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I am still herešš
I haven't written on here for a few months but,I have checked in now and then.Had a difficult few months.Had burst water pipe in house which ruined kitchen,sitting room ,hall and corridor so, we had to seek accommodation and stay away from home for over two months.I missed my home so much and eventually
I haven't written on here for a few months but,I have checked in now and then.Had a difficult few months.Had burst water pipe in house which ruined kitchen,sitting room ,hall and corridor so, we had to seek accommodation and stay away from home for over two months.I missed my home so much and eventually
annieH1
in
OvaCare
5 years ago
New Oncologst
Hi everyone, itās been a while since Iāve posted but i do follow everyoneās posts. Iām seriously considering getting a new oncologist. Whenever I have called in the past with a symptom or side effects, I am mostly told āoh thatās not not a side effectā or āit doesnāt sound cancer relatedā. Well a few
Hi everyone, itās been a while since Iāve posted but i do follow everyoneās posts. Iām seriously considering getting a new oncologist. Whenever I have called in the past with a symptom or side effects, I am mostly told āoh thatās not not a side effectā or āit doesnāt sound cancer relatedā. Well a few
Lisa11171
in
SHARE Metastatic Breast Cancer
5 years ago
Hello from Indiana, USA
My husband and I were both English teachers. He is 11 years older than me and retired in 2014, a year after having five stents put in his heart. I took early retirement in 2017, a month before he was diagnosed with PSP. I started noticing cognitive symptoms on a trip to Ireland in 2012. The years that
My husband and I were both English teachers. He is 11 years older than me and retired in 2014, a year after having five stents put in his heart. I took early retirement in 2017, a month before he was diagnosed with PSP. I started noticing cognitive symptoms on a trip to Ireland in 2012. The years that
Writingwithcats
in
PSP Association
5 years ago
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Gemcitabine and Carboplatin tomorrow
Good evening fellow teal friends. I saw my oncologist this morning and I am starting Gemcitabine and Carboplatin in the morning. My Ca125 has gone up to 374 from 166 in December and I have the new tumours. I am pleased that I can still have chemo although I'm slightly concerned by comments like "it's
Good evening fellow teal friends. I saw my oncologist this morning and I am starting Gemcitabine and Carboplatin in the morning. My Ca125 has gone up to 374 from 166 in December and I have the new tumours. I am pleased that I can still have chemo although I'm slightly concerned by comments like "it's
Welshandproud
in
My Ovacome
5 years ago
Saddest of News
It is with immense sorrow, I tell you that, My darling husband, Tony, passed away on Monday 30th December. He died at home , as we both wished. with support from wonderful Palliative care nurses. The only consolation is that he is now free from this dreadful disease and at peace. The last few months
It is with immense sorrow, I tell you that, My darling husband, Tony, passed away on Monday 30th December. He died at home , as we both wished. with support from wonderful Palliative care nurses. The only consolation is that he is now free from this dreadful disease and at peace. The last few months
Elletheelephant
in
Multiple System Atrophy Trust
5 years ago
Butterfly cocoon Idea
So here is a request Everyone in this group I consider a Lupus Butterfly in some shape or form Be it SLE or similar, awaiting diagnosis, friends, family,
carer
etc, of people who were drawn to join this Lupus
support
group As Butterfly's can everyone go into "butterfly cocoon mode" right now Admins
So here is a request Everyone in this group I consider a Lupus Butterfly in some shape or form Be it SLE or similar, awaiting diagnosis, friends, family,
carer
etc, of people who were drawn to join this Lupus
support
group As Butterfly's can everyone go into "butterfly cocoon mode" right now Admins
fabwheelie
in
LUPUS UK
5 years ago
Spinal Compression
My brother recently experienced a spinal compression incident (between T5 and 6). This eventuated or perhaps more accurately, accelerated from two weeks earlier when he started to feel 'sluggishness' of leg movement to complete leg paralysis after he had 5 sessions of SBRT (total 20 Grays). Good movement
My brother recently experienced a spinal compression incident (between T5 and 6). This eventuated or perhaps more accurately, accelerated from two weeks earlier when he started to feel 'sluggishness' of leg movement to complete leg paralysis after he had 5 sessions of SBRT (total 20 Grays). Good movement
AlanLawrenson
in
Advanced Prostate Cancer
5 years ago
Palliative care advice
Iām on a syringe driver and can have prn (booster) every two hours. On top of that I can have 2 doses of oramorph and larazapan in a 24hour period. Iām also on Oxygen 24h. The other day I had a very bad āattack ā of being breathless and I was pretty much begging for some sort of relief but was told
Iām on a syringe driver and can have prn (booster) every two hours. On top of that I can have 2 doses of oramorph and larazapan in a 24hour period. Iām also on Oxygen 24h. The other day I had a very bad āattack ā of being breathless and I was pretty much begging for some sort of relief but was told
Sirrum
in
Lung Conditions Community Forum
5 years ago
Palliative Care..
