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Please share your vaccine experiences if you did or your concerns if you didn't. I'm up in the air!!
Hello Everyone, If you have a moment can you please share your vaccine experience if you've had it. And also your concerns if you decided not to, or wait. I'm up in the air! FYI I'm 5.5 yrs out, HER2 & Estrogen+...on AROMASIN and doing well so far. (Finger's crossed) Did your oncologist recommend
Hello Everyone, If you have a moment can you please share your vaccine experience if you've had it. And also your concerns if you decided not to, or wait. I'm up in the air! FYI I'm 5.5 yrs out, HER2 & Estrogen+...on AROMASIN and doing well so far. (Finger's crossed) Did your oncologist recommend
iamTeal
in
SHARE Breast Cancer Support
3 years ago
Has anyone been advised by their oncologist to stop chemo 1 week before and 1 week after a Covid vaccination?
Hello. I had my first dose of Astra Zeneca on 19 May and was told by my onc to stop taking Xeloda one week before the vaccination and another week after. Yesterday I had my blood tests and my CA15-3 increased by 12% and CEA by 50%. I’m wondering if this has been caused by my 2 week stoppage of Xeloda
Hello. I had my first dose of Astra Zeneca on 19 May and was told by my onc to stop taking Xeloda one week before the vaccination and another week after. Yesterday I had my blood tests and my CA15-3 increased by 12% and CEA by 50%. I’m wondering if this has been caused by my 2 week stoppage of Xeloda
MyMiracle13
in
SHARE Metastatic Breast Cancer
3 years ago
Any experience with treatment shrinking liver mets but bone mets spreading?
I'm 54 with stage 4 breast cancer that has metastasized to bones and liver. My primary stage 2 tumor was treated with chemo, lumpectomy, radiation in 2019 with what appeared to be a complete response at the time. This January I got the current diagnosis with mets in bones and liver. First line treatment
I'm 54 with stage 4 breast cancer that has metastasized to bones and liver. My primary stage 2 tumor was treated with chemo, lumpectomy, radiation in 2019 with what appeared to be a complete response at the time. This January I got the current diagnosis with mets in bones and liver. First line treatment
Lakeview4Serenity
in
SHARE Metastatic Breast Cancer
3 years ago
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Anyone have Zometa infusions
Hello. I am 63 and 7 months post mastectomy, and have been on anastrazole since January. My oncologist has suggested I have Zometa infusions every 6 months. I understand there are downsides to consider, including jaw problems. I welcome all insight Thank you in advance!
Hello. I am 63 and 7 months post mastectomy, and have been on anastrazole since January. My oncologist has suggested I have Zometa infusions every 6 months. I understand there are downsides to consider, including jaw problems. I welcome all insight Thank you in advance!
Ladydee123
in
SHARE Breast Cancer Support
3 years ago
Patient Experiences Regarding Side Effects
Ever wonder whether the scientific community truly listens to patients? The answer is "very much so!" because this Saturday the voices of 1,221 patients with metastatic breast cancer (MBC) will resonate around the world at ASCO's annual conference! The results of the Patient-Centered Dosing Initiative's
Ever wonder whether the scientific community truly listens to patients? The answer is "very much so!" because this Saturday the voices of 1,221 patients with metastatic breast cancer (MBC) will resonate around the world at ASCO's annual conference! The results of the Patient-Centered Dosing Initiative's
Bestbird
in
SHARE Metastatic Breast Cancer
3 years ago
Faslodex and body odor
I’ve been on Ibrance 100 mg tablets and monthly Faslodex injections for 23 months. I’ve noticed that after getting my monthly injections I develop a strange body odor, especially noticeable when urinating, and the odor (strong and unpleasant ) lasts for several days. It took several cycles of injections
I’ve been on Ibrance 100 mg tablets and monthly Faslodex injections for 23 months. I’ve noticed that after getting my monthly injections I develop a strange body odor, especially noticeable when urinating, and the odor (strong and unpleasant ) lasts for several days. It took several cycles of injections
Hidden
in
SHARE Breast Cancer Support
3 years ago
Breast cancer and AFIB
I have PAF for many year, that treated by med. I am 81, working, active , but not exersize Accidentally, found a lump in my breast , have twice monogram and ultrasound . Size 1.5x1.5cm More likely tumor- waiting for biopsy result.Since 2013 hasn't been done breast checkup .Never thing about requesting
I have PAF for many year, that treated by med. I am 81, working, active , but not exersize Accidentally, found a lump in my breast , have twice monogram and ultrasound . Size 1.5x1.5cm More likely tumor- waiting for biopsy result.Since 2013 hasn't been done breast checkup .Never thing about requesting
Alemo27
in
AF Association
3 years ago
Pleural effusion
CA125 went down after pleural effusion drainage? Mother is scheduled for PE thoracentesis next week. Is it possible that CA125 will go down after fluid drainage?
