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A diet for CLL
Dear friends, I hope you are staying well. Last week I ate fruit with vitamine C, I exagerated with quantity and felt really bad. My lymph nodes were swallen and I felt very big fatigue. I m still on watch and wait (I was diagnosed with Cll in January 2018) and I wish to stay on it as long
Dear friends, I hope you are staying well. Last week I ate fruit with vitamine C, I exagerated with quantity and felt really bad. My lymph nodes were swallen and I felt very big fatigue. I m still on watch and wait (I was diagnosed with Cll in January 2018) and I wish to stay on it as long
Lela1212
in
CLL Support
2 years ago
Early testing after hcg trigger
So probably a silly question, I have never been in this situation (did a natural FET last time). This time I got an hcg trigger plus hcg injections as progesterone support. Now, I want to test early but obviously I would still have hcg in my body from the trigger, so it would not be an accurate result
So probably a silly question, I have never been in this situation (did a natural FET last time). This time I got an hcg trigger plus hcg injections as progesterone support. Now, I want to test early but obviously I would still have hcg in my body from the trigger, so it would not be an accurate result
pink_lemon
in
Fertility Network UK
1 year ago
Symptoms OC after transvaginal ultrasound
Hi, I am 39. My cycle is very regular, and I've started to have heavy bleeding during my periods. I had a first pelvic ultrasound : the report says I have some irregularities in my endometrium and a small cyst. Two month after, right after the end of my period, I had a biopsy and an transvaginal
Hi, I am 39. My cycle is very regular, and I've started to have heavy bleeding during my periods. I had a first pelvic ultrasound : the report says I have some irregularities in my endometrium and a small cyst. Two month after, right after the end of my period, I had a biopsy and an transvaginal
suricat
in
My Ovacome
1 year ago
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Results from Phase 2 study of nivolumab plus ibrutinib in patients with diffuse large b-cell Richter Transformation of CLL
A research article that reports on "[i]A Phase 2 Study of Nivolumab Combined with Ibrutinib in Patients with Diffuse Large B-cell Richter Transformation of CLL[/i]" was published in the journal Blood Advances this week and provides some encouraging data for a population that is very challenging to treat
A research article that reports on "[i]A Phase 2 Study of Nivolumab Combined with Ibrutinib in Patients with Diffuse Large B-cell Richter Transformation of CLL[/i]" was published in the journal Blood Advances this week and provides some encouraging data for a population that is very challenging to treat
CLLerinOz
Volunteer
in
CLL Support
2 years ago
Low Beta HCG post FET and left groin pain.
I am wondering if anyone has had a similar experience to me but had a positive outcome? I had a Beta HCG of 38 10DPET, then my repeat 2 days later was 80. The nurse told me we are not out of the woods yet and even though it’s doubled it’s highly likely to be an ectopic or biochemical pregnancy. I have
I am wondering if anyone has had a similar experience to me but had a positive outcome? I had a Beta HCG of 38 10DPET, then my repeat 2 days later was 80. The nurse told me we are not out of the woods yet and even though it’s doubled it’s highly likely to be an ectopic or biochemical pregnancy. I have
Jodielee29
in
Fertility Network UK
1 year ago
5 weeks - heavy bleeding (potentially sensitive)
Hi All, I’ve been through a whirlwind over the last few days. BFP since 7dp5dt and with tests getting stronger every 48hrs up to 13dp5dt. Then on 14dp5dt I started to see dark brown and watery blood in the morning. By the evening, it was full on heavy, red blood with huge clots and pain. Eventually
Hi All, I’ve been through a whirlwind over the last few days. BFP since 7dp5dt and with tests getting stronger every 48hrs up to 13dp5dt. Then on 14dp5dt I started to see dark brown and watery blood in the morning. By the evening, it was full on heavy, red blood with huge clots and pain. Eventually
