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Myopic macular degeneration
Hi all. After treatment (18 months and 10 Lucentis injections) for what I’d assumed was ‘age related’ MD, a consultant today told me, no, it was ‘myopic’ MD. I’ve always (since teens) been extremely short sighted so maybe no surprise there. Has anyone else been diagnosed with ‘myopic’ MD and, if so
Hi all. After treatment (18 months and 10 Lucentis injections) for what I’d assumed was ‘age related’ MD, a consultant today told me, no, it was ‘myopic’ MD. I’ve always (since teens) been extremely short sighted so maybe no surprise there. Has anyone else been diagnosed with ‘myopic’ MD and, if so
Fuzzbox100
in
Macular Society
2 years ago
What's this in my RPE after Eyleas injections?
Had CNV/AMD in left eye 2016, didn't know if I could hold still for injections, hence no central vision in that eye. CNV/AMD started in right eye in January 2018. No choice about going for injections. Had injections until March 2020 when oedema stopped. The small bump in my RPE, as in the first of my
Had CNV/AMD in left eye 2016, didn't know if I could hold still for injections, hence no central vision in that eye. CNV/AMD started in right eye in January 2018. No choice about going for injections. Had injections until March 2020 when oedema stopped. The small bump in my RPE, as in the first of my
ironbrain
in
Macular Society
2 years ago
sensitive feet?
Does anyone else have really sensitive feet.?It's happened this last year. It hurts to wear shoes. The softest shoes cause bruises or blisters after just a short while. I don't know if this is just a new issue from lupus/sjogrens or from taking hydroxy or pilocarpine. I'm early fifties so it can't
Does anyone else have really sensitive feet.?It's happened this last year. It hurts to wear shoes. The softest shoes cause bruises or blisters after just a short while. I don't know if this is just a new issue from lupus/sjogrens or from taking hydroxy or pilocarpine. I'm early fifties so it can't
dg70
in
LUPUS UK
2 years ago
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Prednisone and CSR - wondering about the connection
Hello - I have had PMR almost two years currently at 6mg of Pred. A year ago I was diagnosed with CSR central serous retinopathy and was told its common in type A people and will go away in six months.... well didn't go away went to retina specialist who gave me a shot which seemed to help but he mentioned
Hello - I have had PMR almost two years currently at 6mg of Pred. A year ago I was diagnosed with CSR central serous retinopathy and was told its common in type A people and will go away in six months.... well didn't go away went to retina specialist who gave me a shot which seemed to help but he mentioned
Sunnyday365
in
PMRGCAuk
2 years ago
Connecting with someone with similar diagnoses
I am wanting to connect with anyone who has been diagnosed with both generalised Complex Regional Pain Syndrome and Primary Sjogren's Syndrome
I am wanting to connect with anyone who has been diagnosed with both generalised Complex Regional Pain Syndrome and Primary Sjogren's Syndrome
Led_zepplin
in
The Australian Sjögren's Syndrome Association
2 years ago
Dangers of treatment for mild symptoms
Hello all. My PET scan showed evidence of PMR and my rheumatologist wants me to go onto steroids although I have very little pain or stiffness at present. This is to guard against GCA. If I understood her correctly the options include local injections and Depo Medrone. The rheumatologist also mentioned
Hello all. My PET scan showed evidence of PMR and my rheumatologist wants me to go onto steroids although I have very little pain or stiffness at present. This is to guard against GCA. If I understood her correctly the options include local injections and Depo Medrone. The rheumatologist also mentioned
Donaloge
in
PMRGCAuk
2 years ago
Deteriorating eyesight...........
