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Chorionic villus sampling (CVS)
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IgHV - unmutated and Acalabrutinib
Saw my CLL specialist yesterday and he had the results of the IgHV testing he requested. It seems I am unmutated status which isn't great news. At the time of starting treatment, we were in 1st year of pandemic and Acalabrutinib was offered. As he said normally I would have been offered FCR because
Saw my CLL specialist yesterday and he had the results of the IgHV testing he requested. It seems I am unmutated status which isn't great news. At the time of starting treatment, we were in 1st year of pandemic and Acalabrutinib was offered. As he said normally I would have been offered FCR because
Eucalyptus22
in
CLL Support
2 years ago
Cramping and bleeding 5 weeks
I am losing it and need some reassurance. We had our first FET on 1 November, BFP on 12 November and HCG 1900 on 15 November. I have been having some cramping on and off. On Friday (18 November) I had some cramping and when I went to do my pessary in the evening I had some watery pink bleeding. Enough
I am losing it and need some reassurance. We had our first FET on 1 November, BFP on 12 November and HCG 1900 on 15 November. I have been having some cramping on and off. On Friday (18 November) I had some cramping and when I went to do my pessary in the evening I had some watery pink bleeding. Enough
Ltry
in
Fertility Network UK
2 years ago
New to this and very afraid
Hello folks...My GP feels my bloods indicate CLL...PANIC. Referring me to a Haematology Doctor 58 with dependent kids and mortgage Any information re the below would be great. Immunophenotyping PB has been done with Tcell Tcell helper cells and cytoxiccell all low.. L22 L14 L7 B cells High 64 66
Hello folks...My GP feels my bloods indicate CLL...PANIC. Referring me to a Haematology Doctor 58 with dependent kids and mortgage Any information re the below would be great. Immunophenotyping PB has been done with Tcell Tcell helper cells and cytoxiccell all low.. L22 L14 L7 B cells High 64 66
Stew64
in
CLL Support
2 years ago
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My MD Anderson doctor is leaving
I received a letter on Saturday that my oncologist at MD Anderson, Dr. Philip Thompson, is leaving effective January 3, 2023. Nooooooooo! Dr. Thompson is originally from Australia and has made the decision to return to Melbourne and join the Low-Grade Lymphoma and CLL group at the Peter MacCallum Cancer
I received a letter on Saturday that my oncologist at MD Anderson, Dr. Philip Thompson, is leaving effective January 3, 2023. Nooooooooo! Dr. Thompson is originally from Australia and has made the decision to return to Melbourne and join the Low-Grade Lymphoma and CLL group at the Peter MacCallum Cancer
Lisa-1959
in
CLL Support
2 years ago
preparing for FET
Hi I’ve started my DR injections and booked in for my first scan on the 28th. This is my first FET. I’ve had three rounds of ivf, getting around 3 eggs at a time. The first round all 3 made it to blastocyst, one fresh transfer ended in a blighted ovum, others not good enough to freeze. Second
Hi I’ve started my DR injections and booked in for my first scan on the 28th. This is my first FET. I’ve had three rounds of ivf, getting around 3 eggs at a time. The first round all 3 made it to blastocyst, one fresh transfer ended in a blighted ovum, others not good enough to freeze. Second
Jokiekin11
in
Fertility Network UK
2 years ago
flu jab query
does anyone know if you can have the flu jab if you have a cough and cold ?
does anyone know if you can have the flu jab if you have a cough and cold ?
Electricblue1
in
Atrial Fibrillation Support
2 years ago
Our 2022 Christmas Donations Appeal Will you help us to reach and support more CLL patients this Christmas?
This year has been another difficult year for everyone, especially for the vulnerable and the charities that support them, like CLL Support UK, the charity of which HealthUnlocked CLL Support is the online support presence.
We know that this
Christmas
may be more relaxed than the last
This year has been another difficult year for everyone, especially for the vulnerable and the charities that support them, like CLL Support UK, the charity of which HealthUnlocked CLL Support is the online support presence.
We know that this
Christmas
may be more relaxed than the last
AussieNeil
Partner
in
CLL Support
2 years ago
Shingles and GCA
Hi good people I’m curious to know if anybody here has after being diagnosed with GCA which I’m on 40mg pred, then after a few months ends up with shingles in my head, left side of face, I’ve now had shingles for a 4th week and really struggling with the pain. It’s so difficult to distinguish between
Hi good people I’m curious to know if anybody here has after being diagnosed with GCA which I’m on 40mg pred, then after a few months ends up with shingles in my head, left side of face, I’ve now had shingles for a 4th week and really struggling with the pain. It’s so difficult to distinguish between
WHL67
in
PMRGCAuk
2 years ago
Liver Transplant first then kidney transplant after recovery
My husband has stage 4 CKD and liver cirrhosis and diabetes 2. Yesterday we had a meeting at the hospital with a professor from the transplant team in Birmingham. He has confirmed my husband needs a kidney and liver transplant due to uncontrollable hepatic encephalopathy If after all the health checks
My husband has stage 4 CKD and liver cirrhosis and diabetes 2. Yesterday we had a meeting at the hospital with a professor from the transplant team in Birmingham. He has confirmed my husband needs a kidney and liver transplant due to uncontrollable hepatic encephalopathy If after all the health checks
Canttakemyeyesoffyou
in
British Liver Trust
2 years ago
Ectopic pregnancy help please - super freaking out! 😞
I’m (at the moment) experiencing a PUL as too early/hcg too low to pick up on ultrasound. Dr advised that I “wait to see what happens” … I go back tomorrow for another US (though they still aren’t confident they’ll see anything as hcg hardly risen) She then talked about non intervention management
I’m (at the moment) experiencing a PUL as too early/hcg too low to pick up on ultrasound. Dr advised that I “wait to see what happens” … I go back tomorrow for another US (though they still aren’t confident they’ll see anything as hcg hardly risen) She then talked about non intervention management
Hidden
in
Fertility Network UK
2 years ago
Symbicort and sinusitis
My Symbicort has been raised to 200/6 from 100 but while this has improved my asthma I have terrible sinusitis and post nasal drip. I looked at the side effects and this is one. Wondering if this has happened to anyone else?
