poor converter of T3 to T4. Does anyone have any knowledge whether this would apply to someone having been diagnosed by a specialist hospital clinical biochemist with Hyperlipidemia?
MarnieB
in
Thyroid UK
2 months ago
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Rash photo.
Newbie here. Not diagnosed with lupus nor Sjogren's, though I do have symptoms of both. I've had this weird rash on the back of my neck, into my hairline for a while now. Any ideas if it could be lupus/Sjogren's related? Many thanks in advance for any replies.
Newbie here. Not diagnosed with lupus nor Sjogren's, though I do have symptoms of both. I've had this weird rash on the back of my neck, into my hairline for a while now. Any ideas if it could be lupus/Sjogren's related? Many thanks in advance for any replies.
grumpyold
in
LUPUS UK
2 months ago
DE treatment protocol
hi all, I am about to start treatment for a DE transfer. My protocol is from day 1 to have progynova 3 times a day. Then a scan at 12-14 days followed by progesterone. My previous FET transfers (with OE) have had ceteotide injections for 5 days. This is a slightly different protocol without the
hi all, I am about to start treatment for a DE transfer. My protocol is from day 1 to have progynova 3 times a day. Then a scan at 12-14 days followed by progesterone. My previous FET transfers (with OE) have had ceteotide injections for 5 days. This is a slightly different protocol without the
MintNewt
in
Fertility Network UK
2 months ago
Starting Pegasys
hi all, I’m about to start the next stage of my treatment journey, 45mg Pegasys fortnightly. I’ve picked up the meds and just waiting for my remaining blood tests to come back before I start. I’ll update this thread over the next 12 months with various updates from how the first injection went and
hi all, I’m about to start the next stage of my treatment journey, 45mg Pegasys fortnightly. I’ve picked up the meds and just waiting for my remaining blood tests to come back before I start. I’ll update this thread over the next 12 months with various updates from how the first injection went and
Steve_Essex
in
MPN Voice
2 months ago
Tilt Table Test
Well, on Thursday I had a Tilt Table test and it was positive. My blood pressure rose to 185/110 before taking a nosedive to 80/54 with me on the verge of passing out. My nurse then stopped the test and reclined the table. I am pretty certain that I did not escape Sjogrens with my year on Pegasys. I
Well, on Thursday I had a Tilt Table test and it was positive. My blood pressure rose to 185/110 before taking a nosedive to 80/54 with me on the verge of passing out. My nurse then stopped the test and reclined the table. I am pretty certain that I did not escape Sjogrens with my year on Pegasys. I
Wewo01
in
MPN Voice
2 months ago
My Cetrotide injection spilled, I’m worried
Hi, so I was on day 2 of my Cetrotide injection and spilled a lot of it when I didn’t realize bubbles in the syringe. I could only inject a little more liquid that was left. Should I be worried? My doctor put me on 3 more Cetrotide for the weekend. I am seeing her on Monday morning and due for possible
Hi, so I was on day 2 of my Cetrotide injection and spilled a lot of it when I didn’t realize bubbles in the syringe. I could only inject a little more liquid that was left. Should I be worried? My doctor put me on 3 more Cetrotide for the weekend. I am seeing her on Monday morning and due for possible
IVlover
in
Fertility Network UK
2 months ago
Poor Stormy
My doggy had to have surgery on his front paw today. He injured it about 10 days ago and I took him to the vet that I have used before. They said just let it rest and it should be fine. Well, it got massively worse all of a sudden. I took him today after being up with him all night in pain. His paw was
My doggy had to have surgery on his front paw today. He injured it about 10 days ago and I took him to the vet that I have used before. They said just let it rest and it should be fine. Well, it got massively worse all of a sudden. I took him today after being up with him all night in pain. His paw was
Amore55
in
My MSAA Community
2 months ago
GCA tapering query
Following my recent diagnosis of GCA, I had an appointment with GP after my pred being upped to 40mg daily. We agreed to me staying on 40mg for time being and he is happy for me to follow my tapering regime when ready - he feels I have known what to do during my PMR journey(thanks to support of this
Following my recent diagnosis of GCA, I had an appointment with GP after my pred being upped to 40mg daily. We agreed to me staying on 40mg for time being and he is happy for me to follow my tapering regime when ready - he feels I have known what to do during my PMR journey(thanks to support of this
SanG55
in
PMRGCAuk
2 months ago
Great progress on Pegasys!
