Sleeping demon still stirring?

[Raven1955]

I've posted occasionally over the 8 years that I've dealt with PMR and owe a great debt to everyone here. The information and advise gleaned from here has been invaluable for dealing with PMR and functioning with a busy life.

I finally made my first true attempt at being off prednisone about 3 months ago and it has gone reasonably well. I've known that it takes more than a few months to declare victory and over the last 2 weeks I've noticed a few aches but really not much. Of more concern was the increasing lethargy and overall feeling very tired most of the time over the 2 weeks. I decided to take 5 mg of pred for the past 3 days and, while not perfect, definitely can feel a difference. My thought is that the PMR is still there but at a very, very low level. Or is it more likely to just be the adrenals awakening in spits and spurts? I'm tempted to go back on 2 or 3 mg and see if that smooths things out.

[PMRpro Ambassador]

Given the time scale - I'd try going back to 1mg after a week of 5mg.

[Raven1955 in reply to PMRpro]

Thanks for the refresher course. After all these years I think I knew the answer, but needed to hear it from someone else. Back on the prednisone saddle again but that isn't a bad thing as far as I'm concerned!!

[PMRpro Ambassador in reply to Raven1955]

I don't see it as a problem either once you are down to under 3mg. QOL is all!

[DorsetLady PMRGCAuk volunteer]

For the record, agree with PMRpro…

[piglette]

With the tiredness it could be your adrenals. It can take up to a year of zero pred to get back to normal.