Hi all my lovely Mum with CBD (10th year) has been 4 weeks in hospital. She was initially admitted with abdominal blockage, then urine infection, then aspiration pneumonia. During the throes of awful pneumonia she lost her already weak ability to swallow. We were told it wouldn't be humane to put a PEG
Hi all my lovely Mum with CBD (10th year) has been 4 weeks in hospital. She was initially admitted with abdominal blockage, then urine infection, then aspiration pneumonia. During the throes of awful pneumonia she lost her already weak ability to swallow. We were told it wouldn't be humane to put a PEG
Hidden
in
PSP Association
5 years ago
Is my dad dying?
Hi. Iām new here. Iām from the states and have been on the internet for the past 2 weeks straight and no matter where I turn I canāt get any straight answers. My dad is in the hospital for the second time this month. His bilirubin was originally at 22, now it is at 42 (this is the measurement im given
Hi. Iām new here. Iām from the states and have been on the internet for the past 2 weeks straight and no matter where I turn I canāt get any straight answers. My dad is in the hospital for the second time this month. His bilirubin was originally at 22, now it is at 42 (this is the measurement im given
Sof336
in
British Liver Trust
5 years ago
Electronic hoist & Hospice arrived the same day
We were just getting started with Palliative Care and it was decided that we were better suited for Hospice. I had no idea we would qualify for Hospice this early (of course, who knows how early it really is). I am so thankful for this. The benefits are probably as good as you can get in the U.S. Incidentally
We were just getting started with Palliative Care and it was decided that we were better suited for Hospice. I had no idea we would qualify for Hospice this early (of course, who knows how early it really is). I am so thankful for this. The benefits are probably as good as you can get in the U.S. Incidentally
journeyofjoy
in
PSP Association
5 years ago
Chronic subdural haematoma
Hi. Just looking for some advice....my dad fell a month ago due to heart block. he ended up with 2 small 5 and 6mm subdurals. He got a pacemaker, got home and all was well. He then developed a right sided weakness and over the next week became more confused and lost the ability to speak. He then had
Hi. Just looking for some advice....my dad fell a month ago due to heart block. he ended up with 2 small 5 and 6mm subdurals. He got a pacemaker, got home and all was well. He then developed a right sided weakness and over the next week became more confused and lost the ability to speak. He then had
Anoneemouse
in
Headway
5 years ago
Immunotherapy 2 year limit
Hi everyone, My partner was diagnosed with stage 4 nsclc in October 2015. After unsuccessful treatment with chemotherapy she was referred to palliative care by her previous consultant. I went private to get a second opinion and found a great consultant who enrolled her on a early access to medicine
Hi everyone, My partner was diagnosed with stage 4 nsclc in October 2015. After unsuccessful treatment with chemotherapy she was referred to palliative care by her previous consultant. I went private to get a second opinion and found a great consultant who enrolled her on a early access to medicine
Dl1977
in
The Roy Castle Lung Cancer Foundation
5 years ago
People of HealthUnlocked | Meet Ryan
[i] Hello everyone :-) I hope you're all doing well this Friday. This week, I want you all to meet Ryan, a young man who's story I read months ago and what led me to want to do this project in the first place: People of HealthUnlocked. If you can relate to Ryan's experiences, leave him a note in the
[i] Hello everyone :-) I hope you're all doing well this Friday. This week, I want you all to meet Ryan, a young man who's story I read months ago and what led me to want to do this project in the first place: People of HealthUnlocked. If you can relate to Ryan's experiences, leave him a note in the
