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Brain tumours (low-grade/mixed)
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Helperwifey
I am the wife of a husband who has advanced prostate cancer. He has just finished 6 rounds of Taxotere chemotherapy. He has taken Orgovyx and Nubeqa since his diagnosis. I am exploring holistic adjunctive therapy for him.
I am the wife of a husband who has advanced prostate cancer. He has just finished 6 rounds of Taxotere chemotherapy. He has taken Orgovyx and Nubeqa since his diagnosis. I am exploring holistic adjunctive therapy for him.
Helperwifey
in
Advanced Prostate Cancer
11 months ago
Dad actively dying , can't breathe. Horrifying. Need support after today if anyone available to reach out.
Seven year aggressive fight against stage four cancer from the start which after treatment turned to cll. His pca never changed but very slightly until of all meds and five weeks of hospice..chronic lymphocytic leukemia presumably from treatment is what's taking his life . "Gene's laughter and positive
Seven year aggressive fight against stage four cancer from the start which after treatment turned to cll. His pca never changed but very slightly until of all meds and five weeks of hospice..chronic lymphocytic leukemia presumably from treatment is what's taking his life . "Gene's laughter and positive
Daddyishealing
in
Advanced Prostate Cancer
11 months ago
Medication potential
Hi, I feel like an alcoholic, my name is Johnny, this is my first time here, I’ve had life changing FM for 4.5years and no days sober. I would like to know has anyone tried the following drugs and if so what were the results? Low dose Naltrexone, Milnacipran or Sunosi…..
Hi, I feel like an alcoholic, my name is Johnny, this is my first time here, I’ve had life changing FM for 4.5years and no days sober. I would like to know has anyone tried the following drugs and if so what were the results? Low dose Naltrexone, Milnacipran or Sunosi…..
Hidden
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Fibromyalgia Action UK
1 year ago
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Bells Palsy that never was
Hi all, I mentioned a few weeks ago that I was diagnosed with Bells Palsy', and put on prednisolone for 10 days, it didn't work, and I was sent to an ENT man, who did an MRI which confirmed that I did not have the Bells Palsy, but they found a small tumour active and moving in my left facial area. I
Hi all, I mentioned a few weeks ago that I was diagnosed with Bells Palsy', and put on prednisolone for 10 days, it didn't work, and I was sent to an ENT man, who did an MRI which confirmed that I did not have the Bells Palsy, but they found a small tumour active and moving in my left facial area. I
Vindicatrix
in
CLL Support
11 months ago
Pet scan vs CT scan
Hi fellow warriors, I've just had a phone appointment with my Oncologist my PSA is 0.7 and started to go up but not high enough to warrant having a Scan at the moment.My problem is she doesn't think she will be able to put me forward for a Pet scan as I have already had a couple in the past and with
Hi fellow warriors, I've just had a phone appointment with my Oncologist my PSA is 0.7 and started to go up but not high enough to warrant having a Scan at the moment.My problem is she doesn't think she will be able to put me forward for a Pet scan as I have already had a couple in the past and with
Chubby42
in
Advanced Prostate Cancer
11 months ago
excuse me asking. Brain fog.
Just a quickie, and excuse me for treading over old ground. Re starting Tapering , from 10 . My Dr called me whilst I was away, for an update on my Cancer Op, how was I feeling etc……. Mentioned to him about going back onto Pred, due to my fingers & hands . Long story short, wanted me to try and taper
Just a quickie, and excuse me for treading over old ground. Re starting Tapering , from 10 . My Dr called me whilst I was away, for an update on my Cancer Op, how was I feeling etc……. Mentioned to him about going back onto Pred, due to my fingers & hands . Long story short, wanted me to try and taper
Stifffingers
in
PMRGCAuk
11 months ago
Inspiration
This is a photo of me after 9 months on ADT, age 70. I’ve always tried to stay in good shape. Jack LaLane inspired me as a kid in the early 1960’s. Later inspired by Larry Scott, Arnold, Lou and others. I built muscle naturally, no steroids. As my testosterone naturally decreased in my late 50’
This is a photo of me after 9 months on ADT, age 70. I’ve always tried to stay in good shape. Jack LaLane inspired me as a kid in the early 1960’s. Later inspired by Larry Scott, Arnold, Lou and others. I built muscle naturally, no steroids. As my testosterone naturally decreased in my late 50’
Gym-rat
in
Advanced Prostate Cancer
1 year ago
A update on treatment/ and more.
