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Zytega or Xtandi (hormone naive, dx June 2019) in foresight as a primer for Gallium 68 PSMA scan and LU 177
Hi to everybody on the forum, I have been reading on this forum for the past 2 month and learned so much from you, thank you! I am impressed and grateful about all this knowledge and sharing here. Here is my husband's story (64years): Dx in June 2019 after pain in back and right leg for more than a year
Hi to everybody on the forum, I have been reading on this forum for the past 2 month and learned so much from you, thank you! I am impressed and grateful about all this knowledge and sharing here. Here is my husband's story (64years): Dx in June 2019 after pain in back and right leg for more than a year
specialmatter
in
Advanced Prostate Cancer
5 years ago
Blood clot now provenge?
My husband was on Xtandi keytruda trial. Failure psa at last check 19. Doctor now suggests provenge then chemo. Then he had swelling severe pain in neck ct showed large clot in jugular!!! He is on zarelto now probably for life. Just had another ct. clot much smaller but still present. Afraid will
My husband was on Xtandi keytruda trial. Failure psa at last check 19. Doctor now suggests provenge then chemo. Then he had swelling severe pain in neck ct showed large clot in jugular!!! He is on zarelto now probably for life. Just had another ct. clot much smaller but still present. Afraid will
Judymin
in
Advanced Prostate Cancer
5 years ago
ideas welcome!
hello all, this is my first time posting but I have been following you for about a month or more and my goodness you are a helpful crowd. My husband was diagnosed in April of 2018 with PSA of 180. sent to urologist for consult who sent us for bone scans and ct of abdomen and scheduled biopsy, however
hello all, this is my first time posting but I have been following you for about a month or more and my goodness you are a helpful crowd. My husband was diagnosed in April of 2018 with PSA of 180. sent to urologist for consult who sent us for bone scans and ct of abdomen and scheduled biopsy, however
Dalipup
in
Advanced Prostate Cancer
5 years ago
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I'm new here, fighting Prostate Cancer and life is still good.
I know how devastating these words "You Have Prostate Cancer" are. I was diagnosed exactly one week before my 59th birthday on March, 10, 2017. Well guy's, I want to tell those who have recently been diagnosed, that life is far from over. Between March 10, 2019 and April 24, 2019 when I had my robotic
I know how devastating these words "You Have Prostate Cancer" are. I was diagnosed exactly one week before my 59th birthday on March, 10, 2017. Well guy's, I want to tell those who have recently been diagnosed, that life is far from over. Between March 10, 2019 and April 24, 2019 when I had my robotic
Ram17
in
Prostate Cancer And Gay Men
5 years ago
Would anybody know if you could take CABAZITAZEL and still continue taking ZYTIGA, LUPRON and ZOMETA?
Two-part question: First part of the question was: Question regarding CABAZITAXEL (also called: JEVTANA) and if one can be on this chemotherapy drug treatment while also on a combination of other drug treatments such as: (2) ZYTIGA, (3) LUPRON and/or (4) ZOMETA? In other words, would anybody know if
Two-part question: First part of the question was: Question regarding CABAZITAXEL (also called: JEVTANA) and if one can be on this chemotherapy drug treatment while also on a combination of other drug treatments such as: (2) ZYTIGA, (3) LUPRON and/or (4) ZOMETA? In other words, would anybody know if
Xtandie
in
Advanced Prostate Cancer
5 years ago
Firmagon or Zoladex....?
