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"Becoming Your Own (CLL)Project Manager" by Doreen Zetterlund is part of CLL Society & Huntsman Cancer Institute's Monday Nov. 8th CLL Forum
Tuesday Nov. 9th! Still time to register! Patients who manage their own CLL strategies without the help of a caregiver are in for a rare treat as CLL patient Doreen Zetterlund leads us through her amazing "how to" video Becoming Your Own Project Manager. Doreen's presentation is part of Huntsman Cancer
Tuesday Nov. 9th! Still time to register! Patients who manage their own CLL strategies without the help of a caregiver are in for a rare treat as CLL patient Doreen Zetterlund leads us through her amazing "how to" video Becoming Your Own Project Manager. Doreen's presentation is part of Huntsman Cancer
bkoffman
CLL CURE Hero
in
CLL Support
3 years ago
My husband hasCKD. I’m so scared
Hello everyone! I’m really scared for my husbands life. He is 45 years old and his primary has just diagnosed him with CKD. He has GFR of 70. Doctor really scared us by telling us that at his age he would properly require Dialysis and a kidney transplant. We have an appointment to see a specialist
Hello everyone! I’m really scared for my husbands life. He is 45 years old and his primary has just diagnosed him with CKD. He has GFR of 70. Doctor really scared us by telling us that at his age he would properly require Dialysis and a kidney transplant. We have an appointment to see a specialist
Dianamillo
in
Early CKD Support
3 years ago
World Pneumonia day
Good morning everyone. Today is World Pneumonia Day. Read Plamen's account of how he caught pneumonia and his journey to recovery. https://www.blf.org.uk/your-stories/we-shouldnt-take-healthy-lungs-for-granted? Have a good Friday Debs
Good morning everyone. Today is World Pneumonia Day. Read Plamen's account of how he caught pneumonia and his journey to recovery. https://www.blf.org.uk/your-stories/we-shouldnt-take-healthy-lungs-for-granted? Have a good Friday Debs
Debs_ALUK
British Lung Foundation
in
Lung Conditions Community Forum
3 years ago
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CD38 In CLL
Went for my annual checkup yesterday, WBC at 19.1 from 15.1 last year. Not enough WBC to know if mutated or not. The doctor did confirm I'm don't have 17p but I do have CD38.. according to Goggle I may see God sooner! What's the deal?
Went for my annual checkup yesterday, WBC at 19.1 from 15.1 last year. Not enough WBC to know if mutated or not. The doctor did confirm I'm don't have 17p but I do have CD38.. according to Goggle I may see God sooner! What's the deal?
Laura3mini
in
CLL Support
3 years ago
Is the shingles vaccine suitable for people diagnosed with sle
I have a case of shingle and was wondering if anyone has any first hand experience if the shingles vaccine is suitable for people that have sle. I had inquired months ago about the vaccine with my GP and Rhuematologist but was advised by both it was not suitable for me to have, well now I’ve got shingles
I have a case of shingle and was wondering if anyone has any first hand experience if the shingles vaccine is suitable for people that have sle. I had inquired months ago about the vaccine with my GP and Rhuematologist but was advised by both it was not suitable for me to have, well now I’ve got shingles
Hopey
in
LUPUS UK
3 years ago
What Are Vaccines?
A vaccine is a substance that teaches your body to recognize a foreign invader, such as a virus, sound an alarm to activate your immune system, and instruct your fighter cells and proteins to go to work to fight the virus. The goal of a vaccine is to eliminate or control the virus in your body, which
A vaccine is a substance that teaches your body to recognize a foreign invader, such as a virus, sound an alarm to activate your immune system, and instruct your fighter cells and proteins to go to work to fight the virus. The goal of a vaccine is to eliminate or control the virus in your body, which
Tupelomojo
in
CLL Support
3 years ago
Pneumonia jab.....🤔🤔
I’m currently getting up to speed with my vaccines. Flu,COVID booster done. I’m considering the pneumonia jab, has anyone had one? Did you go private?