My Symbicort has been raised to 200/6 from 100 but while this has improved my asthma I have terrible sinusitis and post nasal drip. I looked at the side effects and this is one. Wondering if this has happened to anyone else?
Lynneypin
in
Lung Conditions Community Forum
2 years ago
symbicort and sinusitis
My Symbicort has been raised to 200/6 from 100 but while this has improved my asthma I have terrible sinusitis and post nasal drip. I looked at the side effects and this is one. Wondering if this has happened to anyone else?
My Symbicort has been raised to 200/6 from 100 but while this has improved my asthma I have terrible sinusitis and post nasal drip. I looked at the side effects and this is one. Wondering if this has happened to anyone else?
Lynneypin
in
Asthma Community Forum
2 years ago
Shingles vaccination when on Prednisone
Is I’d OK to have a Shingles jab if I am 76 and have PMR and on 8mg Prednisone per day?
Is I’d OK to have a Shingles jab if I am 76 and have PMR and on 8mg Prednisone per day?
Greengarth
in
PMRGCAuk
2 years ago
World Pneumonia Day
Good morning everyone, hope your Monday is going OK. Saturday was World Pneumonia Day and I have added an article from our blog about Jardine, one of our ALUK supporters and her experiences of pneumonia, plus a link to the information on our website. As ever call us if you have any questions or need
Good morning everyone, hope your Monday is going OK. Saturday was World Pneumonia Day and I have added an article from our blog about Jardine, one of our ALUK supporters and her experiences of pneumonia, plus a link to the information on our website. As ever call us if you have any questions or need
Debs_ALUK
British Lung Foundation
in
Lung Conditions Community Forum
2 years ago
HCG only went up by 24 in 72hrs. Now a wait for the inevitable…
Not looking for any glimmer of hope, just wanted to write down my frustrations to an audience that can sympathise. This ivf journey is just awful. We have to go through so much and most of the time just carry on as normal to those around us. Round (4 and our last attempt) and I finally got a bfp
Not looking for any glimmer of hope, just wanted to write down my frustrations to an audience that can sympathise. This ivf journey is just awful. We have to go through so much and most of the time just carry on as normal to those around us. Round (4 and our last attempt) and I finally got a bfp
Hidden
in
Fertility Network UK
2 years ago
When to have the jab.
Three weeks ago I had a mild heart attack. I also had pneumonia. Will I be able to have the flu jab this year & how long after my heart attack? Also would it be a good idea to have the pneumonia jab.
Three weeks ago I had a mild heart attack. I also had pneumonia. Will I be able to have the flu jab this year & how long after my heart attack? Also would it be a good idea to have the pneumonia jab.
caroli123
in
PMRGCAuk
2 years ago
Passing it on.
I was wondering if leukaemia can be hereditary. I was diagnosed with CLL 3 years ago, my wife died from AML and the thought of my children being susceptible crossed my mind. I did ask Doctor Google the question but it seems the jury is out on that subject.
I was wondering if leukaemia can be hereditary. I was diagnosed with CLL 3 years ago, my wife died from AML and the thought of my children being susceptible crossed my mind. I did ask Doctor Google the question but it seems the jury is out on that subject.
Bigglesworth
in
CLL Support
2 years ago
test interpretation
I have a rather long summary page from my flow cytrometry test and I understand none of it. Can someone here please help? translate to common language I can understand? I apologize if this is not the right thing to post. I had to push to get the test done as within this past year my lymphocytes and white
I have a rather long summary page from my flow cytrometry test and I understand none of it. Can someone here please help? translate to common language I can understand? I apologize if this is not the right thing to post. I had to push to get the test done as within this past year my lymphocytes and white
DianeSH
in
CLL Support
2 years ago
*Sensitive* OTD and it's a BFP.
Cant quite believe it. I'm 14dp6dt and we got our very first BFP. It felt like a particularly difficult build up this time as it took us a year to even get to point of a transfer (I suddenly developed thyroiditis last year then I had covid etc). It was PGTA tested embryo and this time I was on 10mg
Cant quite believe it. I'm 14dp6dt and we got our very first BFP. It felt like a particularly difficult build up this time as it took us a year to even get to point of a transfer (I suddenly developed thyroiditis last year then I had covid etc). It was PGTA tested embryo and this time I was on 10mg
Haf05
in
Fertility Network UK
2 years ago
A diet for CLL
Dear friends, I hope you are staying well. Last week I ate fruit with vitamine C, I exagerated with quantity and felt really bad. My lymph nodes were swallen and I felt very big fatigue. I m still on watch and wait (I was diagnosed with Cll in January 2018) and I wish to stay on it as long
Dear friends, I hope you are staying well. Last week I ate fruit with vitamine C, I exagerated with quantity and felt really bad. My lymph nodes were swallen and I felt very big fatigue. I m still on watch and wait (I was diagnosed with Cll in January 2018) and I wish to stay on it as long
Lela1212
in
CLL Support
2 years ago
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