Hi, hope you are all doing well, been a while since I posted but circumstances have changed and I was wondering if anyone could help with some questions I have... We have returned to UK from Kenya and in Kenya my husbands insurance paid for him to have treatment in India, and his plan for the last two
Hi, hope you are all doing well, been a while since I posted but circumstances have changed and I was wondering if anyone could help with some questions I have... We have returned to UK from Kenya and in Kenya my husbands insurance paid for him to have treatment in India, and his plan for the last two
blueeyes74
in
Advanced Prostate Cancer
5 years ago
Jevtana and carboplatin combo..where to go after
My dad is now going through combo chemo (jevtana and carboplatin). Has anyone else experienced this and if so was it positive? Dad is having a lot of pain and just weak with it. We expected the weakness but not so much the pain. He was continuing to have an increase in psa on taxotere and then jevtana
My dad is now going through combo chemo (jevtana and carboplatin). Has anyone else experienced this and if so was it positive? Dad is having a lot of pain and just weak with it. We expected the weakness but not so much the pain. He was continuing to have an increase in psa on taxotere and then jevtana
Tiff2019
in
Advanced Prostate Cancer
5 years ago
MEMORY LOSS, WAS IT CAUSED BY THE ESTROGEN PATCHES
Following a positive biopsy indicating that I had prostate cancer (3+4) in late 2013, I began a long ADT treatment protocol that included a combination of Lupron, Casodex, Avodart, Xgeva and Metformin until Februaru 2015. I then switched from Lupron to Estrogen Patches and continued the Avodart and Metformin
Following a positive biopsy indicating that I had prostate cancer (3+4) in late 2013, I began a long ADT treatment protocol that included a combination of Lupron, Casodex, Avodart, Xgeva and Metformin until Februaru 2015. I then switched from Lupron to Estrogen Patches and continued the Avodart and Metformin
middlejoel
in
Advanced Prostate Cancer
5 years ago
Cycle estrogen and casodex/dutasteride
I have been on estrogen patches to lower testosterone. Very effective. Undetectable T and PSAs are 0. No depression. But zero libido, loss of strength, and lower RBC (I think that 0 T is going to cause those regardless of how you get there). So I am going on a combo of casodex and dutasteride. Casodex
I have been on estrogen patches to lower testosterone. Very effective. Undetectable T and PSAs are 0. No depression. But zero libido, loss of strength, and lower RBC (I think that 0 T is going to cause those regardless of how you get there). So I am going on a combo of casodex and dutasteride. Casodex
Hidden
in
Advanced Prostate Cancer
5 years ago
Neuroendocrine
Update- My hubby Mike (age 46) just had a tumor removed from his neck last Monday. Pathology revealed the following... Poorly differentiated carcinoma, focal possible glandular differentiation. Diffusely positive for Synaptophysin and chromogranin with weak expression of NKX3.1. It also states that
Update- My hubby Mike (age 46) just had a tumor removed from his neck last Monday. Pathology revealed the following... Poorly differentiated carcinoma, focal possible glandular differentiation. Diffusely positive for Synaptophysin and chromogranin with weak expression of NKX3.1. It also states that
Bird8
in
Advanced Prostate Cancer
5 years ago
G9 since 2005, zero treatment until late 2017, now multiple Mets lymph and skeletal. Have fail Xtandi, Lupron, Taxotere. Now Indomethacin
Failed Xtandi monotherapy after successful 15 months, failed Taxotere, failed Lupron immediately, failed Cabazitaxal. Asked MO to prescribe Indomethacin, Niclosamide, Avodart and 150 mg Casodex daily. Nothing else as alleged so called SOC was not working, what the hell. 2 MO’s said no chance of
Failed Xtandi monotherapy after successful 15 months, failed Taxotere, failed Lupron immediately, failed Cabazitaxal. Asked MO to prescribe Indomethacin, Niclosamide, Avodart and 150 mg Casodex daily. Nothing else as alleged so called SOC was not working, what the hell. 2 MO’s said no chance of
Sxrxrnr1
in
Advanced Prostate Cancer
5 years ago
Casodex 50mg 1 X/day Absorption rate?
Started or re-started Casodex today. What is the absorption rate in my body? I.e. how fast does it attack my PCa? Where do I find the chemistry formula makeup and metabolism intake? Doug
Started or re-started Casodex today. What is the absorption rate in my body? I.e. how fast does it attack my PCa? Where do I find the chemistry formula makeup and metabolism intake? Doug
depotdoug
in
Advanced Prostate Cancer
5 years ago
What to do now?
Dx 9/95 with Gleason 3+4 and PSA of 16.6. Did 16 months of ADT (Lupron, Finesteride and Casodex). During ADT PSA dropped to < 0.03. Stopped Lupron and Casodex 4/99. Continued Finasteride until Avodart replaced Finasteride on 3/04. PSA rose slowly from <0.03 on 1/00 to 73.2. on 8/20/19. Testosterone
Dx 9/95 with Gleason 3+4 and PSA of 16.6. Did 16 months of ADT (Lupron, Finesteride and Casodex). During ADT PSA dropped to < 0.03. Stopped Lupron and Casodex 4/99. Continued Finasteride until Avodart replaced Finasteride on 3/04. PSA rose slowly from <0.03 on 1/00 to 73.2. on 8/20/19. Testosterone
davidhike
in
Advanced Prostate Cancer
5 years ago
Zometa for bone strength to be given only with multiple bone Mets or to all stage 4 patients ? Even stage 4 with multiple lymph node Mets ?
