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Just started chemo again mastactiic high grade serious carcidoma on ovarian mass after 18m break recurrence had letter saying it spread I have chronic kidney disease ca123 195 right enlarged mass on ovary may have to have spleen removed not good read I am trying to decide as the letter says chemo
Just started chemo again mastactiic high grade serious carcidoma on ovarian mass after 18m break recurrence had letter saying it spread I have chronic kidney disease ca123 195 right enlarged mass on ovary may have to have spleen removed not good read I am trying to decide as the letter says chemo
PaumicB123
in
My Ovacome
7 months ago
niacin as cause of strokes and heart attacks?
I know a lot of us taking B Complex so posting this article to hear your thoughts. I take one from cytoplasm where it’s 16mg, I wonder if this is ok 🤔 https://www.newscientist.com/article/2417665-niacin-supplements-linked-to-greater-risk-of-heart-attacks-and-strokes/ [ Link edited to remove potentially
I know a lot of us taking B Complex so posting this article to hear your thoughts. I take one from cytoplasm where it’s 16mg, I wonder if this is ok 🤔 https://www.newscientist.com/article/2417665-niacin-supplements-linked-to-greater-risk-of-heart-attacks-and-strokes/ [ Link edited to remove potentially
Kari55
in
Thyroid UK
4 months ago
Donepezil as an aid for PSP
Hi all you good people, A couple of weeks ago a fellow traveller here wrote about her husband with PSP that as his cognition and swallowing declined, his Doctor prescribed Donepezil. Originally, he was on 10 mg of Donepezil which improved his swallowing, alertness and cognition. Two years later when
Hi all you good people, A couple of weeks ago a fellow traveller here wrote about her husband with PSP that as his cognition and swallowing declined, his Doctor prescribed Donepezil. Originally, he was on 10 mg of Donepezil which improved his swallowing, alertness and cognition. Two years later when
Richard33
in
PSP Association
7 months ago
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Levothyroxine
does anyone know if Levothyroxine is definitely gluten free as I’m coeliac and unsure if it’s not helping with my immune system.
does anyone know if Levothyroxine is definitely gluten free as I’m coeliac and unsure if it’s not helping with my immune system.
1Cass
in
Thyroid UK
5 months ago
B6 - advice
I’m confused about B6. is the advice with Co-Careldopa not to take, at all. Or to take after Co-Careldopa has been absorbed. my recent blood tests showed me deficient in B6. thanks
I’m confused about B6. is the advice with Co-Careldopa not to take, at all. Or to take after Co-Careldopa has been absorbed. my recent blood tests showed me deficient in B6. thanks
Nb11
in
Cure Parkinson's
7 months ago
Endocrinologist recommendations in/near West Sussex for Addison's / adrenals
Can anybody recommend an endocrinologist in West Sussex or nearby please who knows about adrenals and Addison's? It comes as no surprise to me, but a private blood screen has just shown very low cortisol levels and a couple of other bits, that suggest an adrenal problem, possibly Addison's. I've not
Can anybody recommend an endocrinologist in West Sussex or nearby please who knows about adrenals and Addison's? It comes as no surprise to me, but a private blood screen has just shown very low cortisol levels and a couple of other bits, that suggest an adrenal problem, possibly Addison's. I've not
JumpJiving
in
Thyroid UK
6 months ago
Levothyroxine and coeliac disease
would someone please be kind enough to inform me if Levothyroxine is definitely gluten free with no traces of gluten and the brand name is Mand.
would someone please be kind enough to inform me if Levothyroxine is definitely gluten free with no traces of gluten and the brand name is Mand.