Rubyr3d
in
Fertility Network UK
1 year ago
Transplant Waitlist Survey
If you are currently registered on the national kidney transplant waitlist OR have received at least one kidney transplant from a deceased donor in the past we invite you to take this survey! https://utexas.qualtrics.com/jfe/form/SV_7R5A3kLyEiGLqZg The purpose of this survey is to determine what information
If you are currently registered on the national kidney transplant waitlist OR have received at least one kidney transplant from a deceased donor in the past we invite you to take this survey! https://utexas.qualtrics.com/jfe/form/SV_7R5A3kLyEiGLqZg The purpose of this survey is to determine what information
KelliC_NKF
in
Kidney Dialysis
2 years ago
6 weeks baby implanted on the low side of the womb
hi , I am 6 weeks pregnant, went through so much so far , started with no meds enough ( ivf abroad) , bleeding, …. I still have spotting, my doctor told me to start progynova ( estradiol) 2 times a day. I repeated hcg ( 9000 ) and done a scan . I was told I have a Subchorionic hematoma (SCH) next to
hi , I am 6 weeks pregnant, went through so much so far , started with no meds enough ( ivf abroad) , bleeding, …. I still have spotting, my doctor told me to start progynova ( estradiol) 2 times a day. I repeated hcg ( 9000 ) and done a scan . I was told I have a Subchorionic hematoma (SCH) next to
MariannaB
in
Fertility Network UK
1 year ago
Early pregnancy cramping
I had my BFP this week, but I'm still getting on and off cramping. It's worse in the afternoon/evenings. It's like mild period pain, but it seems to go in for several hours. Someone tell me that this is normal! Worth saying my beta HCG was good and the clinic say it's just the hormones. But I just
I had my BFP this week, but I'm still getting on and off cramping. It's worse in the afternoon/evenings. It's like mild period pain, but it seems to go in for several hours. Someone tell me that this is normal! Worth saying my beta HCG was good and the clinic say it's just the hormones. But I just
Simmokt
in
Fertility Network UK - Pregnancy Support
1 year ago
Five-year results for the iFCG regimen: first-line treatment of CLL patients with mutated IGHV and without del(17p)/TP53 mutation
Published 4 months ago, https://journals.lww.com/hemasphere/Fulltext/2022/06003/S149__LONG_TERM_OUTCOMES_OF_IFCG_REGIMEN_FOR.50.aspx is an update of the Phase 2 study S149, initiated in 2017 and previously reported here in "Novel Combos Are Shaking Up the CLL Landscape but FCR still has its place" https
Published 4 months ago, https://journals.lww.com/hemasphere/Fulltext/2022/06003/S149__LONG_TERM_OUTCOMES_OF_IFCG_REGIMEN_FOR.50.aspx is an update of the Phase 2 study S149, initiated in 2017 and previously reported here in "Novel Combos Are Shaking Up the CLL Landscape but FCR still has its place" https
bennevisplace
in
CLL Support
2 years ago
green tea
I was told to drink lots of green tea when I was first diagnosed with CLL 9 months ago.But it seems like my spleen hurts more when I drink a cup of green tea or take a green tea capsule. Am I missing something?
I was told to drink lots of green tea when I was first diagnosed with CLL 9 months ago.But it seems like my spleen hurts more when I drink a cup of green tea or take a green tea capsule. Am I missing something?
Nugent666
in
CLL Support
2 years ago
Oncology Learning Network CME- Emerging Treatments for CLL / SLL included in NCCN and ESMO guidelines
This video and most on the Oncology Learning Network CME are intended for trained medical professionals, but those comfortable with MedSpeak can sign up for an account to view this excellent presentation by Dr. Nicole Lamanna of Columbia NY Presbyterian here: https://hmpeducation.com/content/access-webcast
This video and most on the Oncology Learning Network CME are intended for trained medical professionals, but those comfortable with MedSpeak can sign up for an account to view this excellent presentation by Dr. Nicole Lamanna of Columbia NY Presbyterian here: https://hmpeducation.com/content/access-webcast
lankisterguy
Volunteer
in
CLL Support
2 years ago
Patient Power CLL & Fatigue 2022-10-19.