Hi, My dad, 75.5 years old was recently diagnosed with stage 4 prostate cancer with PSMA PET SCAN showing Mets to multiple distant lymph nodes and one met on the pelvic lymph node. He does not have any pain and got detected due to a constipation problem. His initial psa was 114 ng/ml, Gleason 4+4, he
Hi, My dad, 75.5 years old was recently diagnosed with stage 4 prostate cancer with PSMA PET SCAN showing Mets to multiple distant lymph nodes and one met on the pelvic lymph node. He does not have any pain and got detected due to a constipation problem. His initial psa was 114 ng/ml, Gleason 4+4, he
Life5
in
Advanced Prostate Cancer
5 years ago
Just came back from Dr. Appt. Erleada failing
Hi all. First posting here. I "had" nmCRPC and was put on Erleada about a year ago. It worked great for a while. My PSA went down to .15. Then three months ago it went to .3. In addition, I was having a great deal of problems with side effects. Basically, I would feel good for a few days, and
Hi all. First posting here. I "had" nmCRPC and was put on Erleada about a year ago. It worked great for a while. My PSA went down to .15. Then three months ago it went to .3. In addition, I was having a great deal of problems with side effects. Basically, I would feel good for a few days, and
dpowellnt
in
Advanced Prostate Cancer
5 years ago
Update!
Hello everyone sorry it’s been a while since I’ve posted it been a hectic couple of months. My wonderful husband and I took a road trip to Big Bend, Gila Forest in New Mexico and the Grand Canyon. His health has been good he just had his second round of CT scans (hips, pelvis, abdomen) and an MRI on
Hello everyone sorry it’s been a while since I’ve posted it been a hectic couple of months. My wonderful husband and I took a road trip to Big Bend, Gila Forest in New Mexico and the Grand Canyon. His health has been good he just had his second round of CT scans (hips, pelvis, abdomen) and an MRI on
Lagovista2018
in
Advanced Prostate Cancer
5 years ago
Looks like a bit of ADT induced anemia
CBC test shows below normal RBCs, HGBs, and hemtocrit. Maybe, that's why i feel sluggish during my walk/runs :-) On a sorta good note PSA at 4.4 and T at 14 - so no doubling! It was 4.0 last month. Still on Metformin (2000mg/day) and Lipitor(10mg) and Casodex I'm going to try and supplement with this
CBC test shows below normal RBCs, HGBs, and hemtocrit. Maybe, that's why i feel sluggish during my walk/runs :-) On a sorta good note PSA at 4.4 and T at 14 - so no doubling! It was 4.0 last month. Still on Metformin (2000mg/day) and Lipitor(10mg) and Casodex I'm going to try and supplement with this
dockam
in
Advanced Prostate Cancer
5 years ago
Zytiga after taxotere chemo? Help understanding
Hi everyone, My father has had 10 rounds of chemo (his last one is this week), he went from a psa of 2000 to his current psa of 0.2, we started this journey in December last year and he has been on lupron since pretty early on (had some kidney issues and had it delayed the first month) he also was
Hi everyone, My father has had 10 rounds of chemo (his last one is this week), he went from a psa of 2000 to his current psa of 0.2, we started this journey in December last year and he has been on lupron since pretty early on (had some kidney issues and had it delayed the first month) he also was
ellie2211
in
Advanced Prostate Cancer
5 years ago
Symptoms Returned after stopping Casodex
After 2 months on Casodex urine flow and frequency greatly improved. RO ordered 3 month Eligard injection Stopped Casodex 2 weeks after injection. Now I’m experiencing increased frequency with a decreased urine flow. Would appreciate comments on why the change after stopping Casodex. Also would
After 2 months on Casodex urine flow and frequency greatly improved. RO ordered 3 month Eligard injection Stopped Casodex 2 weeks after injection. Now I’m experiencing increased frequency with a decreased urine flow. Would appreciate comments on why the change after stopping Casodex. Also would
BadNews4me
in
Advanced Prostate Cancer
5 years ago
Any one knows of a spontaneous regression
Hi everyone My father in law has advanced prostate cancer, the cancer has metastasized to his hip, one vertebra and a rib. He is currently on Xtandi after he showed resistance to Casodex. I read about spontaneous regression of cancer, and I was wondering if there are any cases among this community and
Hi everyone My father in law has advanced prostate cancer, the cancer has metastasized to his hip, one vertebra and a rib. He is currently on Xtandi after he showed resistance to Casodex. I read about spontaneous regression of cancer, and I was wondering if there are any cases among this community and
aoab50
in
Advanced Prostate Cancer
5 years ago
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