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Doccla Home Monitoring
Hi All Its been a while since I last posted but basically my AF kicked in again over a year ago and it was problematic, after swapping and changing my medication i am now on amiodarone which seems to be keeping it under control but I'm told this is not a long term fix because of the side affects of
Hi All Its been a while since I last posted but basically my AF kicked in again over a year ago and it was problematic, after swapping and changing my medication i am now on amiodarone which seems to be keeping it under control but I'm told this is not a long term fix because of the side affects of
Bauldy
in
Atrial Fibrillation Support
25 days ago
Afib and Bone density supplements
I have had afib for about four years now. My latest bone density test shows osteoporosis. My primary wants me to take Prolia or some other prescription medication. My research indicates "causes arrhyhtmia" as the number one side effect. Clearly a problem for me. I have looked at several bone density
I have had afib for about four years now. My latest bone density test shows osteoporosis. My primary wants me to take Prolia or some other prescription medication. My research indicates "causes arrhyhtmia" as the number one side effect. Clearly a problem for me. I have looked at several bone density
ijregner
in
Atrial Fibrillation Support
25 days ago
Rheumatoid arthritis
Hi I'm on prednisone and leflunomide vid d and jyseleca I have come up with a high temp and a fever, please tell me can I take any pain killers my body is killing me
Hi I'm on prednisone and leflunomide vid d and jyseleca I have come up with a high temp and a fever, please tell me can I take any pain killers my body is killing me
Alisa123
in
NRAS
3 months ago
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I had an appointment yesterday to discuss results of recent echo. Was seen by a specialist (can’t remember official title) who is a level below cardiologist - apparently does all the ground work and liases with cardiologist. He advised that as well as afib, I now have 2 slightly leaky valves and also
I had an appointment yesterday to discuss results of recent echo. Was seen by a specialist (can’t remember official title) who is a level below cardiologist - apparently does all the ground work and liases with cardiologist. He advised that as well as afib, I now have 2 slightly leaky valves and also
Puzzled8
in
Atrial Fibrillation Support
25 days ago
How maternal lupus affects the child
All moms, please fill out this survey. It won't take long and you'll be the part of a research aimed at determining how maternal lupus may be related to the development of allergies in the child.Your help will be very appreciated. Thank you! ☺ https://forms.gle/kRVd79WSpzA6Gf3n9
All moms, please fill out this survey. It won't take long and you'll be the part of a research aimed at determining how maternal lupus may be related to the development of allergies in the child.Your help will be very appreciated. Thank you! ☺ https://forms.gle/kRVd79WSpzA6Gf3n9
gabriele_klim
in
LUPUS UK
3 months ago
Is it harmful if you have an autoimmune disease and take Low Dose Naltrexone (LDN) twice a day?
Is it harmful if you have an autoimmune disease and take Low Dose Naltrexone (LDN) twice a day? Answered by Michelle Kilmer Moser RPh https://youtu.be/Wtr69oDmM7Q
Is it harmful if you have an autoimmune disease and take Low Dose Naltrexone (LDN) twice a day? Answered by Michelle Kilmer Moser RPh https://youtu.be/Wtr69oDmM7Q
Shewulf
Administrator
in
LDN Research Trust
3 months ago
Restless Leg - Interesting Article
Article says iron is not getting across the BBB. Wonder if helps with PD.
They are trying to sell, but Interesting . I already take some of the things mentioned. Says I need Lactobacillus plantarum 299. My probiotic has Lactobacillus plantarum but does not state 299. The article has links, but
Article says iron is not getting across the BBB. Wonder if helps with PD.
