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Cinchocaine / Prednisolone hexanoate
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Gardening wobbles
Hello, Today I had to prune the rose bushes and the bush roses, in a terraced front garden. However, I was disappointed to find that it was hard going, because I felt weak,a bit unsure and a bit wobbly. I’m 77 but have seen older people gardening with gusto. I used to do a lot in the garden and last
Hello, Today I had to prune the rose bushes and the bush roses, in a terraced front garden. However, I was disappointed to find that it was hard going, because I felt weak,a bit unsure and a bit wobbly. I’m 77 but have seen older people gardening with gusto. I used to do a lot in the garden and last
Hidden
in
PMRGCAuk
1 year ago
treatment of prednisone side affects
I live in the USA I’ve posted before but have a question . My rheumatologist has not agreed to taper my 20:mg dosage of prednisone yet , ( 6 months on this dose) Ive had two doses of Kevzara and all labs are normal,but IL-6 is increasing . He says soon we will taper slowly . In the meantime my FBS are
I live in the USA I’ve posted before but have a question . My rheumatologist has not agreed to taper my 20:mg dosage of prednisone yet , ( 6 months on this dose) Ive had two doses of Kevzara and all labs are normal,but IL-6 is increasing . He says soon we will taper slowly . In the meantime my FBS are
GMA74
in
PMRGCAuk
1 year ago
RA with Sjorgrens
Hello and thank you for reading or responding. I am 59 and have been on a 2 year journey to get a diagnosis. That’s a long story but now with a move to a new city and a new rheumatologist I am told I have Sjorgrens, a strongly positive diagnosis and RA with a non typical presentation. I am negative for
Hello and thank you for reading or responding. I am 59 and have been on a 2 year journey to get a diagnosis. That’s a long story but now with a move to a new city and a new rheumatologist I am told I have Sjorgrens, a strongly positive diagnosis and RA with a non typical presentation. I am negative for
SLCR
in
NRAS
1 year ago
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monthly blood test ?
Hello, just had a phone call from surgery telling me to book a monthly ESR blood test as seems my doctor has realised I need this, have been getting blood tests but seems they were for other things. Is it usual to have this every month, I started on Prednisolone December 2022 and I am slowly tapering
Hello, just had a phone call from surgery telling me to book a monthly ESR blood test as seems my doctor has realised I need this, have been getting blood tests but seems they were for other things. Is it usual to have this every month, I started on Prednisolone December 2022 and I am slowly tapering
mychilddoll
in
PMRGCAuk
1 year ago
Tapering, covid, spring booster
Hello dear support groupTapering, covid, vaccination booster. I am 9 days into a positive covid test. My flu-like symptoms have almost gone, with no apparent effects on my current prednisolone tapering effectiveness. Currently at 10mg, lowering by 0.5 mg per month, due to reduce soon. Do you think I
Hello dear support groupTapering, covid, vaccination booster. I am 9 days into a positive covid test. My flu-like symptoms have almost gone, with no apparent effects on my current prednisolone tapering effectiveness. Currently at 10mg, lowering by 0.5 mg per month, due to reduce soon. Do you think I
waltztherapy
in
PMRGCAuk
1 year ago
Recommendations for pred. taper after beginning Actrema
Diagnosed with PMR May 2021, tapered from 30 mg/dy to 7.5 mg/dy by Aug 2022, but flared twice; the second time I adjusted the dose poorly and ultimately got control of the PMR at 22.5 mg/dy in May of this year. After discussion with my Rheumatologist I have gone onto monthly Actrema infusions to get
Diagnosed with PMR May 2021, tapered from 30 mg/dy to 7.5 mg/dy by Aug 2022, but flared twice; the second time I adjusted the dose poorly and ultimately got control of the PMR at 22.5 mg/dy in May of this year. After discussion with my Rheumatologist I have gone onto monthly Actrema infusions to get
JASpmr
in
PMRGCAuk
1 year ago
Changing from Prednisolone to possibly Hydrocortisone
Good morning Following a Synacthen test my Rheumatologist has said my Adrenals gave a very good response, currently taking 5.5 mg Pred . He wrote in his letter he would like me off Pred ASAP and will discuss possibly changing to Hydrocortisone when I see him next week . He has always been doubtful
Good morning Following a Synacthen test my Rheumatologist has said my Adrenals gave a very good response, currently taking 5.5 mg Pred . He wrote in his letter he would like me off Pred ASAP and will discuss possibly changing to Hydrocortisone when I see him next week . He has always been doubtful
