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Carglumic acid
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Diarrhoea saga continued
I've had diarrhoea on and off for over a year. It started after breakfast and stopped around lunch time, not every day, but about 3 days a week. It's been slowly getting more frequent. A month or so ago I spoke to the GP who first diagnosed me with PMR/GCA. She tested me for coeliac and cancer, both
I've had diarrhoea on and off for over a year. It started after breakfast and stopped around lunch time, not every day, but about 3 days a week. It's been slowly getting more frequent. A month or so ago I spoke to the GP who first diagnosed me with PMR/GCA. She tested me for coeliac and cancer, both
Broseley
in
PMRGCAuk
8 months ago
Paper on the design of B12 deficiency treatment protocols
This might be one of the most fascinating papers I've read on B12 deficiency and treatment, with several sections exploring how symptoms relate back to the particular biochemistry processes that go wrong in deficiency. The paper was produced in 2021 for the B12 Institute, Netherlands, a specialist B12
This might be one of the most fascinating papers I've read on B12 deficiency and treatment, with several sections exploring how symptoms relate back to the particular biochemistry processes that go wrong in deficiency. The paper was produced in 2021 for the B12 Institute, Netherlands, a specialist B12
Technoid
in
Pernicious Anaemia Society
8 months ago
Osteopenia and travel insurance
Hi I'm hoping someone can help me! I had a DEXA scan in 2020 and was recommended by GP to take alendronic acid due to osteopenia in my spine. I did some research and declined. Instead, improved my diet, working on exercising more, use a Marodyne Low Intensity Vibration machine and take some supplements
Hi I'm hoping someone can help me! I had a DEXA scan in 2020 and was recommended by GP to take alendronic acid due to osteopenia in my spine. I did some research and declined. Instead, improved my diet, working on exercising more, use a Marodyne Low Intensity Vibration machine and take some supplements
Starsearcher
in
Osteoporosis Support
8 months ago
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supplements to help DA withdrawal
I am wondering if anyone has used natural supplements like amino acids to increase dopamine while tapering off Pramaprexole? I have wondered if it would help with the decrease in dopamine while tapering. Also has anyone used Modafinil with any luck in helping energy and mood?
I am wondering if anyone has used natural supplements like amino acids to increase dopamine while tapering off Pramaprexole? I have wondered if it would help with the decrease in dopamine while tapering. Also has anyone used Modafinil with any luck in helping energy and mood?
loloball2
in
Restless Legs Syndrome
2 months ago
Does tranexamic acid work?
Hi guys. I've had an ablation, and it failed. I had the mirena, and I had 2 rounds of the depo injection and I'm still bleeding so so bad. 2 periods a month now on average, so I'm finally on the list for a hysterectomy. Doctor has now put me on tranexamic acid in the hope that it will help. Last month
Hi guys. I've had an ablation, and it failed. I had the mirena, and I had 2 rounds of the depo injection and I'm still bleeding so so bad. 2 periods a month now on average, so I'm finally on the list for a hysterectomy. Doctor has now put me on tranexamic acid in the hope that it will help. Last month
Aoifel73
in
Endometriosis UK
8 months ago
kidney stones??
for the last week or so I have been suffering with intermittent severe sharp pains in the area of my right kidney. No warning and happens around 5 to 10 times each day. Never while I’m lying down, sometimes when I stand up or turn while sitting and sometime when I’m standing and bend. It’s very painful
for the last week or so I have been suffering with intermittent severe sharp pains in the area of my right kidney. No warning and happens around 5 to 10 times each day. Never while I’m lying down, sometimes when I stand up or turn while sitting and sometime when I’m standing and bend. It’s very painful
Thiago1396
in
PMRGCAuk
8 months ago
pain?