I’ve been on Pegasys for 16 months. When I started, my JAK-2 Allele burden was 29%. Today it is 14%! I was one of the folks who needed a higher dose of Peg to respond. Over 7 months, my dose was gradually increased, and I didn’t see a response until I was at 180mg/week. My blood work is now 100%
I’ve been on Pegasys for 16 months. When I started, my JAK-2 Allele burden was 29%. Today it is 14%! I was one of the folks who needed a higher dose of Peg to respond. Over 7 months, my dose was gradually increased, and I didn’t see a response until I was at 180mg/week. My blood work is now 100%
Minify
in
MPN Voice
2 months ago
Worried- pressure at 5 at trabeculectomy follow up today
Has anyone had to deal with low pressure after trabeculecyomy? I had the fourth of my weekly post- trabeculectomy follow ups today. The pressure was 5. Before the operation the pressure was consistently around 15. Week one after surgery it was 15, week two, 17 ( then stitch removed) Week 3 was 20. Stitch
Has anyone had to deal with low pressure after trabeculecyomy? I had the fourth of my weekly post- trabeculectomy follow ups today. The pressure was 5. Before the operation the pressure was consistently around 15. Week one after surgery it was 15, week two, 17 ( then stitch removed) Week 3 was 20. Stitch
Iona57
in
Glaucoma UK
2 months ago
Filling the syringe
I did my first 8 subcutaneous b12 injections as I was shown by the doctor. Since then the nurse at my g.p. surgery has been doing my injections every 2 weeks as prescribed. (She offered me the choice of continuing to do it myself or she would do it.)The consultant had told me if I wanted to give myself
I did my first 8 subcutaneous b12 injections as I was shown by the doctor. Since then the nurse at my g.p. surgery has been doing my injections every 2 weeks as prescribed. (She offered me the choice of continuing to do it myself or she would do it.)The consultant had told me if I wanted to give myself
Suesue246
in
Pernicious Anaemia Society
2 months ago
SSI Registration - any reason not to?
Hi, I asked my previous eye consultant if they would fill a form out to say I was visually impaired. It was a few years ago but they refused which was frustrating because I wanted to apply for a disabled railcard :-). Anyway pretty much out of the blue my current eye consultant proactively asked
Hi, I asked my previous eye consultant if they would fill a form out to say I was visually impaired. It was a few years ago but they refused which was frustrating because I wanted to apply for a disabled railcard :-). Anyway pretty much out of the blue my current eye consultant proactively asked
Blindbatuk
in
Glaucoma UK
2 months ago
MPN and vision problems
Hi all I'd like to ask if anyone has experienced vision problems associated with their MPN? I have ET (Jak2+) and in recent months have had frequent/daily disturbances in the periphery (bottom right) of my vision. It's different from the 'classic' scintillating scotoma (visual migraine/migraine with
Hi all I'd like to ask if anyone has experienced vision problems associated with their MPN? I have ET (Jak2+) and in recent months have had frequent/daily disturbances in the periphery (bottom right) of my vision. It's different from the 'classic' scintillating scotoma (visual migraine/migraine with
junebuggy
in
MPN Voice
2 months ago
Pegasys skin?
Has anyone else had their skin turn into rough, dry, chicken skin on large parts of their bodies after taking Pegasys? Mine started out with itchiness, and now the skin itself is weird. I've used tons of lotion, including Sarna. I have also taken Beta Alanine orally. Problem is growing worse. Any solutions
Has anyone else had their skin turn into rough, dry, chicken skin on large parts of their bodies after taking Pegasys? Mine started out with itchiness, and now the skin itself is weird. I've used tons of lotion, including Sarna. I have also taken Beta Alanine orally. Problem is growing worse. Any solutions
dogsandhorses
in
MPN Voice
3 months ago
Ikervis (Cyclosporin)
Has anyone been prescribed this for dry eye/corneal issues? I was referred to an iritis clinic and prescribed this drop mid June x 2 drops in right eye per day. Though I don't see out of my right, vision in my left was pretty good up till then (had cataract op in left last year) but it started getting
Has anyone been prescribed this for dry eye/corneal issues? I was referred to an iritis clinic and prescribed this drop mid June x 2 drops in right eye per day. Though I don't see out of my right, vision in my left was pretty good up till then (had cataract op in left last year) but it started getting
whitedog
in
Glaucoma UK
3 months ago
UTI experience with Imbruvica
hello, when I was on Imbruvica I had many UTI. This is side effects of Imbruvica. I asked my doctor to switch me for another medication and now they m on Venclecta. This is even worse. I do not have UTI anymore , but I’m already sick for Ramsay Hunt this is like Bels Pasley. All these pills for CLL have
hello, when I was on Imbruvica I had many UTI. This is side effects of Imbruvica. I asked my doctor to switch me for another medication and now they m on Venclecta. This is even worse. I do not have UTI anymore , but I’m already sick for Ramsay Hunt this is like Bels Pasley. All these pills for CLL have
farber
in
CLL Support
3 months ago
Eye symptoms
Has any one been told they have early onset macular degeneration? Also weak retina? I was given a Amsler grid last eye test/scan and told to go straight to A & E if lines go curved. I have had a bad cellulitis infection in 2021 which I had a cyst also, antibiotics and drops eventually sorted this.
Has any one been told they have early onset macular degeneration? Also weak retina? I was given a Amsler grid last eye test/scan and told to go straight to A & E if lines go curved. I have had a bad cellulitis infection in 2021 which I had a cyst also, antibiotics and drops eventually sorted this.
Missyjasper
in
Behçet's UK
3 months ago
Dry Mouth and Methotrexate
I started s.c. Methotrexate a couple of months ago and am increasingly developing a dry mouth. This aggravates my erosive oral lichen planus. Is this common with Methotrexate??
I started s.c. Methotrexate a couple of months ago and am increasingly developing a dry mouth. This aggravates my erosive oral lichen planus. Is this common with Methotrexate??
13Lab
in
NRAS
3 months ago
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