Search
Search
About
Log in
Join
Experiences with
Canavan disease
Posts
Communities
42,866 public posts
Filter results
Update on PSA
Aug 4 - diagnosed PCa, gleason 9 Aug 5 - started casodex Aug 17 - started lupron 3 mth Had my first blood work done yesterday (Oct 5) and PSA is now at 0.56. Was over 9 in June. So, I kind of feel good in knowing that as expected the meds are working and lowering PSA. Meaning I can move forward
Aug 4 - diagnosed PCa, gleason 9 Aug 5 - started casodex Aug 17 - started lupron 3 mth Had my first blood work done yesterday (Oct 5) and PSA is now at 0.56. Was over 9 in June. So, I kind of feel good in knowing that as expected the meds are working and lowering PSA. Meaning I can move forward
Yzinger
in
Advanced Prostate Cancer
9 months ago
Woot💙PSA dropped after being the same for two consecutive months
Hey y'all,#stageIVpca Back story : PSA at 552.2 on 10/13/14 - 15 Taxoteres in 2015, 6 more in 2020, 18 Cabazitaxels in '21/'22. 28 IMRTs Spring 2023 as PSA was rising 50% every month earlier 2023, hitting 34 😳 Still on track for 552.2 miles on 10/13/23 to mark the 9th year with #stageivpca when PSA
Hey y'all,#stageIVpca Back story : PSA at 552.2 on 10/13/14 - 15 Taxoteres in 2015, 6 more in 2020, 18 Cabazitaxels in '21/'22. 28 IMRTs Spring 2023 as PSA was rising 50% every month earlier 2023, hitting 34 😳 Still on track for 552.2 miles on 10/13/23 to mark the 9th year with #stageivpca when PSA
dockam
in
Advanced Prostate Cancer
9 months ago
Parkinson's patient experiences improvements following stem cell infusions
research being done at Hope Biosciences in Sugarland, TX https://www.frontiersin.org/articles/10.3389/fneur.2023.1257080/full Conclusions Overall, HB-adMSC therapy was efficacious in improving the patient's experience with a progressively degenerative neurological disease such as PD. Administration
research being done at Hope Biosciences in Sugarland, TX https://www.frontiersin.org/articles/10.3389/fneur.2023.1257080/full Conclusions Overall, HB-adMSC therapy was efficacious in improving the patient's experience with a progressively degenerative neurological disease such as PD. Administration
Boscoejean
in
Cure Parkinson's
9 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Scientists identify 11 new genes linked to aggressive prostate cancer
"It's the largest study published so far to compare the inherited genetic influences which separate aggressive and non-aggressive prostate cancers." https://www.icr.ac.uk/news-archive%2Fscientists-identify-11-new-genes-linked-to-aggressive-prostate-cancer?utm_medium=email&utm_source=rasa_io&utm_campaign
"It's the largest study published so far to compare the inherited genetic influences which separate aggressive and non-aggressive prostate cancers." https://www.icr.ac.uk/news-archive%2Fscientists-identify-11-new-genes-linked-to-aggressive-prostate-cancer?utm_medium=email&utm_source=rasa_io&utm_campaign
V10fanatic
in
Advanced Prostate Cancer
9 months ago
Interesting Article (please read)
came across this article today and would like to know your thoughts: i was swayed by flashy advertising in the late 1990s featuring medical stars like Professor Lord Winston, who convinced me that omega-3 fish oil supplements were essential for my brain and my heart. Fast forward to today, and
came across this article today and would like to know your thoughts: i was swayed by flashy advertising in the late 1990s featuring medical stars like Professor Lord Winston, who convinced me that omega-3 fish oil supplements were essential for my brain and my heart. Fast forward to today, and
Padayn01
in
AF Association
6 months ago
Slow-SPEED ‘Slowing Parinson’s early through exercise dosage’
The Slow-SPEED project is the world's first large-scale research into potentially disease-retardant treatment in the prodromal phase of Parkinson's. But the results will undoubtedly also be important after diagnosis and PD at a more advanced stage. This 4-year study investigates in people at a higher
The Slow-SPEED project is the world's first large-scale research into potentially disease-retardant treatment in the prodromal phase of Parkinson's. But the results will undoubtedly also be important after diagnosis and PD at a more advanced stage. This 4-year study investigates in people at a higher
Esperanto
in
Cure Parkinson's
9 months ago
Auditory hallucinations
Hello, My mum was diagnosed in Feb 21 with Parkinson’s. She has recently been experiencing distressing crashing sounds (usually when she wakes, but not always). I appreciate this is probably Parkinson’s related, and would like to hear from anyone else suffering a similar experience. She has been on
Hello, My mum was diagnosed in Feb 21 with Parkinson’s. She has recently been experiencing distressing crashing sounds (usually when she wakes, but not always). I appreciate this is probably Parkinson’s related, and would like to hear from anyone else suffering a similar experience. She has been on
NJCOL
in
Cure Parkinson's
9 months ago
Cardioversion
Have been on medication for AF for 30 yrs, with occasional paroxysmes. First on Amiodarone which kept me on NSR . As it was too toxic, my cardiologist insisted change on propanolol 2 yrs ago.But AF became permanent . Now my EP insists on cardioversion if not ablation before putting me on flecoidine
Have been on medication for AF for 30 yrs, with occasional paroxysmes. First on Amiodarone which kept me on NSR . As it was too toxic, my cardiologist insisted change on propanolol 2 yrs ago.But AF became permanent . Now my EP insists on cardioversion if not ablation before putting me on flecoidine
Davidtol
in
Atrial Fibrillation Support
6 months ago
Avocado good for the heart?
