Palliative care only: My appointment... - Advanced Prostate...

Advanced Prostate Cancer

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Palliative care only

BrentW profile image
51 Replies

My appointment with my oncologist today was not what one might hope, but what I knew was coming. She has done all she can for me (please don't try telling me of alternatives; we discussed them at length and came up blank with each one).

So, with all anti-cancer medication removed, I have nothing but palliative treatment left.

She thinks I will make it to 2024, but will not see much of it,

I would like to thank the group here for their support, especially through my struggle to express my feelings in painting. That has meant much to me -- otherwise I wouldn't have kept on posting, ent?

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BrentW profile image
BrentW
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51 Replies
MJCA profile image
MJCA

Brent,

I am so very sorry to hear. We are the same age, I was diagnosed 1 year later than you in 2005. This disease takes a lot from all of us. But, it cannot take away your creativity. So, pick up that brush and keep on painting and sharing your work with us.

Best,

Mark

MyDad76 profile image
MyDad76

I’m very sorry to hear this. I hope your pain is well managed and hospic is available to you, so you can concentrate on quality of life.

Do you mind sharing what is your PSA and doubling time?

Mtnhigh profile image
Mtnhigh

Brent, I have so enjoyed your QoL posts with your paintings. I haven't posted much but read almost daily (for my husband). You and others have been extremely helpful and kind. I am so sorry to hear your news. My heart goes out to your and your family. -Deb

Willydad profile image
Willydad

Your paintings have been a welcome distraction for us all Brent. Thanks for that. Wishing you good luck

Tall_Allen profile image
Tall_Allen

I hope you feel well enough to continue to paint. I know I treasure the arts & crafts my mother did when she was in palliative care.

Drandma profile image
Drandma

Praying for your remaining time to be filled with love and things that make you happy

Scout4answers profile image
Scout4answers

Peace and Love Brent. Your art work has been an inspiration to me. As soon as I finish my current project I plan to get my brushes out and paint again.

larry_dammit profile image
larry_dammit

a friend told me just yesterday that the doctors don’t have a crystal ball to know how long we have here on earth . That being said, I hope you are not in a lot of pain. Will be thinking of you my fellow warrior 🙏🙏🙏

maley2711 profile image
maley2711

Say it ain't so ???? Anyway, if you don't feel you will be worse off with ADT, even though it has "failed", are you considering a continuation of ADT. Several guys here seem to have far outlived their life expectancy while maintaining "failed "ADT?

Kaliber profile image
Kaliber

your art has been inspirational and appreciated by many here on the group. I hope that in your transition to life without treatment , you keep doing the art and things you love for your remaining time that you are able . I know your hospice crew can keep you pain free and support both you and your family if you need it. Keep checking back in with us along the way if you feel like it. We are still your brothers …. We’d like to hear from you and we’re here if you need to vent or have some likeminded company along the way.

Love ya guy ..

❤️❤️❤️

Maxone73 profile image
Maxone73

So sad to hear that. I am new to this page but I had the chance to see some of your work and I love it.

I do not want to spread false hope (I have been diagnosed one month ago, and hope is all I have for now) but there is this fresh announcement from yesterday, maybe your doctor could look into it even if it looks like a US/Canada trial?

beststocks.com/essa-pharmas...

trial number NCT05075577 still recruiting

Ravenfae profile image
Ravenfae

Sending you strength x

LongevityAT profile image
LongevityAT

I concur with all, please keep the art coming if possible. You've inspired me to rekindle my interest in art.

Shamrock46 profile image
Shamrock46

Prayers for your journey. My husband recently switched to palliative care as well as nothing sensible was working. All else offered came with worse SEs while we knew the dreaded disease had won the war, sending its big guns to thwart the best laid plans of defense. Based on the results yesterday of his blood work it appears his kidney function has started to suffer and if it continues its downward trending he'll transfer to hospice next month....if not sooner. We fought many battles and gave it our best shot since dx in 2014, 1st relapse in 2018 and 2nd this Spring. He had me make the call yesterday to have his defibrillator deactivated. We're determined to see each day left as a gift and try to make the most of them. I wish the same for you. His care team is filled with wonderful people and I now pray for them as well since I know it can't be easy to see all of their patients to the other side...it must be a special calling. Peace.

