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Chorionic villus sampling (CVS)
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Should I Have Taken The Infusion Anyway
I posted yesterday about my recent experience with getting a bad cold, having four Grandchildren (and their parents) living temporarily with us and two currently with sore throats, and calling a local hospital about availability of Regeneron Infusions. I took a COVID pcr test on the 15th, and got a
I posted yesterday about my recent experience with getting a bad cold, having four Grandchildren (and their parents) living temporarily with us and two currently with sore throats, and calling a local hospital about availability of Regeneron Infusions. I took a COVID pcr test on the 15th, and got a
wizzard166
in
CLL Support
3 years ago
Chemical pregnancy but feeling more confused!?
Evening ladies, So Friday and Saturday faint positive tests. Sunday morning lighter, started to get cramps and bleeding and then clots today. Spoke to GP as clinic said can’t help as natural positive. GP said go A&E to be referred to EPU, they did pregnancy test and negative and then did bloods and
Evening ladies, So Friday and Saturday faint positive tests. Sunday morning lighter, started to get cramps and bleeding and then clots today. Spoke to GP as clinic said can’t help as natural positive. GP said go A&E to be referred to EPU, they did pregnancy test and negative and then did bloods and
BECIO
in
Fertility Network UK
3 years ago
Different IGHV mutation tests?
Are there different tests for IGHV mutation? PCR? Sanger? NGS? My PCR test report says no mutations detected. Should I retest with other methods? Also, is IGHV mutation status innate or developed during the lifetime? If it’s innate and genetic, since I’m unmutated, should I get my children tested for
Are there different tests for IGHV mutation? PCR? Sanger? NGS? My PCR test report says no mutations detected. Should I retest with other methods? Also, is IGHV mutation status innate or developed during the lifetime? If it’s innate and genetic, since I’m unmutated, should I get my children tested for
nuji
in
CLL Support
3 years ago
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5 weeks post FET, good HCG but mega headache
Hi, I’m 5 weeks 2 days with good beta tests however have developed the most cracking headache. I normally get this kind of headache before my period so terrified that something is very wrong. No bleeding and too early for scan which is scheduled in 12 days time.
Hi, I’m 5 weeks 2 days with good beta tests however have developed the most cracking headache. I normally get this kind of headache before my period so terrified that something is very wrong. No bleeding and too early for scan which is scheduled in 12 days time.
Snurf
in
Fertility Network UK
3 years ago
Low beta hcg 100 d14p5dt and spotting - looking for similar stories where this is not ectopic!
I am 14 days post a fresh blastocyst transfer and my hcg is low but rising (36 day 11, 72 day 13, and today 102 😐). I have some very mild occasional cramps and spotting, with some stringy blood stained mucus discharge (hope not TMI!). I assumed when the bleeding started after the initial low beta it
I am 14 days post a fresh blastocyst transfer and my hcg is low but rising (36 day 11, 72 day 13, and today 102 😐). I have some very mild occasional cramps and spotting, with some stringy blood stained mucus discharge (hope not TMI!). I assumed when the bleeding started after the initial low beta it
singleswimmer
in
Fertility Network UK
3 years ago
Possible **sensitive** faint positive
Morning ladies, yesterday I posted after have a really faint positive after leaving the HPT for a while. Today did another test and was a slightly darker line but still faint with First response. I am so shocked and confused. I am 17 days past ovulation and when I wipe light brown on tissue sorry
Morning ladies, yesterday I posted after have a really faint positive after leaving the HPT for a while. Today did another test and was a slightly darker line but still faint with First response. I am so shocked and confused. I am 17 days past ovulation and when I wipe light brown on tissue sorry
BECIO
in
Fertility Network UK
3 years ago
Any Knowledge of CLL in the eyes?
