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AML update
Hello MPN friends, I thought I would post an update on my AML. I am now having Azacitadine and Venetoclax as an in-patient and so far so good - I just have red marks around the injection sites and constipation. I am otherwise well. Shockingly, my husband has been diagnosed with a melanoma just last
Hello MPN friends, I thought I would post an update on my AML. I am now having Azacitadine and Venetoclax as an in-patient and so far so good - I just have red marks around the injection sites and constipation. I am otherwise well. Shockingly, my husband has been diagnosed with a melanoma just last
Otterfield
in
MPN Voice
6 months ago
Statins
Hi, new member here, 60yo. Cholesterol 5.1 overall, CT scan showed potential CAD - echo and possible angioplast to be done in due course. I've been told in no uncertain terms I have to take statins. I'm not overly enamoured about that as there seems to be so many varying studies; some say they'll give
Hi, new member here, 60yo. Cholesterol 5.1 overall, CT scan showed potential CAD - echo and possible angioplast to be done in due course. I've been told in no uncertain terms I have to take statins. I'm not overly enamoured about that as there seems to be so many varying studies; some say they'll give
Womble1007
in
British Heart Foundation
3 hours ago
Does biopsy spread cancer?
I've been diagnosed with Stage 2/3 PC. I wonder whether biopsies, by piercing the prostrate wall, allow cancer sells to migrate outside the prostate. Certainly e-coli can be pushed into it, since I got sepsis from my directed biopsy. What is the danger of METS being introduced to organs outside it with
I've been diagnosed with Stage 2/3 PC. I wonder whether biopsies, by piercing the prostrate wall, allow cancer sells to migrate outside the prostate. Certainly e-coli can be pushed into it, since I got sepsis from my directed biopsy. What is the danger of METS being introduced to organs outside it with
Eadgbe
in
Prostate Cancer Network
6 months ago
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Before Fireworks and BallDrops, Where ever you live, please read this now
Please make your year-end secure donation in any currency to Malecare now at https://malecare.org/donate Malecare is more than our massive and active online, Zoom, and in-person support groups. We're one of the world's most productive patient advocacy research groups, with several university and
Please make your year-end secure donation in any currency to Malecare now at https://malecare.org/donate Malecare is more than our massive and active online, Zoom, and in-person support groups. We're one of the world's most productive patient advocacy research groups, with several university and
Darryl
Partner
in
Prostate Cancer Network
6 months ago
Before Fireworks and BallDrops, Where ever you live, please read this now.
Please make your year-end secure donation in any currency to Malecare now at https://malecare.org/donate Malecare is more than our massive and active online, Zoom, and in-person support groups. We're one of the world's most productive patient advocacy research groups, with several university and
Please make your year-end secure donation in any currency to Malecare now at https://malecare.org/donate Malecare is more than our massive and active online, Zoom, and in-person support groups. We're one of the world's most productive patient advocacy research groups, with several university and
Darryl
Partner
in
Advanced Prostate Cancer
6 months ago
Docetaxel not working so stopped
I promised I would update you after my scan to see how the chemo was progressing. Well, the main reason for the chemo was that spots had appeared in my liver. Last week's CT scan showed that the spots have grown "significantly" so the chemo is not working. Also, my liver function blood test results -
I promised I would update you after my scan to see how the chemo was progressing. Well, the main reason for the chemo was that spots had appeared in my liver. Last week's CT scan showed that the spots have grown "significantly" so the chemo is not working. Also, my liver function blood test results -
Benkaymel
in
Advanced Prostate Cancer
6 months ago
HIFU 2023 article does not seem positive
This article from early 2023 does not seem positive on HIFU. https://link.springer.com/article/10.1007/s00345-023-04352-9 I have a friend looking at HIFU in the setting of a clinical trial. He's Gleason 6 with just 1 of 12 portions of his prostate affected. Technically, he could do active surveillance
This article from early 2023 does not seem positive on HIFU. https://link.springer.com/article/10.1007/s00345-023-04352-9 I have a friend looking at HIFU in the setting of a clinical trial. He's Gleason 6 with just 1 of 12 portions of his prostate affected. Technically, he could do active surveillance
A0007720
in
Prostate Cancer Network
6 months ago
Promising, especially for people with LBD mutation: NEJM Evidence publishes results from Phase I/IIa CYPIDES trial with ODM-208