CA125 went down after pleural effusion drainage? Mother is scheduled for PE thoracentesis next week. Is it possible that CA125 will go down after fluid drainage?
Hope4allG
in
My Ovacome
3 years ago
No more Letrozole
Good morning everyone! Thank you all for your suggestions. A little background on myself. I was first diagnosed in 2004. I was put on tamoxifen right away. Already having interstitial cystitis, which is a incurable disease of the bladder, I started having awful bladder pain after 3 months. I was taken
Good morning everyone! Thank you all for your suggestions. A little background on myself. I was first diagnosed in 2004. I was put on tamoxifen right away. Already having interstitial cystitis, which is a incurable disease of the bladder, I started having awful bladder pain after 3 months. I was taken
Jhshl512
in
SHARE Metastatic Breast Cancer
3 years ago
Let's Talk About It: TNBC - Ask Me Anything with an Oncologist
Do you have specific questions regarding diagnosis and treatment for TNBC? Talk one-on-one with Dr. Linda Vahdat, Chief of Medical Oncology and Clinical Director of Cancer Services at Norwalk Hospital, and has expertise is in treating people with triple negative breast cancer. Link below to join us
Do you have specific questions regarding diagnosis and treatment for TNBC? Talk one-on-one with Dr. Linda Vahdat, Chief of Medical Oncology and Clinical Director of Cancer Services at Norwalk Hospital, and has expertise is in treating people with triple negative breast cancer. Link below to join us
Rheanna_SHARE
Partner
in
SHARE Breast Cancer Support
3 years ago
Second opinion
Hi ladies, following on from my recent post, about whether to have tamoxifen or chemo, I have had further consultation with my oncologist today. He is going to discuss my scan with gynae/ liver team and has asked pathology to test tumour for braca. (already had blood tested and it was negative after
Hi ladies, following on from my recent post, about whether to have tamoxifen or chemo, I have had further consultation with my oncologist today. He is going to discuss my scan with gynae/ liver team and has asked pathology to test tumour for braca. (already had blood tested and it was negative after
Laz66
in
My Ovacome
3 years ago
2nd Scan and all good. Happy Days and great Summer 2021.
Second Scan on Ibrance , fulvestrant and Denosumab. All Stable , happy days. Off to the Uk Lake District for weekend so a brilliant start to the weekend. I was diagnosed Nov 2020 with MBC and really thought well this is it now after having breast cancer twice since 2012 but you know what, it isn’t it
Second Scan on Ibrance , fulvestrant and Denosumab. All Stable , happy days. Off to the Uk Lake District for weekend so a brilliant start to the weekend. I was diagnosed Nov 2020 with MBC and really thought well this is it now after having breast cancer twice since 2012 but you know what, it isn’t it
debbiedo2063
in
SHARE Metastatic Breast Cancer
3 years ago
Y90?
So, after 7 months, Xeloda has failed me. The vague pain in my side was exactly what I was worried it would be. The lesions in my liver have tripled. Another therapy down. I will schedule a consult with an interventional radiologist for possible Y90 treatment. The oncologist wants to move me to a SERD
So, after 7 months, Xeloda has failed me. The vague pain in my side was exactly what I was worried it would be. The lesions in my liver have tripled. Another therapy down. I will schedule a consult with an interventional radiologist for possible Y90 treatment. The oncologist wants to move me to a SERD
Arisgram
in
SHARE Metastatic Breast Cancer
3 years ago
Should FISH test be repeated?
Does anyone know if the FISH test is repeated for people with stage zero CLL? I had the test when I was first diagnosed in December 2017, and assume it hasn’t been repeated because my office exam with my hematologist this month didn’t reveal swollen lymph nodes or enlarged spleen.