Anybody else have pain on waking, from hips and legs up to arms & shoulders--not explained by exercise or lack thereof? Can barely hobble about the house to get my meds and feed the cat. Sometimes it helps to tighten all the muscles to form an upright posture--but as soon as I loosen them to move, it
Anybody else have pain on waking, from hips and legs up to arms & shoulders--not explained by exercise or lack thereof? Can barely hobble about the house to get my meds and feed the cat. Sometimes it helps to tighten all the muscles to form an upright posture--but as soon as I loosen them to move, it
ottercat
in
Cure Parkinson's
2 months ago
Tooth extraction
Hello first time posting on here, I've recently had my first zoledronic acid infusion for osteoporosis 4 weeks ago and now I need 2 teeth out and have been told I have to wait 3 months because of the infusion, I'm in pain all the time and also taking antibiotics for the 2nd time as keep getting infections
Hello first time posting on here, I've recently had my first zoledronic acid infusion for osteoporosis 4 weeks ago and now I need 2 teeth out and have been told I have to wait 3 months because of the infusion, I'm in pain all the time and also taking antibiotics for the 2nd time as keep getting infections
Slotmachine33
in
Bone Health and Osteoporosis UK
8 months ago
Dental work and AA
I am having a tooth implant done this week, on Wednesday. The surgeon knows I take Alendronic Acid and has advised to not take it on the morning of the procedure. He also said it was okay to take (should take?) a 3 month holiday from Alendronic Acid. Have you heard of that? The procedure involves drilling
I am having a tooth implant done this week, on Wednesday. The surgeon knows I take Alendronic Acid and has advised to not take it on the morning of the procedure. He also said it was okay to take (should take?) a 3 month holiday from Alendronic Acid. Have you heard of that? The procedure involves drilling
LMali
in
PMRGCAuk
8 months ago
Boron
Hi AllHas anyone heard of taking boron supplements instead of alendronic acid? (I have some osteopenia and am on prednisolone for PMR.) Many thanks
Hi AllHas anyone heard of taking boron supplements instead of alendronic acid? (I have some osteopenia and am on prednisolone for PMR.) Many thanks
CaraDee
in
PMRGCAuk
8 months ago
Magnesium and the heart
I stopped taking my magnesium supplement (not prescribed) about a month ago in the hope that my persistent morning diarrhoea would clear up. It hasn't. But I have noticed, on my Fitbit records, that my sleep quality has gone right down, my resting heart rate has increased from 60 to 72, and my heart
I stopped taking my magnesium supplement (not prescribed) about a month ago in the hope that my persistent morning diarrhoea would clear up. It hasn't. But I have noticed, on my Fitbit records, that my sleep quality has gone right down, my resting heart rate has increased from 60 to 72, and my heart
Broseley
in
PMRGCAuk
8 months ago
Severe bleeding and high blood pressure on Tibolone
Hi everyone. I was wondering if anyone has had similar symptoms to what I’m having. I was started on Tibolone 5 weeks ago as an add back to Prostap SR while waiting for surgery 2 weeks ago I started bleeding heavily with massive clots. I called the consultant immediately but he was off. I spoke to
Hi everyone. I was wondering if anyone has had similar symptoms to what I’m having. I was started on Tibolone 5 weeks ago as an add back to Prostap SR while waiting for surgery 2 weeks ago I started bleeding heavily with massive clots. I called the consultant immediately but he was off. I spoke to
MaiDu
in
Endometriosis UK
8 months ago
PMR/Prednisolone/Alendronic Acid
Thank you all for your posts and will now try to reduce even more slowly. !5 mg of Prednisolone was not enough, so have now increased to 17.5mg and are again keeping fingers crossed. Would welcome views on long term (nearly 5 years) usage of Alendronic acid (I am male 79 years old) as I think that in
Thank you all for your posts and will now try to reduce even more slowly. !5 mg of Prednisolone was not enough, so have now increased to 17.5mg and are again keeping fingers crossed. Would welcome views on long term (nearly 5 years) usage of Alendronic acid (I am male 79 years old) as I think that in
Blacksley
in
PMRGCAuk
8 months ago
Vital Role of B12 and Folate
