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Advice from family members of dialysis He
Hello, I have a question for anyone with a family or is a family member of a dialysis patient. My girlfriend and I are thinking about getting married, and she is a kidney transplant recipient. At the moment, there is good functionality and our lives are fantastic. Before we tie the knot she has advised
Hello, I have a question for anyone with a family or is a family member of a dialysis patient. My girlfriend and I are thinking about getting married, and she is a kidney transplant recipient. At the moment, there is good functionality and our lives are fantastic. Before we tie the knot she has advised
Husbandtobe
in
Dialysis Support
3 years ago
Feeling so horrible and in pain since EC. What can I do?
Hello lovely people! I'm currently 9 days past a 5 day transfer and I'm feeling awful. I have been having pain since my egg collection and although the pain is different now- it's still there and the discomfort is getting worse. First of all I'm still extremely bloated. I'm not using progesterone or
Hello lovely people! I'm currently 9 days past a 5 day transfer and I'm feeling awful. I have been having pain since my egg collection and although the pain is different now- it's still there and the discomfort is getting worse. First of all I'm still extremely bloated. I'm not using progesterone or
IvfStruggler
in
Fertility Network UK
3 years ago
Abdominal rls after a kidney transplant
Has anyone had what feels like abdominal rls and major stress then given yourself a major enema and the rls in the abdomin seems to ease. I am also months from receiving a kidney transplant and take major meds to keep my kidney functioning.
Has anyone had what feels like abdominal rls and major stress then given yourself a major enema and the rls in the abdomin seems to ease. I am also months from receiving a kidney transplant and take major meds to keep my kidney functioning.
ESRDRLS
in
Restless Legs Syndrome
3 years ago
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Low hcg - not looking good
So after letting myself get excited over our BFP my clinic has called to say my hcg is very low (34 on 10dp5dt). Feeling absolutely heart broken and facing the added complication that we were due to fly to Scotland this evening to see our family for the first time in over 18 months and instead I need
So after letting myself get excited over our BFP my clinic has called to say my hcg is very low (34 on 10dp5dt). Feeling absolutely heart broken and facing the added complication that we were due to fly to Scotland this evening to see our family for the first time in over 18 months and instead I need
Llizzie
in
Fertility Network UK
3 years ago
New Study reveals vaccines not very effective for CLL and MM patients
Two new studies published in Blood suggest that the mRNA COVID-19 vaccine may have reduced efficacy in individuals with chronic lymphocytic leukemia (CLL) and multiple myeloma, two types of blood cancer. According to researchers, these studies could help inform the ideal time for vaccination of these
Two new studies published in Blood suggest that the mRNA COVID-19 vaccine may have reduced efficacy in individuals with chronic lymphocytic leukemia (CLL) and multiple myeloma, two types of blood cancer. According to researchers, these studies could help inform the ideal time for vaccination of these
naddude
in
CLL Support
3 years ago
Symptoms that your HCG levels is rising
Hi I am on 2ww. This is my first FET. I do not have any symptoms so far except for a very intense pain in my lower abdomen (less than 5min) on day 5 after my FET. Is this normal? Is there any physical body changes symptoms showing that your HCG levels is increasing besides taking the blood test? TIA
Hi I am on 2ww. This is my first FET. I do not have any symptoms so far except for a very intense pain in my lower abdomen (less than 5min) on day 5 after my FET. Is this normal? Is there any physical body changes symptoms showing that your HCG levels is increasing besides taking the blood test? TIA
kattie22
in
Fertility Network UK
3 years ago
CLL responses to Pfizer’s Covid vaccines.
Just sharing an ASH medical journal study of CLL patient’s responses to the Pfizer Covid vaccine: Among patients with chronic lymphocytic leukemia (CLL, n = 169) who received two doses of the Pfizer-BioNTech vaccine, the antibody response rate was 39.5% as measured by the Elecsys Anti-SARS-CoV-2 assay
Just sharing an ASH medical journal study of CLL patient’s responses to the Pfizer Covid vaccine: Among patients with chronic lymphocytic leukemia (CLL, n = 169) who received two doses of the Pfizer-BioNTech vaccine, the antibody response rate was 39.5% as measured by the Elecsys Anti-SARS-CoV-2 assay
Twin21
in
CLL Support
3 years ago
Can I take the amitriptilyne?
