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Brain arteriovenous malformation (AVM)
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Deafness/tinnitus
I have had on-going tinnitus since having radio active iodine treatment for thyroid cancer, 2003 and a second dose 2004. I am not sure if it is connected, but seems too much of a coincidence. A fortnight ago I woke up stone deaf in my left ear, I now have very limited hearing in that ear. My G.P
I have had on-going tinnitus since having radio active iodine treatment for thyroid cancer, 2003 and a second dose 2004. I am not sure if it is connected, but seems too much of a coincidence. A fortnight ago I woke up stone deaf in my left ear, I now have very limited hearing in that ear. My G.P
Margo
in
Thyroid UK
11 years ago
Cystic mass in brain pressing on pituitary gland, 2 cm - pooping myself!
OMG so scared - MRI scan done Friday, Dr called me in for results this morning. Urgent referral to neurologist - I'm panicking - type into google and all says brain tumour! I lost central vision in eye 13 months ago, am very dizzy. Begged dr for MRI and this is the result. OMG.
OMG so scared - MRI scan done Friday, Dr called me in for results this morning. Urgent referral to neurologist - I'm panicking - type into google and all says brain tumour! I lost central vision in eye 13 months ago, am very dizzy. Begged dr for MRI and this is the result. OMG.
Loo44
in
Thyroid UK
11 years ago
Deep-brain stimulation (DBS) - some information
Hello everyone There was a very informative programme about DBS yesterday on BBC TV radio 4 - see http://www.bbc.co.uk/learningzone/clips/deep-brain-stimulation-a-treatment-for-depression/5364.html Partner
Hello everyone There was a very informative programme about DBS yesterday on BBC TV radio 4 - see http://www.bbc.co.uk/learningzone/clips/deep-brain-stimulation-a-treatment-for-depression/5364.html Partner
Partner
in
Cure Parkinson's
11 years ago
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Has anyone had slow but some response to dbs? My Dr.is working it up slowly as my meds.are reduced. It is difficult to be patient!
nonnie
in
Cure Parkinson's
11 years ago
tomorrow is my appt for psychology workup prior to dbs any thoughts or tips for me?thanks please reply with your experience.
salon
in
Cure Parkinson's
11 years ago
Phenytoin and EEGs
Hi all. My husband has been on phneytoin for 3 years although they are not definite of seizure activity after his brain injury we are therefore going for an EEG but they have also said they dont know if that will tell us anything really he wants to wean off it as we have been told its not a good drug
Hi all. My husband has been on phneytoin for 3 years although they are not definite of seizure activity after his brain injury we are therefore going for an EEG but they have also said they dont know if that will tell us anything really he wants to wean off it as we have been told its not a good drug
Kblue
in
Headway
11 years ago
DBS they will not change the battery . Feel like I am in some sick study. For over a year I have been told the battery is good for 3 months.
I say you said that last time and the time before . I told them its not working only to be told it is. I ask them to prove it and turn it off. Only to be fob off with if we turn it off may not be able to switch it on again . I don't believe them. my question is has any had a DBS switch off and on
I say you said that last time and the time before . I told them its not working only to be told it is. I ask them to prove it and turn it off. Only to be fob off with if we turn it off may not be able to switch it on again . I don't believe them. my question is has any had a DBS switch off and on
export
in
Cure Parkinson's
11 years ago
i got through appt for ekg next is mri soon dbs any advice for staying strong? please advice me . thanks
salon
in
Cure Parkinson's
11 years ago
WOULD LIKE TO HAVE INFORMATION FROM THOSE WHO HAVE HAD DBS
I am considering DBS and would like to hear from those who have experienced it themselves or with a spouse. I have a great fear of it for myself and my husband. I was dx 17 years ago, slow moving until recently. No tremors mostly bradykinisia. When I'm on dyskinisia. Is DBS hype? Does it improve
I am considering DBS and would like to hear from those who have experienced it themselves or with a spouse. I have a great fear of it for myself and my husband. I was dx 17 years ago, slow moving until recently. No tremors mostly bradykinisia. When I'm on dyskinisia. Is DBS hype? Does it improve
susieque
in
Cure Parkinson's
11 years ago
Weight gain. Why. After DBS or not
FifteenyearsPD
in
Cure Parkinson's
11 years ago
Cranioplasty
Well, since my last post, my lovely husband is still in hospital. Sadly, on Sunday he suffered yet another (his 4th) seizure, whilst his son was with him. Very scary for his son and him, but at least he was in bed and in the right place! He has been moved to a small ward next to the nurses station
Well, since my last post, my lovely husband is still in hospital. Sadly, on Sunday he suffered yet another (his 4th) seizure, whilst his son was with him. Very scary for his son and him, but at least he was in bed and in the right place! He has been moved to a small ward next to the nurses station
Molly15
in
Headway
11 years ago
Has anyone else had DBS and want to talk?