1Cass
in
Gluten Free Guerrillas
5 months ago
Adrenal cortisol expertise needed
Hi! I was diagnosed with adrenal fatigue / low cortisol 10-plus years ago and take 10 mg of hydrocortisone (tablet) in the morning and at noon. I just received results of diurnal saliva cortisol test and am surprised/confused at the results. Does this group help with adrenal issues, or is there a different
Hi! I was diagnosed with adrenal fatigue / low cortisol 10-plus years ago and take 10 mg of hydrocortisone (tablet) in the morning and at noon. I just received results of diurnal saliva cortisol test and am surprised/confused at the results. Does this group help with adrenal issues, or is there a different
Rileyfloof
in
Thyroid UK
7 months ago
"High levels of niacin linked to heart disease, new research suggests"
"High levels of niacin, an essential B vitamin, may raise the risk of heart disease by triggering inflammation and damaging blood vessels, according to new research. The report, published Monday in Nature Medicine, revealed a previously unknown risk from excessive amounts of the vitamin ..." https:/
"High levels of niacin, an essential B vitamin, may raise the risk of heart disease by triggering inflammation and damaging blood vessels, according to new research. The report, published Monday in Nature Medicine, revealed a previously unknown risk from excessive amounts of the vitamin ..." https:/
JackBruce2024
in
Cure Parkinson's
4 months ago
Drop in resting heart rate since pred
HiI have been on 40mg pred for suspected GCA for2 weeks now. ( actually was 60 in first week then dropped to 40 in second). I had a temporal artery biopsy yesterday so resting up and taking it easy. I wear a fitbit so am aware of my usual resting heart rate. It is normally between 61-65. When asleep
HiI have been on 40mg pred for suspected GCA for2 weeks now. ( actually was 60 in first week then dropped to 40 in second). I had a temporal artery biopsy yesterday so resting up and taking it easy. I wear a fitbit so am aware of my usual resting heart rate. It is normally between 61-65. When asleep
kalgoorlie
in
PMRGCAuk
4 months ago
PS to Periodontal Abscess and Prednisone
Thanks to everyone who took the time to reply to my post about gum/tooth infections and prednisone. All the replies were helpful! I did manage to generate one last question. Did any of you who had tooth extractions go on to have dental implants? I am leaning against due to cost and issues related to
Thanks to everyone who took the time to reply to my post about gum/tooth infections and prednisone. All the replies were helpful! I did manage to generate one last question. Did any of you who had tooth extractions go on to have dental implants? I am leaning against due to cost and issues related to
Donna5658
in
PMRGCAuk
5 months ago
Zytiga - Lupron
I was on Zytiga ( now Abi) with lup for several years and it kept my PSA to undetectable. I am now on 0rg0vyx instead of lup and my PSA remains undetectable after 6 years. Sode effects have been tolerable EXCEPT the I developed osteoporosis of the spin and now have multiple collapsed vertebrae and
I was on Zytiga ( now Abi) with lup for several years and it kept my PSA to undetectable. I am now on 0rg0vyx instead of lup and my PSA remains undetectable after 6 years. Sode effects have been tolerable EXCEPT the I developed osteoporosis of the spin and now have multiple collapsed vertebrae and
Schnab
in
Advanced Prostate Cancer
7 months ago
Lupus diagnosis yesterday
Hello everyone, been a tricky few months. You all know what it's like.just wanted to update and i feel a bit overwhelmed. In 2020 was diagnosed with UCTD. Positive ANA. Take hydroxychloquine. Last year ENT diagnosed sjogrens, it was an urgent 2 week referral as my throat had been sore for months
Hello everyone, been a tricky few months. You all know what it's like.just wanted to update and i feel a bit overwhelmed. In 2020 was diagnosed with UCTD. Positive ANA. Take hydroxychloquine. Last year ENT diagnosed sjogrens, it was an urgent 2 week referral as my throat had been sore for months
BonnyB
in
LUPUS UK
5 months ago
Reintroducing gluten for coeliac test?
