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Brain arteriovenous malformation (AVM)
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Does anyone who has had DBS experience sharp, electrical like pains shooting down their legs. If so, can anything be done about it?
I am posing this question on behalf of a friend who has had DBS, but does not use the Internet. He had his DBS operation four years ago and goes for a 2 day assessment in London later this week.
I am posing this question on behalf of a friend who has had DBS, but does not use the Internet. He had his DBS operation four years ago and goes for a 2 day assessment in London later this week.
Norton1
in
Cure Parkinson's
11 years ago
Mother and Baby Volunteer Search
Dear new parents or parents to be, My name is Ayla and I am studying a Psychoanalytic Observational Studies course at The Tavistock and Portman trust and I am looking for a mother to volunteer with her newborn baby to take part in the Infant Observation sessions as a part of my studies. In order to
Dear new parents or parents to be, My name is Ayla and I am studying a Psychoanalytic Observational Studies course at The Tavistock and Portman trust and I am looking for a mother to volunteer with her newborn baby to take part in the Infant Observation sessions as a part of my studies. In order to
Aylam88
in
Pregnancy and Parenting Support
11 years ago
How is anyones post viral meningitis exercise program going?
Hello all, I am one year post viral meningitis diagnosis this month. I am not at work as I have had central sensitization of my central nervous system which gave me an over reaction to pain. So, I went back to work after three months and was pretty fatigued, then got whiplash and had corti steroids for
Hello all, I am one year post viral meningitis diagnosis this month. I am not at work as I have had central sensitization of my central nervous system which gave me an over reaction to pain. So, I went back to work after three months and was pretty fatigued, then got whiplash and had corti steroids for
rowenafly
in
Meningitis Now
11 years ago
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DBS
I have had DBS on Nov 2012,...... inspite of several tuning sessions unable to find the "sweet" spot.... frustrated
I have had DBS on Nov 2012,...... inspite of several tuning sessions unable to find the "sweet" spot.... frustrated
SuKas
in
Cure Parkinson's
11 years ago
Boy Did Reg Dwight Get it Right......... (More musings from your grumpy old Viral Meningitis and Half Ironman Triathlon Survivor)
when he sang 'it's sad, it's sad, it's a sad sad situation', yes its that time of year again when the Lumie bright light comes out and I try to stave off the attacks of being an even more grumpy old man than usual. Mind you if our Reg (or Elton John as he prefers now) thinks sorry is the hardest word
when he sang 'it's sad, it's sad, it's a sad sad situation', yes its that time of year again when the Lumie bright light comes out and I try to stave off the attacks of being an even more grumpy old man than usual. Mind you if our Reg (or Elton John as he prefers now) thinks sorry is the hardest word
Jonad724
in
Meningitis Now
11 years ago
Todays the day I get a translation of a hospital letter
I had a letter from the hospital that says "Tests showed significant CD4 lymphopenia (165 cells/microl - 320 -1500) negative HIV serology and raised neutrophil numbers" Well that really helped and explained it all !!! So this morning my GP is going to translate it into 'Patient English' . I try to
I had a letter from the hospital that says "Tests showed significant CD4 lymphopenia (165 cells/microl - 320 -1500) negative HIV serology and raised neutrophil numbers" Well that really helped and explained it all !!! So this morning my GP is going to translate it into 'Patient English' . I try to
moneal
in
Lung Conditions Community Forum
11 years ago
New symptom - Brain Freeze
This might sound mad but I've noticed when I am talking, I stop myself and think about what to say. I've never done this before and I am wondering why? I've also got a headache on the top of my head which isn't nice. Another worry for me to stress over. Does anyone else do this?
This might sound mad but I've noticed when I am talking, I stop myself and think about what to say. I've never done this before and I am wondering why? I've also got a headache on the top of my head which isn't nice. Another worry for me to stress over. Does anyone else do this?
CardiffGirl80
in
Anxiety Support
11 years ago
Just wondering, what supplements .....
