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Wife getting MMR vaccine booster - isolate or not?
I'm an SLL patient, 55 years old, now about 2.5 years into remission after 6 FCR treatments. I just recovered from a recent (and thankfully mild) bout of shingles. My shingles was so mild that my GP wasn't convinced it actually was shingles! She had me tested for herpes zoster antibodies, and for good
I'm an SLL patient, 55 years old, now about 2.5 years into remission after 6 FCR treatments. I just recovered from a recent (and thankfully mild) bout of shingles. My shingles was so mild that my GP wasn't convinced it actually was shingles! She had me tested for herpes zoster antibodies, and for good
xpro3
in
CLL Support
7 months ago
Inhaler post pneumonia, awaiting lung scarring diagnosis?
Hi first time posting - hoping someone can help! I’m basically after some advice in knowing when to ask for an inhaler. 40 y old female fit and healthy until last September when I got severe pneumonia. One lung was a white out with atelectasis (bits inside the lung dying; they’re still dead) and the
Hi first time posting - hoping someone can help! I’m basically after some advice in knowing when to ask for an inhaler. 40 y old female fit and healthy until last September when I got severe pneumonia. One lung was a white out with atelectasis (bits inside the lung dying; they’re still dead) and the
SirCoughalot
in
Lung Conditions Community Forum
7 months ago
Saw Cardiologist today, now more anxious than ever.
Hi Everyone Thank you all for your lovely replies to my original post. I saw the cardiologist today and he says he thinks my PH is primarily caused by my asthma/COPD. He didn't put me on any medications at this stage. He wants an ultra sound done on my heart in September [[2 months away!] to compare
Hi Everyone Thank you all for your lovely replies to my original post. I saw the cardiologist today and he says he thinks my PH is primarily caused by my asthma/COPD. He didn't put me on any medications at this stage. He wants an ultra sound done on my heart in September [[2 months away!] to compare
puddy68
in
Lung Conditions Community Forum
3 months ago
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covid afibs???/
I had covid in September of 2023 and soon thereafter developed a fibs, which I have never had in my life! I am 69. My question is this: Has this happened to anyone else and did they eventually go away, or is it a permanent thing?
I had covid in September of 2023 and soon thereafter developed a fibs, which I have never had in my life! I am 69. My question is this: Has this happened to anyone else and did they eventually go away, or is it a permanent thing?
peachtreepiggy
in
Atrial Fibrillation Support
7 months ago
Cold Turkey
Hello Everyone, What happens if i just "Cold Turkey" Stop the 6.5 mg of methylprednisolone? I'm so sick of it all. I've gotten very low on meds (even zero for a few days) and the pain and stiffness return so bad i can't function. If i just quit, what's the worst that can happen?
Hello Everyone, What happens if i just "Cold Turkey" Stop the 6.5 mg of methylprednisolone? I'm so sick of it all. I've gotten very low on meds (even zero for a few days) and the pain and stiffness return so bad i can't function. If i just quit, what's the worst that can happen?
ifeelold
in
PMRGCAuk
3 months ago
Covid vaccine
I am going to put it out there . Did anyone get ill with encephalitis after taking the Covid vaccine? This has been something that has been playing in my mind for a while My mom was in later 60s in good health and active before having the vaccine.
I am going to put it out there . Did anyone get ill with encephalitis after taking the Covid vaccine? This has been something that has been playing in my mind for a while My mom was in later 60s in good health and active before having the vaccine.
GIL910
in
Encephalitis International
7 months ago
PEG vs Aspirational Pneumonia
Mum has reached a new point in her illness and food intake is now causing her to be sick on occasion which is ultimately leading to seizures and a risk of choking. We have been told the only way to ultimately stop this is via a peg or accept that this will eventually lead to her choking getting pneumonia
Mum has reached a new point in her illness and food intake is now causing her to be sick on occasion which is ultimately leading to seizures and a risk of choking. We have been told the only way to ultimately stop this is via a peg or accept that this will eventually lead to her choking getting pneumonia
bichonbear1
in
PSP Association
3 months ago
touched a nerve
Hi you wonderful people. I’m overwhelmed by your responses and support resulting from my recent post concerning doctors refusal to prescribe Buprenorphine and it’s moved me m ok re than I can say but I think it’s time to close it down now, I didn’t realise I had poked a hornets 🐝 nest and but realise
Hi you wonderful people. I’m overwhelmed by your responses and support resulting from my recent post concerning doctors refusal to prescribe Buprenorphine and it’s moved me m ok re than I can say but I think it’s time to close it down now, I didn’t realise I had poked a hornets 🐝 nest and but realise
HipHop1972
in
Restless Legs Syndrome
6 months ago
Cough
Hi I was in itu intubated but now when I eat I cough and sometimes feels like food gets stuck. Has anyone had this?
Hi I was in itu intubated but now when I eat I cough and sometimes feels like food gets stuck. Has anyone had this?
