Hello

[KingRasP]

My husband was diagnosed with Prostatic Cancer 2011 can't recall,gleason score off hand but his PSA was 45.7 in March and with alternative treatments, radiation, Lupron his PSA decreased to normal in 5 months.

Sadly this year PSA went up to 18 in January and by end of Summer Stage 4 Boney mettastic cancer.

He is currently on Prednisone, Zytiga,Flomax, casodex. I am so sad, March will be our 40 Th anniverery, God,s willing. He is in a lot of pain, poorly controlled with Tylenol # 3, Percocet and Ibuprofrn.

I am happy to find your group and looking forward to sharing what we are learning and hearing from you men on how to better support and care for my husband.

[JamesAtlanta]

I’m glad you found us, too! I’m sure someone in our group will have advice that will help. And you have much to share with the men on this site and our caregivers, too.

I just wanted to welcome you - and let you know we are all pulling for you and your husband! And praying for you both!

What a wonderful photo you shared! 40-year’s of happiness is such a gift!

Our best to you and your husband.

James

[KingRasP in reply to JamesAtlanta]

Thank you so much James. I wish you well also.

[ronnie1943]

Hi, my name is Lynn,....my husband has stage four prostrate cancer, his also went to the bone. I don't think over the counter pain medication work's for there kind of pain? At times my husband has been prescribed pain medication. He did have several radiation treatments that helped to shrink the tumors and it did relieve the pain? Does your husbands oncologist say anything about radiation ?Every ones cancer is different and I wish I be of more help. My husband was also on casodex and a needle Lupron every three months after that quit working, he was put on Zytaga, Xtandi, this past year chemo. And more radiation. Now they found a cancerous lymph node. We go this coming Friday to a surgeon for a biopsy. I just recently found this group, and so happy I did, please know everyone is here for you. I know how you feel. Stay strong, have the faith and there are so many treatment's they can do today for prostrate cancer. It's not easy for us caretakers to watch our wonderful husbands suffer. My husband started this journey at age sixty five, he is now a very young seventy four? care and Let us know how your husband is doing.

God Bless.

Sincerely,

Lynn

[Tjc1 in reply to ronnie1943]

Hi Lynn, Sorry to here what both of you are going through. This monster affects not only the one with this terrible disease but also their partner as well. I haven't went through what your husband is going through but I couldn't help notice our similarities. I too was diagnosed early 2011. My psa was 44 and Gleason score (4+3).

Just Friday I had my three month check up a 2 point rise in October. This time I had a 6.2 rise to 9.8. Waiting for scan results now. I have only been getting 6 month Lupron shots.

Keep up the fight and best of luck to both of you in this new year.

Thomas

[ronnie1943 in reply to Tjc1]

Thank you Thomas, almost ten years to the day when my husband started this journey, he had for weeks on end a terrible pain in his shoulder to his elbow, stubborn that he is I finally got him to go to the dr. Long story short it was a tumor that that had wrapped around the bone. His PSA was four hundred and eight three. They operated and saved his arm, he went up until this past year on casodex, hormone needle and radiation on arm his bone tumors. This past year the cancer came back with a vengeance, tumor grew up from the prostrate and blocked his kidney tubes, again operated on and had nerostoumy tubes for six months, which they were able to remove, had radiation, chemo and just this last cat scan they found one cancerous lymph node. Waiting until this coming Friday to see the surgeon. I just keep praying for him and all who suffer with this nasty disease.

Thank you again it's nice to know that people out there care and know what you are going through.

Take care and I wish you well

Keep us posted.

Sincere.y, Lynn

[KingRasP in reply to ronnie1943]

Wow Lyn I am happy to hear this! We have faith too and a very strong social network which helps. Well his Urologist ordered Percocet and Tylenol # 3 and His Oncologist ordered Ibuprofen. His goal to to treat with Morphine when pain is too much.

My husband did have radiation 6 years ago. Doesn’t seem like that is a part of the plan at this time.

I am so happy to be able to interact at this forum.

Blessings for all.

[ronnie1943]

Hi.... Yes this is a wonderful site to get support and also get Information on new treatment hope your husband is feeling better!! Keep us posted.

