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IS HE GOING TO SLIDE OUT OF THIS ONE?!
My friends may remember that in June 2021 I went to have a pacemaker inserted. During the procedure I suffered a pneumothorax which was not acted on for 3 hrs. In consequence I went into collapse and respiratory failure and my children were summoned because they gave me 10 mins to live. Due to my b.
My friends may remember that in June 2021 I went to have a pacemaker inserted. During the procedure I suffered a pneumothorax which was not acted on for 3 hrs. In consequence I went into collapse and respiratory failure and my children were summoned because they gave me 10 mins to live. Due to my b.
Hidden
in
Lung Conditions Community Forum
2 years ago
low hcg?
I went to have bloods today. I’m nearly 6 weeks pregnant…not ivf pregnancy but my last period was 9 December and had sex once 22nd December. Hcg 860. that’s seriously low isn’t it? having bloods repeated on Saturday They wouldn’t scan me cos my bleeding has stopped since Sunday
I went to have bloods today. I’m nearly 6 weeks pregnant…not ivf pregnancy but my last period was 9 December and had sex once 22nd December. Hcg 860. that’s seriously low isn’t it? having bloods repeated on Saturday They wouldn’t scan me cos my bleeding has stopped since Sunday
DG2022
in
Fertility Network UK
1 year ago
Does Covid boost ALS?
I'm W&W for 2 years. Abs lymphs (ALS) were 82K in July. Got 1st Evusheld 8/23. Got Covid 8/31 and started Paxlovid same day. 5 days later, 9/5, felt great then went on a vigorous 31 miles bike ride (probably too soon for such exercise). Then rebound on 9/12 with positive home test. Never got fever but
I'm W&W for 2 years. Abs lymphs (ALS) were 82K in July. Got 1st Evusheld 8/23. Got Covid 8/31 and started Paxlovid same day. 5 days later, 9/5, felt great then went on a vigorous 31 miles bike ride (probably too soon for such exercise). Then rebound on 9/12 with positive home test. Never got fever but
JDG45
in
CLL Support
2 years ago
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*UPDATE - OTD - Negative 💔.* How is it possible to want to know something soo bad, but then be too scared for the official test date!?
*UPDATE 20.01.2022.* Sorry its a bit of a long one! Thought it would be easier to update the post. Firstly thank you to everyone who sent well wishes and was thinking of me yesterday. Sorry for not updating sooner, I'm still feeling numb 😔💔 Deep down I think I knew, on test day my pain was really
*UPDATE 20.01.2022.* Sorry its a bit of a long one! Thought it would be easier to update the post. Firstly thank you to everyone who sent well wishes and was thinking of me yesterday. Sorry for not updating sooner, I'm still feeling numb 😔💔 Deep down I think I knew, on test day my pain was really
JadeH92
in
Fertility Network UK
1 year ago
A brief update post Venetoclax+Rituximab - treatment number 4
Many of you have been kind enough to ask about my current situation. For those not aware, briefly - I relapsed within days of stopping Ibrutinib (due to funding and end of the trial) which I had received as part of the FLAIR trial. I had 7cm nodes under my arms which had come up almost overnight
Many of you have been kind enough to ask about my current situation. For those not aware, briefly - I relapsed within days of stopping Ibrutinib (due to funding and end of the trial) which I had received as part of the FLAIR trial. I had 7cm nodes under my arms which had come up almost overnight
Jm954
Administrator
in
CLL Support
2 years ago
See a Dermatologist On a Regular Basis, if possible.
Once I was diagnosed with cll 8 years ago (in my mid-60’s), I was advised to see a dermatologist on a regular basis. I was lucky that my family physician’s partner is a dermatologist, so finding a dermatologist was easy. At least in Ontario, it is getting more and more difficult to find a dermatologist
Once I was diagnosed with cll 8 years ago (in my mid-60’s), I was advised to see a dermatologist on a regular basis. I was lucky that my family physician’s partner is a dermatologist, so finding a dermatologist was easy. At least in Ontario, it is getting more and more difficult to find a dermatologist
Vizilo
in
CLL Support
2 years ago
15mg Bisoprolol
I am in a dose of 15mg plus Amiodarine I have AF is comes amd goes my question is it seems a high dose as I have a thinner and calcium channel blockers My general gear condition is mild Mitral regurgitation a mildly dilated left atrium amd my ejection fraction is 50 I’m told lots of different things
I am in a dose of 15mg plus Amiodarine I have AF is comes amd goes my question is it seems a high dose as I have a thinner and calcium channel blockers My general gear condition is mild Mitral regurgitation a mildly dilated left atrium amd my ejection fraction is 50 I’m told lots of different things
NLGA
in
Atrial Fibrillation Support
2 years ago
Doctor cannot fully diagnose without bone marrow biopsy and PET scan?
