Search
Search
About
Log in
Join
Experiences with
Canavan disease
Posts
Communities
42,915 public posts
Filter results
Are you ready to kick neurotoxins to the curb?
You can start by not eating them and clean up your diet. The next step is to remove neurotoxins from your personal care and cleaning products. Edit: Would you be more motivated to change your lifestyle if you understood how Roundup is used and why it's poison? Roundup kills any actively growing plant
You can start by not eating them and clean up your diet. The next step is to remove neurotoxins from your personal care and cleaning products. Edit: Would you be more motivated to change your lifestyle if you understood how Roundup is used and why it's poison? Roundup kills any actively growing plant
SilentEchoes
in
Cure Parkinson's
9 months ago
help with the mental health side of vasculitis
hello all, I’ve just been recently diagnosed with suspected vasculitis. Waiting on skin biopsy results to determine which kind. Spent 5 days in hospital due not being able to walk from how swollen my legs and feet were plus covered all over with the typical vasculitis looking rash. Released from hospital
hello all, I’ve just been recently diagnosed with suspected vasculitis. Waiting on skin biopsy results to determine which kind. Spent 5 days in hospital due not being able to walk from how swollen my legs and feet were plus covered all over with the typical vasculitis looking rash. Released from hospital
DC04HM
in
Vasculitis UK
6 months ago
Extremely high BP 6 weeks after ablation
I had ablation 2 months ago for increasing incidence of paroxysmal SVT. I have a very low resting heart rate and low BP history, very stable after Aortic valve replacement 6 years ago. Suddenly 6 weeks post ablation my BP's have been scary high and I've had associated dull headache, neck discomfort
I had ablation 2 months ago for increasing incidence of paroxysmal SVT. I have a very low resting heart rate and low BP history, very stable after Aortic valve replacement 6 years ago. Suddenly 6 weeks post ablation my BP's have been scary high and I've had associated dull headache, neck discomfort
PediatricRN
in
AF Association
6 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Overactive Bladder Syndrome
Bit strange to post this here but bear with me please. It seems that many of the med's for OAB have a side effect of high heart rate. I've been diagnosed with Paroxysmal Tachycardia and am trying Tolterodine for my OAB (which increased my comfort level considerably) but have had to stop as my monthly
Bit strange to post this here but bear with me please. It seems that many of the med's for OAB have a side effect of high heart rate. I've been diagnosed with Paroxysmal Tachycardia and am trying Tolterodine for my OAB (which increased my comfort level considerably) but have had to stop as my monthly
Oggy99
in
AF Association
9 months ago
Finger misbehaving (!) ...Ulnar Deviation
Hello, I recently noticed my middle finger has gone bent towards the pinky finger. I couldn't believe my eyes and did internet search. It happens to people with RA and Lupus. A bit shocking. I have been doing mild squeezing exercise daily to help increase my hand strength. I think it may be due to
Hello, I recently noticed my middle finger has gone bent towards the pinky finger. I couldn't believe my eyes and did internet search. It happens to people with RA and Lupus. A bit shocking. I have been doing mild squeezing exercise daily to help increase my hand strength. I think it may be due to
Paprika60
in
LUPUS UK
6 months ago
Peginterferon
I'm wondering if anyone else is struggling with poor appetite while being o peginterferon.I have been on it for 4 years diagnosed with MF. The dose has gradually been raised but was then put up again to 135 weekly a few months ago because my spleen was enlarging.im now waiting for another appointment
I'm wondering if anyone else is struggling with poor appetite while being o peginterferon.I have been on it for 4 years diagnosed with MF. The dose has gradually been raised but was then put up again to 135 weekly a few months ago because my spleen was enlarging.im now waiting for another appointment
caroline_284
in
MPN Voice
9 months ago
acute pericarditis
Just had the most horrendous chest pain, to the emergency room, overnight stay. Swift, great workup, no coronary disease, no pulmonary embolism, no Aortic dissection. Pericardial effusion, CRP of 22, turns out I have Pericarditis. Not fun. No vigorous exercise for 3 months/ Colchicine, Naproxyn.