Carlosbach profile image
Carlosbach in reply toShamrock46

Shamrock, Sorry to hear that your husband's lab results are trending down. It sounds like you both have great support. What a blessing.

I hope you can savor your remaining time together and can celebrate the good times in your lives together.

Shamrock46 profile image
Shamrock46 in reply toCarlosbach

Thank you! We've celebrated many times and occasions during our 58 years and, yes, we are incredibly blessed. My heart and soul are filled with many wonderful memories!

Carlosbach profile image
Carlosbach in reply toShamrock46

Awesome! So glad that your lives have been full and blessed.

spw1 profile image
spw1

Hi, Sorry to hear this. My husband got to this stage and it was not what we wanted to hear but he was given excellent care from the local hospice outpatient team who had the time and compassion that the oncology team could not give. Pain relief was managed more timely than with the oncologist. There are people on this website who defeated the oncology prognosis. Your art is pretty amazing and I hope that you can continue to enjoy it and focus on the life you are living.

inthefight profile image
inthefight

So sorry to hear. Please keep painting and showing us your work. I have enjoyed them and from what I read so have others.

pakb profile image
pakb

Thank you for brightening up our feed with your art💙

Dale150 profile image
Dale150

Peace brother…

Wongle1 profile image
Wongle1

Good luck babe take each day as it comes and live life to the fullest xx

sillyoyster profile image
sillyoyster

Yo Brent, Here's to you man! Remember, soldiers are not the only hero's!

A toast!
Lettuce231 profile image
Lettuce231

Nobody ever wants to hear the news that you have received, I think that you did well to even tell us.

I too like to splash the paint around, I find that I can get lost in there, it can portray my mood. Don't put those brushes down BrentW and take them with you when you go, who knows there might be a few chapel ceilings that need a new more inventive eye.

I pray that you receive the best care possible, try to keep us up to date as best you can, we all send our love to you and your family our Brother.

Lokicliff profile image
Lokicliff

Thank you for sharing your art with us. I look forwards to those beautiful colors and imagery. Hope your palliative care team is full of good people who help you on this part of your journey. My 85 year old mom now has a great team, and she is happy and well cared for. We are stardust and eternal souls. Peace.

Bronzee profile image
Bronzee

Not so good news for you… bucket list what you can, and pls keep painting!

Tinuriel profile image
Tinuriel

Thanks for sharing this hard news with us, caring for you in our hearts.

Cantchoose2 profile image
Cantchoose2

Hard news. I wish there was some way to send you actual energy through the internet, because I would pour it out into your heart. Your heart is big enough to take a lot!!

I hope your time left is full of laughter.

akaipop3ps profile image
akaipop3ps

I am sorry to hear and hope that you will be able to make the best of your time.

dadsdrdawn profile image
dadsdrdawn

Wishing you optimism, and hoping that you're "always thinking of something to look forward to" as my father said during his 17 years of dealing with cancer.

Sending peaceful thoughts - and that you use your creativity during your journey.

My father was an architect, that was still working and consulting at 88.

On bad days he drew.

Here is a picture of our dog he drew in May.

Nothing can take your passions away. I will pray for you with love.

Dawn

Black ink sketch on white paper of Rigby the Rhodesian Ridgeback.
Carlosbach profile image
Carlosbach

Brent, Through your posts and replies I have come to respect you tremendously. Your academic work and teaching must have impacted many people's lives. Most of whom probably haven't reached out to let you know about the influence you have been.

And now, you've trasitioned into an artist, touching those of us with whom you've shared your finished works. Thank you for sharing your work with us, it has been a gift that helps anchor your legacy. More importantly you have given a lovely gift to your wife and family.

I hope that you can find the grace and the strength to face the challenges ahead.

GrizzlyMama profile image
GrizzlyMama

It can be difficult when you reach this juncture on your cancer journey. Surround yourself with the people you love. May you experience peace, joy, and love.

