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Newbie with questions
So glad I found this site - seems like the best source of info and ideas I have seen. So it’s time to stop lurking and start participating. I am 67, still work, was diagnosed in Nov. 2017. Gleason 4+4, metasteses to local lymph nodes, pelvis, hip and one rib. Large tumor on the prostate itself.
So glad I found this site - seems like the best source of info and ideas I have seen. So it’s time to stop lurking and start participating. I am 67, still work, was diagnosed in Nov. 2017. Gleason 4+4, metasteses to local lymph nodes, pelvis, hip and one rib. Large tumor on the prostate itself.
Canoehead
in
Advanced Prostate Cancer
6 years ago
17 years of various treatments
Hi Y'all, Regarding my husband, I have dragged him through 17 years of various treatments--all failed. However, he is still alive and kicking after all these years and we are grateful for that. He has lived a mostly normal, unaffected life through it all. He had a laparoscopic prostatectomy done
Hi Y'all, Regarding my husband, I have dragged him through 17 years of various treatments--all failed. However, he is still alive and kicking after all these years and we are grateful for that. He has lived a mostly normal, unaffected life through it all. He had a laparoscopic prostatectomy done
Grumpyswife
in
Advanced Prostate Cancer
6 years ago
Advice Needed Urgently
Gentlemen, I can't tell you how much your encouragement and advice have meant to me. This site has truly helped me get through the struggles after my initial diagnosis and now I need your help again. I had my RP on 1/26 and now I need to make a treatment choice. As you all know, this is not like picking
Gentlemen, I can't tell you how much your encouragement and advice have meant to me. This site has truly helped me get through the struggles after my initial diagnosis and now I need your help again. I had my RP on 1/26 and now I need to make a treatment choice. As you all know, this is not like picking
Hidden
in
Advanced Prostate Cancer
6 years ago
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Newbie
Hello everyone, newbie to this group dx on feb 2017 psa of 224.7 lupron and casodex was prescribed and psa came down to .2 in about 5 months, 44 sessions of imrt later psa started raising.Last session was october 6th 2017, last reading was 12.2 about a month ago, waiting on zytiga approval from my insurance
Hello everyone, newbie to this group dx on feb 2017 psa of 224.7 lupron and casodex was prescribed and psa came down to .2 in about 5 months, 44 sessions of imrt later psa started raising.Last session was october 6th 2017, last reading was 12.2 about a month ago, waiting on zytiga approval from my insurance
fochoa97
in
Advanced Prostate Cancer
6 years ago
Why is Testosterone Increasing?
On Zytiga, Presdinsone, and Lupron today; October 2017 just Lupron PSA 29.7 Testosterone 27; January, 2018 , after adding Zytiga in November, 2017, PSA 7.1, but Testoserone inched up from 27 to 49. PSA going down, but testosterone going up. Testosterone increased on 3 Tests, can,t be lab error. My MO
On Zytiga, Presdinsone, and Lupron today; October 2017 just Lupron PSA 29.7 Testosterone 27; January, 2018 , after adding Zytiga in November, 2017, PSA 7.1, but Testoserone inched up from 27 to 49. PSA going down, but testosterone going up. Testosterone increased on 3 Tests, can,t be lab error. My MO
BigRich
in
Advanced Prostate Cancer
6 years ago
Just started Xtandi
First diagnosed with PC in October 2007 aged 63. Had robotic surgery to remove prostate in Jan 2008. Gleason 7 (4+3) 3 months after op my psa was .5 then went on trial of 6 doses of chemo. This knocked psa down to .1. PSA then started to creep up after six months then had radiation. Since then have
First diagnosed with PC in October 2007 aged 63. Had robotic surgery to remove prostate in Jan 2008. Gleason 7 (4+3) 3 months after op my psa was .5 then went on trial of 6 doses of chemo. This knocked psa down to .1. PSA then started to creep up after six months then had radiation. Since then have
landcrab
in
Advanced Prostate Cancer
6 years ago
Castrate Resistant
My husband currently is taking casodex and Lupron. He did 6 cycles of Docetaxel last Summer. If his PSA starts to rise on Casodex and Lupron does that mean his PC would be considered castrate resistant? Thanks for the info.
My husband currently is taking casodex and Lupron. He did 6 cycles of Docetaxel last Summer. If his PSA starts to rise on Casodex and Lupron does that mean his PC would be considered castrate resistant? Thanks for the info.
