Breast cancer and ribociclib

[GLRocc]

I am in my late 60's and was diagnosed with stage 3 breast cancer and had mastectomy. The cancer had not spread. I could not have chemo due to having another condition and concerns about long term effects of one of the components of chemo, plus I was not suitable for radiotherapy. I have been on anastrazole and infusions of Zolenronic acid for a while now and so far and have felt well with minimum side effects. I am about to start taking adjuvant ribociclib, as another preventative measure (for 3 years) and now I'm worried. Having read the 2 A4 pages of side effect (I do realise that side effects differ from person to person) my concerns are how I'm going to cope with day to day life and side effects and how restricted life might become. I live alone and a lot of my social activity is done with walking groups etc. My oncologist says most people cope "quite well" but I would really appreciate hearing other people's experiences of ribociclib and anything which they find makes if easier to cope

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I can’t help on this particular drug. I was diagnosed over ten years ago at your age and had mastectomy, plus adjuvant radio and anastrazole. I found the anastrazole (and it’s cousins which I also tried) hard to take as they cause muscle and joint pain. I’m now off all therapy except pain killers. I’m well and enjoying life

My own doctor is a pain specialist and prescribed Butec patches which very much helped.

You might get some help from MacMillan or one of the other breast cancer charities.

The reason im writing is just to say you have my sympathies and best wishes.