They are trying to sell, but Interesting . I already take some of the things mentioned. Says I need Lactobacillus plantarum 299. My probiotic has Lactobacillus plantarum but does not state 299. The article has links, but
Gcf51
in
Cure Parkinson's
6 months ago
cardiologist appointment
hello I went to see cardiologist today , was told no af , have tachycardia sinus rhythm , realy wanted some help with my meds as making me unwell , I’m now on bisop 2.5 twice per day , and can take flec if I want to I realy would like to take it but makes me feel very unwell , said I could take 50
hello I went to see cardiologist today , was told no af , have tachycardia sinus rhythm , realy wanted some help with my meds as making me unwell , I’m now on bisop 2.5 twice per day , and can take flec if I want to I realy would like to take it but makes me feel very unwell , said I could take 50
Prosecco1997
in
Atrial Fibrillation Support
27 days ago
APS and Panic Attacks
Hi, I have been living with the diagnosis of APS since 2017 after a mini-stroke in my left eye, which fortunately left no damage. Recently, I switched from aspirin to warfarin after possibly experiencing another mini-stroke, though this hasn't been confirmed by tests. Sometimes, I feel dizzy, short
Hi, I have been living with the diagnosis of APS since 2017 after a mini-stroke in my left eye, which fortunately left no damage. Recently, I switched from aspirin to warfarin after possibly experiencing another mini-stroke, though this hasn't been confirmed by tests. Sometimes, I feel dizzy, short
Alessandra001
in
Hughes Syndrome APS Forum
27 days ago
Holidays
Hi all I'm going away for 6 weeks to france so I'm stocking up on meds. My question is how long can you go without apixaban in an emergency as I'm on 2 a day. Also on a small dose of bisop once a day. This is my first time away in a year since my stroke last July and a bit nervous 😓 Thank you
Hi all I'm going away for 6 weeks to france so I'm stocking up on meds. My question is how long can you go without apixaban in an emergency as I'm on 2 a day. Also on a small dose of bisop once a day. This is my first time away in a year since my stroke last July and a bit nervous 😓 Thank you
TillyBoss
in
Atrial Fibrillation Support
27 days ago
SteveN
I am posting this here because the site won’t let me do anything else! I wanted to know if there are any Lyme disease sufferers on here, or any with ADHD/Autism? I am a Lyme disease sufferer and have spent about the last 5 years trying to test a theory about finding/engineering a treatment or cure.
I am posting this here because the site won’t let me do anything else! I wanted to know if there are any Lyme disease sufferers on here, or any with ADHD/Autism? I am a Lyme disease sufferer and have spent about the last 5 years trying to test a theory about finding/engineering a treatment or cure.
Weavernat
in
Pernicious Anaemia Society
6 months ago
Stomach rumbling growling and pain
Hi, i have a lot of stomach growling and rumbling which is extremely loud and can be heard from far away. People have commented on hearing a lot of noise and it makes me uncomfortable. I also get a lot of pain. The rumbling/growling happens most of the day and last quite a long time between intervals
Hi, i have a lot of stomach growling and rumbling which is extremely loud and can be heard from far away. People have commented on hearing a lot of noise and it makes me uncomfortable. I also get a lot of pain. The rumbling/growling happens most of the day and last quite a long time between intervals
spiderman5674
in
IBS Network
6 months ago
2nd Ablation woes
Hi I had a second ablation 2 weeks ago today. Everything went well and I felt happy and optimistic. Then a few days ago I went back into Af with an erractic heartbeat that is still continuing. Spoke to Arrythmia nurse and she advised this is quite common and I might need a cardioversion in 6 weeks after
Hi I had a second ablation 2 weeks ago today. Everything went well and I felt happy and optimistic. Then a few days ago I went back into Af with an erractic heartbeat that is still continuing. Spoke to Arrythmia nurse and she advised this is quite common and I might need a cardioversion in 6 weeks after
Twizzle1962
in
Atrial Fibrillation Support
29 days ago
Flecainide before Cardioversion
My EP's plan was to have me start on Flecainide and then have Cardioversion in hopes that my heart would keep rhythm. EP changed his mind because my INR was below threshold and told me to not take it until AFTER the CV in case the med converted my heart. I was instructed to have an ECG done 2 days