A biopsy confirmed a diagnosis of CLL in both lower eyelids. This is a rare event. Neither my hematologist-oncologist or CLL Specialist have ever had a patient with it. They tell me that acalabrutinib, which I'll start next week, is sufficient treatment. From what I've read, I'm still uncomfortable
A biopsy confirmed a diagnosis of CLL in both lower eyelids. This is a rare event. Neither my hematologist-oncologist or CLL Specialist have ever had a patient with it. They tell me that acalabrutinib, which I'll start next week, is sufficient treatment. From what I've read, I'm still uncomfortable
cll2013
in
CLL Support
3 years ago
Side Effects of Bendamustine?
I am asking for a friend who has follicular lymphoma and has been W&W for nine years. They start Rituxan and Bendamustine next week. With all the treatment I have had, I have never had this one, so I am wondering if you could share what your experiences were. Thanks much.
I am asking for a friend who has follicular lymphoma and has been W&W for nine years. They start Rituxan and Bendamustine next week. With all the treatment I have had, I have never had this one, so I am wondering if you could share what your experiences were. Thanks much.
KevinCLLITP
in
CLL Support
3 years ago
Has anyone had their first beta/OTD on d8p5dt?
I have had faint positives on FRER for 72h (since PM d5p5dt) that are getting slowly darker and pinker but remaining quite pencil like. Last night I had a faint positive on a clear blue for the first time. But today I’ve done a dumb thing and got my hcg tested, 3 days before OTD 🤦🏻♀️. It’s really
I have had faint positives on FRER for 72h (since PM d5p5dt) that are getting slowly darker and pinker but remaining quite pencil like. Last night I had a faint positive on a clear blue for the first time. But today I’ve done a dumb thing and got my hcg tested, 3 days before OTD 🤦🏻♀️. It’s really
singleswimmer
in
Fertility Network UK
3 years ago
immunohistochemistry need help understanding
I am seeing my doctor on Tuesday but was able to get some results online from my bone marrow biopsy - Additional tests ordered: Cytogenetics and FISH (CLL panel) Can someone help me understand the findings below - thank you Marker Result Description CD20 Positive Pan B Cell Antigen (L26) CD3 T-cells
I am seeing my doctor on Tuesday but was able to get some results online from my bone marrow biopsy - Additional tests ordered: Cytogenetics and FISH (CLL panel) Can someone help me understand the findings below - thank you Marker Result Description CD20 Positive Pan B Cell Antigen (L26) CD3 T-cells
kp58ny
in
CLL Support
3 years ago
Cost for treatment
Hi everyone, i am hoping you can help. My dad was diagnosed with CLL about a month ago. He just received his information package in the mail from the specialist which indicated that he requires insurance to cover any medical expenses. We are from Ontario Canada so wondering what the cost is for the
Hi everyone, i am hoping you can help. My dad was diagnosed with CLL about a month ago. He just received his information package in the mail from the specialist which indicated that he requires insurance to cover any medical expenses. We are from Ontario Canada so wondering what the cost is for the
Rubymom
in
CLL Support
3 years ago
Tww for scan
i got 2100+ HCG at 15dp6dt. today is 17dp6dt now booked for another two weeks wait for the scan. I am super nervous. my heartbeat is so fast. all negative thoughts are coming over my mind. I don't know what should I do? This wait becomes very hard for me.
i got 2100+ HCG at 15dp6dt. today is 17dp6dt now booked for another two weeks wait for the scan. I am super nervous. my heartbeat is so fast. all negative thoughts are coming over my mind. I don't know what should I do? This wait becomes very hard for me.
Hiramunir78
in
Fertility Network UK
3 years ago
Just joined
Hi, I am about to start treatment with acalabrutinib for my cll, I was originally told I would be treated with venetoclax and Obinutuzumab but I also receive treatment for my bladder cancer so my consultant said I wouldn’t be able to receive the v+o while also receiving the BCG for bladder cancer. I
Hi, I am about to start treatment with acalabrutinib for my cll, I was originally told I would be treated with venetoclax and Obinutuzumab but I also receive treatment for my bladder cancer so my consultant said I wouldn’t be able to receive the v+o while also receiving the BCG for bladder cancer. I
Mtk1
in
CLL Support
3 years ago
6.3 weeks no symptoms!?!?