Tjspindat
in
ICUsteps
3 months ago
Paxlovid for “mild” COVID?
hello all. Just wondering what your experiences have been regarding taking Paxlovid. I realize you can’t advise but I would love to hear from fellow immune suppressed types like me. I have taken it before but when I had it last year I felt pretty bad and taking the Paxlovid was a no brainer. This time
hello all. Just wondering what your experiences have been regarding taking Paxlovid. I realize you can’t advise but I would love to hear from fellow immune suppressed types like me. I have taken it before but when I had it last year I felt pretty bad and taking the Paxlovid was a no brainer. This time
Bon1
in
NRAS
7 months ago
Back to square one
Hi, I first started having coughing problems back in November 2022 when I caught what I thought was just a bad cold or covid, I was getting phlegm stuck in my airways which was tough to get out when coughing, and sometimes I struggled to breath. Sometimes to the point where I actually cried because
Hi, I first started having coughing problems back in November 2022 when I caught what I thought was just a bad cold or covid, I was getting phlegm stuck in my airways which was tough to get out when coughing, and sometimes I struggled to breath. Sometimes to the point where I actually cried because
amygx25
in
Asthma Community Forum
7 months ago
Lymphedema & Knee bursitis
I have Inflammatory arthritis, Sjogren's and OA. I have been on Methotrexate and Imraldi since 2017, before that I was on Benepali. I have had a new hip in 2017 and I also suffered with my knees which despite many steroid injections they are no longer having any effect. I saw my rheumatologist
I have Inflammatory arthritis, Sjogren's and OA. I have been on Methotrexate and Imraldi since 2017, before that I was on Benepali. I have had a new hip in 2017 and I also suffered with my knees which despite many steroid injections they are no longer having any effect. I saw my rheumatologist
Bailybiscuit
in
NRAS
8 months ago
possible asthma after chest infection not treated
In feb I had a chest infection and sinusitis I had antibiotics for the sinusitis but not the chest infection anyway since then I’ve had this cough where I’m nearly sick I’ve pulled muscles the lot. It’s a non productive cough and sounds like I’m barking. I visited the doctor and they’ve prescribed a
In feb I had a chest infection and sinusitis I had antibiotics for the sinusitis but not the chest infection anyway since then I’ve had this cough where I’m nearly sick I’ve pulled muscles the lot. It’s a non productive cough and sounds like I’m barking. I visited the doctor and they’ve prescribed a
Samapril26
in
Asthma Community Forum
4 months ago
Hip Replacement while on treatment??
My husband, who is in a Clinical Trial at MDA for Richter's, needs a hip replacement badly - such that his severe arthritis is a bigger deal to his quality of life than the Richter's. He saw an orthopedic pain management specialist last week who had nothing to offer, stating that a steroid injection
My husband, who is in a Clinical Trial at MDA for Richter's, needs a hip replacement badly - such that his severe arthritis is a bigger deal to his quality of life than the Richter's. He saw an orthopedic pain management specialist last week who had nothing to offer, stating that a steroid injection
laurieq
in
CLL Support
8 months ago
Pegasys is applying for formal approval in MPN treatment
Dear friends, I came across a EMA document recently and found that Pegasys is applying for indication extension to PV and ET. It provides, on page 53: “Grouped application consisting of: Extension of indication to include treatment of Polycythaemia Vera (PV) and Essential thrombocytopenia (ET) for
Dear friends, I came across a EMA document recently and found that Pegasys is applying for indication extension to PV and ET. It provides, on page 53: “Grouped application consisting of: Extension of indication to include treatment of Polycythaemia Vera (PV) and Essential thrombocytopenia (ET) for
TimothyHLuff
in
MPN Voice
9 months ago
GCA and Cough/Interstitial Lung Disease?
Does anyone with GCA have a dry, sometimes productive, cough? It feels like a bronchial irritation and I cough more when I speak. The cough comes and goes. I read that it is an uncommon symptom of GCA. TB has been ruled out. Chest x-rays show opacities in the base of my lungs. The cough occurs
Does anyone with GCA have a dry, sometimes productive, cough? It feels like a bronchial irritation and I cough more when I speak. The cough comes and goes. I read that it is an uncommon symptom of GCA. TB has been ruled out. Chest x-rays show opacities in the base of my lungs. The cough occurs
Moaningxcat
in
PMRGCAuk
3 months ago
i do not know
I take spiriva i have that cough dont know what it is if you read the meds its like may cause asthma coughimg??????????? Things are improving feel better but can break out in cough Ger
I take spiriva i have that cough dont know what it is if you read the meds its like may cause asthma coughimg??????????? Things are improving feel better but can break out in cough Ger
picboy
in
Asthma Community Forum
3 months ago
Mumps contact 😷
Hi Peeps 🙂 I hope this post finds you as well as can be 🫠 I am writing to ask about contact with mumps. I have RA and my main meds are Tocilizumab (injection), Methotrexate (injection) and Sulphasalazine. Do I have to be particularly careful that I do not come in contact with a child who possibly has
Hi Peeps 🙂 I hope this post finds you as well as can be 🫠 I am writing to ask about contact with mumps. I have RA and my main meds are Tocilizumab (injection), Methotrexate (injection) and Sulphasalazine. Do I have to be particularly careful that I do not come in contact with a child who possibly has
Moomin8
in
NRAS
9 months ago
COVID-19
Been battling Covid for 17 days. I am negative but have a lot of physical issues achy big time. Always exhausted. No motivation. Starting to take a toll on me mentally. Doctor says that sometimes it takes weeks or months to get rid of everything. I hate feeling like this
Been battling Covid for 17 days. I am negative but have a lot of physical issues achy big time. Always exhausted. No motivation. Starting to take a toll on me mentally. Doctor says that sometimes it takes weeks or months to get rid of everything. I hate feeling like this
Trainchaser
in
Anxiety and Depression Support
8 months ago
COVID & sulfasalazine?
After all these years hubby has passed COVID to me! Contacted GP, they have referred me to respiratory@home still waiting for them to call. Question is do I keep taking sulfasalazine.? I've called my Rheumy helpline but they've not got back to me and I've looked on here but can't find anything saying
After all these years hubby has passed COVID to me! Contacted GP, they have referred me to respiratory@home still waiting for them to call. Question is do I keep taking sulfasalazine.? I've called my Rheumy helpline but they've not got back to me and I've looked on here but can't find anything saying
Haz58
in
NRAS
8 months ago
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