Hi everyone, I had my first anti VEGF injection this morning, it was s anxious about it, but it was better than I expected. I have a medium to large static black blob ( lower left eye) and a feeling of a foreign body/grit in injection area, runny left nostriltoo, my eye is getting very sore.. It's the
Hi everyone, I had my first anti VEGF injection this morning, it was s anxious about it, but it was better than I expected. I have a medium to large static black blob ( lower left eye) and a feeling of a foreign body/grit in injection area, runny left nostriltoo, my eye is getting very sore.. It's the
Hidden
in
Macular Society
2 years ago
Comparing two INFs
This is mostly for science nerds, a comparison of the old PEG-Intron (no longer available) to Pegasys, shedding some light on what the Besremi guys are doing with longer dosing intervals. --- A 2004 report in context of hepatitis therapy: https://onlinelibrary.wiley.com/doi/full/10.1111/j.1365-2036.2004.02170
This is mostly for science nerds, a comparison of the old PEG-Intron (no longer available) to Pegasys, shedding some light on what the Besremi guys are doing with longer dosing intervals. --- A 2004 report in context of hepatitis therapy: https://onlinelibrary.wiley.com/doi/full/10.1111/j.1365-2036.2004.02170
EPguy
in
MPN Voice
2 years ago
A recent review of the failings of the currently held model for thyroid treatment
I don't think I've already posted this. This review again sets out the failings of the TSH-T4 dominated model of thyroid therapy and treatment. Open to download Endocrine https://doi.org/10.1007/s12020-021-02851-6 VIEWPOINT Thyroid testing paradigm switch from thyrotropin to thyroidhormones—Future
I don't think I've already posted this. This review again sets out the failings of the TSH-T4 dominated model of thyroid therapy and treatment. Open to download Endocrine https://doi.org/10.1007/s12020-021-02851-6 VIEWPOINT Thyroid testing paradigm switch from thyrotropin to thyroidhormones—Future
diogenes
in
Thyroid UK
2 years ago
Blepharitis and infections
since being on 2 lots of combination drops for my eye pressure I it has reduced . But also dry eye worsened , developed blepharitis now and had to have steroid drops for infection a few time. Is this something others have also experienced? It’s getting me down as a few month don’t seem to go by before
since being on 2 lots of combination drops for my eye pressure I it has reduced . But also dry eye worsened , developed blepharitis now and had to have steroid drops for infection a few time. Is this something others have also experienced? It’s getting me down as a few month don’t seem to go by before
Sufitzy
in
Glaucoma UK
2 years ago
Eye exercises to reduce pressure
Hi everyone, Do any of you do any eye exercises to reduce your eye pressures? I've done some research and found some videos on YouTube about exercises you can do to reduce your eye pressure. Link below: https://www.youtube.com/watch?v=lGWcku_hmGY I've recently been diagnosed with glaucoma
Hi everyone, Do any of you do any eye exercises to reduce your eye pressures? I've done some research and found some videos on YouTube about exercises you can do to reduce your eye pressure. Link below: https://www.youtube.com/watch?v=lGWcku_hmGY I've recently been diagnosed with glaucoma
Mimesy
in
Glaucoma UK
2 years ago
Newly diagnosed
Hello, I am 31 and was diagnosed with glaucoma 1 month ago. Ever since then I have been on Monopost glaucoma drops once a day. This week, I have noticed my left eyelid has been twitching at random points throughout the day. It doesn't hurt, it's just a bit annoying. Do you think this is normal or
Hello, I am 31 and was diagnosed with glaucoma 1 month ago. Ever since then I have been on Monopost glaucoma drops once a day. This week, I have noticed my left eyelid has been twitching at random points throughout the day. It doesn't hurt, it's just a bit annoying. Do you think this is normal or
Mimesy
in
Glaucoma UK
2 years ago
Eye Pain
Hi everyone, I am feeling abit sorry for myself, yesterday I had my six injection in my left eye and my third loading injection in my right eye, apart from suddenly feeling very very painful pressure while having the jab, I developed a really painful right eye, it felt as if my eye was on fire, it
Hi everyone, I am feeling abit sorry for myself, yesterday I had my six injection in my left eye and my third loading injection in my right eye, apart from suddenly feeling very very painful pressure while having the jab, I developed a really painful right eye, it felt as if my eye was on fire, it
NettRoy
in
Macular Society
2 years ago
Is one telangiactasia worth mentioning??