Fiddler2004 profile image
Fiddler2004

Very sorry to hear this news.... I'm on palliative care as well, but also continue with Lupron / Xtandi to slow the progression so I can have time to visit with family, friends and loved ones. 🙏

treedown profile image
treedown

May your remaining days be full of joy and pain free.

NickJoy profile image
NickJoy

Much love to you Brent. You have often brightened my day with a painting. Thank you for sharing. Xxxx

Rocketman1960 profile image
Rocketman1960

Art is a window to the soul. Until we meet again on the other side, Peace be with you. His will be done in all things

dmt1121 profile image
dmt1121

Your watercolors are very good and the colors are striking. I have gotten back to drawing and hope to take more classes and at some point start painting again. For me, it is a great way to express my emotions and let go of some of them.

Can you shed a little light on how your disease progressed and where the metastases have spread? I think it's helpful to understand how things may go for other members who may be looking ahead to this.

As hard as it must be, I wish you calm, and a painfree transition. Every moment is important and the ability to spend it doing something you love and spending time with people you love.

All the best to you and your family on your journey.

slpdvmmd profile image
slpdvmmd

I hope that your final time is managed well and you are made as comfortable as possible.

j-o-h-n profile image
j-o-h-n

Hey Bret, Lots of love here.

Remember you drive on the left, I drive on the right (turns are a bitch)..... I'm not a full fledged fan of your paintings and you of my humor. But we're in this sinking ship together and I do admire you for bailing out as much water as you have. Keep hope alive they say!!!

Doctor's priDICKtions are exactly what they're worth (nuttin)......if you have a chance show her what I mean by looking up the key word above in her DICKtionary,,,

Keep Well, Keep Posting and Keep Painting (I'll Keep on trying my humor)..... God Bless and miracles do happen............ my ex-wife leaving me was one..........

Good Luck, Good Health and Good Humor.

j-o-h-n Tuesday 09/19/2023 8:14 PM DST

BrentW profile image
BrentW in reply toj-o-h-n

Point taken, j-o-h-n. I will do all that I can.

Professorgary profile image
Professorgary

I am new here and very saddened by your post. I really feel I missed out by not having read your posts sooner. I have no idea if you are a person of faith but I always have the attitude that when God wants me my doctors can’t add one minute to my life and until he wants me I am going to enjoy what time I have left. Prayers and God Bless.

garyjp9 profile image
garyjp9

Brent, not the news we wish to hear for any brother. Thank you for sharing it with us. Like many others here, I have been touched by your art. I hope you will feel like continuing with it. You have certainly added beauty in the world.

FigureGround profile image
FigureGround

Brent - beautiful paintings, heart and soul. Thank you! - Tom

lcfcpolo profile image
lcfcpolo

Sorry to read this Brent, with a tear in my eye. Please be at peace and please keep painting.Love

Graham

raoulmaher profile image
raoulmaher

19 years survival - I really hope I have this time - I hope also that you suffer none and know we will all be there at one point or another unless a real breakthrough is made - You have been very kind to share your story - I,m sure we all thank you for that - Thank you kindest Raoul

PabloK profile image
PabloK

I wish you only the best - I guess that we all have limits on the number of days we have left. I am fighting both brain and prostate cancer so I have no idea of how much time I have - but I am surrounding myself with the things that I love and wholeheartedly recommend it - And to run as hard as I possibly can as long as I can - I am cleared by the Dr for another month so run I will

Magnus1964 profile image
Magnus1964

In case you were unaware, ADT drugs (aboraterone, xtandi, Lupron, etc, are all palliative care. There is no cure for Pca. I can't tell from your bio but other than aboraterone it doesn't look like you have been on any other ADT drugs. Just because you failed one ADT drug does not mean you will fail others.

Lightjunkie profile image
Lightjunkie

Love and peace to you, brother!

Leader4077 profile image
Leader4077

I have been on the “journey” from my first cryosurgery in 2004…….had a Docetaxel infusion today…….attitude extends life and good feelings…..you inspire me.

Mike

Realistic profile image
Realistic

God bless you, you know your own mind 🙏 Sending love SheilaFx

strummer profile image
strummer

I hope you can continue to paint and live the rest of your days in peace and love

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