Search
Search
About
Log in
Join
Experiences with
Chronic renal failure
Posts
Communities
4,797 public posts
Filter results
CAR-T availability in Australia
can anyone enlighten me on the current status of CAR-T availability for CLL patients in Australia? I’m aware it wasn’t available for CLL after a small trial a couple of years ago but is being used for other types of Blood Cancers. Thank you :)
can anyone enlighten me on the current status of CAR-T availability for CLL patients in Australia? I’m aware it wasn’t available for CLL after a small trial a couple of years ago but is being used for other types of Blood Cancers. Thank you :)
Billarina
in
CLL Support
2 years ago
Falling and rising HCG
Hi all, So, I’m in a bit of a panic .. I’m in the middle of a miscarriage and my HCG levels have been falling and last week they were down to 24 ( they started at 203, and have dropped more then half on each blood test , 198, 96 , 24) I had a blood test today and they’ve gone up to 35. I’ve had a
Hi all, So, I’m in a bit of a panic .. I’m in the middle of a miscarriage and my HCG levels have been falling and last week they were down to 24 ( they started at 203, and have dropped more then half on each blood test , 198, 96 , 24) I had a blood test today and they’ve gone up to 35. I’ve had a
Amy190
in
Fertility Network UK
1 year ago
Wildely different AMH test scores - any thoughts why?
Hello, I was wondering if anyone has received wildly different AMH scores and worked out what was driving it and therefore which one to believe? Back in January I stared investigations with a private clinic and was tested in their London lab. My AMH test came back as 6.2 pmol/l. I was told this
Hello, I was wondering if anyone has received wildly different AMH scores and worked out what was driving it and therefore which one to believe? Back in January I stared investigations with a private clinic and was tested in their London lab. My AMH test came back as 6.2 pmol/l. I was told this
CarlottaD27
in
Fertility Network UK
1 year ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Low hcg
My blood hcg level (d10p5dt) was 27. Three days later hcg was 40. I have been advised to continue progynova and crinone gel and to check hcg level in 2 days' time.I am concerned because the second hcg level was not more than 2x of old value. I am worried about chemical pregnancy or ectopic pregnancy.
My blood hcg level (d10p5dt) was 27. Three days later hcg was 40. I have been advised to continue progynova and crinone gel and to check hcg level in 2 days' time.I am concerned because the second hcg level was not more than 2x of old value. I am worried about chemical pregnancy or ectopic pregnancy.
Purple_skies
in
Fertility Network UK
1 year ago
Chemical pregnancy first experience - any recovery tips?
Hi, Reaching out once again for your experiences and tips. After 2 BFNs (March and May) I had a slightly different outcome this month with a very low HCG followed by gradual bleeding and confirmed chemical. As my husband has azoospermia, this is the furthest we've ever been to pregnancy so it has been
Hi, Reaching out once again for your experiences and tips. After 2 BFNs (March and May) I had a slightly different outcome this month with a very low HCG followed by gradual bleeding and confirmed chemical. As my husband has azoospermia, this is the furthest we've ever been to pregnancy so it has been
Minniemouse88
in
Fertility Network UK
1 year ago
Anxiety during tww
Update: I have gotten my blood hcg level and it was 27. Three days later, I repeated it and it was only 40. It has not doubled after 3 days. Nonethless, doctor asked me to continue progynova and crinone gel. I will go for a repeat blood hcg level in 2 days' time. I can only hope for the best. My anxiety
Update: I have gotten my blood hcg level and it was 27. Three days later, I repeated it and it was only 40. It has not doubled after 3 days. Nonethless, doctor asked me to continue progynova and crinone gel. I will go for a repeat blood hcg level in 2 days' time. I can only hope for the best. My anxiety
Purple_skies
