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Waking in afib & first time PIP experience, love to hear experiences of others...
Summary-Diagnosed 14 months ago, 6 episodes since all cardioverted. Taking apixaban only, couldn't tolerate beta blocker, adizem lowered HR too much. On PFA list. Five out of six episodes of Afib on waking, the most recent being last Thursday, the sixth being the first, happened while exercising,unknowingly
Summary-Diagnosed 14 months ago, 6 episodes since all cardioverted. Taking apixaban only, couldn't tolerate beta blocker, adizem lowered HR too much. On PFA list. Five out of six episodes of Afib on waking, the most recent being last Thursday, the sixth being the first, happened while exercising,unknowingly
sunlovah
in
Atrial Fibrillation Support
5 months ago
Cost of PSMA scan in US
So I was surprised recently about the cost of my PSMA scan here in the US. $3456 I was used to costs in the $16,000 range for Choline scan. Paid $2650 or so for the UCLA clinical trial back in 2017. I checked and also found a place in Vancouver BC that would treat scan US patients for about 3400 Canadian
So I was surprised recently about the cost of my PSMA scan here in the US. $3456 I was used to costs in the $16,000 range for Choline scan. Paid $2650 or so for the UCLA clinical trial back in 2017. I checked and also found a place in Vancouver BC that would treat scan US patients for about 3400 Canadian
TJGuy
in
Advanced Prostate Cancer
1 year ago
CAR-T Trial Update #3
Hello friends, I had planned on updating everyone much sooner, but life got in the way a bit. Last I wrote, I had received my T-cells back on June 5, 2023. The first few days were totally uneventful. I was walking the halls a lot, staying active, reading, and getting dressed in regular clothing every
Hello friends, I had planned on updating everyone much sooner, but life got in the way a bit. Last I wrote, I had received my T-cells back on June 5, 2023. The first few days were totally uneventful. I was walking the halls a lot, staying active, reading, and getting dressed in regular clothing every
nvp815
in
CLL Support
1 year ago
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Flecainide (again)
Very interesting post by FraserB earlier. My problem is the opposite. Cardiologist raised my dose to 100mg x2 per day after being on 50mg x2 per day for a year and a half. After the third dose of the 100mg 2 hours before bed I felt terrible. The 2nd dose in morning I felt good with no reaction. Was worried
Very interesting post by FraserB earlier. My problem is the opposite. Cardiologist raised my dose to 100mg x2 per day after being on 50mg x2 per day for a year and a half. After the third dose of the 100mg 2 hours before bed I felt terrible. The 2nd dose in morning I felt good with no reaction. Was worried
Afibtastic
in
Atrial Fibrillation Support
5 months ago
Eliquis and AF symptoms
Hi all, I've been following the posts on this forum and have received helpful feedback re blood thinners and AF. I was recently diagnosed with AF and was put on Eliquis, which I've not yet started because of what I heard about the side effects. I have bradycardia and experience flutters and lightheadedness
Hi all, I've been following the posts on this forum and have received helpful feedback re blood thinners and AF. I was recently diagnosed with AF and was put on Eliquis, which I've not yet started because of what I heard about the side effects. I have bradycardia and experience flutters and lightheadedness
Calypso76
in
Atrial Fibrillation Support
5 months ago
1 year anniversary of Hybrid Mini maze
My 1 year anniversary is actually Saturday but I’m sitting in a church hall acting as a polling Clark for the police and crime commissioners election, I’ve been here since 6:15 am and will finish about 10:15 pm, that alone would of been impossible 12months ago. There’s been highs and lows over the 12months
My 1 year anniversary is actually Saturday but I’m sitting in a church hall acting as a polling Clark for the police and crime commissioners election, I’ve been here since 6:15 am and will finish about 10:15 pm, that alone would of been impossible 12months ago. There’s been highs and lows over the 12months
4chickens
in
Atrial Fibrillation Support
5 months ago
Pulmonary Vein Isolation
What has been the experience with pulmonary vein isolation I am seriously considering it. Risks? Results? Recovery time? I am 84 Permanent afib that no longer responds to cardioversion. The Electrophysiologist told me 70% chance for results but may not last longer than 7 months. If I do not elect
What has been the experience with pulmonary vein isolation I am seriously considering it. Risks? Results? Recovery time? I am 84 Permanent afib that no longer responds to cardioversion. The Electrophysiologist told me 70% chance for results but may not last longer than 7 months. If I do not elect
farewelltoarms
in
Atrial Fibrillation Support
5 months ago
Anyone on anything a bit unusual and helpful? Any off-label or off-patent drugs?