Just had the most horrendous chest pain, to the emergency room, overnight stay. Swift, great workup, no coronary disease, no pulmonary embolism, no Aortic dissection. Pericardial effusion, CRP of 22, turns out I have Pericarditis. Not fun. No vigorous exercise for 3 months/ Colchicine, Naproxyn.
Roll0verRover1
in
CLL Support
6 months ago
blood thinners and cod liver oil?
hi everyone hope you all had a good Christmas, I was diagnosed with AF in November so still learning lots from this forum. I am on edoxaban 60mg and Bisoprolol 2.5 as PIP which I have been taking approx every 7 days. I wanted to ask about taking cod liver oil and other vitamins, as I read that fish oil
hi everyone hope you all had a good Christmas, I was diagnosed with AF in November so still learning lots from this forum. I am on edoxaban 60mg and Bisoprolol 2.5 as PIP which I have been taking approx every 7 days. I wanted to ask about taking cod liver oil and other vitamins, as I read that fish oil
Jamontoast
in
Atrial Fibrillation Support
6 months ago
And again news about clinical trials
Clinical trial tests creatine monohydrate and exercise to preserve muscle mass in prostate cancer
https://www.news-medical.net/news/20231011/Clinical-trial-tests-creatine-monohydrate-and-exercise-to-preserve-muscle-mass-in-prostate-cancer-patients.aspx (hint: been a natural bodybuilder from
Clinical trial tests creatine monohydrate and exercise to preserve muscle mass in prostate cancer
https://www.news-medical.net/news/20231011/Clinical-trial-tests-creatine-monohydrate-and-exercise-to-preserve-muscle-mass-in-prostate-cancer-patients.aspx (hint: been a natural bodybuilder from
Maxone73
in
Advanced Prostate Cancer
9 months ago
Nightly leg cramps
Hi Warriors: I have GCA since June 2023. Down to 35 mg pred from 60 mg. Tapering down by 5mg every 2 weeks til I get to l5mg. Then will go much slower. I am having very painful leg cramps every night that wake me up. after about 3/4 hrs sleep. I have to get up and walk around. Last night I took 2
Hi Warriors: I have GCA since June 2023. Down to 35 mg pred from 60 mg. Tapering down by 5mg every 2 weeks til I get to l5mg. Then will go much slower. I am having very painful leg cramps every night that wake me up. after about 3/4 hrs sleep. I have to get up and walk around. Last night I took 2
Groda
in
PMRGCAuk
9 months ago
Looking for help with coming off aspirin & on to Xarelto
I've been diagnosed with possible atrial fibrillation. I've been taking a low dose (75mg) aspirin every night for about two weeks, seems to have helped me sleep as my heart doesn't thump. But my GP has prescribed Xarelto which I will start taking. However I read that aspirin can stay in your blood
I've been diagnosed with possible atrial fibrillation. I've been taking a low dose (75mg) aspirin every night for about two weeks, seems to have helped me sleep as my heart doesn't thump. But my GP has prescribed Xarelto which I will start taking. However I read that aspirin can stay in your blood
Treeghost
in
Arrhythmia Alliance
6 months ago
CRP Rise
Stopped pred in July this year & been fine since. Had bloods November & was told although bloods look good my ANCA has gone up. To be on safe side I am now being given rutuximab as maintenance once a year. Have had a lingering cold for a few weeks now & not felt my greatest had bloods before my infusion
Stopped pred in July this year & been fine since. Had bloods November & was told although bloods look good my ANCA has gone up. To be on safe side I am now being given rutuximab as maintenance once a year. Have had a lingering cold for a few weeks now & not felt my greatest had bloods before my infusion
juli-pa
in
Vasculitis UK
6 months ago
3rd Rheumy says I no longer have PMR but Rheumatoid Arthritis from X-rays and blood tests and prescribed Leflunomide
does this stuff work? The side effects for liver damage potential looks scary to me, someone that once was misdiagnosed with liver cancer and sent to Cleveland for transplant. Yes, fatty liver at age 59. Don’t drink or smoke. Pre diabetic/diabetic Also, does PMR segway into rheumatoid arthritis?
does this stuff work? The side effects for liver damage potential looks scary to me, someone that once was misdiagnosed with liver cancer and sent to Cleveland for transplant. Yes, fatty liver at age 59. Don’t drink or smoke. Pre diabetic/diabetic Also, does PMR segway into rheumatoid arthritis?