in
Fertility Network UK
1 year ago
Scan at 5.5 week nothing there
Hey Ladies I’ve not had great news today, I started spotting today so took myself to A&E as I bleed at 4 weeks so was anxious as I was about 5.5 weeks. I was referred to EPU who did a scan & found nothing not even a sac 😢! It seems to have been a miscarriage at 4 week, but I’m so confused as I had
Hey Ladies I’ve not had great news today, I started spotting today so took myself to A&E as I bleed at 4 weeks so was anxious as I was about 5.5 weeks. I was referred to EPU who did a scan & found nothing not even a sac 😢! It seems to have been a miscarriage at 4 week, but I’m so confused as I had
Dragon80
in
Fertility Network UK
1 year ago
Research Evaluating Risk of Richter Syndrome
Apologies if this has been posted before, do feel free to delete and re-direct me if so. It is of particular interest to me because my recent experience suggests that the NHS does not test for complex karyotype CLL (using Chromosome Banding Analysis). I know only that I had an aggressive presentation
Apologies if this has been posted before, do feel free to delete and re-direct me if so. It is of particular interest to me because my recent experience suggests that the NHS does not test for complex karyotype CLL (using Chromosome Banding Analysis). I know only that I had an aggressive presentation
jonathan7176
in
CLL Support
2 years ago
I think it’s all over 😢
After having a miracle BFP from a natural conception following our first failed round of ICSI I think I’m having a miscarriage and feel so heartbroken. I couldn’t believe it when I tested positive after my period didn’t come - it just seemed too good to be true… and now I think I’m losing it at 5 and
After having a miracle BFP from a natural conception following our first failed round of ICSI I think I’m having a miscarriage and feel so heartbroken. I couldn’t believe it when I tested positive after my period didn’t come - it just seemed too good to be true… and now I think I’m losing it at 5 and
HoneyB11
in
Fertility Network UK
1 year ago
Night shift work
Hello. I work evenings on a hospital nursing unit. I am scheduled to work one night every two weeks. I will remain on evenings and do this cross shift in order to cover the short staff on nights. I am on watch and wait, have stage two CLL with enlarged spleen and a large number of B-cell Lymphomas
Hello. I work evenings on a hospital nursing unit. I am scheduled to work one night every two weeks. I will remain on evenings and do this cross shift in order to cover the short staff on nights. I am on watch and wait, have stage two CLL with enlarged spleen and a large number of B-cell Lymphomas
Taza1
in
CLL Support
2 years ago
Trigger warning - miscarriage at 5/6 weeks
I found out yesterday that my FET has not been as successful as I thought, and at 6 weeks my HCG levels are dropping and the scan revealed the pregnancy isn’t viable. I have been told to stop my meds and wait for nature to take its course. I wondered if anyone has been through something similar, and
I found out yesterday that my FET has not been as successful as I thought, and at 6 weeks my HCG levels are dropping and the scan revealed the pregnancy isn’t viable. I have been told to stop my meds and wait for nature to take its course. I wondered if anyone has been through something similar, and
km307
in
Fertility Network UK
1 year ago
Respiratory virus wheezing
I’m on for some advice. My partner Alan has heart failure was diagnosed earlier 2022 this is the first time he has had a bad cold since being diagnosed. He has started wheezing pretty bad but has no fluid round ankles etc. he has a lot of congestion and coughing up mucus. should l just treat him for
I’m on for some advice. My partner Alan has heart failure was diagnosed earlier 2022 this is the first time he has had a bad cold since being diagnosed. He has started wheezing pretty bad but has no fluid round ankles etc. he has a lot of congestion and coughing up mucus. should l just treat him for
ChiChi123
in
AF Association
2 years ago
Am I being paranoid?