Helloo I had my first vaccine jab last Wednesday and the side effects on me were really bad , they said is just for two days , but I still feeling very tired 😓 the pain on my legs , arms , knees and shoulders were very very strong, really bad headache, nauseating, when can I take the amitriptyline,
Helloo I had my first vaccine jab last Wednesday and the side effects on me were really bad , they said is just for two days , but I still feeling very tired 😓 the pain on my legs , arms , knees and shoulders were very very strong, really bad headache, nauseating, when can I take the amitriptyline,
Kokacola
in
Fibromyalgia Action UK
3 years ago
NICE Recommends Acalabrutinib for treating CLL for certain groups
NICE has approved Acalabrutinib as monotherapy and is recommended as an option for untreated chronic lymphocytic leukaemia (CLL) in adults, [u]BUT ONLY IF[/u]: * there is a 17p deletion or TP53 mutation, or * there is no 17p deletion or TP53 mutation, and fludarabine plus cyclophosphamide and rituximab
NICE has approved Acalabrutinib as monotherapy and is recommended as an option for untreated chronic lymphocytic leukaemia (CLL) in adults, [u]BUT ONLY IF[/u]: * there is a 17p deletion or TP53 mutation, or * there is no 17p deletion or TP53 mutation, and fludarabine plus cyclophosphamide and rituximab
Jm954
Administrator
in
CLL Support
3 years ago
Botox for migraine / Headaches
It has been suggested that my wife has Botox injections for her headaches and facial pain. It looks like it is a long term solution with quarterly injections, where the results aren't noticed for many weeks and can take a year to see the real benefit. Whilst the doesn't seem any doubt that it works
It has been suggested that my wife has Botox injections for her headaches and facial pain. It looks like it is a long term solution with quarterly injections, where the results aren't noticed for many weeks and can take a year to see the real benefit. Whilst the doesn't seem any doubt that it works
sospan
in
Headway
3 years ago
Stop calling it a headache!
I may always have been slow on the uptake. All I know is that I had this epiphany more than 3 1/2 years after my head injury. It isnt a headache! My brain hurts. It dawned on me that when I say headache, people make an assumption. Because everyone has headaches and everyone knows what they are like
I may always have been slow on the uptake. All I know is that I had this epiphany more than 3 1/2 years after my head injury. It isnt a headache! My brain hurts. It dawned on me that when I say headache, people make an assumption. Because everyone has headaches and everyone knows what they are like
Miss_B_Haven
in
Headway
3 years ago
After effects of V.M.
Hi, 3 years after V.M. for the past 2 years l have experienced weakness and pain in my upper arms, shoulders, neck and ankles? Just had electrical muscle test and awaiting results but was wondering if anyone else had experienced this. Also have problems with headaches and very low B12 but don't know
Hi, 3 years after V.M. for the past 2 years l have experienced weakness and pain in my upper arms, shoulders, neck and ankles? Just had electrical muscle test and awaiting results but was wondering if anyone else had experienced this. Also have problems with headaches and very low B12 but don't know
Mojo67
in
Meningitis Now
3 years ago
****Sensitive****
I never ever thought I would get to write this but I just got my BFP….. 🎉 My transfer was the 30th May - the HCG is 36 - nurse said it was low. I want to be really happy & I am but I can’t help feel worried after what she said 🥺 I don’t think it implanted on the 30th, more like 2nd or 3rd June because
I never ever thought I would get to write this but I just got my BFP….. 🎉 My transfer was the 30th May - the HCG is 36 - nurse said it was low. I want to be really happy & I am but I can’t help feel worried after what she said 🥺 I don’t think it implanted on the 30th, more like 2nd or 3rd June because
Jrss1
in
Fertility Network UK
3 years ago
Aggressive CLL - Richter's Transformation
Hi Everyone, My father was diagnosed with aggressive CLL with PLL (prolymphocytic leukemia--where the cancer is present in immature white cells) and paraimmunoblastic features in March 2020. The first-line treatment was obinutuzumab/venetoclax but after a year on this treatment, his disease has turned
Hi Everyone, My father was diagnosed with aggressive CLL with PLL (prolymphocytic leukemia--where the cancer is present in immature white cells) and paraimmunoblastic features in March 2020. The first-line treatment was obinutuzumab/venetoclax but after a year on this treatment, his disease has turned
Phs2385
in
CLL Support
3 years ago
Sufferers of chronic pain have long been told it’s all in their head. We now know that’s wrong
The pain that can’t be seen is a week-long investigation looking at why doctors are playing catch-up on
chronic
pain conditions like endometriosis,
migraine
and more – and what they have to do with long Covid.