EngineerMatthew
in
PMRGCAuk
7 months ago
Travel Insurance
Hello all, I was diagnosed with Liver Cirrhosis last October with Gastric Varices that where treated with a coil at the time. Can anyone advise as to any travel insurance companies that specialise in Liver disease conditions? Best regards Gary
Hello all, I was diagnosed with Liver Cirrhosis last October with Gastric Varices that where treated with a coil at the time. Can anyone advise as to any travel insurance companies that specialise in Liver disease conditions? Best regards Gary
RoryG2023
in
British Liver Trust
5 months ago
High gamma gt
Hi. My husband has cirrhosis and at the moment is compensated. He is worried because his latest gamma gt blood test was over 600. Should we be worried. He has no hospital appointment till after Christmas
Hi. My husband has cirrhosis and at the moment is compensated. He is worried because his latest gamma gt blood test was over 600. Should we be worried. He has no hospital appointment till after Christmas
trekmum
in
British Liver Trust
9 months ago
QoL Please, always
Friends, please remember to include the letters "QoL" in front of your title whenever you post about quality of life things that are not directly related to prostate cancer
Friends, please remember to include the letters "QoL" in front of your title whenever you post about quality of life things that are not directly related to prostate cancer
Darryl
Partner
in
Advanced Prostate Cancer
9 months ago
Straw therapy for low speech volume
Hubby has low volume speech. He is currently doing work with the Parkinson’s Voice Project (PVP) with some success — IF he keeps up with it. We recently saw exercises for help projecting with volume using a straw (you blow into a glass of water), supposedly this helps with increasing the muscle tone
Hubby has low volume speech. He is currently doing work with the Parkinson’s Voice Project (PVP) with some success — IF he keeps up with it. We recently saw exercises for help projecting with volume using a straw (you blow into a glass of water), supposedly this helps with increasing the muscle tone
1rocketman
in
Cure Parkinson's
9 months ago
Hi new here
Hi hoping I can understand my underactive thyriod more , living in sunny Devon
Hi hoping I can understand my underactive thyriod more , living in sunny Devon
nannynett
in
Thyroid UK
7 months ago
ibs and chest pain
have had ibs for years now and get pain everyday then the anxiety kicks in and gives me chest pain. Had every scan known to man only to be told it’s just ibs,tried every medication and nothing works because the anxiety takes over anti anxiety medication and cbt does nothing to ease the pain.Doctor basically
have had ibs for years now and get pain everyday then the anxiety kicks in and gives me chest pain. Had every scan known to man only to be told it’s just ibs,tried every medication and nothing works because the anxiety takes over anti anxiety medication and cbt does nothing to ease the pain.Doctor basically
Fencer58
in
IBS Network
6 months ago
Psa doubled in less than a month
I had 10 infusions of Doxytaxel. I started reading about the consequences of CDK12 and was concerned that since I have this mutation doxy was not a treatment of choice. After giving time for the PSA to settle I had a test which showed that it doubled in close to 3 months. In preparation for a CT and
I had 10 infusions of Doxytaxel. I started reading about the consequences of CDK12 and was concerned that since I have this mutation doxy was not a treatment of choice. After giving time for the PSA to settle I had a test which showed that it doubled in close to 3 months. In preparation for a CT and
spencoid2
in
Advanced Prostate Cancer
9 months ago
1
...
97
98
99
100
Next page
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Thyroid UK
5645 results
British Liver Trust
4480 results
Advanced Prostate Cancer
4391 results
View top 10 communities
Sort by
Most Relevant
Newest