Loss of Parathyroids during Thyroidectomy

[Margo]

It is now 20 years since my thyroidectomy and loss of one or more parathyroids, requiring me to take meds for my lack of parathyroids.

I would like to know what other people take? I am on Alfacalcidol, VitD3, Magnesium for my bones.

Any suggestions as I would like to stop taking Alfacalcidol? Thank you.

[Oatcake]

Hi Margo, I was in exactly same situation as yourself. I have been on AdcalD3 for over 20 years and have been ok on that except when they tried to move me to a cheaper alternative with aspartame in it. Aspartame does dreadful things to me, so had to request AdcalD3. I also supplement magnesium. Sorry, I don't think my comments will help much.

Is there a particular reason why you want to stop the alfacalcidol?

[Margo in reply to Oatcake]

Thank you, your reply was helpful. I didn't know about the aspartame in the medication. I know it is in some, why do they do it? It's a poison and has very bad affects on people. if I can avoid pharmaceutical products where there is a more natural alternative I will always change meds.

[Panda_26]

Hi, Me too, I'm in same position after loosing some or all of mine over 20 years ago. I originally took Alpha but in recent years have opted for another way. I take D3 with K2 (in quite large doses especially in winter) , magnesium, and a joint mix supplement as recommended by Dr Myhill that has a bit of everything in including silica and boron.

[Margo in reply to Panda_26]

Thank you this is exactly the answer I was looking for. I take D3, K2 and magnesium. I had a spell of not taking the Alfacalcidol, but had big problems without it. I have never been sure of the exact amounts to take to avoid the Alfacalcidol. Would you mind to tell me exactly what you take and how much, so I can give it a go too. Thank you so much.

[Panda_26 in reply to Margo]

Course ! So what works for me so far is Youth & Earth D3 & K2, - 4000iu, same brand magnesium threonate - 150mg, and Dr Myhill s joint mix ( available from her website) containing glucosamine , small amount of D3, silica, and magnesium stearate . You dose this according to your weight . - explained on container ! Hope that helps. 👍😊

[Margo in reply to Panda_26]

Brilliant thank you. How do you take this, how many times a day?

[Panda_26 in reply to Margo]

I take the D with a late brekkie , - usually eggs so there's some healthy fat to help absorption, and 2 joint ones ( my dose is 6) then 2 more afternoon and 2 eve. At that time I also take the magnesium as it helps with sleep .

[Shellian]

Hi Margo, I take the One Alpha, 1 microgram (4 x 0.25 tablets), I supplement with 2000 or sometimes 3000iu Dr's Best Vitamin D3 and vitamin K2 drops ( Vitamaze drops).

I have tried to take magnesium but don't seem to get on with it. What magnesium do you take?

I also supplement with a teapoonful of Cod Liver Oil daily and once a week I have B12 drops ( Nature Provides). I did used to take B supplement but seem better without them at the moment.

Taking the extra Vit D3 has been the best thing to stabilise my calcium levels, I think. I hardly ever get symptoms of low calcium ( unless I am out & I forget to take One Alpha tablets out with me, so can't take them till later.)

I have tried to reduce the One Alpha but immediately my calcium drops. One of my parathyroids was squashed back in, and must work a bit as I do have a low PTH reading.

I would like to stop the One Alpha as I think it contributes to itchiness and abdominal pain, especially if I forget to take it straight after a large meal.

What are you considering taking instead?

Thank you.

[Margo in reply to Shellian]

Thanks for your reply. I take magnesium glycerinate. However I am keen to try the method that Panda_26 has mentioned in the above response to me. I think for me that might be the way forward.