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Ruxolitinib
Hi all, I have PV and AB is high , around 81% , spleen size slightly increased but if I didn’t know I have PV I would think I am the healthiest person around as I have no symptoms. I was diagnosed end of 2018 but had it al least since 2015. I am considering taking a part in clinical trial for Ruxo and
Hi all, I have PV and AB is high , around 81% , spleen size slightly increased but if I didn’t know I have PV I would think I am the healthiest person around as I have no symptoms. I was diagnosed end of 2018 but had it al least since 2015. I am considering taking a part in clinical trial for Ruxo and
Ameliav
in
MPN Voice
1 year ago
Macrogol (Dulcoease)
Hi, has anyone else found that laxative treatments containing Macrogol increases their pain and bloating considerably? I have just been put on this and Mebeverine, but am still in a lot of pain, which seems worse when I take Macrogol. Thanks
Hi, has anyone else found that laxative treatments containing Macrogol increases their pain and bloating considerably? I have just been put on this and Mebeverine, but am still in a lot of pain, which seems worse when I take Macrogol. Thanks
Gardener
in
IBS Network
8 months ago
Atrial flutter
Tonight I feel overwhelmed with negative thoughts , a sad feeling. I had my cardioversion last week, it didn't work . I have heart failure, so they have put me on amiodarone then they will try another cardioversion in a few weeks . Separately I recieved a phone call today from the hospital
Tonight I feel overwhelmed with negative thoughts , a sad feeling. I had my cardioversion last week, it didn't work . I have heart failure, so they have put me on amiodarone then they will try another cardioversion in a few weeks . Separately I recieved a phone call today from the hospital
lambretta1968
in
Atrial Fibrillation Support
3 months ago
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New here saying hello!
Hello. I am a 62 year old male from UK. In March I had chest pain, dizziness, fast heart rate. I was taken to A & E. AF was thought the likely cause. Following an echocardiogram (normal) a 24 hour ECG (not normal - mean HR 118 peaking at 140 and in AF most of the time) and a CT angiogram (still
Hello. I am a 62 year old male from UK. In March I had chest pain, dizziness, fast heart rate. I was taken to A & E. AF was thought the likely cause. Following an echocardiogram (normal) a 24 hour ECG (not normal - mean HR 118 peaking at 140 and in AF most of the time) and a CT angiogram (still
ajcooper4
in
Atrial Fibrillation Support
3 months ago
New Ablation Date
Hi Thanks to all who replied, supported and advised re my previous rant about my cancelled ablation two weeks ago. My scheduled ablation 3/7/24 was cancelled a week before due to junior doctors strike knock on effects. The cardiology waiting list co-ordinator was very sorry and promised to arrange
Hi Thanks to all who replied, supported and advised re my previous rant about my cancelled ablation two weeks ago. My scheduled ablation 3/7/24 was cancelled a week before due to junior doctors strike knock on effects. The cardiology waiting list co-ordinator was very sorry and promised to arrange
Lefthook
in
Atrial Fibrillation Support
3 months ago
2 Kardia mobile devices
I have afib & cll... There are two Kardia mobile devices I.e. the best selling $79 KardiaMobile 1-Lead Personal EKG Monitor – Record at Home – Detects AFib & Irregular Arrhythmias ….. And the second best selling $129 KardiaMobile 6-Lead Personal EKG Monitor – Six Views of The Heart – Detects AFib and
I have afib & cll... There are two Kardia mobile devices I.e. the best selling $79 KardiaMobile 1-Lead Personal EKG Monitor – Record at Home – Detects AFib & Irregular Arrhythmias ….. And the second best selling $129 KardiaMobile 6-Lead Personal EKG Monitor – Six Views of The Heart – Detects AFib and
Bobsterguy
in
Atrial Fibrillation Support
3 months ago
A shared story of SCA3
The CPTA aims to optimize
clinical
trials
for inherited Ataxias. Impact stories like theirs can help researchers & drug developers understand the realities of living with Ataxia. You can read it here: https://c-path.org/impact_story/cpta-impact-through-optimization-of-clinical-trial-design/
The CPTA aims to optimize
clinical
trials
for inherited Ataxias. Impact stories like theirs can help researchers & drug developers understand the realities of living with Ataxia. You can read it here: https://c-path.org/impact_story/cpta-impact-through-optimization-of-clinical-trial-design/
wobblybee
in
Ataxia UK
2 years ago
Subconjunctival Haemorrhage and anticoagulants.