I underwent the 2 stage op in NZ in November 2012 and February 2013. Keen to talk to anyone who has been through this and can offer advice around living with DBS and what that means. Thanks (Not so) ShakingAJ
I underwent the 2 stage op in NZ in November 2012 and February 2013. Keen to talk to anyone who has been through this and can offer advice around living with DBS and what that means. Thanks (Not so) ShakingAJ
shakingaj
in
Parkinson's New Zealand
11 years ago
Operation done!
Good morning everyone. Well, since my last message, we had a phone call on Wednesday morning asking if we would like to come in the following day for surgery, instead of waiting until early July. A quick discussion followed and my husband decided it would be better to get it done. So he had his
Good morning everyone. Well, since my last message, we had a phone call on Wednesday morning asking if we would like to come in the following day for surgery, instead of waiting until early July. A quick discussion followed and my husband decided it would be better to get it done. So he had his
Molly15
in
Headway
11 years ago
Viral Meningitis Pilot Project
Hi everyone, if you have had Viral Meningitis and are interested in taking part in our Pilot Project looking at the benefit of complementary therapies to help with after effects of the disease let us know. Email SusanneM@meningitis-trust.org to register your interest.
Hi everyone, if you have had Viral Meningitis and are interested in taking part in our Pilot Project looking at the benefit of complementary therapies to help with after effects of the disease let us know. Email SusanneM@meningitis-trust.org to register your interest.
ThomasMN
in
Meningitis Now
11 years ago
Cranioplasty
We have been waiting for weeks now for a call or letter to give Steve a date for his Cranioplasty. This morning the call came, and now I am worrying myself sick about it all. He is so scared. When he had his 7 hours of brain surgery in October, of course he knew nothing about it, but this time the thought
We have been waiting for weeks now for a call or letter to give Steve a date for his Cranioplasty. This morning the call came, and now I am worrying myself sick about it all. He is so scared. When he had his 7 hours of brain surgery in October, of course he knew nothing about it, but this time the thought
Molly15
in
Headway
11 years ago
This is an interesting video for anyone considering DBS.
http://www.npr.org/blogs/krulwich/2013/06/25/195521917/the-man-with-a-battery-operated-brain
http://www.npr.org/blogs/krulwich/2013/06/25/195521917/the-man-with-a-battery-operated-brain
Susie01
in
Cure Parkinson's
11 years ago
PMR and Lyme disease?
Does anyone have any information on the connection between PMR and Lyme disease? It seems to be a suspected cause especially in America, I live in Africa and have had the local version, Tick Bite Fever. My Rheumy ruled out Tick Bite Fever as a cause but then said he didn't know what caused PMR!
Does anyone have any information on the connection between PMR and Lyme disease? It seems to be a suspected cause especially in America, I live in Africa and have had the local version, Tick Bite Fever. My Rheumy ruled out Tick Bite Fever as a cause but then said he didn't know what caused PMR!
Loco99
in
PMRGCAuk
11 years ago
VACCINES and RA
Hello All please would you give me some advice? I have been advised that I need a tetanus jab but it only comes with diphtheria and polio. As i have reactive psoriatic RA i am worried this vaccine will cause a fare...like every cold and gastric bug does. dies anyone have any advice? Thanks
Hello All please would you give me some advice? I have been advised that I need a tetanus jab but it only comes with diphtheria and polio. As i have reactive psoriatic RA i am worried this vaccine will cause a fare...like every cold and gastric bug does. dies anyone have any advice? Thanks
CLANCASTER
in
NRAS
11 years ago
I am getting conflicting advice about having the shingles injection that is to be available to over 70s in the autumn. Anyone really know?
mitzi2
in
CLL Support
11 years ago
Hi All, anyone suffering from STERNCLAVICULAR SYNDROME? Thought it was shingles to start with but it seems I was wrong! What next? C
caroline777
in
NRAS
11 years ago
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