My EP's plan was to have me start on Flecainide and then have Cardioversion in hopes that my heart would keep rhythm. EP changed his mind because my INR was below threshold and told me to not take it until AFTER the CV in case the med converted my heart. I was instructed to have an ECG done 2 days
Siebertgirl
in
Atrial Fibrillation Support
30 days ago
Excruciating jaw pain
Over the past week, pain in my jaw has been getting worse. It’s now excruciating at times. It’s not there all the time but does often coincide with eating. Had a thorough dental examination and no sign of infection or necrosis (from Zometa). I’m taking cocodamol but it’s not enough. Any similar experiences
Over the past week, pain in my jaw has been getting worse. It’s now excruciating at times. It’s not there all the time but does often coincide with eating. Had a thorough dental examination and no sign of infection or necrosis (from Zometa). I’m taking cocodamol but it’s not enough. Any similar experiences
FortyWinks
in
Advanced Prostate Cancer
30 days ago
Vasculitis (especially CNS/cerebral) and incontinence
I was helping another cerebral/CNS vasculitis patient tonight about incontinence. Which can be a common symptom of brain vasculitis, whether a primary CNS/cerebral vasculitis, or secondary brain involvement from a systemic vasculitis like GPA. But vasculitis medics frequently under recognise incontinence
I was helping another cerebral/CNS vasculitis patient tonight about incontinence. Which can be a common symptom of brain vasculitis, whether a primary CNS/cerebral vasculitis, or secondary brain involvement from a systemic vasculitis like GPA. But vasculitis medics frequently under recognise incontinence
vivdunstan
Volunteer
in
Vasculitis UK
30 days ago
Thankyou
Thankyou to everyone for all the replies to my previous post. I have felt anxious because of being newly diagnosed and new to the meds so the replies have helped me greatly. I've still got an echo to come and 48hr ecg and I have the date for the ecg now. Thankyou once again.
Thankyou to everyone for all the replies to my previous post. I have felt anxious because of being newly diagnosed and new to the meds so the replies have helped me greatly. I've still got an echo to come and 48hr ecg and I have the date for the ecg now. Thankyou once again.
Exhiker
in
Atrial Fibrillation Support
30 days ago
iwatch setting - AF history or AF alert?
Prior to my ablation last October I had persistent Afib. Since then I have been in NSR. I have kept my iwatch monitor set to record “AF history” and it has consistently shown AF load to be 2% or under on the weekly notifications. Should I stay on this setting or should I now set it to show alerts the
Prior to my ablation last October I had persistent Afib. Since then I have been in NSR. I have kept my iwatch monitor set to record “AF history” and it has consistently shown AF load to be 2% or under on the weekly notifications. Should I stay on this setting or should I now set it to show alerts the
Rainfern
in
Atrial Fibrillation Support
1 month ago
Weird leg pain
Hi everyone, I'm hoping someone can shed some light on this weird symptom! For almost 10 years now I have had pain in my outer calf about two inches up from my ankle on both sides. It comes on with the slightest exertion but is not there all the time. The achy pain builds and builds until I feel like
Hi everyone, I'm hoping someone can shed some light on this weird symptom! For almost 10 years now I have had pain in my outer calf about two inches up from my ankle on both sides. It comes on with the slightest exertion but is not there all the time. The achy pain builds and builds until I feel like
Womble84
in
Endometriosis UK
1 month ago
May - Vasculitis Awareness Month
May - Day 30 Vasculitis Awareness Month - Large Vessel Vasculitis is rare, can be complex and can be difficult to diagnose as symptoms may confuse the clinicians. Take a moment to read Maxine's story! To donate to VasculitisUK ‘s campaign this month to support patients and research - https://justgiving.com
May - Day 30 Vasculitis Awareness Month - Large Vessel Vasculitis is rare, can be complex and can be difficult to diagnose as symptoms may confuse the clinicians. Take a moment to read Maxine's story! To donate to VasculitisUK ‘s campaign this month to support patients and research - https://justgiving.com
zoe69
Vasculitis UK
in
Vasculitis UK
1 month ago
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