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Cinchocaine / Prednisolone hexanoate
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CRP elevated too high - why?
hi. My blood labs show my CRP was 9.4 in June. I had pain and increased my prednisone to 3mg. My pain stopped snd Ive been feeling great. Now my Labs todsu in August show a further increase in CRP to 19. My ESR is normal at 12. I dont understand why as Im feeling good and tnought my CRP should
hi. My blood labs show my CRP was 9.4 in June. I had pain and increased my prednisone to 3mg. My pain stopped snd Ive been feeling great. Now my Labs todsu in August show a further increase in CRP to 19. My ESR is normal at 12. I dont understand why as Im feeling good and tnought my CRP should
Dragonflys
in
PMRGCAuk
7 days ago
Continued Journey
Day +43 from my BMT. Day 35 is a bench mark day as is day 100. Cellcept had run its course on day 35. It is an effective medication with controlling GVHD (GraftVsHost Disease). I also had a switch from Tacrolimus to Sirolimus. Both of these meds help with the GVHD. However the Tacro was affecting my
Day +43 from my BMT. Day 35 is a bench mark day as is day 100. Cellcept had run its course on day 35. It is an effective medication with controlling GVHD (GraftVsHost Disease). I also had a switch from Tacrolimus to Sirolimus. Both of these meds help with the GVHD. However the Tacro was affecting my
FiArt12X
in
CLL Support
8 days ago
Second guessing myself on how to proceed
I've had PMR since January 2022 and was initially put on methylprednisolone (4 mg twice a day) for about 2 months but that made me ill so was switched to prednisone (5 mg twice a day). I started tapering several months later in 2022 and got down to 7 mg but then flared so went back up to 10 mg and stayed
I've had PMR since January 2022 and was initially put on methylprednisolone (4 mg twice a day) for about 2 months but that made me ill so was switched to prednisone (5 mg twice a day). I started tapering several months later in 2022 and got down to 7 mg but then flared so went back up to 10 mg and stayed
perceptual63
in
PMRGCAuk
9 days ago
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Positive case studies
Literature trawl - copy the text and paste into Google search to find papers. This is just the best bits. Jo 9 yearWe present a case of a patient with castration-resistant prostate cancer with proven bone lesions 2 years after the onset of the disease and the current survival of over 9 years. In 2013
Literature trawl - copy the text and paste into Google search to find papers. This is just the best bits. Jo 9 yearWe present a case of a patient with castration-resistant prostate cancer with proven bone lesions 2 years after the onset of the disease and the current survival of over 9 years. In 2013
TomsD1
in
Advanced Prostate Cancer
9 days ago
adrenals not working
After getting down to 3 mg of prednisone (still doing Actemra injections) my endo switched me to hydrocortisone for a couple of months. I got down to two 5mg tablets in AM and one 5mg tab in PM, the PM dose kept my blood pressure from going too low. Last month my endo did ACTH testing and said my Adrenal
After getting down to 3 mg of prednisone (still doing Actemra injections) my endo switched me to hydrocortisone for a couple of months. I got down to two 5mg tablets in AM and one 5mg tab in PM, the PM dose kept my blood pressure from going too low. Last month my endo did ACTH testing and said my Adrenal
pmac22
in
PMRGCAuk
10 days ago
Update from GP re blood in urine
Phone call first thing from Surgery. Please could you drop in a fresh urine sample. OK yes no problem, take it to GP surgery and nurse says, "will test now" Hm yes still very small traces of blood and also small evidence of Leuokocytes, could be due to UTI. Just check with GP, she says, GP
Phone call first thing from Surgery. Please could you drop in a fresh urine sample. OK yes no problem, take it to GP surgery and nurse says, "will test now" Hm yes still very small traces of blood and also small evidence of Leuokocytes, could be due to UTI. Just check with GP, she says, GP
gillsky8
in
PMRGCAuk
11 days ago
Skin problem
I have been on Prednisone since 2020 and down to 8 1/2 mg. All of a sudden I have noticed flat, dark red spots (not itchy) on my chest. My rheumatologist thinks it could be from the Prednisone. Has anyone else experienced this? Thanks for always being here for all of us.