The pain that can’t be seen is a week-long investigation looking at why doctors are playing catch-up on
chronic
pain conditions like endometriosis,
migraine
and more – and what they have to do with long Covid.
helvella
Thyroid UK
in
Thyroid UK
3 years ago
Slow rising hcg
Hi Ladies, I have slow rising hcg levels - 41, 52, 81 - after FET The doc is unsure if I am an outlier or if I will miscarry or (ugh) it is an ectopic pregnancy. I really don’t want it to be that obviously. I have some cramping but no other real symptoms besides sore boobs and nausea, which could
Hi Ladies, I have slow rising hcg levels - 41, 52, 81 - after FET The doc is unsure if I am an outlier or if I will miscarry or (ugh) it is an ectopic pregnancy. I really don’t want it to be that obviously. I have some cramping but no other real symptoms besides sore boobs and nausea, which could
Babydustforall
in
Fertility Network UK
3 years ago
Teenage daily migraines
First of all, sorry about my long-winded message. My 14 year old daughter has been getting daily “migraine-like” headaches that last from the moment she wakes up to the moment she goes to sleep. (This is the description the neurologist gives). She has had them now for 3 months & is unable to participate
First of all, sorry about my long-winded message. My 14 year old daughter has been getting daily “migraine-like” headaches that last from the moment she wakes up to the moment she goes to sleep. (This is the description the neurologist gives). She has had them now for 3 months & is unable to participate
Angebombange72
in
National Migraine Centre
3 years ago
Does the haematologist really know what he's talking about?!
So? Does he? CLL ten years, W&W. Ivig every 4 weeks. Last November, kidney biopsy. Cryoglobulinemia! So the cryo kicks up symptoms not necessarily related to CLL. Blood test numbers all roughly within perimeters, except immunoglobulin, 1.49! The haem just shrugs his shoulders when I ask cryo questions
So? Does he? CLL ten years, W&W. Ivig every 4 weeks. Last November, kidney biopsy. Cryoglobulinemia! So the cryo kicks up symptoms not necessarily related to CLL. Blood test numbers all roughly within perimeters, except immunoglobulin, 1.49! The haem just shrugs his shoulders when I ask cryo questions
happyclappy
in
CLL Support
3 years ago
Chemical pregnancy :(
Just wanted somewhere to spill my emotions really, with those that may understand. This was our first ivf round and I started off so positive which was unlike me as I am an over thinker (also not googling) and taking it all as it came. I’m scared of needles so I did so well, everything was going ‘perfectly
Just wanted somewhere to spill my emotions really, with those that may understand. This was our first ivf round and I started off so positive which was unlike me as I am an over thinker (also not googling) and taking it all as it came. I’m scared of needles so I did so well, everything was going ‘perfectly
JammPot
in
Fertility Network UK
3 years ago
Spike Antibody Test Results
I got the results of my Semi-Quantitative Covid Spike Antibody test (LabCorp). I DO NOT have CLL. I am a healthy 66 year old. I took the test 6 weeks after my second Pfizer shot. The result was >250. (Interpretation says <0.8 is negative, >0.79 is positive. I guess that means I am very positive.
I got the results of my Semi-Quantitative Covid Spike Antibody test (LabCorp). I DO NOT have CLL. I am a healthy 66 year old. I took the test 6 weeks after my second Pfizer shot. The result was >250. (Interpretation says <0.8 is negative, >0.79 is positive. I guess that means I am very positive.
Ibru
in
CLL Support
3 years ago
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