"In phase I, 20 out of the total 47 patients had AR LBD mutation. In phase IIa, all 45 patients had AR LBD mutation. A decrease in PSA (prostate-specific antigen) levels of 50% or more occurred in 14/19 (73.7%) patients with AR LBD mutation and 2/23 (8.7%) AR-wild-type patients in phase I, and in 24/
"In phase I, 20 out of the total 47 patients had AR LBD mutation. In phase IIa, all 45 patients had AR LBD mutation. A decrease in PSA (prostate-specific antigen) levels of 50% or more occurred in 14/19 (73.7%) patients with AR LBD mutation and 2/23 (8.7%) AR-wild-type patients in phase I, and in 24/
Maxone73
in
Advanced Prostate Cancer
6 months ago
Clinical trial NCT05898399: for BRCA (ATM as well I suppose) mutations
Study of ART6043 in Advanced/Metastatic Solid Tumors Patients This company is also developing an interesting ATR inhibitor for ATM mutations https://classic.clinicaltrials.gov/ct2/show/NCT05898399
Study of ART6043 in Advanced/Metastatic Solid Tumors Patients This company is also developing an interesting ATR inhibitor for ATM mutations https://classic.clinicaltrials.gov/ct2/show/NCT05898399
Maxone73
in
Advanced Prostate Cancer
6 months ago
Confusing news from oncologist
Hi all, looking for some insight or direction based off of any experiences or similar ones. My dad started chemo in October with a PSA of 126. After 2 rounds of chemo, his PSA rose to 153, we saw some increase in his bone metastasis as according to the scans (posted about this previously). My dad
Hi all, looking for some insight or direction based off of any experiences or similar ones. My dad started chemo in October with a PSA of 126. After 2 rounds of chemo, his PSA rose to 153, we saw some increase in his bone metastasis as according to the scans (posted about this previously). My dad
StayingSTRNG
in
Advanced Prostate Cancer
6 months ago
SBRT #4
Update on yesterday's SBRT #4. The machine that is treating me (Varian Edge) takes two revolutions to administer the fraction. They line you up with lasers and images before, track the fiducials during the rotation (and the machine automatically holds the beam if you and/or your prostate move out of
Update on yesterday's SBRT #4. The machine that is treating me (Varian Edge) takes two revolutions to administer the fraction. They line you up with lasers and images before, track the fiducials during the rotation (and the machine automatically holds the beam if you and/or your prostate move out of
ToolBeltZia
in
Prostate Cancer Network
6 months ago
A plea from your brother
Click here to securely donate in any currency: https://malecare.org/donate Click here to securely donate in any currency:A Plea from Your Brother My prostate cancer diagnosis introduced me to Malecare - with the commanding encouragement of my urologist. My experiences validated the organization's remarkable
Click here to securely donate in any currency: https://malecare.org/donate Click here to securely donate in any currency:A Plea from Your Brother My prostate cancer diagnosis introduced me to Malecare - with the commanding encouragement of my urologist. My experiences validated the organization's remarkable
Darryl
Partner
in
Prostate Cancer Network
6 months ago
A plea from your brother
Click here to securely donate in any currency: https://malecare.org/donate A Plea from Your Brother My prostate cancer diagnosis introduced me to Malecare - with the commanding encouragement of my urologist. My experiences validated the organization's remarkable efforts in supporting men like me. I'm
Click here to securely donate in any currency: https://malecare.org/donate A Plea from Your Brother My prostate cancer diagnosis introduced me to Malecare - with the commanding encouragement of my urologist. My experiences validated the organization's remarkable efforts in supporting men like me. I'm
Darryl
Partner
in
Advanced Prostate Cancer
6 months ago
Blood in Urine
Hi fellow fighters Had blood in my urine the last 10 days. Hoped it was a UTI but a course of antibiotics has failed. I had a bladder neck incision last June to help urinary flow. The urologist saw a suspicious patch and a biopsy confirmed it my prostate cancer has spread to my bladder. I’m hoping
Hi fellow fighters Had blood in my urine the last 10 days. Hoped it was a UTI but a course of antibiotics has failed. I had a bladder neck incision last June to help urinary flow. The urologist saw a suspicious patch and a biopsy confirmed it my prostate cancer has spread to my bladder. I’m hoping
Tonyliv
in
Advanced Prostate Cancer
6 months ago
cancer marker 15-3
My moms marker went up from 163 to 332 . She started her second line treatment about 7 weeks ago after being on Ibrance and Femara for around 2 and half years. She is now on faslodex and anfintor. Does this mean its not working ? And if it’s not will they change both meds or just one of them? Thank
My moms marker went up from 163 to 332 . She started her second line treatment about 7 weeks ago after being on Ibrance and Femara for around 2 and half years. She is now on faslodex and anfintor. Does this mean its not working ? And if it’s not will they change both meds or just one of them? Thank
Flower1513
in
SHARE Metastatic Breast Cancer
8 months ago
New Challenge!