I noticed I had a subconjunctival haemorrhage in the left eye this morning when shaving. Unfortunately, I had already taken my morning dose of apixaban before I noticed it. I couldn’t get a GP appointment even by phone. Does anyone know what the advice is in this case? Is it recommended to pause the
I noticed I had a subconjunctival haemorrhage in the left eye this morning when shaving. Unfortunately, I had already taken my morning dose of apixaban before I noticed it. I couldn’t get a GP appointment even by phone. Does anyone know what the advice is in this case? Is it recommended to pause the
Samazeuilh2
in
Atrial Fibrillation Support
3 months ago
My Treatment, i am left with no answers from healthcare section.
I am taking Quetiapine 100mg and Mirtazapine 45mg because of how i feel, people think i have bipolar because i was prescribed these by a Psychiatrist in 2018 i recently seen a new Psychiatrist and he said no no Bioplar is your down all the time cause i said my moods are up and down and al over the place
I am taking Quetiapine 100mg and Mirtazapine 45mg because of how i feel, people think i have bipolar because i was prescribed these by a Psychiatrist in 2018 i recently seen a new Psychiatrist and he said no no Bioplar is your down all the time cause i said my moods are up and down and al over the place
Jack80feb
in
Anxiety and Depression Support
8 months ago
post cardioversion stuff
Hi guys yes, its me again! (sorry! Just an anxious week for me). I had a cardioversion on 2 July and my current HR is betwwen 42-48 at rest. Im in NSR.🥳 HR up to about 65 if I walk around the house. BP is 108/75. I spoke to EP and he said HR is low but okay as long as I feel okay. Which I do. After
Hi guys yes, its me again! (sorry! Just an anxious week for me). I had a cardioversion on 2 July and my current HR is betwwen 42-48 at rest. Im in NSR.🥳 HR up to about 65 if I walk around the house. BP is 108/75. I spoke to EP and he said HR is low but okay as long as I feel okay. Which I do. After
swimminglove
in
Atrial Fibrillation Support
3 months ago
Post ablation Atrial tachycardia/or Aflutter and AF.
Hi all, I had a cryoblation PVI just under five weeks ago at Basildon Hospital and all had been good, unti last night when I tried to get to sleep. I have been told I have a mixture of AF, Atrial Tachycardia and Aflutter during my episodes. Leading up to the procedure, I had to point this out to the
Hi all, I had a cryoblation PVI just under five weeks ago at Basildon Hospital and all had been good, unti last night when I tried to get to sleep. I have been told I have a mixture of AF, Atrial Tachycardia and Aflutter during my episodes. Leading up to the procedure, I had to point this out to the
Teresa156
in
Atrial Fibrillation Support
3 months ago
How do you counter a negative self-loathing thought when it has solid evidence?
It's a genuine question. They always say you have to counter your bad thoughts because they're usually wrong or irrational or whatever, but what if it's just a regular observation? It's not irrational or anything, it's just a thought coming from evidence gathered throughout my life and enforced by continues
It's a genuine question. They always say you have to counter your bad thoughts because they're usually wrong or irrational or whatever, but what if it's just a regular observation? It's not irrational or anything, it's just a thought coming from evidence gathered throughout my life and enforced by continues
MiamiJacket84
in
Anxiety and Depression Support
8 months ago
A fib low heartrate
Hello all I have proximal afib but my kardia shows afib but heartrate in 60s I'm on sotalol and edoxaban is it normal to have afib with low rate
Hello all I have proximal afib but my kardia shows afib but heartrate in 60s I'm on sotalol and edoxaban is it normal to have afib with low rate
Diggler59
in
Atrial Fibrillation Support
3 months ago
Bisoprolol and Amiodarone
I have been on Flecainide for over a year , very few Afib episodes and feeling fit and healthyAfter a sudden episode this week , my heart up to 170 beats a minute , and three days in hospital , I find myself on 500mg Bisoprolol Fumarate and 200mg Amiodarone Chlorhydrate Pulse now hovering between 40
I have been on Flecainide for over a year , very few Afib episodes and feeling fit and healthyAfter a sudden episode this week , my heart up to 170 beats a minute , and three days in hospital , I find myself on 500mg Bisoprolol Fumarate and 200mg Amiodarone Chlorhydrate Pulse now hovering between 40
Summerlily
in
Atrial Fibrillation Support
3 months ago
Had Ablation in '23 lately suffering from frequent PAC's.