https://www.sciencedirect.com/science/article/abs/pii/S0193953X12001001?via%3Dihub This article focuses on the role of b12 and folate in the synthesis of methionine and one of the side effects of improper synthesis is depression and cognitive impairment. However, I want to emphasise that poor synthesis
https://www.sciencedirect.com/science/article/abs/pii/S0193953X12001001?via%3Dihub This article focuses on the role of b12 and folate in the synthesis of methionine and one of the side effects of improper synthesis is depression and cognitive impairment. However, I want to emphasise that poor synthesis
B12life
in
Pernicious Anaemia Society
3 months ago
Comprehensive CKD and healthy Diet app
If you are aware of any reputable comprehensive apps to help track food intake for CKD patients. I would love a recommendation. Kidney diet tracking is complicated and it would be invaluable to have a toolset for those of us trying to implement dietary changes that are comprehensive. By comprehensive
If you are aware of any reputable comprehensive apps to help track food intake for CKD patients. I would love a recommendation. Kidney diet tracking is complicated and it would be invaluable to have a toolset for those of us trying to implement dietary changes that are comprehensive. By comprehensive
2023CKD
in
Kidney Disease
3 months ago
Osteoporosis treatment
I have recently been diagnosed with PBC and am taking 1000mg ursodeoxycholic acid daily. I just had a routine bone density done and it resulted that I have osteopenia in my hips and osteoporosis in my spine. Doctor prescribed 2 Osteocare daily plus Bisphosphonate Acid once I have a bill of good dental
I have recently been diagnosed with PBC and am taking 1000mg ursodeoxycholic acid daily. I just had a routine bone density done and it resulted that I have osteopenia in my hips and osteoporosis in my spine. Doctor prescribed 2 Osteocare daily plus Bisphosphonate Acid once I have a bill of good dental
Dora57
in
PBC Foundation
8 months ago
Restless Legs Syndrome
I have RLS and take codeine 15mg at night. My ferritin level got too high last year so no longer on iron supplements. Wondering how successful ALA is and if it is what dose and what time to take it. Thanks in advance
I have RLS and take codeine 15mg at night. My ferritin level got too high last year so no longer on iron supplements. Wondering how successful ALA is and if it is what dose and what time to take it. Thanks in advance
Longwaytoofar
in
Restless Legs Syndrome
8 months ago
Weight gain and osteoporosis
I am in great discomfort because I have developed severe osteoporosis in the spine. I have compression fractures in three areas of the thoracic spine (T10, T11 and T12) and one area of the lumbar spine ( L1). I was diagnosed with GCA in September 2022 and have been on high doses of steroids until very
I am in great discomfort because I have developed severe osteoporosis in the spine. I have compression fractures in three areas of the thoracic spine (T10, T11 and T12) and one area of the lumbar spine ( L1). I was diagnosed with GCA in September 2022 and have been on high doses of steroids until very
Raga72
in
PMRGCAuk
8 months ago
I figured out how to tolerate antibiotics (trimethoprim in this case) without huge neuropathic pain flare!! (for real this time!)
I've been posting about this on and off all year trying to get some answers. Anyway, I'll keep it short. I've been unable to tolerate Trimethoprim or Doxycycline without the both causing unbearable neuropathic pain (burning, stinging, tingling, etc). I tried multiple times and failed to continue after
I've been posting about this on and off all year trying to get some answers. Anyway, I'll keep it short. I've been unable to tolerate Trimethoprim or Doxycycline without the both causing unbearable neuropathic pain (burning, stinging, tingling, etc). I tried multiple times and failed to continue after
Whoa182
in
Pernicious Anaemia Society
8 months ago
CKD diet and nutrients? Which do you take?
Hi guys! Who is at the stage of predialysis, please tell me how many times a week do you eat meat? And do you take ketosteril or ketoanalogs of amino acids? what about sorbents?
Hi guys! Who is at the stage of predialysis, please tell me how many times a week do you eat meat? And do you take ketosteril or ketoanalogs of amino acids? what about sorbents?
alice_lirey
in
Kidney Disease
4 months ago
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