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Cinchocaine / Prednisolone hexanoate
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PMR flare? Reluctant to keep on highish doses of steroids.
Diagnosed in Feb 2022 Started with pain right hip and slightly in ankle, before it became generalised and responded dramatically within 3-4 hours to 20 mg prednisolone. Since then I've managed to get down to 2mg which I was on for2-3 months. However about 2 weeks ago, I had to contact my GP because of
Diagnosed in Feb 2022 Started with pain right hip and slightly in ankle, before it became generalised and responded dramatically within 3-4 hours to 20 mg prednisolone. Since then I've managed to get down to 2mg which I was on for2-3 months. However about 2 weeks ago, I had to contact my GP because of
turquoiserainbow
in
PMRGCAuk
2 months ago
itching
I had a transplant 18 months ago and 6 days ago the hospital reduced my Tacrolimus and increased my Prednisolone to improve my kidney function (although it was no worse than it has been since the transplant). I’m gradually increasing the Tac and decreasing the Prednisolone but today lve started itching
I had a transplant 18 months ago and 6 days ago the hospital reduced my Tacrolimus and increased my Prednisolone to improve my kidney function (although it was no worse than it has been since the transplant). I’m gradually increasing the Tac and decreasing the Prednisolone but today lve started itching
Pie-eater
in
British Liver Trust
2 months ago
Free of polymyalgia
Hi I just wanted to tell everyone that you can finally be free of polymyalgia.I was diagnosed in 2020 and it was horrendous. The pain was terrible but it took my GP a few months to finally decide I had polymyalgia. I was put on steroids and it was a light bulb moment for me as within hours most of the
Hi I just wanted to tell everyone that you can finally be free of polymyalgia.I was diagnosed in 2020 and it was horrendous. The pain was terrible but it took my GP a few months to finally decide I had polymyalgia. I was put on steroids and it was a light bulb moment for me as within hours most of the
Rosshigh
in
PMRGCAuk
2 months ago
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withdrawal of prednisolone
Hi, I am just over a week of going down to 5 and a half mg. I have done a very slow taper over nearly 2montgs at 6mg. I have had stomach issues since the beginning but now finding I’m suffering more with stomachs cramps and diarrhea. Do you think this is withdrawal or something else. I’m waiting to see
Hi, I am just over a week of going down to 5 and a half mg. I have done a very slow taper over nearly 2montgs at 6mg. I have had stomach issues since the beginning but now finding I’m suffering more with stomachs cramps and diarrhea. Do you think this is withdrawal or something else. I’m waiting to see
lennysmummy
in
PMRGCAuk
2 months ago
Hearing loss/pain/tinnitus
I was diagnosed with EGPA in December 2020, following intensive treatment including cyclophosphamide infusions I went into remission the following April. Since then I am on a drug regime that includes Azathioprine and Prednisolone. I am currently tapering down the latter with a view to stopping. I
I was diagnosed with EGPA in December 2020, following intensive treatment including cyclophosphamide infusions I went into remission the following April. Since then I am on a drug regime that includes Azathioprine and Prednisolone. I am currently tapering down the latter with a view to stopping. I
MIK65
in
Vasculitis UK
2 months ago
Basal cortisol test
I am currently on 1mg Prednisolone and have been for the past 12 weeks. I have always reduced this drug very slowly on the recommendation of this extremely helpful forum and have never experienced a flare. My routine yearly blood tests are now due at my GP surgery and I have been in touch with one
I am currently on 1mg Prednisolone and have been for the past 12 weeks. I have always reduced this drug very slowly on the recommendation of this extremely helpful forum and have never experienced a flare. My routine yearly blood tests are now due at my GP surgery and I have been in touch with one
Billswife
in
PMRGCAuk
2 months ago
Omeprazole
Greetings all, my first post here after recently discovering this excellent resource. A question about omeprazole please. I have been on a typical taper from 15mg prednisolone for PMR since July of last year. Twice failed to stay at 4mg and reverted to 5, but after 3 months on mainly 5 had a crippling
Greetings all, my first post here after recently discovering this excellent resource. A question about omeprazole please. I have been on a typical taper from 15mg prednisolone for PMR since July of last year. Twice failed to stay at 4mg and reverted to 5, but after 3 months on mainly 5 had a crippling
BlueKiwi
in
PMRGCAuk
2 months ago
PMR and severe neck spasms
Has anyone had experience of severe neck spasms with PMR? I was a long time being diagnosed PMR approx 3.5 yrs ago.-- usual high dose prednisolone etc which I have reduced to 2, 5 3 mg etc approx 4 or 5 times. Last year September i developed left sided neck pains on movement which quickly became extreme
Has anyone had experience of severe neck spasms with PMR? I was a long time being diagnosed PMR approx 3.5 yrs ago.-- usual high dose prednisolone etc which I have reduced to 2, 5 3 mg etc approx 4 or 5 times. Last year September i developed left sided neck pains on movement which quickly became extreme
attempttocycycle
in
PMRGCAuk
2 months ago
GCA relapse ?