Me again! With yet another skin-related question… Whilst waiting on my next rheumatology date, and for a dermatology appointment which will be in the interim, I have been keeping an eye out for any new signs. I know that the hands often give clues around CTD. I’ve just noticed what I think is a
Me again! With yet another skin-related question… Whilst waiting on my next rheumatology date, and for a dermatology appointment which will be in the interim, I have been keeping an eye out for any new signs. I know that the hands often give clues around CTD. I’ve just noticed what I think is a
Winter_night
in
LUPUS UK
2 years ago
Eye Drops
Hi this is the second time my mum has had closed angle glaucoma. She’s been on a lot of eye drops but is now down to just pilocarpine four times a day. The problem she has is that they sting and burn uncontrollably. She’s tried the preservative free ones and is also taking dry eye drops. The specialist
Hi this is the second time my mum has had closed angle glaucoma. She’s been on a lot of eye drops but is now down to just pilocarpine four times a day. The problem she has is that they sting and burn uncontrollably. She’s tried the preservative free ones and is also taking dry eye drops. The specialist
Glos35
in
Glaucoma UK
2 years ago
Just received the full copy of my blood test where I can see my TSI
My TSI is 1.20 (0.00 - 2.00) Does it mean that I ddi not have Graves and RAI is not right treatment for me? Thank you very much for your opinions.
My TSI is 1.20 (0.00 - 2.00) Does it mean that I ddi not have Graves and RAI is not right treatment for me? Thank you very much for your opinions.
femme12000
in
Thyroid UK
2 years ago
dry eyes
hi can ,anyone suggest a good eye drop for dry eyes ,at the moment I use celluvisc that doesn't seem to help much I'm ,looking to hear of a better one
hi can ,anyone suggest a good eye drop for dry eyes ,at the moment I use celluvisc that doesn't seem to help much I'm ,looking to hear of a better one
Alice70
in
Thyroid UK
2 years ago
eye injections
Hello all I just had my 5 eye injection for wet AMD and this is the first time I ended up with a pretty good eye bleed but no pain, my question is it safe to use artificial tears for dry eye that I have. Waiting for the doc to return my call but in the meantime has anybody used artificial tears with
Hello all I just had my 5 eye injection for wet AMD and this is the first time I ended up with a pretty good eye bleed but no pain, my question is it safe to use artificial tears for dry eye that I have. Waiting for the doc to return my call but in the meantime has anybody used artificial tears with
Jakeone4
in
Macular Society
2 years ago
Uveitis after covid
As you may have read previously I had covid last very mild so didn't need treatment and I'm fine now .but on day 3 of covid I got blurry vision bin one eye ,phoned GP and told to monitor blood pressure etc . Yesterday it was still blurry but after doing some exercise it got much worse like a thick fog
As you may have read previously I had covid last very mild so didn't need treatment and I'm fine now .but on day 3 of covid I got blurry vision bin one eye ,phoned GP and told to monitor blood pressure etc . Yesterday it was still blurry but after doing some exercise it got much worse like a thick fog
cartwheels
in
CLL Support
2 years ago
Sport and myopic cnv
Hi all, I think I have read something on here about sport but I can’t seem to find it again. I have been diagnosed with myopic cnv and wondered if there was any advice about what sport I can do and any I should avoid? My consultant (who has been great) was a bit hesitant with his answer and said as
Hi all, I think I have read something on here about sport but I can’t seem to find it again. I have been diagnosed with myopic cnv and wondered if there was any advice about what sport I can do and any I should avoid? My consultant (who has been great) was a bit hesitant with his answer and said as
Anagramme
in
Macular Society
2 years ago
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