Update Results: Hello i did have the cyclometery test done, but i didnt put it here before. Is thaat the same as a FISH test? Here are my results: An abnormal CD5-positive B cell population accounts for approximately 35% of lymphocytes and 13% of total events. This population shows kappa restriction
Update Results: Hello i did have the cyclometery test done, but i didnt put it here before. Is thaat the same as a FISH test? Here are my results: An abnormal CD5-positive B cell population accounts for approximately 35% of lymphocytes and 13% of total events. This population shows kappa restriction
SunCalifornia
in
CLL Support
2 years ago
CRTD and pacing
hi everyone, I had a CRTD pacemaker with defib inserted about 18 days ago as I had a cardiac arrest in hospital after being given a loading dose of digoxin whilst on Dronederone, following a cardioversion that initially worked but then put me into afib with high heart rate. I’ve heart failure now with
hi everyone, I had a CRTD pacemaker with defib inserted about 18 days ago as I had a cardiac arrest in hospital after being given a loading dose of digoxin whilst on Dronederone, following a cardioversion that initially worked but then put me into afib with high heart rate. I’ve heart failure now with
Mollykin
in
AF Association
2 years ago
Recurrent miscarriage advice
Hi I'm after some advice re recurrent miscarriages. I have now had three in a row and been referred to the recurrent mc clinic, however they have told me they won't have space till August and time is not on my side. The clinic I am at said they can treat me with aspirin and heperin in the meantime but
Hi I'm after some advice re recurrent miscarriages. I have now had three in a row and been referred to the recurrent mc clinic, however they have told me they won't have space till August and time is not on my side. The clinic I am at said they can treat me with aspirin and heperin in the meantime but
Yorkshireegirl
in
Fertility Network UK
1 year ago
Beta HCG 1357 day 16 post Fet took a HCG test today due to a small bleed and it had dropped to 658 am I having a miscarriage ?
Hi, ladies. I had two FET embryos transferred on day 9, PFT 56. Day 11 PFT 221, Day 14 PFT 613 Day 16 PFT 1357. Bleed at midnight (January 1st) Day 17 PFT 658 dropped by half Is there still hope. I had a minor bleed yesterday and saw a clot . Today January 1st, I took a vaginal scan
Hi, ladies. I had two FET embryos transferred on day 9, PFT 56. Day 11 PFT 221, Day 14 PFT 613 Day 16 PFT 1357. Bleed at midnight (January 1st) Day 17 PFT 658 dropped by half Is there still hope. I had a minor bleed yesterday and saw a clot . Today January 1st, I took a vaginal scan
Storm4
in
Fertility Network UK
1 year ago
Another possible chemical :(
Hi guys, Apologies in advance for the long post… I think I'm having my 4th chemical pregnancy (1st with IVF after 3 natural chemicals). Had my FET on 19th Dec and OTD was yesterday at 11dp5dt. Got a few positive tests and a 1-2 weeks CB yesterday. Really tried to feel positive about the tests but
Hi guys, Apologies in advance for the long post… I think I'm having my 4th chemical pregnancy (1st with IVF after 3 natural chemicals). Had my FET on 19th Dec and OTD was yesterday at 11dp5dt. Got a few positive tests and a 1-2 weeks CB yesterday. Really tried to feel positive about the tests but
Esb27
in
Fertility Network UK
1 year ago
Evosheld
I joined the Evosheld UK Facebook page where there is a strong campaign for the government to authorise Evusheld. We were asked to write to our MPs and ask for the question to raised on the House of Commons. I have written several letters to my MP and generally get a stock reply. Here is the latest
I joined the Evosheld UK Facebook page where there is a strong campaign for the government to authorise Evusheld. We were asked to write to our MPs and ask for the question to raised on the House of Commons. I have written several letters to my MP and generally get a stock reply. Here is the latest
kitchengardener2
in
CLL Support
2 years ago
CLL highly correlated to other cancers?