I have been on prednisolone for the last two years for PMR i was on 4mg ,in March diagnosed with GCA had a temporal biopsy and ultrasound both with negative results. My Rheumatologist put my steroids up to 40mg a day now Reduced to 15mg but think headache and scalp sore coming back . Won’t see my
I have been on prednisolone for the last two years for PMR i was on 4mg ,in March diagnosed with GCA had a temporal biopsy and ultrasound both with negative results. My Rheumatologist put my steroids up to 40mg a day now Reduced to 15mg but think headache and scalp sore coming back . Won’t see my
Buster1610
in
PMRGCAuk
2 months ago
feel so helpless#meds#scaring#things to avoid#recovery#help
I am a mother of a 20 year-old daughter who was diagnosed with IGAv/HSP In February 2024. Her first flareup was very bad, ulcerated and has left pretty bad scarring all up legs which seems to be taking a very long time to heal and fade. She’s been having flareup approximately every two weeks, not as
I am a mother of a 20 year-old daughter who was diagnosed with IGAv/HSP In February 2024. Her first flareup was very bad, ulcerated and has left pretty bad scarring all up legs which seems to be taking a very long time to heal and fade. She’s been having flareup approximately every two weeks, not as
Dizzyliddy
in
Vasculitis UK
2 months ago
Cortisol test before or after Prednisolone
Been taking Prednisolone for 18months or so and am currently working my way down from 3mg to 2mg . So far apart from a couple of mini flea . I am doing OK. Recently went to see my GP to arrange the usually CRP and EST blood tests and she thought I should do a morning Cortisol test. I was however puzzled
Been taking Prednisolone for 18months or so and am currently working my way down from 3mg to 2mg . So far apart from a couple of mini flea . I am doing OK. Recently went to see my GP to arrange the usually CRP and EST blood tests and she thought I should do a morning Cortisol test. I was however puzzled
Amerloque
in
PMRGCAuk
2 months ago
Newly diagnosed PMR
Hello. I’ve joined here because it is mentioned in many of the sources I haven been using trying to make sense of what I’m going through. So I’m newly diagnosed and on day 6 of prednisolone. My symptoms are so much better in the afternoons and evenings but I’m still in so much pain and have very little
Hello. I’ve joined here because it is mentioned in many of the sources I haven been using trying to make sense of what I’m going through. So I’m newly diagnosed and on day 6 of prednisolone. My symptoms are so much better in the afternoons and evenings but I’m still in so much pain and have very little
NewPMR53
in
PMRGCAuk
2 months ago
PMR diagnosis
Hi, this is the first time posting on this platform as I have just had a diagnosis of PMR after four years. (I am not complaining as I realise it can be extremely difficult to diagnose with all the complexities of autoimmune conditions) I became very unwell in January 2020 and was hospitalised with
Hi, this is the first time posting on this platform as I have just had a diagnosis of PMR after four years. (I am not complaining as I realise it can be extremely difficult to diagnose with all the complexities of autoimmune conditions) I became very unwell in January 2020 and was hospitalised with
Hightower62
in
PMRGCAuk
2 months ago
Anyone developed type 2 diabetes from steroids? wondering if maybe this is a developing problem for me - I have a high dose steroid inhaler.
just wondered if anyone had experienced this? I’ve just had a short course of prednisolone and feeling very fatigued.
just wondered if anyone had experienced this? I’ve just had a short course of prednisolone and feeling very fatigued.
