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Afib advice
hi looking for some advice I’ve been referred to cardiologist to check for Afib After covid I was getting flutters on an off then in July the flutter started but didn’t pass I cud feel my heart go into an irregular rhythm like I cud feel beating in different parts of the heart hard to discribe but
hi looking for some advice I’ve been referred to cardiologist to check for Afib After covid I was getting flutters on an off then in July the flutter started but didn’t pass I cud feel my heart go into an irregular rhythm like I cud feel beating in different parts of the heart hard to discribe but
Lisarose80
in
AF Association
9 months ago
what do you do when you want to get a grip instead of crying all the time?
last week and today were very hard for me. I’m living with my ex and he started dating someone. It’s a very complicated situation where I feel paralyzed and can’t seem to find the strength to move out. Depression seems to hold me back plus the newly breakup. Any advise on how to come out of this?
last week and today were very hard for me. I’m living with my ex and he started dating someone. It’s a very complicated situation where I feel paralyzed and can’t seem to find the strength to move out. Depression seems to hold me back plus the newly breakup. Any advise on how to come out of this?
Browny71
in
Anxiety and Depression Support
1 year ago
Flecainide and Diltiazem
Hello fellow AFIBers, I have recently prescribed Flecainide as a replacement anti arrhythmic for Mulaq for afib along with Diltiazem as second blood pressure medications. I am interested to know if any other afiber is taking such combination and his or her side effects. thank you all
Hello fellow AFIBers, I have recently prescribed Flecainide as a replacement anti arrhythmic for Mulaq for afib along with Diltiazem as second blood pressure medications. I am interested to know if any other afiber is taking such combination and his or her side effects. thank you all
execz1
in
AF Association
9 months ago
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Why I stopped metoprolol
Quick summary: I’ve had one ablation, for A-fib, August 2022. All was well A-flutter began in August 2023. I’ve had five cardioversions since then, lasting from three weeks to three days. I am now in A-flutter awaiting an ablation on February 6. Success rate statistically is around 95%. Fingers crossed
Quick summary: I’ve had one ablation, for A-fib, August 2022. All was well A-flutter began in August 2023. I’ve had five cardioversions since then, lasting from three weeks to three days. I am now in A-flutter awaiting an ablation on February 6. Success rate statistically is around 95%. Fingers crossed
Sweetmelody
in
Atrial Fibrillation Support
9 months ago
diazepam withdrawal
hi, I haven’t posted on here for 3 yrs now, I’m 55yrs of age, I have been prescribed 20mg a day of diazepam now for over 30 yrs and my gp has now again decided to reduce my dose, without even speaking to me, my psychiatrist advised the gp not to take them off me as they did the same during lockdown,
hi, I haven’t posted on here for 3 yrs now, I’m 55yrs of age, I have been prescribed 20mg a day of diazepam now for over 30 yrs and my gp has now again decided to reduce my dose, without even speaking to me, my psychiatrist advised the gp not to take them off me as they did the same during lockdown,
Jewellerymaker
in
Anxiety and Depression Support
1 year ago
Low BP in afib and covid
After all the years I have finally caught COVID. Had a headache for a couple of days which has gone now. Not much coughing, just feel a bit achy and weak.Unfortunately, it's sent me into an afib episode although my heart rate is staying below 100bpm in fact it's hovering around 70 to 80bpm. I was concerned
After all the years I have finally caught COVID. Had a headache for a couple of days which has gone now. Not much coughing, just feel a bit achy and weak.Unfortunately, it's sent me into an afib episode although my heart rate is staying below 100bpm in fact it's hovering around 70 to 80bpm. I was concerned
Karendeena
in
AF Association
9 months ago
huCART 19 -IL18 CLINICAL TRIAL
Hi, I just came across this video of Dr Svoboda from Penn Medicine discussing this new approch to CAR-T . This was from ASH 2022. Penn developed this off the shelf therapy in their labs and are the sponsor of the trial. I would welcome any thoughts or more info from our very knowledgeable members. I