I went for number two of a short three BCG course for my BC. The liquid BCG is inserted into bladder from a huge syringe into a catheter. A student nurse was present and my Urology Nurse a=said to het I had Muscle Invasive Bladder Cancer. news to me, I said and don't know why - I will now
I went for number two of a short three BCG course for my BC. The liquid BCG is inserted into bladder from a huge syringe into a catheter. A student nurse was present and my Urology Nurse a=said to het I had Muscle Invasive Bladder Cancer. news to me, I said and don't know why - I will now
Ern007
in
Lung Conditions Community Forum
11 months ago
New to the forum Peak Flow questions
Hi and thank you for allowing me to join your forum. Q: So I've done a peak flow diary over 22 days before I speak to GP tomorrow. My average readings are between 250 and 290. Is this poor? I have a complex health history, many battles with health pros, lots of investigations and some firm diagnoses
Hi and thank you for allowing me to join your forum. Q: So I've done a peak flow diary over 22 days before I speak to GP tomorrow. My average readings are between 250 and 290. Is this poor? I have a complex health history, many battles with health pros, lots of investigations and some firm diagnoses
Sallybones
in
Lung Conditions Community Forum
9 months ago
Biopsy results
I received my biopsy results today. Last week the doctor took out a 2cm polyp in my sigmoid colon. My symptoms were blood in stool and rectal pressure. It came back as having some high grade dysplasia (precancerous) so I will need to repeat a colonoscopy in three years. If anyone is concerned about
I received my biopsy results today. Last week the doctor took out a 2cm polyp in my sigmoid colon. My symptoms were blood in stool and rectal pressure. It came back as having some high grade dysplasia (precancerous) so I will need to repeat a colonoscopy in three years. If anyone is concerned about
Hidden
in
Colon Cancer Connected
11 months ago
Not sure what to do!
Had shingles about a month ago, it’s cleared up now, started after taking abatacept first injection, had anti virals, not sure now if I should go back on it, also take MTX which wasn’t working good after being on it for 16 years, funny thing is my crp came back at 3 after having shingles and anti
Had shingles about a month ago, it’s cleared up now, started after taking abatacept first injection, had anti virals, not sure now if I should go back on it, also take MTX which wasn’t working good after being on it for 16 years, funny thing is my crp came back at 3 after having shingles and anti
Kate2628
in
NRAS
1 year ago
Really positive respiratory review
I know I've moaned a lot on here about the difficulties I've had in getting the right care since diagnosis, but I had an annual respiratory review this week and it was really good - so thorough, and the nurse really listened to what I was saying and was working with me to keep the asthma well managed
I know I've moaned a lot on here about the difficulties I've had in getting the right care since diagnosis, but I had an annual respiratory review this week and it was really good - so thorough, and the nurse really listened to what I was saying and was working with me to keep the asthma well managed
Mandevilla
in
Asthma Community Forum
9 months ago
Clinical Trial with Abemaciclib and Olaparib
Hey Queens! I am reaching out to see if anyone is participating in this clinical trial. I am having a hard time deciding if this is a “favorable” option for me. I’d love to get some type of feedback from an actual patient. It’s fairly new, so any findings seem impossible to come by. Also, I’
Hey Queens! I am reaching out to see if anyone is participating in this clinical trial. I am having a hard time deciding if this is a “favorable” option for me. I’d love to get some type of feedback from an actual patient. It’s fairly new, so any findings seem impossible to come by. Also, I’
TealBlooms
in
My Ovacome
11 months ago
Reaction when first diagnosed with APCa
When I heard I had APCa I was not happy of course, but also not surprised too much since it runs heavy in my family. It took a while to realize it was the first day of the rest of my life, And if I didn't make some changes it could be a short one. I went mostly vegetarian, committed to daily exercise