5goFlotilla
in
PMRGCAuk
1 year ago
Another anniversary
Eight days ago i celebrated 17 years of marriage to the beast.. three days later on the ninth, I celebrated 16 years of marriage to my sweetheart Mandy. I promised Mandy 30 years together on our wedding day Why wouldn't I? A year previous, my PSA was over 3200. My lungs look like Swiss cheese and
Eight days ago i celebrated 17 years of marriage to the beast.. three days later on the ninth, I celebrated 16 years of marriage to my sweetheart Mandy. I promised Mandy 30 years together on our wedding day Why wouldn't I? A year previous, my PSA was over 3200. My lungs look like Swiss cheese and
Todd1963
in
Advanced Prostate Cancer
1 year ago
Heart Failure and Polymyalgia Rheumatica
Coping well with my HF for nearly 10 years and then caught Covid 19 on holiday in February. A week after recovering from the 'fluey' symptoms I started muscle pains, stiffness and loss of strength in areas since linked to PMR. Symptoms developed very quickly and so strong now that I can't bend, reach
Coping well with my HF for nearly 10 years and then caught Covid 19 on holiday in February. A week after recovering from the 'fluey' symptoms I started muscle pains, stiffness and loss of strength in areas since linked to PMR. Symptoms developed very quickly and so strong now that I can't bend, reach
Heartinthehills
in
British Heart Foundation
1 year ago
pmr tapering
I have been on Prednisone since Nov 2021. I have tapered to zero, but had to jump back to 3mg because of extreme pain. I have been on 3mg for at least i month and still very lethargic. I s this at all normal on such a low dose?
I have been on Prednisone since Nov 2021. I have tapered to zero, but had to jump back to 3mg because of extreme pain. I have been on 3mg for at least i month and still very lethargic. I s this at all normal on such a low dose?
RaisinBran
in
PMRGCAuk
1 year ago
Intermittent fasting
Currently, I take a Lanzoprazole at least 30 minutes before eating breakfast, & then taking my Prednisolone. I’ve been looking into the intermittent fasting way of eating which usually suggests skipping breakfast. My question is, as I’m taking the Lanzoprazole , do I need food before taking the steroids
Currently, I take a Lanzoprazole at least 30 minutes before eating breakfast, & then taking my Prednisolone. I’ve been looking into the intermittent fasting way of eating which usually suggests skipping breakfast. My question is, as I’m taking the Lanzoprazole , do I need food before taking the steroids
Lyndaki
in
PMRGCAuk
1 year ago
LDN and PMR
Almost three months into my use of low-dose naltrexone, in hopes of replacing prednisone eventually, I have learned that the power of LDN to combat inflammation, while real, is much less than prednisone, so that at 10mg of prednisone, LDN's ability to replace or even significantly supplement the steroid
Almost three months into my use of low-dose naltrexone, in hopes of replacing prednisone eventually, I have learned that the power of LDN to combat inflammation, while real, is much less than prednisone, so that at 10mg of prednisone, LDN's ability to replace or even significantly supplement the steroid
papadapadoo
in
PMRGCAuk
1 year ago
Prednisone side effects
On Lupron, Abi, Prednisone for 7 months. After month 2, I started getting getting jowls, puffy cheeks & biting the inside of my cheeks on occasion while eating normally. Read that prednisone can cause “moon face” as a SE. A real swelling of the face in extreme cases. The only thing one can do is reduce
On Lupron, Abi, Prednisone for 7 months. After month 2, I started getting getting jowls, puffy cheeks & biting the inside of my cheeks on occasion while eating normally. Read that prednisone can cause “moon face” as a SE. A real swelling of the face in extreme cases. The only thing one can do is reduce
Gym-rat
in
Advanced Prostate Cancer
1 year ago
gardenergirl1947
Hello, having been previously fit and well, I was surprised to have a an ever increasing amount of severe pain in my shoulders,hips and wrists in July 2022. Blood tests showed high levels of Calcium and a diagnosis of Hyperparathyroidism was made. However pain increased despite very large painkiller
Hello, having been previously fit and well, I was surprised to have a an ever increasing amount of severe pain in my shoulders,hips and wrists in July 2022. Blood tests showed high levels of Calcium and a diagnosis of Hyperparathyroidism was made. However pain increased despite very large painkiller
Gardenergirl1947
in
PMRGCAuk
1 year ago
Naming and shaming, is that permitted on this forum?