Curious if anyone is, or has been on any drugs that aren’t the current “big ones”? I was reading a book about cancer and the common re-use of older drugs and off-label prescriptions to create a treatment stack (such as using statins, H2blockers, metformin etc) and it made me think hmm afib is also often
Curious if anyone is, or has been on any drugs that aren’t the current “big ones”? I was reading a book about cancer and the common re-use of older drugs and off-label prescriptions to create a treatment stack (such as using statins, H2blockers, metformin etc) and it made me think hmm afib is also often
Efka
in
Atrial Fibrillation Support
5 months ago
Is this atrial flutter rather than sinus rhythm as reported?
6 years in permanent AFib after failed ablation for AFlutter If yes, is this a known problem with Kardia?
6 years in permanent AFib after failed ablation for AFlutter If yes, is this a known problem with Kardia?
Hidden
in
Atrial Fibrillation Support
5 months ago
Flutter and Flecainide
I had a prescription renewal with my doctor (GP) and during our conversation I mentioned that a few weeks back my flutter kicked up for approx. 1/2 an hour then back to sinus rthymn. I said if it does more often in future what would be the next step. He said he could prescribe flecainide as PIP. Currently
I had a prescription renewal with my doctor (GP) and during our conversation I mentioned that a few weeks back my flutter kicked up for approx. 1/2 an hour then back to sinus rthymn. I said if it does more often in future what would be the next step. He said he could prescribe flecainide as PIP. Currently
FraserB
in
Atrial Fibrillation Support
5 months ago
Lopressor
Persistent Permanent Afib. Any alternative to Lopressor??? Titrating to control heart rate 100mgm twice a day too much which is my Cardiologists goal 100mgm in am and 50mgm in pm too much. 50 in am and 50 in pm not enough. Was fine on 25/25 but that was when I was in NSR after cardioversion for
Persistent Permanent Afib. Any alternative to Lopressor??? Titrating to control heart rate 100mgm twice a day too much which is my Cardiologists goal 100mgm in am and 50mgm in pm too much. 50 in am and 50 in pm not enough. Was fine on 25/25 but that was when I was in NSR after cardioversion for
farewelltoarms
in
Atrial Fibrillation Support
5 months ago
Follow up after cardioversion
Hi all, I had my first cardioversion in February. It was done privately as I was in a ‘holding pen’, according to my GP. (Waiting to see a cardiologist ) I was in continuous AF for six weeks, for the first time. Anyway, this procedure was successful and I am now two months in. No alcohol and no caffeine
Hi all, I had my first cardioversion in February. It was done privately as I was in a ‘holding pen’, according to my GP. (Waiting to see a cardiologist ) I was in continuous AF for six weeks, for the first time. Anyway, this procedure was successful and I am now two months in. No alcohol and no caffeine
Canteringon
in
Atrial Fibrillation Support
5 months ago
I Too Have Persistent Afib
I too am in persistent afib (Bradycardia) with no symptoms. I was taking Amiodarone medication which caused internal bleeding. The result was blood in my urine. My cardiologist switched me to Eliquis medication, 5mg at 10AM and 10PM and I no longer have blood in my urine and my Bradycardia is under
I too am in persistent afib (Bradycardia) with no symptoms. I was taking Amiodarone medication which caused internal bleeding. The result was blood in my urine. My cardiologist switched me to Eliquis medication, 5mg at 10AM and 10PM and I no longer have blood in my urine and my Bradycardia is under
theluckyone
in
Atrial Fibrillation Support
5 months ago
Benefit of coherent breathing
Before PMR, I was experiencing bouts of arrythmia. Even on controlling drugs, it still occurred about every 25 days. At the start of PMR, I was diagnosed with moderate Aortic Stenosis. A symptom of Aortic Stenosis can be arrythmia. I was told that my condition would deteriorate and so regularly monitored