When I heard I had APCa I was not happy of course, but also not surprised too much since it runs heavy in my family. It took a while to realize it was the first day of the rest of my life, And if I didn't make some changes it could be a short one. I went mostly vegetarian, committed to daily exercise
Derf4223
in
Advanced Prostate Cancer
11 months ago
Acoustic Neuroma - MRI Report After 1.5y of Surgery
Hi All. My wife(28y) was diagnosed with 1.3cm large Acoustic Neuroma and it's surgically removed in 2022 March. after surgery she is having deafness in right side and weakness of facial movement on right side. but those are manageable and now she is working as usual. only few symptoms are noticed
Hi All. My wife(28y) was diagnosed with 1.3cm large Acoustic Neuroma and it's surgically removed in 2022 March. after surgery she is having deafness in right side and weakness of facial movement on right side. but those are manageable and now she is working as usual. only few symptoms are noticed
siva_s
in
Acoustic Neuroma Support
11 months ago
Orserdu
After almost 6 years of being stable on Ibrance and letrozole I now have some very small progression into both my hips. My initial metastatic disease was in my lungs. I also tested positive for a mutation that frequently happens. That being said I am eligible to take the brand new drug Orserdu/elacestrant
After almost 6 years of being stable on Ibrance and letrozole I now have some very small progression into both my hips. My initial metastatic disease was in my lungs. I also tested positive for a mutation that frequently happens. That being said I am eligible to take the brand new drug Orserdu/elacestrant
HopeinNJ
in
SHARE Metastatic Breast Cancer
11 months ago
Newly Diagnosed and shocked
50 yrs old. Just got diagnosed with prostate cancer. Gleason 9. Spread to pelvic and vertebrae Took first casadex pill today. Will do injection (turpa I think) within 2 weeks Pretty down as you can imagine because of words like incurable!! Just saying Hi and will start checking out the site and
50 yrs old. Just got diagnosed with prostate cancer. Gleason 9. Spread to pelvic and vertebrae Took first casadex pill today. Will do injection (turpa I think) within 2 weeks Pretty down as you can imagine because of words like incurable!! Just saying Hi and will start checking out the site and
Yzinger
in
Advanced Prostate Cancer
11 months ago
PSMA PET 2 weeks after EBRT
So my MO scheduled a PSMA PET 2 weeks after the end of my EBRT. I didn't argue and did it. Im seeing her tomorrow and will ask why. Maybe she forgot I did radiation?? Ill ask for another in 3 months. Meanwhile, the report shows the lymph node is now mild uptake SUV 2.5 MAX. It was intensely radiotracer
So my MO scheduled a PSMA PET 2 weeks after the end of my EBRT. I didn't argue and did it. Im seeing her tomorrow and will ask why. Maybe she forgot I did radiation?? Ill ask for another in 3 months. Meanwhile, the report shows the lymph node is now mild uptake SUV 2.5 MAX. It was intensely radiotracer
Hidden
in
Advanced Prostate Cancer
11 months ago
DBS stimulator pros and cons
Can you turn DBS stimulator Off and control it with medication as before surgery?
Can you turn DBS stimulator Off and control it with medication as before surgery?
surdug1
in
Cure Parkinson's
1 year ago
caught prostate cancer?
I have heard Dr. Schloz of you tube fame and one of our colleagues refer to PCA as “being caught”? Did we catch prostate cancer from a virus? I have a family history my father, his brother, my grandfather. But by far mine is the most aggressive? On my mothers side brca is present but she has had
I have heard Dr. Schloz of you tube fame and one of our colleagues refer to PCA as “being caught”? Did we catch prostate cancer from a virus? I have a family history my father, his brother, my grandfather. But by far mine is the most aggressive? On my mothers side brca is present but she has had
Nowhereman9
in
Advanced Prostate Cancer
11 months ago
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