Hi, I just came across this video of Dr Svoboda from Penn Medicine discussing this new approch to CAR-T . This was from ASH 2022. Penn developed this off the shelf therapy in their labs and are the sponsor of the trial. I would welcome any thoughts or more info from our very knowledgeable members. I
steve5441
in
CLL Support
1 year ago
Cardioversion
Hi had my 3rd cardioversion yesterday.To be honest it is less than 24 hours since I went under more like 21 hours so I know anesthetic is still in sysstem. Head nurse said it qwent ok and only had to do one shock to get ,me back into sinus rythem. 1st cardio lasted 2 months, 2nd lasted almost one year
Hi had my 3rd cardioversion yesterday.To be honest it is less than 24 hours since I went under more like 21 hours so I know anesthetic is still in sysstem. Head nurse said it qwent ok and only had to do one shock to get ,me back into sinus rythem. 1st cardio lasted 2 months, 2nd lasted almost one year
dindy
in
Atrial Fibrillation Support
9 months ago
Swelling soft tissue alongside joint pain and inflammation - Acalabrutinib & Venetoclax Clinical Trial
Is or Has Anyone experienced extreme swelling of soft tissue normally in one area but sometimes two that lasts for approximately 5-7 days before moving to another area normally on peripheral parts?? In March 2020, commenced clinical drug trial ACE-CL-311 Amplify with 14 Cycles of Acalabrutinib and Venetoclax
Is or Has Anyone experienced extreme swelling of soft tissue normally in one area but sometimes two that lasts for approximately 5-7 days before moving to another area normally on peripheral parts?? In March 2020, commenced clinical drug trial ACE-CL-311 Amplify with 14 Cycles of Acalabrutinib and Venetoclax
bloodcancer
in
CLL Support
1 year ago
11 clinical trials that will shape medicine in 2023
https://www.nature.com/articles/s41591-022-02132-3
https://www.nature.com/articles/s41591-022-02132-3
Farooqji
in
Cure Parkinson's
2 years ago
Neck ache with AF?
I hope this doesn't sound too strange but I was wondering if anyone else suffered with neck ache just before and during an AF episode? I get a dull ache at the back of my neck at the base of the skull every time. It was significantly worse during my dobutamine stress test which triggered a bad episode
I hope this doesn't sound too strange but I was wondering if anyone else suffered with neck ache just before and during an AF episode? I get a dull ache at the back of my neck at the base of the skull every time. It was significantly worse during my dobutamine stress test which triggered a bad episode
Spj57
in
Atrial Fibrillation Support
9 months ago
Antipsychotics causing restless brain, Antidepressant causing restless sleep
If you can't love someone at their worst, you don't deserve to love them at their best. I meet a woman suffering catatonia and RLS in a psychiatric hospital, woman had serious injures, from jumping out of a car, her doctor said to me she was quiet psychotic when she first arrived to the ward. While
If you can't love someone at their worst, you don't deserve to love them at their best. I meet a woman suffering catatonia and RLS in a psychiatric hospital, woman had serious injures, from jumping out of a car, her doctor said to me she was quiet psychotic when she first arrived to the ward. While
RLSSCARER
in
Restless Legs Syndrome
1 year ago
Atrial Trigeminy, PVCs and everything imbetween
I am now actually quite scared as for the past 24 hours I am showing I am having runs of Atrial Trigmeminy, not all the time I don't know if the anxiety is making it worse. I feel like light headed with worry but I don't know if it is the metoprolol as I upped the dose yesterday, but for the past 4
I am now actually quite scared as for the past 24 hours I am showing I am having runs of Atrial Trigmeminy, not all the time I don't know if the anxiety is making it worse. I feel like light headed with worry but I don't know if it is the metoprolol as I upped the dose yesterday, but for the past 4
Iamfuzzyduck
in
AF Association
9 months ago
AMG 509 and CC-94676 Clinical Trials
Has anyone participated in the AMG 509 (immunotherapy) clinical trial or the CC-94676 (oral hormonal therapy) clinical trial? What side effects have you experienced? Were positive results achieved? Does anyone know if you choose one over the other, are you precluded from participating in the remaining