...... extras and/or vitamins do you take to boost your immune systems, to keep well and infections at bay? Enjoy the rest of your weekend . peeg I take Manuka, Eskimo Oil, B12, D3, Multivit, Co-Q-10 (re statins), Beroca or similar with a dash of echinacea when iffy, glucosamine, plant sterols, devils
...... extras and/or vitamins do you take to boost your immune systems, to keep well and infections at bay? Enjoy the rest of your weekend . peeg I take Manuka, Eskimo Oil, B12, D3, Multivit, Co-Q-10 (re statins), Beroca or similar with a dash of echinacea when iffy, glucosamine, plant sterols, devils
peege
in
Lung Conditions Community Forum
11 years ago
does anyone who has had dbs ever hear very soft music that is not there
salon
in
Cure Parkinson's
11 years ago
Has anyone who has had the DBS Operation found that their PD seems to have gone. I had the Operation 2 weeks ago and I am still waiting
for an off period so that it can turned on.
for an off period so that it can turned on.
fitzy777
in
Cure Parkinson's
11 years ago
I'm asking on behalf of my mother - is it neccesary for her to first drink Carbilev for PD before going for the DBS operations? Meds no good
Dr said she must drink Carbilev for a month first before she can go for surgery??? But the meds is no good to her...??? Hate to sea her like this -
Dr said she must drink Carbilev for a month first before she can go for surgery??? But the meds is no good to her...??? Hate to sea her like this -
wilmiesmith
in
Cure Parkinson's
11 years ago
Has anyone else developed severe migraine since having meningitis?
I was seriously ill and hospitalised with Meningio-Encephalitis in August 2011. Over the past two years I have been experiencing regular 'episodes' that knock me out for 3-4 days at a time: extreme weakness, light and sound sensitivity, headaches, disorientation, no concentration, loss of balance, loss
I was seriously ill and hospitalised with Meningio-Encephalitis in August 2011. Over the past two years I have been experiencing regular 'episodes' that knock me out for 3-4 days at a time: extreme weakness, light and sound sensitivity, headaches, disorientation, no concentration, loss of balance, loss
Covenham
in
Meningitis Now
11 years ago
Director of DBS Clinical Research Development.. Department of Neurosurgery, Anatomy and Neurobiolology, University of Kentucky.
I had the most amazing experience last week! Just tell me...what are the chances that someone on this blog site would be in my clinic....sitting in front of me...having had consultations with me....going through DBS, with me sitting by their side every step of the way..there when it's all over? I would
I had the most amazing experience last week! Just tell me...what are the chances that someone on this blog site would be in my clinic....sitting in front of me...having had consultations with me....going through DBS, with me sitting by their side every step of the way..there when it's all over? I would
annh
in
Cure Parkinson's
11 years ago
My PMR started last year after flu jab I am due to have another next month and shingles jab, should I risk it?
Appleby
in
PMRGCAuk
11 years ago
After being diagnosed for 5 years, I'm facing DBS. Is there anyone who has regretted having it? I will be getting it at Barrow Neurological.
parkinsonspistol
in
Cure Parkinson's
11 years ago
Children?
Hi it has been a while since I have been on here.. guess been getting on with life as am 30 and was in shock for a while. Only found out because I have lyme disease. Well I have a little girl. . I was seeing what people think about having another with pbc? I think I am early as seen doctors and I
Hi it has been a while since I have been on here.. guess been getting on with life as am 30 and was in shock for a while. Only found out because I have lyme disease. Well I have a little girl. . I was seeing what people think about having another with pbc? I think I am early as seen doctors and I
melbourne
in
PBC Foundation
11 years ago
dbs
i got home from the hospital had dbs all went very well
i got home from the hospital had dbs all went very well
salon
in
Cure Parkinson's
11 years ago
i am scheduled for dbs on sept 13 and 16 any words of wisdom please advise
salon
in
Cure Parkinson's
11 years ago
Does having DBS reduce or eliminate the number of falls compared with before the operation?
A friend of mine has had DBS, but still falls, sometimes daily. Has anyone had the same experience, but eliminated falling by having the DBS 'adjusted' or by having had a change in their medication?
A friend of mine has had DBS, but still falls, sometimes daily. Has anyone had the same experience, but eliminated falling by having the DBS 'adjusted' or by having had a change in their medication?
Norton1
in
Cure Parkinson's
11 years ago
DBS for gait freezing
I don't have a tremor but suffer with gait freezing.I'm 70 and have been told I'm too old for DBS. Has anyone on this site had DBS for gait freezing and at what age did you have it?
I don't have a tremor but suffer with gait freezing.I'm 70 and have been told I'm too old for DBS. Has anyone on this site had DBS for gait freezing and at what age did you have it?
camper
in
Cure Parkinson's
11 years ago
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