Hi everyoneI'm currently 14dp5dt and am panicking. On day 9, I got a BFP and my hcg was 140. I had this repeated on day 12 (Mon) and it had risen to 551. Good numbers. A scan has been booked for 26/6 (7w3d) Today, when I went to the loo, on 2 occasions I had 2 tiny tissue like beads when I wiped. No
Hi everyoneI'm currently 14dp5dt and am panicking. On day 9, I got a BFP and my hcg was 140. I had this repeated on day 12 (Mon) and it had risen to 551. Good numbers. A scan has been booked for 26/6 (7w3d) Today, when I went to the loo, on 2 occasions I had 2 tiny tissue like beads when I wiped. No
Winniebear1
in
Fertility Network UK
1 year ago
Fascinating: Development of Venetoclax
For a few years, I've taken a breather from HU while focusing on full life rather than my CLL. I'm stepping up to post a new podcast from Dana Farber Hospital, which I found fascinating. Particularly for those on Venetoclax, or considering the drug, I couldn't resist sharing it. The Season 2 Trailer
For a few years, I've taken a breather from HU while focusing on full life rather than my CLL. I'm stepping up to post a new podcast from Dana Farber Hospital, which I found fascinating. Particularly for those on Venetoclax, or considering the drug, I couldn't resist sharing it. The Season 2 Trailer
starsafta
in
CLL Support
2 years ago
Genomic testing and clinical decision making in CLL from the (European) ERIC 2022 Meeting
Genomic testing and clinical decision making in CLL- These videos are from European CLL experts intended for medical professionals and presented at or connected with the ERIC 2022 Meeting- using Med-Speak. https://www.vjhemonc.com/feature/the-importance-of-genomic-testing-in-cll/ Advances
Genomic testing and clinical decision making in CLL- These videos are from European CLL experts intended for medical professionals and presented at or connected with the ERIC 2022 Meeting- using Med-Speak. https://www.vjhemonc.com/feature/the-importance-of-genomic-testing-in-cll/ Advances
lankisterguy
Volunteer
in
CLL Support
2 years ago
17days after transfer BFN & no bleed
17dp6dt FET PGTA ERA negative tests & negative blood HCG. I’ve stopped medication as clinic said but I’m not even spotting yet. I had cramps once a day then stopped but now nothing. with my other bfn x3 I bled quickly once negative & medication stopped. I don’t understand what’s going on in my womb
17dp6dt FET PGTA ERA negative tests & negative blood HCG. I’ve stopped medication as clinic said but I’m not even spotting yet. I had cramps once a day then stopped but now nothing. with my other bfn x3 I bled quickly once negative & medication stopped. I don’t understand what’s going on in my womb
Givemesunshine1
in
Fertility Network UK
1 year ago
HCG rise slowing down a lot, how much of a problem is this?
I'm sorry I'm posting a lot, I'm just losing my mind. Last week, my HCG was doubling in less than 48 hours. There was more than 150% increase in two days. But a week later, it took nearly 3 days to double. While the numbers themselves are still in the range of "normal," there is a significant drop
I'm sorry I'm posting a lot, I'm just losing my mind. Last week, my HCG was doubling in less than 48 hours. There was more than 150% increase in two days. But a week later, it took nearly 3 days to double. While the numbers themselves are still in the range of "normal," there is a significant drop
LuxFleur
in
Fertility Network UK
1 year ago
Hcg dropped but no spotting or bleeding, when this should start?
As I said in my previous post, first beta at 12dp5dt came back positive with 191, I did the second beta at 14dp5dt and it came back 181 and I had a bad cramps the night before, so I assume I miscarried.As it was a natural modified cycle, the doctor asked me to stop the progesterone supplement, so it's
As I said in my previous post, first beta at 12dp5dt came back positive with 191, I did the second beta at 14dp5dt and it came back 181 and I had a bad cramps the night before, so I assume I miscarried.As it was a natural modified cycle, the doctor asked me to stop the progesterone supplement, so it's
Titawine
in
Fertility Network UK
1 year ago
I think it's over for this pregnancy
Today after I sent my doctor my HCG numbers, he said they were not good and that I needed to go for an emergency ultrasound. He said if I wasn't feeling well I needed to go right away, so I went to the pregnancy ER. Strangely, at the hospital they thought my numbers were okay, but then we did an ultrasound
Today after I sent my doctor my HCG numbers, he said they were not good and that I needed to go for an emergency ultrasound. He said if I wasn't feeling well I needed to go right away, so I went to the pregnancy ER. Strangely, at the hospital they thought my numbers were okay, but then we did an ultrasound
LuxFleur
in
Fertility Network UK
1 year ago
Beta HCG and progesterone results at 16 dpo
Good evening ladies. I am 43 and recently had a positive test.At 16 Dpo my beta HCG is 167 (on the lower side?) Progesterone 91 Any leads? Are these results indicative of a viable pregnancy? I am so anxious due to my age. Feeling like a nervous wreck already .. Thanks in advance!
Good evening ladies. I am 43 and recently had a positive test.At 16 Dpo my beta HCG is 167 (on the lower side?) Progesterone 91 Any leads? Are these results indicative of a viable pregnancy? I am so anxious due to my age. Feeling like a nervous wreck already .. Thanks in advance!
Azzurra79
in
Fertility Network UK
1 year ago
1
...
27
28
29
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Fertility Network UK
1553 results
CLL Support
1448 results
Lung Conditions Community Forum
363 results
View top 10 communities
Sort by
Most Relevant
Newest