So glad I found this site - seems like the best source of info and ideas I have seen. So it’s time to stop lurking and start participating. I am 67, still work, was diagnosed in Nov. 2017. Gleason 4+4, metasteses to local lymph nodes, pelvis, hip and one rib. Large tumor on the prostate itself. PSA at diagnosis was 36. I’m treating with Firmagon and Xgeva every 4 weeks, casodex and prednisone daily, docetaxel and neulasta every 3 weeks. Plan is to add Zytiga after we finish the 6 docetaxel treatments.
I wouldn’t wish Docetaxel on my worst enemy, but i’m over half finished. And my PSA after 10 weeks of treatment dropped to 0.14.
What’s unusual about my situation is that the bone lesions were lytic rather than blastic. Docs suspected multiple myeloma, but all tests for that were negative. Does anyone else have any insight or info on that? All I have gotten from the oncologist is that it’s unusual but not unheard of.
Without trying to sound like I am taking my excellent initial response to treatment for granted, I am wondering whether there is more I should be doing or looking at, and whether I should start thinking in terms of cure versus control? The more I read, the more optimistic I get.
Last, while there is no way to prove it, I feel switching to a 100% plant based diet 2 months ago has made a difference.