Experiences with

Chronic leukaemia

"FLAIR and STATIC trial update Background: The development of ibrutinib has had a major positive impact for patients with chronic lymphocytic leukaemia (CLL).

We just had our first hcg results come in and they were a 385 and 9dp5dt so we are officially pregnant!!!!! I hope these numbers are good keep rising! I just want to say thank you to all of you amazing women who have been supportive and helpful during all of this!!! Being on here helped me through and

Just had my yearly labs and my WBC increased from 10 to19 and my absolute lymphocytes 7.6 to 12. Everythng else looked pretty good, normal range. Could this be a blip (just got over bad a-topical dermatitis[i] [/i] on three spots for weeks before resolving a week before labs. Any cause for concern

Hi, I transferred 2 embryos because of my age (41) to increase the chances of one sticking. I’m now 12dp5dt and my HCG blood test has come back measuring 1730. Anyone else with twins started off with the same levels? Obviously I won’t know until the scan in 2 weeks but it would be helpful to hear about

Just came from the doctor. Still no definite result after my BMB. Tests are still incomplete. Some info: Positive for Jak2 , myeloproliferative neoplasms (MPN) Negative for leukemia and lymphoma Ultrasound came back good, no enlarged spleen, organs, etc. Next step is to see an MPN specialist. Then

A very important post from Chaya: https://updates.clltopics.net/4936-avoiding-covid-19-infection Anyone who knows the dedication Chaya has for those of us with CLL/SLL, will be recommending her latest article as a must read! That's why this is an unlocked post. [i]**Update**: This post has resulted

Hi All - I’ve been taking green tea extract and curcumin capsules daily since I was diagnosed 18 months ago. I have no symptoms and my blood levels have been very stable. Has anyone had experience with those two supplements?

"FLAIR and STATIC trial update [i]Background[/i][i]: The development of ibrutinib has had a major positive impact for patients with chronic lymphocytic leukaemia (CLL).

😔😔 so my bloods have come back to 28 which is lower than Thursdays (which where 34). Has anyone ever had their bloods come back lower than the previous test or am I out the game?!? 😭

Just diagnosed. I'm 46. Have biopsy tomorrow to determine treatment options. This is really freaking me out. Is this really a death sentence? Need feedback from others that have gone though it

Hi all, this is a challenge that many of us have to manage. Please join us for this participative webinar Register > http://bit.ly/FatigueWebinar https://pic.twitter.com/44DMhhS46y Leukaemia Care are co – hosting this webinar with Lymphoma Action to support patients with understanding and managing

Hey lovely ladies, I have recently read about hcg injections being used to help the endometrium to communicate with blastocyst once tranferred? In natural reproduction we start secreting small amounts of this to help this process, with IVF this can sometimes be lost so HCG is used after to help the

Dear HCL friends please join us Leukaemia Care are hosting this participative patient information webinar to explore the changing HCL treatment, management and care landscape. The webinar will help to explain the condition, how it is managed and treated, while exploring changes in treatment and challenges

We’ve never actually had a positive home test so when we did this mornings it seemed a little surreal. It showed straight away too! No having to wait the 3 minutes! 🎉🎉 Another bloods test tomorrow to hopefully see my HCG double 🤞🏼

Hi all, you are invited to join us for this webinar hosted by Lymphoma Action and Leukaemia Care, We will be focussing on how you can get the most out of your appointments, however they are happening and at whatever stage they are at in their in your journey. You can register and submit your questions

Big thanks to this site as I’ve found a new Haematologist recommended here with whom I am 😊 He suggested three cups of Green Tea per day so I’ve included it in my everyday life and will be very interested to see blood test results next year. I have one early morning then make up a two bag mug which

Hi All, I want to thank everyone for the kind words of support, good thoughts, and prayers for my appointment with a new specialist yesterday. I appreciate it so much. Here’s what I learned: 1.I liked the team a great deal. Everyone was very kind, really listened to me, and had excellent information

« The mean latency between JAK2V617F acquisition and clinical presentation was 31 years (range 12-54 years). Rates of clonal expansion varied substantially (<10% to >200% expansion/year), were affected by additional driver mutations, and predicted latency to clinical presentation. Driver mutations and

I am a 76 year old woman from Melbourne Australia and I have just been diagnosed with Acute Myeloid Leukemia.

I've always been a firm believer that God provides a means in the natural world to help heal ourselves mentally and physically. Along with my chemotherapy medication Imbruvica, I'm also taking a combination of Vitamin C, E, and green tea supplements. What other natural occurring vitamins have been