I have been on Prednisone since 2020 and down to 8 1/2 mg. All of a sudden I have noticed flat, dark red spots (not itchy) on my chest. My rheumatologist thinks it could be from the Prednisone. Has anyone else experienced this? Thanks for always being here for all of us.
Miacaro45
in
PMRGCAuk
11 days ago
Sleeping demon still stirring?
I've posted occasionally over the 8 years that I've dealt with PMR and owe a great debt to everyone here. The information and advise gleaned from here has been invaluable for dealing with PMR and functioning with a busy life. I finally made my first true attempt at being off prednisone about 3 months
I've posted occasionally over the 8 years that I've dealt with PMR and owe a great debt to everyone here. The information and advise gleaned from here has been invaluable for dealing with PMR and functioning with a busy life. I finally made my first true attempt at being off prednisone about 3 months
Raven1955
in
PMRGCAuk
12 days ago
hiatus hernia
I have been on prednisone since January 2017…it seems a lifetime ago☹️ I was put on Alendronic Acid which in turn gave me a hiatus hernia/GERD (2019) ...the consultant I saw said he was positive it happened because of the AA…☹️ It has undoubtedly had a major affect on my life making PMR almost acceptable
I have been on prednisone since January 2017…it seems a lifetime ago☹️ I was put on Alendronic Acid which in turn gave me a hiatus hernia/GERD (2019) ...the consultant I saw said he was positive it happened because of the AA…☹️ It has undoubtedly had a major affect on my life making PMR almost acceptable
PamJCam
in
PMRGCAuk
12 days ago
what’s the best exercise and nutrition while on Abiraterone/Prednisone and Lupron.
I’m 44 years old with PCa. I’m on ADT for the last 18 months and had radiation and chemo a year ago. I have fatigue and find it very difficult to get the energy to workout. It’s also difficult to get motivation. Does anyone have any suggestions on workouts and nutrition during this treatment?
I’m 44 years old with PCa. I’m on ADT for the last 18 months and had radiation and chemo a year ago. I have fatigue and find it very difficult to get the energy to workout. It’s also difficult to get motivation. Does anyone have any suggestions on workouts and nutrition during this treatment?
Jumpingbellybeans
in
Advanced Prostate Cancer
12 days ago
COVID FLARE?
I've been down to zero prednisone for about three weeks, still on Kevzara. I have had Covid for a week and tonight my shoulder hurts. Could this be a flare?
I've been down to zero prednisone for about three weeks, still on Kevzara. I have had Covid for a week and tonight my shoulder hurts. Could this be a flare?
Paulagcl
in
PMRGCAuk
12 days ago
Dosage level
Warriors I am repeating some things here that were in other posts, however I do have a new question for the group. Started my journey in Oct of 2023. Diagnosed with prostate cancer via MRI and then Biopsy. Further diagnosis via a PET scan showed PSMA uptake in Pelvic lymph nodes and in Periaortic
Warriors I am repeating some things here that were in other posts, however I do have a new question for the group. Started my journey in Oct of 2023. Diagnosed with prostate cancer via MRI and then Biopsy. Further diagnosis via a PET scan showed PSMA uptake in Pelvic lymph nodes and in Periaortic
85236442968
in
Advanced Prostate Cancer
12 days ago
Knee Effusion (Water on Knee) from PMR?
My knees started feeling quite painful shortly after the PMR started. I assumed it was part of PMR until my Rheumatologist said a few months ago she didn't think it was. The knee pain has increased more than the PMR pains as prednisone has been tapered. (I'm on the "75% less pain than untreated is
My knees started feeling quite painful shortly after the PMR started. I assumed it was part of PMR until my Rheumatologist said a few months ago she didn't think it was. The knee pain has increased more than the PMR pains as prednisone has been tapered. (I'm on the "75% less pain than untreated is
OakOwl
in
PMRGCAuk
13 days ago
Red cells from blood test,
just read the report from GP. if anyone can make sense of this then would be grateful ? No infection, (although this was queried at the hospital as there was a trace of Leukoytes in the urine. red cells present, Routine culture is no longer required if the WBC count is less than 50/mm3 as UTI
just read the report from GP. if anyone can make sense of this then would be grateful ? No infection, (although this was queried at the hospital as there was a trace of Leukoytes in the urine. red cells present, Routine culture is no longer required if the WBC count is less than 50/mm3 as UTI
gillsky8
in
PMRGCAuk
13 days ago
Prednisone masking various pain issues?
