Experiences with

Chronic leukaemia

CLL since 2012 ( Ibrutinib 5 years , Gayzva 6 months , Acalabrutinib 2 years ) now bladder cancer , high grade , no wall penetration .... advised to take BCG for 6 weeks every 3 months for a year ... anyone shed light on what I can physically expect from the BCG ?

Hi everyone, posting this to give others hope as it’s what I was looking for this weekend. Last Monday we had a scan which showed a 6 week baby with a heartbeat. Thursday I had very painful cramps for a few hours then a large gush of blood, ended up in a&e where I bled for 3 hours. Cervix checked and

Can anyone help me with identifying the differences between Fibromyalgia and Chronic Fatigue Syndrome? Are they the same thing? Can you have both? Thank You

Hi, this is my first time posting 😊 my husband and I did a round of ovulation induction in December but sadly lost the pregnancy in February (our 4th loss). We just did another round and on Thursday at 15dpo had our beta bloods. HCG came back at 63.2 however the clinic like to see 70 and above at this

5weeks and 5 days, bleeding was heavy and clotty so went to A+E. HCG levels were only about 1400 (which is the near the minimum HCG for 6 weeks but it was like 980 at my last hcg check 2 weeks ago so levels have obviously stopped doubling some time ago, or have fallen from whatever the peak was). The

Hello Everybody, My boyfriend was just diagnosed with Richter Syndrome about 2 hours ago. Those have been 2 hours where I have felt myself losing my mind! They told him not to google anything in regards to the diagnosis as they are doing more tests. Of course, I didn’t listen! Everything I have read

Hi all. I started miscarrying 7 weeks ago, when I was 5 weeks pregnant. At first GP thought all was ok then a week later it got heavier and confirmed MC. 3 weeks ago after it started I was still bleeding with pain and I got sent to hospital where I had a tonne of tests done and they said it was potentially

Hey everyone, I had my double embryo transfer on the 30th March. My OTD was Friday 9th April at 10dp5dt, and I took a HPT in the AM and to my surprise the test was positive, although a faint positive but two lines nonetheless. Sadly my beta results came back low that Friday night (+progesterone at 45

Hello beauties.. I have done my beta hcg test today 14 day post embryo transfer.. It's 24.75..is it normal?? My doctor told me that it's a weak value😭and that they don't know what will happen in future.. Is it a sign of miscarriage?? I have frequent urination darken aerola heavy boobs and heaches alongwith

So I had a day 5 blastocyst transfered on Tuesday 6th april on my hubby's birthday,... and I told myself I wouldn't test early. I woke up this morning as I've been getting severe hot sweats all day yesterday and thought if it's a negative its fine I know hcg would and can take some time to show up in

I am starting to use a very small quantity (spoons full ) of organic apple cider vinegar to spice-up vegetable puree. Can I use the "organic apple cider vinegar" which "unpasteurized and unfiltered" ? I have CLL under near normal CBC control with IMBRUVICA. Also, what if any benefit would any small

So lots of posts on here from people getting CEV letters again. Mostly England I think however our wee country got to deal with the serious arguments about transfer tests (I guess they are, not if you're youngest is 20 though) before they issue the guidance and letters. Just yesterday, Friday 8th I received

Post by MPN-MATE Admin » Mon Feb 08, 2021 4:23 pm Hey everyone... :D As the subject of this Post is about Warwick's Allogenic Stem Cell Transplant journey, he will come back as he progresses through each stage of this journey to share the experience w/ ALL MPNers, who might have an interest... I met

Hi My First post here, sorry if I screw up. I had a standard CAPD line inserted and then all training and a Baxter machine to receive APD. But the line never worked very well. The doctors decided that it was because I am so tall (6'2" is not that unusual?) Anyway the faulty line was removed and a

We did egg retrieval on Tuesday. Since last Friday, I’ve been nauseous, boob swelling, stomach bloating, mood swings, so I took a pregnancy test today. It showed positive. I surprised my husband and we were so excited. Of course we thought it must have happened naturally somehow, so I called the doctor

I had a fresh transfer on 22 March and had a very faint positive on test day and the few days after, by 14dp5dt the line was nice and strong. Blood result at 14dp5dt - hcg 62 and Progesterone 45.9 Blood result at 16dp5dt - hcg 133 and Progesterone 17.9 Although Progesterone remained in the 'normal

I was referred to a haematologist last year as the blood test results from my annual health screen came back with some abnormal results. I have thalassemia trait so my blood results are never normal but my GP noted that my platelets were elevated at 489. I looked back at some older blood tests and

Interesting 'conversation' with CLL experts on a variety of topics including: Do patients with CLL have worse outcomes if they develop COVID‑19? Are data available on COVID-19 outcomes in younger patients with CLL? Would it be possible for CLL-associated lymphocytosis to counteract COVID-19–associated

This is my 4th failed pregnancy yet there always seem to be new fucking things that challenge you! Just when you think you’ve been through it all 🤦‍♀️ Ok so I had FET last Tuesday. Yesterday I started spotting. Took a test and it was positive. Then 6 hours later I started bleeding, (which has now stopped

[u]Coronavirus might become endemic – here’s how.[/u] Endemic viruses are those that have constant presence within a geographical area. Such viruses are all around us, though they vary by location. Examples in Europe and North America include the rhinovirus (a cause of the common cold) and influenza