MarketingHU
in
HealthUnlocked Blog
5 years ago
Help
My daughter has serve global development delay and I was wondering if there is any help on what we can do and what
support
As I am a mum and a fulltime
carer
My daughter has serve global development delay and I was wondering if there is any help on what we can do and what
support
As I am a mum and a fulltime
carer
Hidden
in
Mencap
5 years ago
Timelines/ palliative care
Hello, sadly I have just been told there is no more treatment for my mum, the cancer has spread in her shoulder bone, brain, lymph nodes and abdomen. The dr has not given us any timeline, Iām just wondering what happens next? I think the palliative care team take over as contact at the moment Iām not
Hello, sadly I have just been told there is no more treatment for my mum, the cancer has spread in her shoulder bone, brain, lymph nodes and abdomen. The dr has not given us any timeline, Iām just wondering what happens next? I think the palliative care team take over as contact at the moment Iām not
Tracyd02
in
The Roy Castle Lung Cancer Foundation
5 years ago
Not sure what to do
I am so unsure what to do. I have worked hard all my life and finally landed a job in the medical field, but after 15 years being fairly stable with my health anxiety and GAD I have fallen, I have been struggling so bad for a few months. Back on medication but it seems slow to help me, I feel like Iā
I am so unsure what to do. I have worked hard all my life and finally landed a job in the medical field, but after 15 years being fairly stable with my health anxiety and GAD I have fallen, I have been struggling so bad for a few months. Back on medication but it seems slow to help me, I feel like Iā
Kimmy42
in
Anxiety and Depression Support
5 years ago
Hallelujah!!!
Good evening everyone Thank you for all your recent kind words and support. Had the palliative care team go in today and see my dad and they are getting him into a nursing home in the next two days. All the weeks of stressing and me having a nervous breakdown they finally listened. Palliative nurse said
Good evening everyone Thank you for all your recent kind words and support. Had the palliative care team go in today and see my dad and they are getting him into a nursing home in the next two days. All the weeks of stressing and me having a nervous breakdown they finally listened. Palliative nurse said
Bubbles201271
in
British Liver Trust
5 years ago
Maybe !!!
Hi everyone whoās been following me and my dads story. I went to doctors this morning had a bad panic attack and passed out I now have some tranquillisers. The palliative care team are finally going into dad tomorrow and social services have said donāt worry they are dealing with it now !!!!!! Only
Hi everyone whoās been following me and my dads story. I went to doctors this morning had a bad panic attack and passed out I now have some tranquillisers. The palliative care team are finally going into dad tomorrow and social services have said donāt worry they are dealing with it now !!!!!! Only
Bubbles201271
in
British Liver Trust
5 years ago
Palliative care
First I want to thank Robin Riddle for the link to the post that indicates the stages of PSP. After discussing with my husband, we figured that he was between stages 2 and 3, and one of the recommendations was to put the patientās name in the Palliative care Registry (which I didnāt know existed) So
First I want to thank Robin Riddle for the link to the post that indicates the stages of PSP. After discussing with my husband, we figured that he was between stages 2 and 3, and one of the recommendations was to put the patientās name in the Palliative care Registry (which I didnāt know existed) So
Caro2132
in
PSP Association
5 years ago
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