Hello everyone, After going gluten free in mid-November 2023 I have today had a blood test request come in which involves a coeliac test. I was tested for coeliac in 2017 too (negative) but didn't know I was being tested for it and had been eating strictly low carb for about 2 years at that point
Hello everyone, After going gluten free in mid-November 2023 I have today had a blood test request come in which involves a coeliac test. I was tested for coeliac in 2017 too (negative) but didn't know I was being tested for it and had been eating strictly low carb for about 2 years at that point
Myalikki
in
Thyroid UK
5 months ago
Teeth sensitivity at the dentist
I have been diagnosed with SLE Lupus for a year now. Does anyone find their teeth really sensitive during ordinary dental treatment such as cleaning? I’m also having a problem with the injections to numb the mouth not working . Is this Lupus related or is it just me? Any advice on the problem would
I have been diagnosed with SLE Lupus for a year now. Does anyone find their teeth really sensitive during ordinary dental treatment such as cleaning? I’m also having a problem with the injections to numb the mouth not working . Is this Lupus related or is it just me? Any advice on the problem would
Chocolate1956
in
LUPUS UK
5 months ago
🧬UNC93B1 New genetic findings open up perspectives for future therapeutic approaches in Lupus
Hi lupis! 👋🏼 New study demonstrates a direct causal link between an overactive UNC93B1/TLR7 axis and lupus pathogenesis and indicates that blocking overactive TLR7 might be therapeutically effective. Their findings are expected to accelerate further development of TLR7 inhibitors for patients with
Hi lupis! 👋🏼 New study demonstrates a direct causal link between an overactive UNC93B1/TLR7 axis and lupus pathogenesis and indicates that blocking overactive TLR7 might be therapeutically effective. Their findings are expected to accelerate further development of TLR7 inhibitors for patients with
Naladog
in
LUPUS UK
5 months ago
Results
Hello I messaged on here recently about my symptoms and was recommended to take a private blood test, which I've done. So I'm surprised that they've all come back normal! I screenshot them but not all together. Think I need to now think it is actually not my thyroid, but rheumatoid after all!
Hello I messaged on here recently about my symptoms and was recommended to take a private blood test, which I've done. So I'm surprised that they've all come back normal! I screenshot them but not all together. Think I need to now think it is actually not my thyroid, but rheumatoid after all!
Flo2021
in
Thyroid UK
5 months ago
Hashimoto advice please
hello, I have had an underactive thyroid and been on Levothyroxine 75mg since 2015. Last November I had a private blood test done as I had been struggling with lots of ‘symptoms’ and wondered if my thyroid could be the cause and it showed I have Hashimoto’s disease which I understand is an autoimmune
hello, I have had an underactive thyroid and been on Levothyroxine 75mg since 2015. Last November I had a private blood test done as I had been struggling with lots of ‘symptoms’ and wondered if my thyroid could be the cause and it showed I have Hashimoto’s disease which I understand is an autoimmune
Philly2748
in
Thyroid UK
5 months ago
UK alternates to Flecainide?
Background is I had 2 ablations in 2019 but Afib started coming back in 2021 so I was put onto flecainide and bisoprolol. The flec ended up causing more issues but since stopping flecainide and staying on bisoprolol I've been doing pretty well. I was on a very low does of 1.25mg daily, I had an occasional
Background is I had 2 ablations in 2019 but Afib started coming back in 2021 so I was put onto flecainide and bisoprolol. The flec ended up causing more issues but since stopping flecainide and staying on bisoprolol I've been doing pretty well. I was on a very low does of 1.25mg daily, I had an occasional
kitenski
in
AF Association
4 months ago
Flecainide PIP info please
Diagnosed first episode March 2023 after exercising with shingles( unknowingly)- had four episodes since waking in AF, (also had Gastric probs during this time) Cardioverted back each time. Currently on Ablation list and awaiting tests to see if I can take Flecainide PIP, intolerant to Beta, Blockers
Diagnosed first episode March 2023 after exercising with shingles( unknowingly)- had four episodes since waking in AF, (also had Gastric probs during this time) Cardioverted back each time. Currently on Ablation list and awaiting tests to see if I can take Flecainide PIP, intolerant to Beta, Blockers
sunlovah
in
Atrial Fibrillation Support
4 months ago
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