Before PMR, I was experiencing bouts of arrythmia. Even on controlling drugs, it still occurred about every 25 days. At the start of PMR, I was diagnosed with moderate Aortic Stenosis. A symptom of Aortic Stenosis can be arrythmia. I was told that my condition would deteriorate and so regularly monitored
PhilFreeToAsk
in
PMRGCAuk
5 months ago
Volunteer Opportunity - Prostate Cancer Patient Advocate with SWOG for Genitourinary Cancer Committee
If you or someone you know is interested in participating in cancer
clinical
trials
research, please note the following opportunity.
If you or someone you know is interested in participating in cancer
clinical
trials
research, please note the following opportunity.
JRPnSD
in
Advanced Prostate Cancer
2 years ago
For a better version
I let go 2023 with everything I could by attending church instead being depressed and crying over something I can’t control anymore and being able to talk what I’m dealing with my anxiety on here has given me support long the way even tho it’s hasn’t been long since I join but the supportive and positive
I let go 2023 with everything I could by attending church instead being depressed and crying over something I can’t control anymore and being able to talk what I’m dealing with my anxiety on here has given me support long the way even tho it’s hasn’t been long since I join but the supportive and positive
Need2beMeAgain23
in
Anxiety and Depression Support
9 months ago
Persistent afib treatment options, can't tolerate Amiodarone - so many questions...
I'm feeling rather lost at sea, I have so many unknows and questions so I'm sorry if this is a bit messy. Think I'm looking for your experiences and help with what I should ask the cardiologist about/for. BTW we live in the England so NHS. In short... Persistent new onset afib (always bradycardia) since
I'm feeling rather lost at sea, I have so many unknows and questions so I'm sorry if this is a bit messy. Think I'm looking for your experiences and help with what I should ask the cardiologist about/for. BTW we live in the England so NHS. In short... Persistent new onset afib (always bradycardia) since
Efka
in
Atrial Fibrillation Support
5 months ago
New year Eve
today has made me realize more n more I need to get myself together because I have always put everyone first and let myself deal with everything else and since then my depression and anxiety has made me feel more uncomfortable and uncertain that I’m second guessing myself again because I want to keep
today has made me realize more n more I need to get myself together because I have always put everyone first and let myself deal with everything else and since then my depression and anxiety has made me feel more uncomfortable and uncertain that I’m second guessing myself again because I want to keep
Need2beMeAgain23
in
Anxiety and Depression Support
9 months ago
Better measures of disease severity needed in lupus, study says
Experts urge change in ways of assessing clinical trial outcomes by Marisa Wexler, MS | February 16, 2023
New measures are needed to assess disease severity in lupus in
trials
, a study highlights.
Experts urge change in ways of assessing clinical trial outcomes by Marisa Wexler, MS | February 16, 2023
New measures are needed to assess disease severity in lupus in
trials
, a study highlights.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
2 years ago
Dissociation
Hi all, I've had depression/anxiety/dissociation for over 30 years. I believe had there been groups such as this to relate, it wouldn't have been so bad. Nothing like being able to relate :)
Hi all, I've had depression/anxiety/dissociation for over 30 years. I believe had there been groups such as this to relate, it wouldn't have been so bad. Nothing like being able to relate :)
Naturegirl60
in
Anxiety and Depression Support
9 months ago
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