I have read prednisone does not treat certain pain issues ie “arthritis” yet I am also seeing many commemts about prednisone “masking” certain issues, seems like a contradiction, and resulting in a view that prednisone is a pain killer/anti iflammatory, for other conditions other than pmr, ?
I have read prednisone does not treat certain pain issues ie “arthritis” yet I am also seeing many commemts about prednisone “masking” certain issues, seems like a contradiction, and resulting in a view that prednisone is a pain killer/anti iflammatory, for other conditions other than pmr, ?
arvine
in
PMRGCAuk
13 days ago
Side effects of steroids and why I'm determined to get off them !!
OK so the past few days have been a bit of a nightmare to say the least, but at the end of the day, having spoken to several others who are on steroids for PMR, I have drawn the following conclusion. I need to get off of them as soon as possible. I have been on them for just over a year now and
OK so the past few days have been a bit of a nightmare to say the least, but at the end of the day, having spoken to several others who are on steroids for PMR, I have drawn the following conclusion. I need to get off of them as soon as possible. I have been on them for just over a year now and
gillsky8
in
PMRGCAuk
13 days ago
Crp and ESR still elevated!
Hello, I have been diagnosed with UCTD and synovitis in both hands and I’m currently on prednisone 20mg Plaquenil 200mg 2x, Savella 50mg, Gabapentin 400mg. With all that my Crp and esr are both at 41 and I’m still in pain and very fatigued. I’ve been on these meds since May 2024. I’ve also changed
Hello, I have been diagnosed with UCTD and synovitis in both hands and I’m currently on prednisone 20mg Plaquenil 200mg 2x, Savella 50mg, Gabapentin 400mg. With all that my Crp and esr are both at 41 and I’m still in pain and very fatigued. I’ve been on these meds since May 2024. I’ve also changed
Jadaboo4
in
LUPUS UK
13 days ago
increasing my prednisone
hello, I have reduced to 2mg from 12.5 october23 I have been ok, up until the last two weeks, my back pain has returned, and it’s getting worse, doctor gave me codine and paracetamol but I do not seam to be improving, could I take a higher dose of Pred to see if that would help and if so how much. I
hello, I have reduced to 2mg from 12.5 october23 I have been ok, up until the last two weeks, my back pain has returned, and it’s getting worse, doctor gave me codine and paracetamol but I do not seam to be improving, could I take a higher dose of Pred to see if that would help and if so how much. I
Startrek123
in
PMRGCAuk
14 days ago
Rheumatology visit and prednisone reduction
Before I went to the doctor this morning, I knew how much better I felt. That was even though I sat up for two hours in the middle of last night listening to a book after my second 60 mg dose. I made myself go back to bed three hours before I had to rise, and rise I did! Wide-eyed... The doctor told
Before I went to the doctor this morning, I knew how much better I felt. That was even though I sat up for two hours in the middle of last night listening to a book after my second 60 mg dose. I made myself go back to bed three hours before I had to rise, and rise I did! Wide-eyed... The doctor told
Grammy80
in
PMRGCAuk
14 days ago
how long is a long time
hi everyone have been reading posts for a while and it seems to me that everyone's journey with PMR is different. so here is my story. I was diagnosed with PMR in march 2021 by my GP I have not got below 8mg of prednisolone every time I drop to 7.5mg much more discomfort. I have aches and a little
hi everyone have been reading posts for a while and it seems to me that everyone's journey with PMR is different. so here is my story. I was diagnosed with PMR in march 2021 by my GP I have not got below 8mg of prednisolone every time I drop to 7.5mg much more discomfort. I have aches and a little
bluenumbertwo
in
PMRGCAuk
7 months ago
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