Fatigue is a side effect shared by just about every patient with chronic lymphocytic leukemia (CLL). In this replay of a recent CLL Answers Now program, CLL patient and host Brad Adams and Carmelita Escalante, MD, from the Cancer-Related Fatigue Clinic at the University of Texas MD Anderson Cancer Center
Fatigue is a side effect shared by just about every patient with chronic lymphocytic leukemia (CLL). In this replay of a recent CLL Answers Now program, CLL patient and host Brad Adams and Carmelita Escalante, MD, from the Cancer-Related Fatigue Clinic at the University of Texas MD Anderson Cancer Center
lankisterguy
Volunteer
in
CLL Support
2 years ago
CLL testing
hi relatively new in here. I cannot see a pinned post on this subject but apologies if i missed it. i am on watch and wait and next check up isnt till December. I have read posts about deletions and mutations and how it influences long term prognosis re future treatment, aggressiveness and mutations
hi relatively new in here. I cannot see a pinned post on this subject but apologies if i missed it. i am on watch and wait and next check up isnt till December. I have read posts about deletions and mutations and how it influences long term prognosis re future treatment, aggressiveness and mutations
Saju21
in
CLL Support
2 years ago
views on clear blue digital tests
hey all! So I got impatient AGAIN and tested… it was positive! I’ve heard that clear blue digital is great way to gage hcg level before beta cause it will increase to 3-4 weeks pregnant! I did the test today at 9dpt and it only said 1-2. I’m still delighted it’s positive at all but praying the hcg levels
hey all! So I got impatient AGAIN and tested… it was positive! I’ve heard that clear blue digital is great way to gage hcg level before beta cause it will increase to 3-4 weeks pregnant! I did the test today at 9dpt and it only said 1-2. I’m still delighted it’s positive at all but praying the hcg levels
Hidden
in
Fertility Network UK
1 year ago
Spotting for four days now - is it all over?
I’m 6 weeks today and this is day 4 of on and off brown / pink spotting. Until this morning it had all been pretty light but this morning I had a more heavy episode which has now stopped as soon as it started so I’m so confused! My clinic said earlier in the week just to keep taking meds and up my
I’m 6 weeks today and this is day 4 of on and off brown / pink spotting. Until this morning it had all been pretty light but this morning I had a more heavy episode which has now stopped as soon as it started so I’m so confused! My clinic said earlier in the week just to keep taking meds and up my
purplepanda4
in
Fertility Network UK
1 year ago
Slow rising hcg
I had an IVF FET transfer on 26th Jan. (5 days blastocyst) My hcg is rising slowly but it doubled recently. The doctor was suspecting checmical pregnancy but my last hcg rose 3 times and he said we can still be hopeful. 1st hcg (14dp5dt) : 24 2nd hcg after 48 hours: 35 3rd hcg after 72 hours: 92
I had an IVF FET transfer on 26th Jan. (5 days blastocyst) My hcg is rising slowly but it doubled recently. The doctor was suspecting checmical pregnancy but my last hcg rose 3 times and he said we can still be hopeful. 1st hcg (14dp5dt) : 24 2nd hcg after 48 hours: 35 3rd hcg after 72 hours: 92
Piya28
in
Fertility Network UK
1 year ago
spotting (seems to be my life story)
So just as I was rejoicing over a positive pregnancy test and today a high hcg test I just wiped and it’s pale pink. Attaching a photo just because I’m hoping for someone to say I had that too don’t worry. God my body loves to bloody bleed 🩸 Way to cause anxiety from the get go 🥲
So just as I was rejoicing over a positive pregnancy test and today a high hcg test I just wiped and it’s pale pink. Attaching a photo just because I’m hoping for someone to say I had that too don’t worry. God my body loves to bloody bleed 🩸 Way to cause anxiety from the get go 🥲
Corchi
in
Fertility Network UK
1 year ago
ectopic instead of a miscarriage
Hi guys. After a rising hcg and investigations all week for what I thought was a miscarriage, and a subsequent admission to A&E Saturday night, it was finally confirmed yesterday I had an ectopic pregnancy after my first ever ivf transfer (FET). It was in my tubes, and as it turns out was partially stuck
Hi guys. After a rising hcg and investigations all week for what I thought was a miscarriage, and a subsequent admission to A&E Saturday night, it was finally confirmed yesterday I had an ectopic pregnancy after my first ever ivf transfer (FET). It was in my tubes, and as it turns out was partially stuck
Rainbowretrieval
in
Fertility Network UK
1 year ago
Second ablation soon
Hello all I'm not actually sure right now what I'm looking for! I had an urgent cryo ablation in July2021. I was feeling awful almost like I was dying being in continuous fast AF for weeks was causing heart failure and my EP made me a priority as he was concerned. Apparent in October 2021 it wasn't
Hello all I'm not actually sure right now what I'm looking for! I had an urgent cryo ablation in July2021. I was feeling awful almost like I was dying being in continuous fast AF for weeks was causing heart failure and my EP made me a priority as he was concerned. Apparent in October 2021 it wasn't
honey1958
in
AF Association
2 years ago
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