Hey lovley ladies xx So I'm 6. 3 weeks pregnant I had my beta HCG on the 23rd it came back as low at 66, did a repeat the nurse said congratulations your beta rose to 227 so a good increase and something to calm the worry for probably an hour before I realised I have the dreaded scan to look forward
Hey lovley ladies xx So I'm 6. 3 weeks pregnant I had my beta HCG on the 23rd it came back as low at 66, did a repeat the nurse said congratulations your beta rose to 227 so a good increase and something to calm the worry for probably an hour before I realised I have the dreaded scan to look forward
Helensafc
in
Fertility Network UK
3 years ago
Sensitive post... BFP finally❤️✌️Allhamdulillah
387.87 beta hcg value at day 12 of FET... Is it a good one? Having bloating and pressure in lower pelvis area.. Constipated🙄
387.87 beta hcg value at day 12 of FET... Is it a good one? Having bloating and pressure in lower pelvis area.. Constipated🙄
Rihab1
in
Fertility Network UK
3 years ago
HCG at 107 on d9p5dt
Is this good? 2nd blood test on Monday
Is this good? 2nd blood test on Monday
Snurf
in
Fertility Network UK
3 years ago
World CLL Day
Good morning, 1st September, where is the year going. Getting used to it being dull now, longing for some sun. Blood tests this morning and then possibly a journalist in conjunction with Leukaemia Care calling to do an interview for Spot Leukaemia Early campaign month. Have already made a video which
Good morning, 1st September, where is the year going. Getting used to it being dull now, longing for some sun. Blood tests this morning and then possibly a journalist in conjunction with Leukaemia Care calling to do an interview for Spot Leukaemia Early campaign month. Have already made a video which
kitchengardener2
in
CLL Support
3 years ago
Red painful Feet
I have been on WOW for 6 years now with blood results relatively OK. However for last 2 years I have painful feet, soles and side and base of toe. Feet do not like heat. Cycles of socks on; to heat feet and socks off: to stop pain and red/purple colour. GP suggested fungus or venous leaking or dermititis
I have been on WOW for 6 years now with blood results relatively OK. However for last 2 years I have painful feet, soles and side and base of toe. Feet do not like heat. Cycles of socks on; to heat feet and socks off: to stop pain and red/purple colour. GP suggested fungus or venous leaking or dermititis
Marchmouse
in
CLL Support
3 years ago
Frontline treatment of Chronic Lymphocytic Leukemia (CLL/SLL) in 2021
JCO Oncology Practice has recently published two important papers: a clinical review article by Elizabeth A Brem MD and Susan O'Brien MD and a commentary by Nitin Jain MD which outline the current frontline therapies for CLL. Nitin Jain's excellent summary, titled '
[i]Evolving Treatment Paradigm
JCO Oncology Practice has recently published two important papers: a clinical review article by Elizabeth A Brem MD and Susan O'Brien MD and a commentary by Nitin Jain MD which outline the current frontline therapies for CLL. Nitin Jain's excellent summary, titled '
[i]Evolving Treatment Paradigm
CLLerinOz
Administrator
in
CLL Support
3 years ago
Leukemia and Lymphoma Society 3 D models help improve our understanding of Chronic Lymphocytic Leukemia (CLL/SLL)
The Leukemia and Lymphoma Society of the USA https://www.lls.org (well worth joining - it's free) has recently released 3D/animated models to help us better visualise how blood cancers impact on our health. The following links are to annotated models of specific interest to those of us with CLL/SLL
The Leukemia and Lymphoma Society of the USA https://www.lls.org (well worth joining - it's free) has recently released 3D/animated models to help us better visualise how blood cancers impact on our health. The following links are to annotated models of specific interest to those of us with CLL/SLL
AussieNeil
Partner
in
CLL Support
3 years ago
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