Ladypig8
in
Asthma Community Forum
2 months ago
Steroid Injection
Hi All, I'm feeling very confused after my last Rheumatology appointment. I first saw the Rheumatologist in February and was diagnosed Sjorgen's and possible PMR. I was put on 15mg prednisolone and had managed to taper to 13mg. I saw a different rheumatologist at my appt this week who threw me a complete
Hi All, I'm feeling very confused after my last Rheumatology appointment. I first saw the Rheumatologist in February and was diagnosed Sjorgen's and possible PMR. I was put on 15mg prednisolone and had managed to taper to 13mg. I saw a different rheumatologist at my appt this week who threw me a complete
Soinoi
in
PMRGCAuk
2 months ago
Variable periods of bloating, constipation and normal bowel function.
Currently at 5/5.5 mg prednisolone, and tapering very slowly. I'm in my third year since PMR diagnosis having started on 15 mg.I enjoy a healthy diet with regular exercise, dancing, table tennis and walking, varying the pace with varying pain levels. Grateful for any suggestions for a quick remedy/relief
Currently at 5/5.5 mg prednisolone, and tapering very slowly. I'm in my third year since PMR diagnosis having started on 15 mg.I enjoy a healthy diet with regular exercise, dancing, table tennis and walking, varying the pace with varying pain levels. Grateful for any suggestions for a quick remedy/relief
waltztherapy
in
PMRGCAuk
2 months ago
light at the end of the tunnel
I have posted a few times and have been very impatient with how long it was taking to be pain free especially at night. I was diagnosed in December and put on 15mg of prednisolone, which had. Been reduced to 7.5mg by April. Pain had increased by middle of April so towards the end of the month contacted
I have posted a few times and have been very impatient with how long it was taking to be pain free especially at night. I was diagnosed in December and put on 15mg of prednisolone, which had. Been reduced to 7.5mg by April. Pain had increased by middle of April so towards the end of the month contacted
lynda1955
in
PMRGCAuk
2 months ago
Does anyone take 15mg Bisoprol daily?
I recently posted a question about taking a medication to shorten an AFib episode and received some really helpful replies- thanks to everyone who replied. I was surprised that a few people were amazed that one of the blood pressure medications I take is 15mg of Bisoprol per day and say they would not
I recently posted a question about taking a medication to shorten an AFib episode and received some really helpful replies- thanks to everyone who replied. I was surprised that a few people were amazed that one of the blood pressure medications I take is 15mg of Bisoprol per day and say they would not
Jomaur
in
Atrial Fibrillation Support
2 months ago
Off pred
Well I've now finally come off prednisolone after 3.5 years and I found you very helpful and supportive. Unfortunately I've had to join the afib support group because just as I've finished with pred I've now had to start beta blockers and blood thinners. I think I'd rather be on Pred. One thing after
Well I've now finally come off prednisolone after 3.5 years and I found you very helpful and supportive. Unfortunately I've had to join the afib support group because just as I've finished with pred I've now had to start beta blockers and blood thinners. I think I'd rather be on Pred. One thing after
Exhiker
in
PMRGCAuk
2 months ago
Covid vax?
I’ve been invited for a COVID vax booster due to PMR/ Prednisolone. Anyone want to comment?
I’ve been invited for a COVID vax booster due to PMR/ Prednisolone. Anyone want to comment?
Oshmar
in
PMRGCAuk
2 months ago
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