Is avocado good for your heart? My doctor has me on blood pressure and cholesterol meds, so trying to eat foods that help reduce cholelsterol and are good for the cardiovascular system. A friend told me that avocados are great. That they reduce the risk of coronary heart disease. But there is a
Is avocado good for your heart? My doctor has me on blood pressure and cholesterol meds, so trying to eat foods that help reduce cholelsterol and are good for the cardiovascular system. A friend told me that avocados are great. That they reduce the risk of coronary heart disease. But there is a
sobreviviente
in
Healthy Eating
6 months ago
Too many vitamins ?
i was diagnosed 8 years ago with prostate cancer. I chose not to do anything until 4 months ago , when i felt in pain everywhere and went for treatment . I am now on Erleada and degarelix feeling much better and with the regular side effect of hot flashes and tireness. I took for 8 years and still
i was diagnosed 8 years ago with prostate cancer. I chose not to do anything until 4 months ago , when i felt in pain everywhere and went for treatment . I am now on Erleada and degarelix feeling much better and with the regular side effect of hot flashes and tireness. I took for 8 years and still
Raminagrobis
in
Advanced Prostate Cancer
9 months ago
help me
Had my first Cardioversion but it didn’t work they ended up putting drugs in the IV. My Grandfather had a stroke at 59. My Dad had triple bypass at 70 and Mom had A-fib!!! I have to get serious with my health!I don’t drink. But l smoke!!! Hardest damn habit l have ever tried to kick!!!! Anyone tried
Had my first Cardioversion but it didn’t work they ended up putting drugs in the IV. My Grandfather had a stroke at 59. My Dad had triple bypass at 70 and Mom had A-fib!!! I have to get serious with my health!I don’t drink. But l smoke!!! Hardest damn habit l have ever tried to kick!!!! Anyone tried
Chrissygirl62
in
AF Association
6 months ago
Father a fib
My father died after hospitalized with pneumonia in 1955. Death cert says also atrial fib and cerebral emboli. My brother 8 yrs older than me hit with it in his 70s. Has had 2 ablations. Fine last 4 years. I got it at 70 just had my ablation in May. So far so good. I think researchbsays heart genetics
My father died after hospitalized with pneumonia in 1955. Death cert says also atrial fib and cerebral emboli. My brother 8 yrs older than me hit with it in his 70s. Has had 2 ablations. Fine last 4 years. I got it at 70 just had my ablation in May. So far so good. I think researchbsays heart genetics
Healthyheart11
in
AF Association
6 months ago
Next Oxfordshire Lupus Group meeting - 6th December 2pm!
Following a successful first meeting for the Oxfordshire Lupus Group, we are thrilled to announced our next virtual meeting, which will be the 6th December at 2pm. This is a fantastic opportunity to meet others with lupus and associated conditions, friends and family also welcome to join! If you would
Following a successful first meeting for the Oxfordshire Lupus Group, we are thrilled to announced our next virtual meeting, which will be the 6th December at 2pm. This is a fantastic opportunity to meet others with lupus and associated conditions, friends and family also welcome to join! If you would
michaellasmith
Administrator
in
LUPUS UK
7 months ago
PSA SCREEN VS SYMPTOMATIC
My current PSA test is called PROSTATE SPC AG, SCREEN. My previous PSA test from the same lab was called PROSTATE SPC AG, SYMPTOMATIC. Both labs were off the same order from my MO. Whats the difference?