Was wondering if any of you fine folks are having or have had bouts of frequent PAC's and what you are doing or what your doctor prescribed to get rid of them. I'm still in sinus rhythm according to my EKG but experiencing PAC's daily. I am currently on no antiarrhythmics and on Metoprolol for rate
Was wondering if any of you fine folks are having or have had bouts of frequent PAC's and what you are doing or what your doctor prescribed to get rid of them. I'm still in sinus rhythm according to my EKG but experiencing PAC's daily. I am currently on no antiarrhythmics and on Metoprolol for rate
riffjack846
in
Atrial Fibrillation Support
3 months ago
Covid teens
It may have been there before covid, but if it was it was very well hidden. I have two great kids, son and daughter. One was a senior during Covid, and the other was in 10th grade. We will start with seniors story. Needless to say no senior year enjoyment, and then went off to college and his first year
It may have been there before covid, but if it was it was very well hidden. I have two great kids, son and daughter. One was a senior during Covid, and the other was in 10th grade. We will start with seniors story. Needless to say no senior year enjoyment, and then went off to college and his first year
bobo9876
in
Anxiety and Depression Support
8 months ago
Reducing bisoprolol
After an ablation in early April I went into symptomatic AF after two days but have since had a successful cardioversion. I remain in NSR and on advice from the arrhythmia nurse have reduced my bisprolol from 5mg to 2.5 mg daily. I'm a week into the lower dose. My heart rate has increased, which doesn't
After an ablation in early April I went into symptomatic AF after two days but have since had a successful cardioversion. I remain in NSR and on advice from the arrhythmia nurse have reduced my bisprolol from 5mg to 2.5 mg daily. I'm a week into the lower dose. My heart rate has increased, which doesn't
JoDogBlue
in
Atrial Fibrillation Support
3 months ago
Change proposed to medication for epilepsy
I have asked for my Tegratol medication for epilepsy to be changed to something else as it interferes with use of simpler blood thinners. I am currently on Tegratol 200mg twice daily, 9mg warfarin and 10 mg Bisoprolol daily. It was also suggested I start on digoxin although my heart rate has not been
I have asked for my Tegratol medication for epilepsy to be changed to something else as it interferes with use of simpler blood thinners. I am currently on Tegratol 200mg twice daily, 9mg warfarin and 10 mg Bisoprolol daily. It was also suggested I start on digoxin although my heart rate has not been
Fannyphasbees
in
Atrial Fibrillation Support
3 months ago
Do you or someone you know have Atrial Fibrillation?
Atrial fibrillation is the most common arrhythmia affecting many individuals worldwide. AF can increase the risk of stroke. The irregular heart rhythm causes the blood to pool and this may cause a blood clot to form in the heart chambers which can then be carried to the small blood vessels in the brain
Atrial fibrillation is the most common arrhythmia affecting many individuals worldwide. AF can increase the risk of stroke. The irregular heart rhythm causes the blood to pool and this may cause a blood clot to form in the heart chambers which can then be carried to the small blood vessels in the brain
SamAdmin
Administrator
in
Atrial Fibrillation Support
3 months ago
Alternative drug to Flecainide
I have been on Flecainide for two years and had very few Afib episodes .It has been a wonder drug for meI am now told due to the changed structure of my heart I have to change medication The cardiologist has put me on Bisoprolol which , from past experience , and now , I know just doesn't work for me
I have been on Flecainide for two years and had very few Afib episodes .It has been a wonder drug for meI am now told due to the changed structure of my heart I have to change medication The cardiologist has put me on Bisoprolol which , from past experience , and now , I know just doesn't work for me
Summerlily
in
Atrial Fibrillation Support
3 months ago
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