My husband has MBL - I understand this as stage 0 CLL. He is asymptomatic and well. His iron/ ferritin suddenly dropped and a small bowel malignant tumour was diagnosed and successfully removed. The Haematologist who manages the CLL commented that it’s unsurprising that he developed a secondary cancer
My husband has MBL - I understand this as stage 0 CLL. He is asymptomatic and well. His iron/ ferritin suddenly dropped and a small bowel malignant tumour was diagnosed and successfully removed. The Haematologist who manages the CLL commented that it’s unsurprising that he developed a secondary cancer
NixRose
in
CLL Support
2 years ago
Update: it’s all over
Update: third hcg levels on 190, so not doubling in 72 hours. Devastated. That’s the end for us. No more attempts Tomorrow I have my second BT to see if the very low initial hcg has doubled. If not, that’s it for us - this was our last attempt before we move away from it all. I was so hoping
Update: third hcg levels on 190, so not doubling in 72 hours. Devastated. That’s the end for us. No more attempts Tomorrow I have my second BT to see if the very low initial hcg has doubled. If not, that’s it for us - this was our last attempt before we move away from it all. I was so hoping
Hidden
in
Fertility Network UK
1 year ago
Relapse Worries? Help, Please!
Hi everyone, I started treatment (V + O) in January 2020; a year later, I was done, and had a flow blood result of "no detectable abnormalities" or whatever. Yay! Today, however, I got the results of another flow blood test, 20 months after treatment ended, and it says "the immunophenotype of these
Hi everyone, I started treatment (V + O) in January 2020; a year later, I was done, and had a flow blood result of "no detectable abnormalities" or whatever. Yay! Today, however, I got the results of another flow blood test, 20 months after treatment ended, and it says "the immunophenotype of these
DRM18
in
CLL Support
2 years ago
Food plan for transplant woman weight 80
Hi, One year kidney transplant. My weight is 80 +. Any one having food plan for my situation please?
Hi, One year kidney transplant. My weight is 80 +. Any one having food plan for my situation please?
noor99
in
Kidney Transplant Patient Support
2 years ago
Monoclonal antibodies vs. Paxlovid
I recently recovered from Covid-19 after taking Paxlovid. I was diagnosed with CLL in 2009 and began treatment with Ibrutinib in early December 2020. I also received the full recommended doses of Evusheld since antibody tests showed I had an inadequate response to the vaccine. My case of Covid was
I recently recovered from Covid-19 after taking Paxlovid. I was diagnosed with CLL in 2009 and began treatment with Ibrutinib in early December 2020. I also received the full recommended doses of Evusheld since antibody tests showed I had an inadequate response to the vaccine. My case of Covid was
AVD92449
in
CLL Support
2 years ago
New Diagnosis :what does all this blood work mean?
I was recently diagnosed with CLL. My hematologist/oncologist ran the standard tests and this is some of the info I see: No Jak2 17 mutation detected, No 9 mutation detected, No 12 mutation detected, No 10 mutation detected, No 14/17 Mutation detected A negative FISH for BCR-ABLI fusion. 2 weeks
I was recently diagnosed with CLL. My hematologist/oncologist ran the standard tests and this is some of the info I see: No Jak2 17 mutation detected, No 9 mutation detected, No 12 mutation detected, No 10 mutation detected, No 14/17 Mutation detected A negative FISH for BCR-ABLI fusion. 2 weeks
Adante
in
CLL Support
2 years ago
World CLL Day / Blood Cancer Awareness Month
CLL Support is marking Blood Cancer Awareness Month in September with an initiative that underpins our “You Can Live Well with CLL” message. This is not simply a convenient phrase that rhymes but seeks to demonstrate and empower our members to endeavour to make the best of their diagnosis, treatment
CLL Support is marking Blood Cancer Awareness Month in September with an initiative that underpins our “You Can Live Well with CLL” message. This is not simply a convenient phrase that rhymes but seeks to demonstrate and empower our members to endeavour to make the best of their diagnosis, treatment
Mild-Rover
in
CLL Support
2 years ago
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