Well wishes for all.

Sincerely Lynn

[Hidden]

Great photo. Keep enjoying life... I’m sorry for all of the suffering ..But he has you.. He’s not alone.. You love and care for him. We that have love in our life’s are fortunate..No one wants APC , or heart disease, or diabetes, but this is our plight. Strength , knowledge , and compassion are here for you both..

[KingRasP in reply to Hidden]

Thanks Lulu 700. It’s one of the blessings of having a diagnosis of cancer. My husband’s desire was to retire in Hawaii and our daughter turned 30 years last October with a great plan to celebrate in South Africa. Instead she changed plans because of her dad. Both the Urologist and Oncologist recommended not taking that long trip. We did! It was the best thing we could have done. He was in excruciating pain, a Foley catheter but we made it. He came back a new man.

That pic was taken on the balcony on his birthday. Didn’t do much on that day because of the pain, fatigue from travelling. He enjoyed being with his family in Hawaii.

Lesson learnt? Trust your instincts. Persevere! It’s not over because a licensed professional says it is!

Blessings to you.

[Hidden in reply to KingRasP]

Hawaii is magical healing place.I floated in the calm Hanalei bay 2 yrs ago after getting an all clear sign.I almost sleep and when I opened my eyes it looked like I was in heaven on earth , which I was . Those 10 minutes alone were so beautiful it was well worth all of the pain and suffering just to be alive for those ten minutes.. We. Must enjoy the moment .more possible without pain.Im not much one for pain.. Prayers go to you both.. Here’s love for you. My wife and I dated 2yrs prior to dx.. madly in love , sexual and unconditional love. Wed upon dx ,while sporting neauphostmy tubes & foley ,under my Armani suit.. no one really knew my severity at the time except her.. 30;lbs lighter, scared to death , fresh out of the hospital what a honey moon it’s been . Still deeply in love . She’s been thru hell with me..and saved me .. a reason to be alive and keep kickin is what’s necessary to survive and live “With” APC . Love is the best reason . So , neither give in to dome or give up to hopelessness. wish you safety in these crazy weather patterns. Thank you ..

[KingRasP in reply to Hidden]

Hello LuLu 700 I agree with you. Hawaii is paradise on earth!

Indeed It’s magical, spiritual, exotic!

That’s a great lady by your side. Love and cherish each other. Love is a powerful healing portion.

I was afraid, sad and anxious and even angry when I found out my husband was stage 4. I now realize those emotions are thieves of precious time. I am a lot more optimistic, and embracing each moment of pain and pleasure.

I am wishing you and your wife moments of bliss. Best wishes to every one else.

[Hidden in reply to KingRasP]

Your kindness exudes.Your husband and I are blessed with such love.Embracing each moment is correct. You have a good bead on this. We had great love today .Being alone together for the first time in a month due to houseguest and family.May we all live and love each other no matter what.

[KingRasP in reply to Hidden]

As your wife and I are blessed...

[Hidden in reply to KingRasP]

Thank you, very kind. Take care!

[j-o-h-n]

KingRasP

That's it. A toast to beating that M.F. (and I don't mean Mighty Fine) Pca.

Good Luck and Good Health.

j-o-h-n Tuesday 01/09/2018 10:55 PM EST

[KingRasP in reply to j-o-h-n]

Same to you and many more blessings j-o-h-n

[KingRasP]

j-o-h-n Cheers!

Good luck and good Health to you and everyone else.

[dockam]

I'm so sorry to hear of his progression, but welcome to our great group with a bunch of experiences for you.

I grew up in Hawaii and it has changed quite a bit and I see it when I head home to see Ohana twice/year.

I dunno if he is a candidate for chemo - whether it be Taxotere or Jevtana and whether he could even tolerate it.

My thoughts and prayers for you both and when you make it to Hawaii, I would love to stop by and say hey

Mahalo,

Randy

[KingRasP in reply to dockam]

Mahalo, that would be lovely to share that aloha spirit. I was hoping to move there as early as the end of February, but things didn’t work out quite the way I planned. Yet another blessing of this disease, learning to trust each moment and realizing everything is about timing.

No he is not a candidate for chemo. Best wishes!