Blair77
in
Advanced Prostate Cancer
6 years ago
Voice changes
Hi all. My father (76 years old) is on casodex monotherapy. This is quite common theraphy in our parts of the world - they use it untill it works, than they add Lupron. He Gleason is 7 (4+3, tumor present in 10% of tissue evaluated (it was discovered during TURP procedure, stage 2b) and has been on Casodex
Hi all. My father (76 years old) is on casodex monotherapy. This is quite common theraphy in our parts of the world - they use it untill it works, than they add Lupron. He Gleason is 7 (4+3, tumor present in 10% of tissue evaluated (it was discovered during TURP procedure, stage 2b) and has been on Casodex
MyDad76
in
Advanced Prostate Cancer
6 years ago
CRPC & Avodart [Dutasteride].
New study below. Some may recall that I'm in favor of shutting off all escape paths while on ADT - e.g. via Zytiga, Casodex, Simvastatin & Avodart. If you are closing the door, close the windows too. The conventional view is that since 5alpha-reductase converts testosterone [T] to dihtdrotestosterone
New study below. Some may recall that I'm in favor of shutting off all escape paths while on ADT - e.g. via Zytiga, Casodex, Simvastatin & Avodart. If you are closing the door, close the windows too. The conventional view is that since 5alpha-reductase converts testosterone [T] to dihtdrotestosterone
pjoshea13
in
Advanced Prostate Cancer
6 years ago
Zytiga+Zoladex instead of Taxotere
Good day everyone, Just wish to share with you this update.. I sought a second opinion on whether Taxotere was the most appropriate course of action after casodex and Zoladex which reduced PSA only to a certain level and stopped to drive it down. The second oncologist advised me to do Zytiga and
Good day everyone, Just wish to share with you this update.. I sought a second opinion on whether Taxotere was the most appropriate course of action after casodex and Zoladex which reduced PSA only to a certain level and stopped to drive it down. The second oncologist advised me to do Zytiga and
NG17
in
Advanced Prostate Cancer
6 years ago
Low Testosterone Level
I'm stage 4 close to 5 years since devinci removal, lupron, casodex and xgeva, PSA under 0.02. Question - my testosterone level is "3" which sounds good but I can't get a response I understand on its relationship with PSA, etc. Can someone kindly explain the significance and hopefully good news on
I'm stage 4 close to 5 years since devinci removal, lupron, casodex and xgeva, PSA under 0.02. Question - my testosterone level is "3" which sounds good but I can't get a response I understand on its relationship with PSA, etc. Can someone kindly explain the significance and hopefully good news on
BobGee
in
Advanced Prostate Cancer
6 years ago
Post surgery psa
Hi all with my best regards, Our journey began in august 2017. My husband is 54 years old dx with psa of 12 and gleason was 8 at the biopsy. One side all the cores was positive and the other side 2 of 6 cores was positive. Mri and pet and all tests showed no spread. We went 4 drs of urology and decidedu
Hi all with my best regards, Our journey began in august 2017. My husband is 54 years old dx with psa of 12 and gleason was 8 at the biopsy. One side all the cores was positive and the other side 2 of 6 cores was positive. Mri and pet and all tests showed no spread. We went 4 drs of urology and decidedu
Kamilekamile
in
Advanced Prostate Cancer
6 years ago
I'm still going strong!
Hi everyone, I though a positive note might help. I was diagnosed Oct 2013, PSA 620. Two of 12 biopsy cores cancerous. Gleasons, 3 and 4. 4 and 4. Widespread bony metastases to spinal column, ribcage, pelvis. Smaller lesions in humerus and femur and skull. After a few weeks on Casodex, changed to Abiraterone
Hi everyone, I though a positive note might help. I was diagnosed Oct 2013, PSA 620. Two of 12 biopsy cores cancerous. Gleasons, 3 and 4. 4 and 4. Widespread bony metastases to spinal column, ribcage, pelvis. Smaller lesions in humerus and femur and skull. After a few weeks on Casodex, changed to Abiraterone
NiallMcC
in
Advanced Prostate Cancer
6 years ago
Advanced Prostate Cancer Treatment
Hi, I am new to this community. My father(89 y/o) has advanced prostate cancer, that was diagnosed in Nov,1996 PSA was 49. It was stage 4 with mets to one lymph node found.Treated with Lupron, Casodex and Radiation. 2 years(2015) ago his PSA started rising and the cancer spread to his left shoulder.