I’m currently getting up to speed with my vaccines. Flu,COVID booster done. I’m considering the pneumonia jab, has anyone had one? Did you go private?
deanw41
in
British Liver Trust
3 years ago
Treatment option with del 17 positive but IGHV mutated
I am CLL since 2003 on wait and watch. Now my count has increased to 80000 and platlets fallen to 1 Lakhs. RBC is normal.My spleen is 16.5 cms My FISH report indicates del17 positive but IGHV is mutated. Is my CLL agressive and needs special treatment especially because I am del17 positive . But IGHV
I am CLL since 2003 on wait and watch. Now my count has increased to 80000 and platlets fallen to 1 Lakhs. RBC is normal.My spleen is 16.5 cms My FISH report indicates del17 positive but IGHV is mutated. Is my CLL agressive and needs special treatment especially because I am del17 positive . But IGHV
Ashwas
in
CLL Support
3 years ago
Beta HCG doubling time was 1.7 days in week 4 but it increased to 2.5 days in 5th week
Beta HCG doubling time was 1.7 days in week 4 but it increased to 2.5 days in 5th week, today is day 19 post 5dt and observed spotting for 2mins. Hcg @ day 11-118 Day 14- 391 Day 19- 1604 Is it ok.. This one is my 6th IVF cycle. And 1st time I reached to this level. Is it ok or sth went wrong
Beta HCG doubling time was 1.7 days in week 4 but it increased to 2.5 days in 5th week, today is day 19 post 5dt and observed spotting for 2mins. Hcg @ day 11-118 Day 14- 391 Day 19- 1604 Is it ok.. This one is my 6th IVF cycle. And 1st time I reached to this level. Is it ok or sth went wrong
Priyasharma
in
Fertility Network UK
3 years ago
Yet another article: Acute hepatitis E virus infection and autoimmune thyroiditis: yet another trigger?
I just found this article, maybe you find it interesting: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3339187/ [EDITED:] Interestingly enough, I once had a hepatitis E infection. I had no clue until a full blood test 2 years ago found antibodies - along with the Hashimoto's diagnosis.
I just found this article, maybe you find it interesting: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3339187/ [EDITED:] Interestingly enough, I once had a hepatitis E infection. I had no clue until a full blood test 2 years ago found antibodies - along with the Hashimoto's diagnosis.
Lunario
in
Thyroid UK
3 years ago
UK National COVID cancer test survey - Any results
Hi. I have just had a negative antibody test result after taking the National COVID cancer survey test. Obviously disappointed after having the 3rd dose of the Pfizer vaccine on the 2 Oct. Not sure if it makes a difference to me only waiting 17 day between the Jab and the test, perhaps I should have
Hi. I have just had a negative antibody test result after taking the National COVID cancer survey test. Obviously disappointed after having the 3rd dose of the Pfizer vaccine on the 2 Oct. Not sure if it makes a difference to me only waiting 17 day between the Jab and the test, perhaps I should have
Strech51
in
CLL Support
3 years ago
Rambler 64
Hi. I'm have CKD stage 4, possibly 5. My gfr is 13. I'm on the national renal transplant list for a donated kidney. I have opted for peritoneal dialysis when it gets to gfr 9. I get restless legs in bed & sometimes when I'm sitting watching the TV at night. I've put some weights on my legs at night which
Hi. I'm have CKD stage 4, possibly 5. My gfr is 13. I'm on the national renal transplant list for a donated kidney. I have opted for peritoneal dialysis when it gets to gfr 9. I get restless legs in bed & sometimes when I'm sitting watching the TV at night. I've put some weights on my legs at night which
Rambler64
in
Restless Legs Syndrome
3 years ago
Raised GGT and EBV
Good morning, I posted a few weeks ago about my rapidly rising GGt levels. I had quite a big surgery and was on lots of drugs (pain relief and blood thinners) but the Dr referred me for an urgent 2 week CT to make sure as GGT was 416! The CT come back no abnormalities but the bloods come back that I
Good morning, I posted a few weeks ago about my rapidly rising GGt levels. I had quite a big surgery and was on lots of drugs (pain relief and blood thinners) but the Dr referred me for an urgent 2 week CT to make sure as GGT was 416! The CT come back no abnormalities but the bloods come back that I
Purpleloulou27
in
British Liver Trust
3 years ago
Intense exercise
I have early stage CLL diagnosed about a year ago. I am a regular marathon runner and just a week ago ran my first 50 mile run. My hematologist told me not to change anything I was doing including my ultra running. So far I don’t think I have had any adverse effects from this passion of mine which is