Does anyone know if the FISH test is repeated for people with stage zero CLL? I had the test when I was first diagnosed in December 2017, and assume it hasn’t been repeated because my office exam with my hematologist this month didn’t reveal swollen lymph nodes or enlarged spleen.
Myfavoritecat
in
CLL Support
3 years ago
Afinitor
Hello, I was on xeloda for just a little while cause i got sick, Now i am on afinitor and exemestane and it looks like i have alopecia in some spots . What can i use for it and what kind of haircut for me , My hair is short now any advice someone can give me. Helena
Hello, I was on xeloda for just a little while cause i got sick, Now i am on afinitor and exemestane and it looks like i have alopecia in some spots . What can i use for it and what kind of haircut for me , My hair is short now any advice someone can give me. Helena
Iwouldlike2knowmore
in
SHARE Metastatic Breast Cancer
3 years ago
Anyone go on Verzenio after Ibrance stopped working?
Hi ladies, I was recently taken off of Xeloda after 3 cycles due to progression. Still bone mets but there might be something in my lung that can't be confirmed if its a tumor or scar tissue. My primary Onc wants me to go on IV chemo Vinorelbine because all other target drugs have failed. However
Hi ladies, I was recently taken off of Xeloda after 3 cycles due to progression. Still bone mets but there might be something in my lung that can't be confirmed if its a tumor or scar tissue. My primary Onc wants me to go on IV chemo Vinorelbine because all other target drugs have failed. However
Jonesburger
in
SHARE Metastatic Breast Cancer
3 years ago
Mets to T-9
2nd PET end February demonstrated continuation of remission to Mets in my T-9. I underwent Radiotherapy to T8 - T11, I take Ibrance, Letrozole and Denusomab six monthly. Seems my back goes through bouts of pain especially first few months after Denusomab (last one end March) any one else experiences
2nd PET end February demonstrated continuation of remission to Mets in my T-9. I underwent Radiotherapy to T8 - T11, I take Ibrance, Letrozole and Denusomab six monthly. Seems my back goes through bouts of pain especially first few months after Denusomab (last one end March) any one else experiences
Gramat
in
SHARE Metastatic Breast Cancer
3 years ago
Target Medicine Changing from Ibrance to Vezernio
Hello, my wife was diagnosed with stage 4 breast cancer back in June of 2018. She had been in NED since Feb of 2019 but her cancer marker CA 27.29 had increased to 66 and 81 respectively for the past two blood tests. Her current medication is Ibrance + Letrozole and her oncologist would like to change
Hello, my wife was diagnosed with stage 4 breast cancer back in June of 2018. She had been in NED since Feb of 2019 but her cancer marker CA 27.29 had increased to 66 and 81 respectively for the past two blood tests. Her current medication is Ibrance + Letrozole and her oncologist would like to change
BlessedHubby
in
SHARE Metastatic Breast Cancer
3 years ago
Update Change to Eribulin
Two weeks ago I was put on Eribulin IV chemo, told its side effects would be much worse than my po meds. I ended up in the hospital with a white count down to almost zero, muccositis ( inflammation of the mucous membranes). The muccositis hurt so bad I couldn’t drink so I was dehydrated as well. After
Two weeks ago I was put on Eribulin IV chemo, told its side effects would be much worse than my po meds. I ended up in the hospital with a white count down to almost zero, muccositis ( inflammation of the mucous membranes). The muccositis hurt so bad I couldn’t drink so I was dehydrated as well. After
Red71
in
SHARE Metastatic Breast Cancer
3 years ago
Stunned
Hello all! Have had bone mets since the beginning of this journey 6 years ago. Last January I was also diagnosed with stomach mets. Stopped taking arimidex and fulvestrant and was put on Ibrance and Tamoxifen. Had another endoscopy two days ago and the doctor said there is absolutely no sign of any
Hello all! Have had bone mets since the beginning of this journey 6 years ago. Last January I was also diagnosed with stomach mets. Stopped taking arimidex and fulvestrant and was put on Ibrance and Tamoxifen. Had another endoscopy two days ago and the doctor said there is absolutely no sign of any
Nocillo
in
SHARE Metastatic Breast Cancer
3 years ago
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