Hi, I haven’t been on here for a while as was diagnosed with stage 2 breast cancer following a mammogram in late September. I underwent surgery for a mastectomy with a reconstruction on 15 th December and now starting my recovery! So going to be tricky managing my PMR symptoms as well as deal with this
Hi, I haven’t been on here for a while as was diagnosed with stage 2 breast cancer following a mammogram in late September. I underwent surgery for a mastectomy with a reconstruction on 15 th December and now starting my recovery! So going to be tricky managing my PMR symptoms as well as deal with this
GwenTheHen16
in
PMRGCAuk
6 months ago
Not where I expected to be
Hello to all, After my recent dx...shock...I decided to read other posts before I shared my story. I appreciate hearing about the travelling and CTGirl1962 mentioned handling this like a chronic illness... I have been a breast cancer survivor since 2010. That year my birthday present was having a
Hello to all, After my recent dx...shock...I decided to read other posts before I shared my story. I appreciate hearing about the travelling and CTGirl1962 mentioned handling this like a chronic illness... I have been a breast cancer survivor since 2010. That year my birthday present was having a
Hoehn
in
SHARE Metastatic Breast Cancer
9 months ago
Scans
Had my first Cat and bone scan since starting Enhertu.All was good.Blood work greatly improved.Tumor markers better Stable with slight improvement overall in bones and liver.Very pleased with Enhertu as I am having no side effects whatsoever 👍
Had my first Cat and bone scan since starting Enhertu.All was good.Blood work greatly improved.Tumor markers better Stable with slight improvement overall in bones and liver.Very pleased with Enhertu as I am having no side effects whatsoever 👍
Figletf
in
SHARE Metastatic Breast Cancer
6 months ago
New Med: Abraxane!!!!
Yep, another change. Enhertu was tolerable but did not see any improvement as expected. Now on round one (3 infusions) of Abraxane. So far ok. A great deal of tummy issues diarrhea etc and definitely hair loss!!! I cut my hair today ; tired of seeing it all over the house. lol I feel ok better than expected
Yep, another change. Enhertu was tolerable but did not see any improvement as expected. Now on round one (3 infusions) of Abraxane. So far ok. A great deal of tummy issues diarrhea etc and definitely hair loss!!! I cut my hair today ; tired of seeing it all over the house. lol I feel ok better than expected
Hotlantaphatz
in
SHARE Metastatic Breast Cancer
6 months ago
SMALL-CELL NEUROENDOCRINE CARCINOMA
Following prostate cancer first treated with low dose brachytherapy, then ten years later with high dose brachytherapy, from a biopsy following a Turp, I was diagnosed with SMALL-CELL NEUROENDOCRINE CARCINOMA. From a CT scan this was found in my prostate, bladder, and lower colon. I am told that it
Following prostate cancer first treated with low dose brachytherapy, then ten years later with high dose brachytherapy, from a biopsy following a Turp, I was diagnosed with SMALL-CELL NEUROENDOCRINE CARCINOMA. From a CT scan this was found in my prostate, bladder, and lower colon. I am told that it
gegan01
in
Prostate Cancer Network
6 months ago
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