My current PSA test is called PROSTATE SPC AG, SCREEN. My previous PSA test from the same lab was called PROSTATE SPC AG, SYMPTOMATIC. Both labs were off the same order from my MO. Whats the difference?
6357axbz
in
Advanced Prostate Cancer
9 months ago
Bradyarrythmia
I had an ablation almost 4 years ago in feb 2020. Since then I have rarely had any arrhythmias, that is until now. They started out of the blue almost two weeks ago and are constant. However , they are not like before, this time the average beats are 60 per minute. They go as low as 42 and as high as
I had an ablation almost 4 years ago in feb 2020. Since then I have rarely had any arrhythmias, that is until now. They started out of the blue almost two weeks ago and are constant. However , they are not like before, this time the average beats are 60 per minute. They go as low as 42 and as high as
destiny234
in
Atrial Fibrillation Support
6 months ago
Updates to the EULAR guidelines on managing lupus
The European Alliance of Associations for Rheumatology (EULAR) have updated their guidelines on how doctors should manage lupus. You can find out about how these guidelines are used in the UK, and how they've been updated, on our website here: https://lupusuk.org.uk/updates-to-the-eular-guidelines-on-managing-lupus
The European Alliance of Associations for Rheumatology (EULAR) have updated their guidelines on how doctors should manage lupus. You can find out about how these guidelines are used in the UK, and how they've been updated, on our website here: https://lupusuk.org.uk/updates-to-the-eular-guidelines-on-managing-lupus
Debbie_kinsey
Administrator
in
LUPUS UK
7 months ago
cholesterol results
hi, I have just received my cholesterol results. My mum has high cholesterol and my Nan had high cholesterol. Cholesterol =7.1 mmol High density lipoprotein = 1.51 mmol/l Non -hDL cholesterol = 5.6mmol Triglycerides 1.42mmol I haven’t eaten before and tested at 8.30am I am 38 years old ~ diagnosed
hi, I have just received my cholesterol results. My mum has high cholesterol and my Nan had high cholesterol. Cholesterol =7.1 mmol High density lipoprotein = 1.51 mmol/l Non -hDL cholesterol = 5.6mmol Triglycerides 1.42mmol I haven’t eaten before and tested at 8.30am I am 38 years old ~ diagnosed
Luckygirl1
in
Cholesterol Support
6 months ago
In a sexual relstionship with someone who has Lupus type SLE.
How do i maintain a healthy sexual relationship with someone who has Lupus. At times frustrated how do i treat person. Feel like have to be careful delicate with him. I cannot be in control and neither can he. Treating him very delicately intimacy problems sometimes communication barrier. Anyone advice
How do i maintain a healthy sexual relationship with someone who has Lupus. At times frustrated how do i treat person. Feel like have to be careful delicate with him. I cannot be in control and neither can he. Treating him very delicately intimacy problems sometimes communication barrier. Anyone advice
Tameeka723
in
LUPUS UK
7 months ago
Parkinson's medications and T3 interactions?
I've been hypothyroid for decades, in recent years self-dosing T3 (split dose - 50 mcg AM, 50 mcg afternoon, 12.5 mcg evening). Recently, I was formally diagnosed with Parkinson's disease (informally undiagnosed for years), and now my doctor put me on gradually increasing doses of a Levodopa/Carbidopa
I've been hypothyroid for decades, in recent years self-dosing T3 (split dose - 50 mcg AM, 50 mcg afternoon, 12.5 mcg evening). Recently, I was formally diagnosed with Parkinson's disease (informally undiagnosed for years), and now my doctor put me on gradually increasing doses of a Levodopa/Carbidopa
chrysalis56
in
Thyroid UK
9 months ago
Sticky blood! A thing or not?
Many years ago my blood tests often had to be repeated at the pathology lab because the first and second samples had set solid in transit before testing. I was told it was because I had sticky blood. Last week I saw a cardiologist who initially wanted me to take blood thinners, but as I only scored 1
Many years ago my blood tests often had to be repeated at the pathology lab because the first and second samples had set solid in transit before testing. I was told it was because I had sticky blood. Last week I saw a cardiologist who initially wanted me to take blood thinners, but as I only scored 1
jointpain
in
Arrhythmia Alliance
9 months ago
1
...
98
99
100
Next page
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Thyroid UK
5639 results
British Liver Trust
4474 results
Advanced Prostate Cancer
4382 results
View top 10 communities
Sort by
Most Relevant
Newest