So it seems I am not alone in having been told by a Rheumatologist at a hospital in Hastings last week that I probably never had PMR in January 2017 when I started taking prednisolone. Already another forum member has come forward with a very similar story. If anyone else has had the same experience
So it seems I am not alone in having been told by a Rheumatologist at a hospital in Hastings last week that I probably never had PMR in January 2017 when I started taking prednisolone. Already another forum member has come forward with a very similar story. If anyone else has had the same experience
Zebedee44
in
PMRGCAuk
1 year ago
Is it long Covid
It's been a while since I last posted and probably seven years since I first did. I was diagnosed with GCA when I was 73 and I'm now 81. After the biopsy confirmed GCA I was put into the care of the kidney doctors at my local hospital as the GCA had affected my kidneys. Until this year I had six monthly
It's been a while since I last posted and probably seven years since I first did. I was diagnosed with GCA when I was 73 and I'm now 81. After the biopsy confirmed GCA I was put into the care of the kidney doctors at my local hospital as the GCA had affected my kidneys. Until this year I had six monthly
Cobnut
in
PMRGCAuk
1 year ago
Doctors orders to reduce prednisolone.
Hello folks , I haven’t posted for a while . Have read and checked in though almost daily . Have not been feeling to good of late , can’t seem to get my pain under control . I have a lovely Doc that has seeing me/ or phoning me . She tried to get me a rheumatologist appointment , they said they
Hello folks , I haven’t posted for a while . Have read and checked in though almost daily . Have not been feeling to good of late , can’t seem to get my pain under control . I have a lovely Doc that has seeing me/ or phoning me . She tried to get me a rheumatologist appointment , they said they
Staffieblue
in
PMRGCAuk
1 year ago
Night Sweats and Tapering
Does anyone know what goes on in the body to cause night sweats while tapering down Prednisone? I'm not concerned, just curious to know what my body is thinking. I am going from 3.5 to 3 mg and last night woke up with my pajamas completely soaked. I had similar night sweats before when tapering but
Does anyone know what goes on in the body to cause night sweats while tapering down Prednisone? I'm not concerned, just curious to know what my body is thinking. I am going from 3.5 to 3 mg and last night woke up with my pajamas completely soaked. I had similar night sweats before when tapering but
spacevoyager
in
PMRGCAuk
1 year ago
A different consultant :)
Hello! So, after my last consultant discharged me only for me to go and have a big flare-up immediately afterwards, I managed to get a second opinion appointment with a different consultant. By complete contrast, this one was fantastic - she has referred me to a respiratory physiotherapist and for
Hello! So, after my last consultant discharged me only for me to go and have a big flare-up immediately afterwards, I managed to get a second opinion appointment with a different consultant. By complete contrast, this one was fantastic - she has referred me to a respiratory physiotherapist and for
porthos06
in
Asthma Community Forum
1 year ago
FET 4/23
Hi there, I have been hiding on this forum for a few months now. Planning to transfer two day 5 embryos (1 poor and 1 fair) at the end of the month. I have a large posterior subserosal fibroid but hysteroscopy was normal so didn’t require a myomectomy. Had a mock embryo transfer last month which was
Hi there, I have been hiding on this forum for a few months now. Planning to transfer two day 5 embryos (1 poor and 1 fair) at the end of the month. I have a large posterior subserosal fibroid but hysteroscopy was normal so didn’t require a myomectomy. Had a mock embryo transfer last month which was
Hidden
in
Fertility Network UK
1 year ago
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