Hi, I am new to this community. My father(89 y/o) has advanced prostate cancer, that was diagnosed in Nov,1996 PSA was 49. It was stage 4 with mets to one lymph node found.Treated with Lupron, Casodex and Radiation. 2 years(2015) ago his PSA started rising and the cancer spread to his left shoulder.
ann1919
in
Advanced Prostate Cancer
6 years ago
Eligar user
Hi. I'm new here. Would appreciate your input. I found this site informative. Thanks. Just got my Eligar shot 3 days ago, along with a prescription from 50 mg of casodex. Really got dizzy last night into today. Went and got some drammamine to offset the seasick feeling. Is it important to keep taking
Hi. I'm new here. Would appreciate your input. I found this site informative. Thanks. Just got my Eligar shot 3 days ago, along with a prescription from 50 mg of casodex. Really got dizzy last night into today. Went and got some drammamine to offset the seasick feeling. Is it important to keep taking
genial
in
Advanced Prostate Cancer
6 years ago
Radiation with Chemo
I'm on lupron, docetaxel and casodex. Start my third chemo next Tuesday. Started to get bone pain in my right scapular and asked the oncologist about radiation to deal with that. He said radiation shouldn't be used with some varieties of chemo. Does anyone know why this would be?
I'm on lupron, docetaxel and casodex. Start my third chemo next Tuesday. Started to get bone pain in my right scapular and asked the oncologist about radiation to deal with that. He said radiation shouldn't be used with some varieties of chemo. Does anyone know why this would be?
Stegosaurus37
in
Advanced Prostate Cancer
6 years ago
Joint Pain
Hi, I am wondering if anyone has suffered from joint pain after chemotherapy or whilst on hormone therapy ? My husband finished 6 cycles of docetaxel in June 2017, and is now on monthly firmagon, monthly xgeva and daily casodex. He has suffered from joint pain since the end of the chemo, starting in
Hi, I am wondering if anyone has suffered from joint pain after chemotherapy or whilst on hormone therapy ? My husband finished 6 cycles of docetaxel in June 2017, and is now on monthly firmagon, monthly xgeva and daily casodex. He has suffered from joint pain since the end of the chemo, starting in
blueeyes74
in
Advanced Prostate Cancer
6 years ago
PC has spread to liver!! NEED a HAIL MARY!!
CT scan this morning showed PC has spread to my husband's liver!! We NEED a HAIL MARY!! -and any words of wisdom that will give more hope We plan to seek additional opinions from other prostate cancer oncologists - any recommendations? (we are currently at U of Chicago) Our oncologist recommends
CT scan this morning showed PC has spread to my husband's liver!! We NEED a HAIL MARY!! -and any words of wisdom that will give more hope We plan to seek additional opinions from other prostate cancer oncologists - any recommendations? (we are currently at U of Chicago) Our oncologist recommends
JLS1
in
Advanced Prostate Cancer
6 years ago
Nilutamide
Has anybody got any experience here in using Nilutamide? My Dad is off Casodex, because he is high risk for Casodex resistance . Currently on Degarelix and Zytiga. Any info greatly receieved.. And also, does anybody know where to source it? and dosage info? Thanks
Has anybody got any experience here in using Nilutamide? My Dad is off Casodex, because he is high risk for Casodex resistance . Currently on Degarelix and Zytiga. Any info greatly receieved.. And also, does anybody know where to source it? and dosage info? Thanks
taylor123
in
Advanced Prostate Cancer
6 years ago
Hello
My husband was diagnosed with Prostatic Cancer 2011 can't recall,gleason score off hand but his PSA was 45.7 in March and with alternative treatments, radiation, Lupron his PSA decreased to normal in 5 months. Sadly this year PSA went up to 18 in January and by end of Summer Stage 4 Boney mettastic cancer
My husband was diagnosed with Prostatic Cancer 2011 can't recall,gleason score off hand but his PSA was 45.7 in March and with alternative treatments, radiation, Lupron his PSA decreased to normal in 5 months. Sadly this year PSA went up to 18 in January and by end of Summer Stage 4 Boney mettastic cancer
KingRasP
in
Advanced Prostate Cancer
6 years ago
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