I have early stage CLL diagnosed about a year ago. I am a regular marathon runner and just a week ago ran my first 50 mile run. My hematologist told me not to change anything I was doing including my ultra running. So far I don’t think I have had any adverse effects from this passion of mine which is
celticfan
in
CLL Support
3 years ago
Low triiodothyronine levels correlate with high B-type natriuretic peptide levels in patients with heart failure
An association between low T3 and cardiac disorders. They appear to very responsibly avoid unwarranted conclusions - which came first? - but at least the question is being asked. [i] • Open Access • Published: 08 November 2021
Low triiodothyronine levels correlate with high B-type natriuretic
An association between low T3 and cardiac disorders. They appear to very responsibly avoid unwarranted conclusions - which came first? - but at least the question is being asked. [i] • Open Access • Published: 08 November 2021
Low triiodothyronine levels correlate with high B-type natriuretic
helvella
Thyroid UK
in
Thyroid UK
3 years ago
Trimbow inhaler and pneumonia
I have been hospitalised twice in the past year with severe pneumonia. I have been prescribed a trimbow inhaler. However after a bit of investigation it appears that this inhaler can cause pneumonia. Should i be using this?
I have been hospitalised twice in the past year with severe pneumonia. I have been prescribed a trimbow inhaler. However after a bit of investigation it appears that this inhaler can cause pneumonia. Should i be using this?
Tjpk
in
Lung Conditions Community Forum
3 years ago
Acalabrutinib Plus Venetoclax and Obinutuzumab Achieves High Bone Marrow uMRD Rate in Chronic Lymphocytic Leukemia - CLL
Great news from this long awaited first published phase 2 study reporting the efficacy of this AVO triplet, which are the most active new drugs approved for patients with CLL. [i]"In patients with chronic lymphocytic leukemia (CLL) and undetectable minimal residual disease (MRD) in the bone marrow,
Great news from this long awaited first published phase 2 study reporting the efficacy of this AVO triplet, which are the most active new drugs approved for patients with CLL. [i]"In patients with chronic lymphocytic leukemia (CLL) and undetectable minimal residual disease (MRD) in the bone marrow,
AussieNeil
Partner
in
CLL Support
3 years ago
Waiting for diagnosis
Hello I'm 61 and haven't yet been diagnosed with CLL although my GP has suggested I have it. I'm waiting for my haematology appointment but have been triaged as on the 12 week list. That's all very well for them to say - they don't have to lie awake thinking about whether or not I have a blood cancer
Hello I'm 61 and haven't yet been diagnosed with CLL although my GP has suggested I have it. I'm waiting for my haematology appointment but have been triaged as on the 12 week list. That's all very well for them to say - they don't have to lie awake thinking about whether or not I have a blood cancer
Stitcher100
in
CLL Support
3 years ago
Tested early but deep down I know it’s over !
Gutted!! I know this comes ups all the time but I tested early at 6dp5dt and got a negative. I know it’s early and my advice to others is to not to loss hope just yet but it’s so difficult isn’t it. I kind want some reassurance that I’m not out but at the same time deep down I know it’s unlikely now.
Gutted!! I know this comes ups all the time but I tested early at 6dp5dt and got a negative. I know it’s early and my advice to others is to not to loss hope just yet but it’s so difficult isn’t it. I kind want some reassurance that I’m not out but at the same time deep down I know it’s unlikely now.
Coles2020
in
Fertility Network UK
3 years ago
Low hcg help please
Hi everyone; My story is i had my period on the 13th of september, then on the 8th of october i thought i was having another period and had had a negative blood test 2 days before. Then on the 16th i started spotting, took a pregnancy test and it was faint. Went to the doctors, they immediately did
Hi everyone; My story is i had my period on the 13th of september, then on the 8th of october i thought i was having another period and had had a negative blood test 2 days before. Then on the 16th i started spotting, took a pregnancy test and it was faint. Went to the doctors, they immediately did
Rebecca7327
in
Baby and Us
3 years ago
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