Has anyone participated in the AMG 509 (immunotherapy) clinical trial or the CC-94676 (oral hormonal therapy) clinical trial? What side effects have you experienced? Were positive results achieved? Does anyone know if you choose one over the other, are you precluded from participating in the remaining
Coop68
in
Advanced Prostate Cancer
2 years ago
New research: Aripiprazole, a Novel Option in the Management of Restless Legs Syndrome (2023)
A new paper reporting a small case series of 4 patients who got relief from low dose aripiprazole (abilify ) after augmentation that was resistant to other treatment. https://pubmed.ncbi.nlm.nih.gov/37818170/ Does anyone have any experience with aripiprazole? I took it long ago, before I was even
A new paper reporting a small case series of 4 patients who got relief from low dose aripiprazole (abilify ) after augmentation that was resistant to other treatment. https://pubmed.ncbi.nlm.nih.gov/37818170/ Does anyone have any experience with aripiprazole? I took it long ago, before I was even
Avart
in
Restless Legs Syndrome
1 year ago
Debating whether to have myomectomy
Hi there, I have recently been advised to have a myomectomy in order to increase my chances of conceiving. I have three fibroids at the top of my uterus that appear to be removable through keyhole surgery. I'm debating whether to go ahead. I'm nearly 44 and feel that time is against me to start having
Hi there, I have recently been advised to have a myomectomy in order to increase my chances of conceiving. I have three fibroids at the top of my uterus that appear to be removable through keyhole surgery. I'm debating whether to go ahead. I'm nearly 44 and feel that time is against me to start having
BeaMiss
in
Fertility Network UK
1 year ago
afib and sleep apnea
I have had 3 failed ablations and my dr ordered a sleep study to see if there is an underlying cause to my afib (I’m 38/f) have had afib since end of 2021. No medication works either. I guess my question is how many ppl also have sleep apnea and afib. Did it help your afib treating the sleep apnea
I have had 3 failed ablations and my dr ordered a sleep study to see if there is an underlying cause to my afib (I’m 38/f) have had afib since end of 2021. No medication works either. I guess my question is how many ppl also have sleep apnea and afib. Did it help your afib treating the sleep apnea
Afib_girl
in
AF Association
9 months ago
Tumor Lysis Syndrome: What ( CLL ) Patients Need to Know (Leukemia and Lymphoma Society podcast)
Many of us are aware of the risk of tumor lysis syndrome (TLS) when we commence treatment, particularly with venetoclax and that the purpose of the venetoclax ramp-up, is to reduce the risk of TLS occurring. TLS can also occur with other CLL treatments, especially when they are fast acting, rapidly killing
Many of us are aware of the risk of tumor lysis syndrome (TLS) when we commence treatment, particularly with venetoclax and that the purpose of the venetoclax ramp-up, is to reduce the risk of TLS occurring. TLS can also occur with other CLL treatments, especially when they are fast acting, rapidly killing
AussieNeil
Partner
in
CLL Support
1 year ago
Suffering from Depression, Anxiety and Self-Sabotage
Hi. My name is Zara and I've been sabotaging myself during my recovery journey. I've been sabotaging myself at work and alienating myself from people. In January, I suffered from severe depression and got better, but then I started to hurt myself mentally. I discovered that there are other people like
Hi. My name is Zara and I've been sabotaging myself during my recovery journey. I've been sabotaging myself at work and alienating myself from people. In January, I suffered from severe depression and got better, but then I started to hurt myself mentally. I discovered that there are other people like
Svetozara93
in
Anxiety and Depression Support
1 year ago
new on Flecainide
My afib started 11 years ago with one episode and then went silent for nearly six years . So for the first six years I was on low dose diltiazem and one standard aspirin. for the last four years I was put on Multaq and Eliquis. Multaq kept me in NSR for about a year and then progressively became ineffective
My afib started 11 years ago with one episode and then went silent for nearly six years . So for the first six years I was on low dose diltiazem and one standard aspirin. for the last four years I was put on Multaq and Eliquis. Multaq kept me in NSR for about a year and then progressively became ineffective
execz1
in
AF Association
9 months ago
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